Re: Re: Steph & Noelle-ANGER

[Guest guest]

,

I am so sorry about Lillyanna.... You will love Erie Shriners! The people

are wonderful! Also close to Erie is the University of Rochester in Rochester

New York. Dr. is there and he is very experiened with scoli and has

done many serial casts. If you want his info., I will e-mail it to you. Steph

Ritchie wrote:

I can understand this feeling. My foster-adopt daughter Lillyanna has

had multiple medical problems and surgeries since her birth. NO ONE said

anything about scoliosis to me. She came to me in April of 2007 as my medically

fragile foster child. In all the previous Doctor's assesment's no where was

scoliosis mentioned. Even sine then I have had her to 6-8 specialist for various

things. Again no mention. Plus to add insult...I am an RN and did not notice

anything, except a strange way she holds her arm and hand. We also have PT and

OT once a week. Now I have been told that she has a very life threatenting form

and will not live past 4 years of age. So I feel guilty and angery. BUT....I am

so thankful to have found this web site. I will do whatever it takes to give her

the best possible chance. Thanks to all that have responded to my posts. I will

be calling Shriner's in Erie PA tomorrow to see if they will see her. I will try

to attach a

picture of Lillyanna (her adopted name).

Re: Steph & Noelle

Steph,

This exact situation has happened so many times. I dont mean to

minimize Noelle's situation, but this happens to infants throughout

the world on daily basis. Thanks goodness, you have done your

research on Dr. Mehtas Early Treatment Method and you will make sure

that your darling girl has the best care, possible. I am sorry that

you and your precious girl must go through this. Its not easy, but

very well worth it. Have you decided where she will have her POP

jackets applied? Sorry, if I missed that post. Just let us know what

we can do to help.

About being pissed off......Dont let it get the best of you. I say

this out of personal experience. While I know being " pissed off " has

helped my daughter get proper care, helped ISOP grow, etc.......I

knew that channeling the anger into being proactive/productiv e would

be the only way to save my daughter. I just wanted to share that

because I have been angry about my daughters situation for 9.5 yrs,

and just only recently figured out that the anger is affecting my

health and will kill me, if I dont figure out a better way to deal

with it. Anger is toxic to me. I cant be angry anymore.

Noelle will get Early Treatment for her scoliosis because of you, and

the fear you have now, will be a distant memory.

Sorry, about rambling. No one is awake here at my brothers house in

SLC, and I feel like talking.

Let us know what happens.

HRH

>

> Hi everyone.... We just got some bad news for Noelle.... Her scoli

has worsened and it looks like we're going to have to go through with

casting.... My heart is just breaking! It's been a while since I've

signed on... It's been super crazy here.... Everyone has been sick

or in the hospital for something or other.... But, just to refresh,

Noelle went to Erie Shriners last Nov. and her scoli had reduced, so

Dr. advised us to wait 3 months and re-take the x-rays again

to see how she did before casting her.... I feel teased and I'm

pissed off!!!! Steph

>

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