Advice needed!

[Guest guest]

Hi

Have just joined the group after attending Treating Autism

seminar at Surrey University on Saturday and was inspired!!. Our son

Robbie has just turned 7 and although we are veterans of educational intervention

– we have been doing a VB programme with Rob since he was 2 and a half –

we have only tried bits of biomed in a rather half hearted way over the years.

We did the Sunderland test which showed possible gluten problem and attempted

the GFCF diet for about 9 months when Robbie was 3 but saw little change

at that time so gave up. We have also recently had a (expensive)

consultation with nutritionist Kate Neill who came up with some good (but not

very practical) recommendations re: supplementation and suggested a couple of

tests (Sunderland and gluten intolerance). We are also on the waiting

list for an appointment at the Breakspear Hospital (but understand Dr

Heard has left)??

We would really like to have a proper go at biomed with Robbie

as I am sure he does have gut issues – should I make an appointment with

a DAN specialist and if so would you recommend that I try Dr Asha Chagarlamudi

in Bromley as she is the nearest one to me? Any advice on getting started would

be welcome as am feeling a bit overwhelmed.....

Vickers

[Guest guest]

Hi

Glad you enjoyed the conference.

On the delegate disc is info on how to do the diet.

I would suggest you try doing that first.

Read Children with Starving Brains by Jacquelyn McCandless

Explains testing / treatments.

Apply the the Caudwell Trust for Funding.

Find a DAN! practitioner Dr Chagarlamudi is nearest

Breakspear is getting some more Dans trained.

One been to the Dan , 2 more going.

Other practitioners listed on the front page of the Treating Autism

Website

www.treatingautism.com

Most only need to see you once and then you can do follow ups by

telephone.

Best wishes

Joane

>

> Hi

>

>

>

> Have just joined the group after attending Treating Autism seminar

at Surrey

> University on Saturday and was inspired!!. Our son Robbie has just

turned 7

> and although we are veterans of educational intervention - we have

been

> doing a VB programme with Rob since he was 2 and a half - we have

only tried

> bits of biomed in a rather half hearted way over the years. We did

the

> Sunderland test which showed possible gluten problem and attempted

the GFCF

> diet for about 9 months when Robbie was 3 but saw little change at

that

> time so gave up. We have also recently had a (expensive)

consultation with

> nutritionist Kate Neill who came up with some good (but not very

practical)

> recommendations re: supplementation and suggested a couple of tests

> (Sunderland and gluten intolerance). We are also on the waiting

list for an

> appointment at the Breakspear Hospital (but understand Dr Heard

has left)??

>

>

>

> We would really like to have a proper go at biomed with Robbie as I

am sure

> he does have gut issues - should I make an appointment with a DAN

specialist

> and if so would you recommend that I try Dr Asha Chagarlamudi in

Bromley as

> she is the nearest one to me? Any advice on getting started would

be welcome

> as am feeling a bit overwhelmed.....

>

>

>

> Vickers

>

[Guest guest]

Hi .

It

is important that the diet is really really healthy – so all organic and

as home cooked as possible. I only recently found out that sourdough bread home

made with wheat flour is effectively gluten free and packed full of nutrition. Goat’s

and sheep’s milk are healthier than most cow’s milk and that goes

for everyone I think not just those with an obvious

milk intolerance. Digestive enzymes (Houston’s from MAndimart)

for some people are as good as eliminating certain foods. Good quality probiotics,

given away from the digestive enzymes are also a good starting point. Once you

have got your child on a healthy diet you should consider whether he has a

problem with constipation or impaction. Most children on the spectrum are

impacted meaning that there bowel is full of hard poo (although my son wasn’t

fully impacted he was fully loaded meaning a very sluggish bowel and the poo

moving too slowly). To find out whether your son has these problems it is a

good idea to get an x-ray done.

I

use Muscroft as our DAN! nutritionist. She does

not prescribe so I also see Dr Heard or whoever his replacement is for

prescriptions.

Hope that helps.

Have

you looked on the treating autism website – there are lots and lots of

tips on getting started there and ask loads and loads of questions on here.

Good

luck,

SARA

x

-----Original

Message-----

From:

Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] On Behalf Of Vickers

Sent: 10 March 2008 13:19

To:

Autism-Biomedical-Europe

Subject:

Advice needed!

Hi

Have just joined the group after attending Treating Autism seminar at

Surrey University on Saturday and was inspired!!. Our son Robbie has just

turned 7 and although we are veterans of educational intervention – we

have been doing a VB programme with Rob since he was 2 and a half – we

have only tried bits of biomed in a rather half hearted way over the

years. We did the Sunderland test which showed possible gluten problem

and attempted the GFCF diet for about 9 months when Robbie was 3 but saw

little change at that time so gave up. We have also recently had a

(expensive) consultation with nutritionist Kate Neill who came up with some

good (but not very practical) recommendations re: supplementation and suggested

a couple of tests (Sunderland and gluten intolerance). We are also

on the waiting list for an appointment at the Breakspear Hospital (but

understand Dr Heard has left)??

We would really like to have a proper go at biomed with Robbie as I am

sure he does have gut issues – should I make an appointment with a DAN

specialist and if so would you recommend that I try Dr Asha Chagarlamudi in

Bromley as she is the nearest one to me? Any advice on getting started would be

welcome as am feeling a bit overwhelmed.....

Vickers