Re: brace or cast/ H. -- ???s about the Kalibus brace!

[Guest guest]

hi shauna and welcome to the group. i know of one other child that wore a

kalibus brace. adan -- his mom is christine hernandez. i don't remember the

age at which he started to wear the brace, but she decided to do casting instead

after some time. i hope she sees this message and posts. i'm pretty sure that

adan's curves were not as high as your daughter's. i would suggest that you at

least send x-rays and her medical info (has she had an mri yet?) to a casting

doctor to get a second opinion. there is a list in the database section of the

group.

i hope this helps and keep posting and asking questions!

my best,

deshea

_______________________________________________________________________________

mom to lucas (6 yrs old) and ruby (3 yrs old and a handful!)

north of boston, ma

lucas was diagnosed with infantile scoliosis at 18 mos 68o/45o

spinal detethering due to a tight/fatty filum at 22 mos

tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's boston, ma

serial plaster casting from 2 1/2 until 4 1/2 yrs old at shriners in erie, pa

now in a spinecor brace at 24o/18o from montreal.

[Guest guest]

Thank you for all the reply's. Does anybody know how i could get ahold of adan's

mom so i can talk to her about the kalibus brace? Also to get a second opinion

that you were talking about, is the link lynxcare.net? We are from WI and go to

the Children's Hospital of WI which are one of the top hospitals...

Hadley has had an MRI and everything is normal. I guess the whole twisting of

the spine scares me and like somebody said, time is important. I would just want

to send her xrays and info to a dr rather than taking her somewhere else. Do you

know exactly where I would do that? Thanks so much

Shauna

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[Guest guest]

Hi Shauna,

Actually Lynxcare is something different. There should be a file in the data

base listing current EArly Treatment doctors.

Shellie

Shauna Rorabeck wrote:

Thank you for all the reply's. Does anybody know how i could get ahold

of adan's mom so i can talk to her about the kalibus brace? Also to get a second

opinion that you were talking about, is the link lynxcare.net? We are from WI

and go to the Children's Hospital of WI which are one of the top hospitals...

Hadley has had an MRI and everything is normal. I guess the whole twisting of

the spine scares me and like somebody said, time is important. I would just want

to send her xrays and info to a dr rather than taking her somewhere else. Do you

know exactly where I would do that? Thanks so much

Shauna

---------------------------------

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[Guest guest]

shauna,

i've e-mailed you off-board with christine's e-mail address.

the nearest ortho to you that does mehta style casting is dr. sturm at chicago,

il shriner's hospital (773/622-5400) contact person is linda cree. of course,

this is all in the database here:

http://health.groups.yahoo.com/group/infantile_scoliosis/database?method=reportR\

ows & tbl=4

my best,

deshea

p.s. yes, i am sure that wi is one of the best hospitals BUT not necessarily for

infantile scoliosis. it is pretty rare and most orthos don't see progressive

(versus resolving) infantile scoliosis but perhaps at most once a year . . . as

you can see from my signature, we have traveled for my son's scoliosis even

though we live near boston.

_______________________________________________________________________________

mom to lucas (6 yrs old) and ruby (3 yrs old and a handful!)

north of boston, ma

lucas was diagnosed with infantile scoliosis at 18 mos 68o/45o

spinal detethering due to a tight/fatty filum at 22 mos

tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's boston, ma

serial plaster casting from 2 1/2 until 4 1/2 yrs old at shriners in erie, pa

now in a spinecor brace at 24o/18o from montreal.

[Guest guest]

hi. my daughter had a kalibus brace, too. please feel free to email me, and we

can exchange numbers and talk about it. i'd be happy to share our experience.

abigail

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