Re: Update on Haley...home from B'ham

[Guest guest]

Hi Misty,

First enjoy all those cast-free hugs! And fun in the bathtub.

We never had the exact same problem and 's spine was somewhat flexible, but

after his 2nd cast, he basically stayed the same. He was at 19-21 for cast 3,4

and 5. His 6th and final cast got him down to 15. After that he started

wearing his brace. Only because the cast was not doing any more for him. Plus

his doctor felt like it was time to see what his spine would/could do.

How many casts has Haley had now? Feel good about it all if Dr. Khoury still

has hope for casting.

Keep us posted on things.

Hang in there.

Tasha

mistyhld wrote: Hi Everyone,

I posted Tuesday about us heading back to B'ham so Dr.Khoury could

look at Haley's cast. I thought it was too short.

Dr. Khoury looked at the cast and said that it seemed to have a good

anchor around her pelvis but he still wanted an x-ray. When we left

the hospital 2 weeks ago he said the cast was holding her at 20

degrees. The x-ray he took Wednesday showed it was holding her at 22

degrees. He debated about what to do...if he should leave the cast on

her 2-3 more weeeks, or take the cast off and let her have 2 weeks

without it. ***He was not super excited about her curve out of cast

being 26 degrees, and the cast only holding her at 22 degrees. He

basically said that the cast wasn't doing a whole lot for her, with

only 4 degrees difference. He HOPES that the 2 weeks of freedom will

loosen her spine up a bit, and that he will get her below 20 degrees

in the next cast.(The lowest # in cast she's ever been at is 20

degrees) We are HOPING this works for her. He always stresses to us

just how rigid her spine is and that he pushes it as far as he can

with each cast. Has anyone else ever experienced this...where you

can't get past a certain # in cast? He said her rotation is " not bad "

Then Dr. Khoury discussed bracing with us. Then he sat there a minute

and said never mind, that he wasn't quite ready to give up (casting)

on Haley. So, maybe he still has high hopes for her??? Any thoughts?

Misty and Haley

---------------------------------

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[Guest guest]

Hi Tasha,

we are REALLY enjoying snuggle time and LOTS of hugs. I can hardly get her out

of the bath without her screaming! She is loving her freedom. She looks so

different.

This is will be Haley's 5th Mehta cast.

Thanks so much

Misty

Tasha Fontenot wrote: Hi

Misty,

First enjoy all those cast-free hugs! And fun in the bathtub.

We never had the exact same problem and 's spine was somewhat flexible, but

after his 2nd cast, he basically stayed the same. He was at 19-21 for cast 3,4

and 5. His 6th and final cast got him down to 15. After that he started

wearing his brace. Only because the cast was not doing any more for him. Plus

his doctor felt like it was time to see what his spine would/could do.

How many casts has Haley had now? Feel good about it all if Dr. Khoury still

has hope for casting.

Keep us posted on things.

Hang in there.

Tasha

mistyhld wrote: Hi Everyone,

I posted Tuesday about us heading back to B'ham so Dr.Khoury could

look at Haley's cast. I thought it was too short.

Dr. Khoury looked at the cast and said that it seemed to have a good

anchor around her pelvis but he still wanted an x-ray. When we left

the hospital 2 weeks ago he said the cast was holding her at 20

degrees. The x-ray he took Wednesday showed it was holding her at 22

degrees. He debated about what to do...if he should leave the cast on

her 2-3 more weeeks, or take the cast off and let her have 2 weeks

without it. ***He was not super excited about her curve out of cast

being 26 degrees, and the cast only holding her at 22 degrees. He

basically said that the cast wasn't doing a whole lot for her, with

only 4 degrees difference. He HOPES that the 2 weeks of freedom will

loosen her spine up a bit, and that he will get her below 20 degrees

in the next cast.(The lowest # in cast she's ever been at is 20

degrees) We are HOPING this works for her. He always stresses to us

just how rigid her spine is and that he pushes it as far as he can

with each cast. Has anyone else ever experienced this...where you

can't get past a certain # in cast? He said her rotation is " not bad "

Then Dr. Khoury discussed bracing with us. Then he sat there a minute

and said never mind, that he wasn't quite ready to give up (casting)

on Haley. So, maybe he still has high hopes for her??? Any thoughts?

Misty and Haley

---------------------------------

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[Guest guest]

Hi Misty,

Sorry for the late response, but I am so behind on email! I would have to say I

think if Dr Khoury wants to keep trying with casting, then he is hopeful that it

will work for Haley. As you know, he's not one to sugar coat things. I'm sorry

that cast wasn't helping, since you probably feel like you're losing time, but I

hope this time out of cast will help and she'll get some good results with the

next one! At the very least, you are so lucky to be enjoying your child without

her turtle shell for a while!

Good luck!

, Mommy to Todd

Update on Haley...home from B'ham

Hi Everyone,

I posted Tuesday about us heading back to B'ham so Dr.Khoury could

look at Haley's cast. I thought it was too short.

Dr. Khoury looked at the cast and said that it seemed to have a good

anchor around her pelvis but he still wanted an x-ray. When we left

the hospital 2 weeks ago he said the cast was holding her at 20

degrees. The x-ray he took Wednesday showed it was holding her at 22

degrees. He debated about what to do...if he should leave the cast on

her 2-3 more weeeks, or take the cast off and let her have 2 weeks

without it. ***He was not super excited about her curve out of cast

being 26 degrees, and the cast only holding her at 22 degrees. He

basically said that the cast wasn't doing a whole lot for her, with

only 4 degrees difference. He HOPES that the 2 weeks of freedom will

loosen her spine up a bit, and that he will get her below 20 degrees

in the next cast.(The lowest # in cast she's ever been at is 20

degrees) We are HOPING this works for her. He always stresses to us

just how rigid her spine is and that he pushes it as far as he can

with each cast. Has anyone else ever experienced this...where you

can't get past a certain # in cast? He said her rotation is " not bad "

Then Dr. Khoury discussed bracing with us. Then he sat there a minute

and said never mind, that he wasn't quite ready to give up (casting)

on Haley. So, maybe he still has high hopes for her??? Any thoughts?

Misty and Haley

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