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[Guest guest]

Hello everybody,

I am Ethelyn I learned about this group while I was surfing the net for my

daughters conditon. She is 3 1/2 y.o. and was diagnosed to have scoliosis. This

was last Feb .27. Actually the scoliosis xray was done last Oct. 2007 and I was

told that the angle is 32 degrees. It was an incidental finding when she had a

chest x-ray; that means she has no other noticeable signs/symptoms. About two

days ago though I already noticed that she is leaning to her left.

The plan is for her to have a body cast which will be done under general

anesthesia and this will be done on April 4. This really makes me worried

considering that she is young and has to undergo this procedure. The orthopedic

surgeon said adjustment will be done every 2-4 months. On May 5 MRI of the

spine will also be done because she also has neurofibromatosis. This again

will be done under IV sedation.

I am wondering how did your babies " deal " with the cast on their body 24/7 or

should I say how did you make your babies be able to take the ordeal. Are there

anybody who had a good experience with braces? How's the growthof your

children. Will it not be stunted by the cast. Is there anybody who's child has

also neurofibromatosis.

My daughter was only seen by one orthopedic surgeon and when I expressed a lot

of concern for the procedure her casting was moved from March 18 toApril 4. For

fear that further delay might worsen her case I did not decline the upcoming

procedure. However, I have a schedule with another orthopedic surgeon on March

20. I am not sure what will the result be for this second consult with another

doctor.

Thanks lot everybody. I have read a lot of messages and all of your messages

to everybody are very supportive and informative.

Sincerely,

Ethelyn

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