Help - Bad breath after reintroducing casein

[Guest guest]

Because we have never tried removingeggs from Norman's diet, this was suggested and the only replacement forthe protein in eggs at breakfast that I could find would be dairyproducts.

>>Vianesse is a GFCFSF Lactalbumin protien shake, I give it to Sam neat in a little water but the nutritionist that recommended said it can be added to soups and stews, I use it to replace milk with creal for me

www.GFCFShakes.com

Mandi x

[Guest guest]

I've just had a look on the website, what is Lactalbumin protein, is it derived from egg protein?

>>Milk is made up from 80% Casein and 20% Whey.

Of the whey, 14% is Lactose, 4% is fat and 2% is Lactalbumin. Not sure what happened to the other 2% lol, I am reading this from somewhere else

Nothing to do with eggs

Mandi x

[Guest guest]

It does sound like it would be an answer for us except if it is an eggproduct. Haven't had a chance yet to google Lactalbumin protein. With giving 2-4 scoops a day, does the tin go a long way?

>>Would last about 10-14 days at that dosage

Mandi x

[Guest guest]

Hi everyone,

I hope that someone can shed some light on this.

Norman has been on a casein free diet for over one year but following

his recent biopsies which revealed increased eosinophils indicating

inflammation in the eosophagus and the rest of the upper bowel and with

failure to pick up what is causing the allergies from RAST tests. One

of Dr Fell's suggestions was that we could go down the road of

eliminating one food at a time and just maybe we might find the cause,

but he was not very hopeful. Because we have never tried removing

eggs from Norman's diet, this was suggested and the only replacement for

the protein in eggs at breakfast that I could find would be dairy

products.

So we reintroduced dairy, using sheep's milk yoghurt and cheese, it is

only 5 days since we started but his breath is so awful now. He used

to have this awful bad breath before we withdrew casein and when we went

casein free, his breath cleared up and his tongue which was previously

coated despite brushing cleared up as well. So it is quite clear that

dairy has something to do with the bad breath.

Other than seeing improvement in the breath whilst casein free, we

cannot say for certain that there was any other positives. He is

showing signs of increased seizure activity since we reintroduced dairy,

but I guess I have to monitor this more closely to say for certain.

When he was younger (3yrs old) we did the GFCF diet and it was clear

then that his behaviours changed from being a very weepy, clingy child

to a more settled one but more withdrawn.

Could this be an indication of some kind of intolerance or problems with

digesting the proteins or something else in dairy. I hope someone

can offer an explanation, has anyone else experienced this with their

child?

TIA,

emily

[Guest guest]

Hi

Not wanting to ask the obvious but is there any reason Norman can't have

meat? Also, is he taking any digestive enzymes? These may help if he's

having trouble with the lactose.

Best wishes

Tim

>

>

> Hi everyone,

>

> I hope that someone can shed some light on this.

>

> Norman has been on a casein free diet for over one year but following

> his recent biopsies which revealed increased eosinophils indicating

> inflammation in the eosophagus and the rest of the upper bowel and

with

> failure to pick up what is causing the allergies from RAST tests. One

> of Dr Fell's suggestions was that we could go down the road of

> eliminating one food at a time and just maybe we might find the cause,

> but he was not very hopeful. Because we have never tried removing

> eggs from Norman's diet, this was suggested and the only replacement

for

> the protein in eggs at breakfast that I could find would be dairy

> products.

>

> So we reintroduced dairy, using sheep's milk yoghurt and cheese, it is

> only 5 days since we started but his breath is so awful now. He used

> to have this awful bad breath before we withdrew casein and when we

went

> casein free, his breath cleared up and his tongue which was previously

> coated despite brushing cleared up as well. So it is quite clear that

> dairy has something to do with the bad breath.

>

> Other than seeing improvement in the breath whilst casein free, we

> cannot say for certain that there was any other positives. He is

> showing signs of increased seizure activity since we reintroduced

dairy,

> but I guess I have to monitor this more closely to say for certain.

> When he was younger (3yrs old) we did the GFCF diet and it was clear

> then that his behaviours changed from being a very weepy, clingy child

> to a more settled one but more withdrawn.

>

> Could this be an indication of some kind of intolerance or problems

with

> digesting the proteins or something else in dairy. I hope someone

> can offer an explanation, has anyone else experienced this with their

> child?

>

> TIA,

>

> emily

>

[Guest guest]

Hi

Not wanting to ask the obvious but is there any reason Norman can't have

meat? Also, is he taking any digestive enzymes? These may help if he's

having trouble with the lactose.

Best wishes

Tim

>

>

> Hi everyone,

>

> I hope that someone can shed some light on this.

>

> Norman has been on a casein free diet for over one year but following

> his recent biopsies which revealed increased eosinophils indicating

> inflammation in the eosophagus and the rest of the upper bowel and

with

> failure to pick up what is causing the allergies from RAST tests. One

> of Dr Fell's suggestions was that we could go down the road of

> eliminating one food at a time and just maybe we might find the cause,

> but he was not very hopeful. Because we have never tried removing

> eggs from Norman's diet, this was suggested and the only replacement

for

> the protein in eggs at breakfast that I could find would be dairy

> products.

>

> So we reintroduced dairy, using sheep's milk yoghurt and cheese, it is

> only 5 days since we started but his breath is so awful now. He used

> to have this awful bad breath before we withdrew casein and when we

went

> casein free, his breath cleared up and his tongue which was previously

> coated despite brushing cleared up as well. So it is quite clear that

> dairy has something to do with the bad breath.

>

> Other than seeing improvement in the breath whilst casein free, we

> cannot say for certain that there was any other positives. He is

> showing signs of increased seizure activity since we reintroduced

dairy,

> but I guess I have to monitor this more closely to say for certain.

> When he was younger (3yrs old) we did the GFCF diet and it was clear

> then that his behaviours changed from being a very weepy, clingy child

> to a more settled one but more withdrawn.

>

> Could this be an indication of some kind of intolerance or problems

with

> digesting the proteins or something else in dairy. I hope someone

> can offer an explanation, has anyone else experienced this with their

> child?

>

> TIA,

>

> emily

>

[Guest guest]

Hi Mandi,

I've just had a look on the website, what is Lactalbumin protein, is it

derived from egg protein?

It does sound like it would be an answer for us except if it is an egg

product. Haven't had a chance yet to google Lactalbumin protein.

With giving 2-4 scoops a day, does the tin go a long way?

Thanks very much,

emily xx

>

>

> In a message dated 17/01/2008 12:49:36 GMT Standard Time,

> emilyscorer@... writes:

>

> Because we have never tried removing

> eggs from Norman's diet, this was suggested and the only replacement

for

> the protein in eggs at breakfast that I could find would be dairy

> products.

>

>

>

> >>Vianesse is a GFCFSF Lactalbumin protien shake, I give it to Sam

neat in a

> little water but the nutritionist that recommended said it can be

added to

> soups and stews, I use it to replace milk with creal for me

>

> _www.GFCFShakes.com_ (http://www.GFCFShakes.com)

>

> Mandi x

>

[Guest guest]

Hi Mandi,

I've just had a look on the website, what is Lactalbumin protein, is it

derived from egg protein?

It does sound like it would be an answer for us except if it is an egg

product. Haven't had a chance yet to google Lactalbumin protein.

With giving 2-4 scoops a day, does the tin go a long way?

Thanks very much,

emily xx

>

>

> In a message dated 17/01/2008 12:49:36 GMT Standard Time,

> emilyscorer@... writes:

>

> Because we have never tried removing

> eggs from Norman's diet, this was suggested and the only replacement

for

> the protein in eggs at breakfast that I could find would be dairy

> products.

>

>

>

> >>Vianesse is a GFCFSF Lactalbumin protien shake, I give it to Sam

neat in a

> little water but the nutritionist that recommended said it can be

added to

> soups and stews, I use it to replace milk with creal for me

>

> _www.GFCFShakes.com_ (http://www.GFCFShakes.com)

>

> Mandi x

>

[Guest guest]

Hi Tim,

He does eat meat but is not very fond of it and it would be especially

difficult to give him meat first thing in the morning. He just about

manages tiny bits of ham. It is really his breakfast that is a

problem to find a sufficient source of protein. I'm very welcome to

any ideas.

We were using Peptizyde, Zyme Prime and No Fenol but stopped the enzymes

for a while when Norman experienced unexpected and severe haemoraghing

(sp?) following his endoscopies and biopsies. Not sure if this was a

wise decision to make, but I was so scared that I pulled out almost all

the supplements that we had been using including enzymes. It is

apparent now that the bleeding occured from an infection getting into

the lower biopsy but I thought that the enzymes may exacerbate the

bleeding, don't know if that is possible. I have just restarted

Peptizyde at 1 capsule per meal, not sure if we may need more

.........hope that it does the trick!

thanks for replying,

emily

> >

> >

> > Hi everyone,

> >

> > I hope that someone can shed some light on this.

> >

> > Norman has been on a casein free diet for over one year but

following

> > his recent biopsies which revealed increased eosinophils indicating

> > inflammation in the eosophagus and the rest of the upper bowel and

> with

> > failure to pick up what is causing the allergies from RAST tests.

One

> > of Dr Fell's suggestions was that we could go down the road of

> > eliminating one food at a time and just maybe we might find the

cause,

> > but he was not very hopeful. Because we have never tried removing

> > eggs from Norman's diet, this was suggested and the only replacement

> for

> > the protein in eggs at breakfast that I could find would be dairy

> > products.

> >

> > So we reintroduced dairy, using sheep's milk yoghurt and cheese, it

is

> > only 5 days since we started but his breath is so awful now. He used

> > to have this awful bad breath before we withdrew casein and when we

> went

> > casein free, his breath cleared up and his tongue which was

previously

> > coated despite brushing cleared up as well. So it is quite clear

that

> > dairy has something to do with the bad breath.

> >

> > Other than seeing improvement in the breath whilst casein free, we

> > cannot say for certain that there was any other positives. He is

> > showing signs of increased seizure activity since we reintroduced

> dairy,

> > but I guess I have to monitor this more closely to say for certain.

> > When he was younger (3yrs old) we did the GFCF diet and it was clear

> > then that his behaviours changed from being a very weepy, clingy

child

> > to a more settled one but more withdrawn.

> >

> > Could this be an indication of some kind of intolerance or problems

> with

> > digesting the proteins or something else in dairy. I hope someone

> > can offer an explanation, has anyone else experienced this with

their

> > child?

> >

> > TIA,

> >

> > emily

> >

>

[Guest guest]

Hi Mandi,

Ok, done my homework on google and see that it is not from egg -

YEAH! This will be so great for Norman (but not for my pocket), have

to look at the products and place my order soon.

thanks,

emily xx

> >

> >

> > In a message dated 17/01/2008 12:49:36 GMT Standard Time,

> > emilyscorer@ writes:

> >

> > Because we have never tried removing

> > eggs from Norman's diet, this was suggested and the only replacement

> for

> > the protein in eggs at breakfast that I could find would be dairy

> > products.

> >

> >

> >

> > >>Vianesse is a GFCFSF Lactalbumin protien shake, I give it to Sam

> neat in a

> > little water but the nutritionist that recommended said it can be

> added to

> > soups and stews, I use it to replace milk with creal for me

> >

> > _www.GFCFShakes.com_ (http://www.GFCFShakes.com)

> >

> > Mandi x

> >

>

[Guest guest]

I

don’t know but it’s definitely not good!

-----Original

Message-----

From: Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] On Behalf Of Scorer

Sent: 17 January 2008 12:49

To:

Autism-Biomedical-Europe

Subject:

Help - Bad breath after reintroducing casein

Hi everyone,

I hope that someone can shed some light on this.

Norman has been on a casein free diet for over one year but following

his recent biopsies which revealed increased eosinophils indicating

inflammation in the eosophagus and the rest of the upper bowel and with

failure to pick up what is causing the allergies from RAST tests. One

of Dr Fell's suggestions was that we could go down the road of

eliminating one food at a time and just maybe we might find the cause,

but he was not very hopeful. Because we have never tried removing

eggs from Norman's diet, this was suggested and the only replacement for

the protein in eggs at breakfast that I could find would be dairy

products.

So we reintroduced dairy, using sheep's milk yoghurt and cheese, it is

only 5 days since we started but his breath is so awful now. He used

to have this awful bad breath before we withdrew casein and when we went

casein free, his breath cleared up and his tongue which was previously

coated despite brushing cleared up as well. So it is quite clear that

dairy has something to do with the bad breath.

Other than seeing improvement in the breath whilst casein free, we

cannot say for certain that there was any other positives. He is

showing signs of increased seizure activity since we reintroduced dairy,

but I guess I have to monitor this more closely to say for certain.

When he was younger (3yrs old) we did the GFCF diet and it was clear

then that his behaviours changed from being a very weepy, clingy child

to a more settled one but more withdrawn.

Could this be an indication of some kind of intolerance or problems with

digesting the proteins or something else in dairy. I hope someone

can offer an explanation, has anyone else experienced this with their

child?

TIA,

emily

[Guest guest]

Hi

We had this when we tried to reintroduce casein in the form of goats cheese, after we had been casein free for a couple of years. I just felt that it meant that he wasn't digesting it properly and so pulled it. However we waited another 2 years and tried again and no problems and we have introduced all goats milk products now and occasional cows cheese or yoghurt made from cows milk with no issues. I'm hoping this means his gut has healed.

Kay

RE: Help - Bad breath after reintroducing casein

I don’t know but it’s definitely not good!

-----Original Message-----From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of ScorerSent: 17 January 2008 12:49To: Autism-Biomedical-Europe Subject: Help - Bad breath after reintroducing casein

Hi everyone,I hope that someone can shed some light on this.Norman has been on a casein free diet for over one year but followinghis recent biopsies which revealed increased eosinophils indicatinginflammation in the eosophagus and the rest of the upper bowel and withfailure to pick up what is causing the allergies from RAST tests. Oneof Dr Fell's suggestions was that we could go down the road ofeliminating one food at a time and just maybe we might find the cause,but he was not very hopeful. Because we have never tried removingeggs from Norman's diet, this was suggested and the only replacement forthe protein in eggs at breakfast that I could find would be dairyproducts.So we reintroduced dairy, using sheep's milk yoghurt and cheese, it isonly 5 days since we started but his breath is so awful now. He usedto have this awful bad breath before we withdrew casein and when we wentcasein free, his breath cleared up and his tongue which was previouslycoated despite brushing cleared up as well. So it is quite clear thatdairy has something to do with the bad breath.Other than seeing improvement in the breath whilst casein free, wecannot say for certain that there was any other positives. He is showing signs of increased seizure activity since we reintroduced dairy,but I guess I have to monitor this more closely to say for certain. When he was younger (3yrs old) we did the GFCF diet and it was clearthen that his behaviours changed from being a very weepy, clingy childto a more settled one but more withdrawn.Could this be an indication of some kind of intolerance or problems withdigesting the proteins or something else in dairy. I hope someonecan offer an explanation, has anyone else experienced this with theirchild?TIA,emily

[Guest guest]

Hi Kay,

Thanks for your reply, sounds the reactions are similar and is most

definitely our problem here then but at least there is a chance of hope

that Norman might tolerate it later on, if his gut heals.

Are you using the enzymes with the dairy products and if so, do you

think they have also contributed to your child's tolerance?

Think for now I will continue the dairy for a couple moe days but build

in the enzymes and see what happens. I will also order the protein

shake from Mandi as something to fall back on if problems persist.

Thanks again for sharing your experience with this, it really does help.

emily xx

>

> Hi

>

> We had this when we tried to reintroduce casein in the form of goats

cheese, after we had been casein free for a couple of years. I just felt

that it meant that he wasn't digesting it properly and so pulled it.

However we waited another 2 years and tried again and no problems and we

have introduced all goats milk products now and occasional cows cheese

or yoghurt made from cows milk with no issues. I'm hoping this means his

gut has healed.

>

> Kay

> Help - Bad breath after

reintroducing casein

>

>

>

>

> Hi everyone,

>

> I hope that someone can shed some light on this.

>

> Norman has been on a casein free diet for over one year but following

> his recent biopsies which revealed increased eosinophils indicating

> inflammation in the eosophagus and the rest of the upper bowel and

with

> failure to pick up what is causing the allergies from RAST tests. One

> of Dr Fell's suggestions was that we could go down the road of

> eliminating one food at a time and just maybe we might find the cause,

> but he was not very hopeful. Because we have never tried removing

> eggs from Norman's diet, this was suggested and the only replacement

for

> the protein in eggs at breakfast that I could find would be dairy

> products.

>

> So we reintroduced dairy, using sheep's milk yoghurt and cheese, it is

> only 5 days since we started but his breath is so awful now. He used

> to have this awful bad breath before we withdrew casein and when we

went

> casein free, his breath cleared up and his tongue which was previously

> coated despite brushing cleared up as well. So it is quite clear that

> dairy has something to do with the bad breath.

>

> Other than seeing improvement in the breath whilst casein free, we

> cannot say for certain that there was any other positives. He is

> showing signs of increased seizure activity since we reintroduced

dairy,

> but I guess I have to monitor this more closely to say for certain.

> When he was younger (3yrs old) we did the GFCF diet and it was clear

> then that his behaviours changed from being a very weepy, clingy child

> to a more settled one but more withdrawn.

>

> Could this be an indication of some kind of intolerance or problems

with

> digesting the proteins or something else in dairy. I hope someone

> can offer an explanation, has anyone else experienced this with their

> child?

>

> TIA,

>

> emily

>

[Guest guest]

Hi Kay,

Thanks for your reply, sounds the reactions are similar and is most

definitely our problem here then but at least there is a chance of hope

that Norman might tolerate it later on, if his gut heals.

Are you using the enzymes with the dairy products and if so, do you

think they have also contributed to your child's tolerance?

Think for now I will continue the dairy for a couple moe days but build

in the enzymes and see what happens. I will also order the protein

shake from Mandi as something to fall back on if problems persist.

Thanks again for sharing your experience with this, it really does help.

emily xx

>

> Hi

>

> We had this when we tried to reintroduce casein in the form of goats

cheese, after we had been casein free for a couple of years. I just felt

that it meant that he wasn't digesting it properly and so pulled it.

However we waited another 2 years and tried again and no problems and we

have introduced all goats milk products now and occasional cows cheese

or yoghurt made from cows milk with no issues. I'm hoping this means his

gut has healed.

>

> Kay

> Help - Bad breath after

reintroducing casein

>

>

>

>

> Hi everyone,

>

> I hope that someone can shed some light on this.

>

> Norman has been on a casein free diet for over one year but following

> his recent biopsies which revealed increased eosinophils indicating

> inflammation in the eosophagus and the rest of the upper bowel and

with

> failure to pick up what is causing the allergies from RAST tests. One

> of Dr Fell's suggestions was that we could go down the road of

> eliminating one food at a time and just maybe we might find the cause,

> but he was not very hopeful. Because we have never tried removing

> eggs from Norman's diet, this was suggested and the only replacement

for

> the protein in eggs at breakfast that I could find would be dairy

> products.

>

> So we reintroduced dairy, using sheep's milk yoghurt and cheese, it is

> only 5 days since we started but his breath is so awful now. He used

> to have this awful bad breath before we withdrew casein and when we

went

> casein free, his breath cleared up and his tongue which was previously

> coated despite brushing cleared up as well. So it is quite clear that

> dairy has something to do with the bad breath.

>

> Other than seeing improvement in the breath whilst casein free, we

> cannot say for certain that there was any other positives. He is

> showing signs of increased seizure activity since we reintroduced

dairy,

> but I guess I have to monitor this more closely to say for certain.

> When he was younger (3yrs old) we did the GFCF diet and it was clear

> then that his behaviours changed from being a very weepy, clingy child

> to a more settled one but more withdrawn.

>

> Could this be an indication of some kind of intolerance or problems

with

> digesting the proteins or something else in dairy. I hope someone

> can offer an explanation, has anyone else experienced this with their

> child?

>

> TIA,

>

> emily

>

[Guest guest]

Hi Mandi,

Thanks, this sounds great and well worth putting in an order. I'll be

sending in one soon.

emily xx

>

>

> In a message dated 17/01/2008 13:31:22 GMT Standard Time,

> emilyscorer@... writes:

>

> It does sound like it would be an answer for us except if it is an egg

> product. Haven't had a chance yet to google Lactalbumin protein.

> With giving 2-4 scoops a day, does the tin go a long way?

>

>

>

> >>Would last about 10-14 days at that dosage

>

> Mandi x

>

[Guest guest]

Hi Mandi,

Thanks, this sounds great and well worth putting in an order. I'll be

sending in one soon.

emily xx

>

>

> In a message dated 17/01/2008 13:31:22 GMT Standard Time,

> emilyscorer@... writes:

>

> It does sound like it would be an answer for us except if it is an egg

> product. Haven't had a chance yet to google Lactalbumin protein.

> With giving 2-4 scoops a day, does the tin go a long way?

>

>

>

> >>Would last about 10-14 days at that dosage

>

> Mandi x

>

[Guest guest]

Hi

Other protein ideas that work for us are home-made goats milk yoghurt

(SCD-style) and kefir. I don't get along well with dairy myself but

have been fine on these. Also, allergy permitting, nuts. They should

be soaked and can be eaten whole or blended into milks, creams,

" cheeses " or baked into fake breads and biscuits. We don't bother

baking with them but do eat them whole and in " butter " form.

Best wishes

Tim

> > >

> > >

> > > Hi everyone,

> > >

> > > I hope that someone can shed some light on this.

> > >

> > > Norman has been on a casein free diet for over one year but

> following

> > > his recent biopsies which revealed increased eosinophils indicating

> > > inflammation in the eosophagus and the rest of the upper bowel and

> > with

> > > failure to pick up what is causing the allergies from RAST tests.

> One

> > > of Dr Fell's suggestions was that we could go down the road of

> > > eliminating one food at a time and just maybe we might find the

> cause,

> > > but he was not very hopeful. Because we have never tried removing

> > > eggs from Norman's diet, this was suggested and the only replacement

> > for

> > > the protein in eggs at breakfast that I could find would be dairy

> > > products.

> > >

> > > So we reintroduced dairy, using sheep's milk yoghurt and cheese, it

> is

> > > only 5 days since we started but his breath is so awful now. He used

> > > to have this awful bad breath before we withdrew casein and when we

> > went

> > > casein free, his breath cleared up and his tongue which was

> previously

> > > coated despite brushing cleared up as well. So it is quite clear

> that

> > > dairy has something to do with the bad breath.

> > >

> > > Other than seeing improvement in the breath whilst casein free, we

> > > cannot say for certain that there was any other positives. He is

> > > showing signs of increased seizure activity since we reintroduced

> > dairy,

> > > but I guess I have to monitor this more closely to say for certain.

> > > When he was younger (3yrs old) we did the GFCF diet and it was clear

> > > then that his behaviours changed from being a very weepy, clingy

> child

> > > to a more settled one but more withdrawn.

> > >

> > > Could this be an indication of some kind of intolerance or problems

> > with

> > > digesting the proteins or something else in dairy. I hope someone

> > > can offer an explanation, has anyone else experienced this with

> their

> > > child?

> > >

> > > TIA,

> > >

> > > emily

> > >

> >

>

[Guest guest]

Hi

Yes we use all 3 houston Enzymes with all meals but not snacks and have done so for 2 years. With the occassional introduction of cow's yoghurt and or cheese I have given double AFP. So yes I am almost certain the Enzymes have improved his gut.

Kay.

Help - Bad breath afterreintroducing casein>>>>> Hi everyone,>> I hope that someone can shed some light on this.>> Norman has been on a casein free diet for over one year but following> his recent biopsies which revealed increased eosinophils indicating> inflammation in the eosophagus and the rest of the upper bowel andwith> failure to pick up what is causing the allergies from RAST tests. One> of Dr Fell's suggestions was that we could go down the road of> eliminating one food at a time and just maybe we might find the cause,> but he was not very hopeful. Because we have never tried removing> eggs from Norman's diet, this was suggested and the only replacementfor> the protein in eggs at breakfast that I could find would be dairy> products.>> So we reintroduced dairy, using sheep's milk yoghurt and cheese, it is> only 5 days since we started but his breath is so awful now. He used> to have this awful bad breath before we withdrew casein and when wewent> casein free, his breath cleared up and his tongue which was previously> coated despite brushing cleared up as well. So it is quite clear that> dairy has something to do with the bad breath.>> Other than seeing improvement in the breath whilst casein free, we> cannot say for certain that there was any other positives. He is> showing signs of increased seizure activity since we reintroduceddairy,> but I guess I have to monitor this more closely to say for certain.> When he was younger (3yrs old) we did the GFCF diet and it was clear> then that his behaviours changed from being a very weepy, clingy child> to a more settled one but more withdrawn.>> Could this be an indication of some kind of intolerance or problemswith> digesting the proteins or something else in dairy. I hope someone> can offer an explanation, has anyone else experienced this with their> child?>> TIA,>> emily>

[Guest guest]

A bit confused here is Peptizyde the equivalent of AFP but thedifference being AFP is not fruit derived?

>>>>Correct

Mandi, would the Peptizyde work equally as well as the AFP?

>>I've always been a Peptizyde girl because thats all there was when we started, worked very well for us

Mandi x

[Guest guest]

Hi Kay,

This is very helpful to know, thanks.

A bit confused here is Peptizyde the equivalent of AFP but the

difference being AFP is not fruit derived?

Mandi, would the Peptizyde work equally as well as the AFP?

emily xx

> >

> > Hi

> >

> > We had this when we tried to reintroduce casein in the form of goats

> cheese, after we had been casein free for a couple of years. I just

felt

> that it meant that he wasn't digesting it properly and so pulled it.

> However we waited another 2 years and tried again and no problems and

we

> have introduced all goats milk products now and occasional cows cheese

> or yoghurt made from cows milk with no issues. I'm hoping this means

his

> gut has healed.

> >

> > Kay

> > Help - Bad breath after

> reintroducing casein

> >

> >

> >

> >

> > Hi everyone,

> >

> > I hope that someone can shed some light on this.

> >

> > Norman has been on a casein free diet for over one year but

following

> > his recent biopsies which revealed increased eosinophils indicating

> > inflammation in the eosophagus and the rest of the upper bowel and

> with

> > failure to pick up what is causing the allergies from RAST tests.

One

> > of Dr Fell's suggestions was that we could go down the road of

> > eliminating one food at a time and just maybe we might find the

cause,

> > but he was not very hopeful. Because we have never tried removing

> > eggs from Norman's diet, this was suggested and the only replacement

> for

> > the protein in eggs at breakfast that I could find would be dairy

> > products.

> >

> > So we reintroduced dairy, using sheep's milk yoghurt and cheese, it

is

> > only 5 days since we started but his breath is so awful now. He used

> > to have this awful bad breath before we withdrew casein and when we

> went

> > casein free, his breath cleared up and his tongue which was

previously

> > coated despite brushing cleared up as well. So it is quite clear

that

> > dairy has something to do with the bad breath.

> >

> > Other than seeing improvement in the breath whilst casein free, we

> > cannot say for certain that there was any other positives. He is

> > showing signs of increased seizure activity since we reintroduced

> dairy,

> > but I guess I have to monitor this more closely to say for certain.

> > When he was younger (3yrs old) we did the GFCF diet and it was clear

> > then that his behaviours changed from being a very weepy, clingy

child

> > to a more settled one but more withdrawn.

> >

> > Could this be an indication of some kind of intolerance or problems

> with

> > digesting the proteins or something else in dairy. I hope someone

> > can offer an explanation, has anyone else experienced this with

their

> > child?

> >

> > TIA,

> >

> > emily

> >

>

[Guest guest]

Hi Tim,

These are really brilliant ideas, don't know why I didn't think of

trying Kefir especially since I already do it for myself (but I've been

using organic cow's milk). In fact I have to take this opportunity to

thank you and Sandy for the Kefir grains, I have been really enjoying it

and look forward to my glass each morning.

I'll buy some goats milk for the kefir and try my hand at SCD yoghurt,

though have not seen any organic goats milk, does this exist from the

supermarket? Actually whilst on the subject of kefir, do you know if

there would be any benefit in terms of providing good bacteria by eating

some of the kefir grains? I have been doing my kefir and before I

start a new batch of kefir I wash to remove any casein residue and give

it to Norman. Is this beneficial at all in repopulating the gut?

I'd verry much like to do the nut and nut butters, but have so far

steered clear because of high oxalates! Not actually sure if there is

a nut which would be okay on LOD, any ideas?

This has really been helpful, thanks very much.

emily

> > > >

> > > >

> > > > Hi everyone,

> > > >

> > > > I hope that someone can shed some light on this.

> > > >

> > > > Norman has been on a casein free diet for over one year but

> > following

> > > > his recent biopsies which revealed increased eosinophils

indicating

> > > > inflammation in the eosophagus and the rest of the upper bowel

and

> > > with

> > > > failure to pick up what is causing the allergies from RAST

tests.

> > One

> > > > of Dr Fell's suggestions was that we could go down the road of

> > > > eliminating one food at a time and just maybe we might find the

> > cause,

> > > > but he was not very hopeful. Because we have never tried

removing

> > > > eggs from Norman's diet, this was suggested and the only

replacement

> > > for

> > > > the protein in eggs at breakfast that I could find would be

dairy

> > > > products.

> > > >

> > > > So we reintroduced dairy, using sheep's milk yoghurt and cheese,

it

> > is

> > > > only 5 days since we started but his breath is so awful now. He

used

> > > > to have this awful bad breath before we withdrew casein and when

we

> > > went

> > > > casein free, his breath cleared up and his tongue which was

> > previously

> > > > coated despite brushing cleared up as well. So it is quite clear

> > that

> > > > dairy has something to do with the bad breath.

> > > >

> > > > Other than seeing improvement in the breath whilst casein free,

we

> > > > cannot say for certain that there was any other positives. He is

> > > > showing signs of increased seizure activity since we

reintroduced

> > > dairy,

> > > > but I guess I have to monitor this more closely to say for

certain.

> > > > When he was younger (3yrs old) we did the GFCF diet and it was

clear

> > > > then that his behaviours changed from being a very weepy, clingy

> > child

> > > > to a more settled one but more withdrawn.

> > > >

> > > > Could this be an indication of some kind of intolerance or

problems

> > > with

> > > > digesting the proteins or something else in dairy. I hope

someone

> > > > can offer an explanation, has anyone else experienced this with

> > their

> > > > child?

> > > >

> > > > TIA,

> > > >

> > > > emily

> > > >

> > >

> >

>

[Guest guest]

Cheers Mandi.

emilyx

>

> In a message dated 18/01/2008 20:27:13 GMT Standard Time,

> emilyscorer@... writes:

>

> A bit confused here is Peptizyde the equivalent of AFP but the

> difference being AFP is not fruit derived?

> >>>>Correct

>

>

>

> Mandi, would the Peptizyde work equally as well as the AFP?

>

> >>I've always been a Peptizyde girl because thats all there was when

we

> started, worked very well for us

>

> Mandi x

>

[Guest guest]

Hi

I'm really pleased you're enjoying the kefir! We use frozen

unpasturised organic goats milk from our local health food shop for

ours. You may be able to find something similar locally or online but

I doubt you'd see it in any supermarket. We do compromise and use non-

organic goats milk for our yoghurt; the unpasturised milk never

worked for us for some reason.

Regarding the kefir grains, I'm certain they are a really good source

of good bacteria. I just checked my fermentation bible " Wild

Fermentation " by Sandor Katz (highly recommended) and he says " ...You

can eat the extras, toss them in the compost, give them away to your

friends or use them to try culturing other things... " . They are,

apparently, " very versatile " !

With nuts, we use them in moderation. We think that oxalates

definitely become an issue if you are using nuts as a flour

substitute and eating lots of pecan-bread, cookies, etc. But as an

occasional snack, or just a few with a meal, they are working really

well for us.

Best wishes

Tim

> > > > >

> > > > >

> > > > > Hi everyone,

> > > > >

> > > > > I hope that someone can shed some light on this.

> > > > >

> > > > > Norman has been on a casein free diet for over one year but

> > > following

> > > > > his recent biopsies which revealed increased eosinophils

> indicating

> > > > > inflammation in the eosophagus and the rest of the upper

bowel

> and

> > > > with

> > > > > failure to pick up what is causing the allergies from RAST

> tests.

> > > One

> > > > > of Dr Fell's suggestions was that we could go down the road

of

> > > > > eliminating one food at a time and just maybe we might find

the

> > > cause,

> > > > > but he was not very hopeful. Because we have never tried

> removing

> > > > > eggs from Norman's diet, this was suggested and the only

> replacement

> > > > for

> > > > > the protein in eggs at breakfast that I could find would be

> dairy

> > > > > products.

> > > > >

> > > > > So we reintroduced dairy, using sheep's milk yoghurt and

cheese,

> it

> > > is

> > > > > only 5 days since we started but his breath is so awful

now. He

> used

> > > > > to have this awful bad breath before we withdrew casein and

when

> we

> > > > went

> > > > > casein free, his breath cleared up and his tongue which was

> > > previously

> > > > > coated despite brushing cleared up as well. So it is quite

clear

> > > that

> > > > > dairy has something to do with the bad breath.

> > > > >

> > > > > Other than seeing improvement in the breath whilst casein

free,

> we

> > > > > cannot say for certain that there was any other positives.

He is

> > > > > showing signs of increased seizure activity since we

> reintroduced

> > > > dairy,

> > > > > but I guess I have to monitor this more closely to say for

> certain.

> > > > > When he was younger (3yrs old) we did the GFCF diet and it

was

> clear

> > > > > then that his behaviours changed from being a very weepy,

clingy

> > > child

> > > > > to a more settled one but more withdrawn.

> > > > >

> > > > > Could this be an indication of some kind of intolerance or

> problems

> > > > with

> > > > > digesting the proteins or something else in dairy. I hope

> someone

> > > > > can offer an explanation, has anyone else experienced this

with

> > > their

> > > > > child?

> > > > >

> > > > > TIA,

> > > > >

> > > > > emily

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thanks, for this Tim. Will seach for some of that organic goats milk.

best wishes, emily

> > > > > >

> > > > > >

> > > > > > Hi everyone,

> > > > > >

> > > > > > I hope that someone can shed some light on this.

> > > > > >

> > > > > > Norman has been on a casein free diet for over one year but

> > > > following

> > > > > > his recent biopsies which revealed increased eosinophils

> > indicating

> > > > > > inflammation in the eosophagus and the rest of the upper

> bowel

> > and

> > > > > with

> > > > > > failure to pick up what is causing the allergies from RAST

> > tests.

> > > > One

> > > > > > of Dr Fell's suggestions was that we could go down the road

> of

> > > > > > eliminating one food at a time and just maybe we might find

> the

> > > > cause,

> > > > > > but he was not very hopeful. Because we have never tried

> > removing

> > > > > > eggs from Norman's diet, this was suggested and the only

> > replacement

> > > > > for

> > > > > > the protein in eggs at breakfast that I could find would be

> > dairy

> > > > > > products.

> > > > > >

> > > > > > So we reintroduced dairy, using sheep's milk yoghurt and

> cheese,

> > it

> > > > is

> > > > > > only 5 days since we started but his breath is so awful

> now. He

> > used

> > > > > > to have this awful bad breath before we withdrew casein and

> when

> > we

> > > > > went

> > > > > > casein free, his breath cleared up and his tongue which was

> > > > previously

> > > > > > coated despite brushing cleared up as well. So it is quite

> clear

> > > > that

> > > > > > dairy has something to do with the bad breath.

> > > > > >

> > > > > > Other than seeing improvement in the breath whilst casein

> free,

> > we

> > > > > > cannot say for certain that there was any other positives.

> He is

> > > > > > showing signs of increased seizure activity since we

> > reintroduced

> > > > > dairy,

> > > > > > but I guess I have to monitor this more closely to say for

> > certain.

> > > > > > When he was younger (3yrs old) we did the GFCF diet and it

> was

> > clear

> > > > > > then that his behaviours changed from being a very weepy,

> clingy

> > > > child

> > > > > > to a more settled one but more withdrawn.

> > > > > >

> > > > > > Could this be an indication of some kind of intolerance or

> > problems

> > > > > with

> > > > > > digesting the proteins or something else in dairy. I hope

> > someone

> > > > > > can offer an explanation, has anyone else experienced this

> with

> > > > their

> > > > > > child?

> > > > > >

> > > > > > TIA,

> > > > > >

> > > > > > emily

> > > > > >

> > > > >

> > > >

> > >

> >

>