Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Oh I am so happy for Olivia and you too. I know this will be such a relief for you both. I will be thinking about you guys and praying things go well. Keep us posted. Take care, Tasha heather@... wrote: Just got a call from SLC and they can get Liv on the surgery schedule Feb. 28th!!! I am so relieved, because her rods are on the move. We will head out this week. Hooray! I never thought I'de be excited about such a difficult surgery, but this waiting and watching the rods continue to erode through her ribs was killing me. I am so happy. HRH --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 , Thanks for sharing the great news. Surgery sooner than later is a good thing right now. Will it be done at PCMC or Shriners? Travel safe! Leave the cold and snow in CO please. I'm done with it. Carmell Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 17, GERD, and Braydon 12, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient #137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies, missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96, 1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, valgus deformity, GERD, Gastroparesis, SUA, etc. http://carmellb-ivil.tripod.com/myfamily/ Congenital scoliosis support group http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/ --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 What a blessing..I " ll call you soon. Hugs, and Evan heather@... wrote: Just got a call from SLC and they can get Liv on the surgery schedule Feb. 28th!!! I am so relieved, because her rods are on the move. We will head out this week. Hooray! I never thought I'de be excited about such a difficult surgery, but this waiting and watching the rods continue to erode through her ribs was killing me. I am so happy. HRH --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hi Heath - Yep, bitter-sweet news. Am glad that you have a date, waiting is the hardest! I'm interested in how these VEPTR 11's will work. Are they going to stay attached to the pelvis? Please add any info as you get it... I've just fedex'ed Siobhan's latest x-rays down to SLC - She can't get rid of the pain. As a mum and NOT a doc, I think her rotation is pushing the rods, which is making it painful for her - A slow migration - Fingers crossed they hold until July!!!!! Sending lots of hugs to Liv, and you too. We leave to Florida tomorrow, will call you when we get back. Jacki > > Just got a call from SLC and they can get Liv on the surgery schedule > Feb. 28th!!! I am so relieved, because her rods are on the move. We > will head out this week. > Hooray! I never thought I'de be excited about such a difficult surgery, > but this waiting and watching the rods continue to erode through her ribs > was killing me. I am so happy. > HRH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 YEA!!! We will keep you both in our prayers! ________________________________ From: infantile_scoliosis [mailto:infantile_scoliosis ] On Behalf Of heather@... Sent: Tuesday, February 19, 2008 11:47 AM To: infantile_scoliosis Subject: great news! Just got a call from SLC and they can get Liv on the surgery schedule Feb. 28th!!! I am so relieved, because her rods are on the move. We will head out this week. Hooray! I never thought I'de be excited about such a difficult surgery, but this waiting and watching the rods continue to erode through her ribs was killing me. I am so happy. HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 , So glad to hear they are able to help her sooner. You will both be in my prayers and wishing you the best!! great news! Just got a call from SLC and they can get Liv on the surgery schedule Feb. 28th!!! I am so relieved, because her rods are on the move. We will head out this week. Hooray! I never thought I'de be excited about such a difficult surgery, but this waiting and watching the rods continue to erode through her ribs was killing me. I am so happy. HRH Quote Link to comment Share on other sites More sharing options...
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