Re: Happy at home

[Guest guest]

Hi Nissa,

My White counts have been low, and I get temps every night. My doctor wants

me on Actemra (IL-6). Every time I look for when it will be released it

changes.

Dr Meadors (My new doc - it use to be Dr Overman in Seattle but we moved to

be with family) thinks it will be late spring early summer. He's hoping I

can make it until then.

Right now I am on Kineret - it barely helps - but is better than nothing. I

can't function without it. Kineret, mtx, pred. and a bunch of other stuff

for TN and a few other issues I have that I got because of Shingles.

I have some very close friends in seattle and they said the same thing about

seattle. Better to stay home and avoid the idiots that think that they know

how to drive. We lived there for almost 20 yrs ourselves, but it got to the

point that I was in bed from Oct to May because of the weather and we had no

family there to help so we took the docs advice and got to a warmer, dryer

climate.

Who is your Rheumy now?

Alli

On Wed, Dec 24, 2008 at 10:23 PM, nissa penland wrote:

>

> Hello all!

> I'm happy to report that I've been home for a few days,and doing ok,so

> far. I saw my Internal medicine MD yesterday,and had a CBC done. My WBC

> count remains a bit low,but my neutrophile count is just ok. But the counts

> have remained stable,and I just need to be happy about it. I'm currently on

> 40mg of prednisone,and will start a slow taper today. I'm restarting Enbrel

> this week. I'm feeling good enough to start getting myself in trouble! My

> left hip,and SI joints are still pretty painful.Darya and I are going to

> have a quiet Christmas at home. The roads in Seattle are still a mess. So we

> figured we'd just stay home and avoid the idiots.

> Has anybody else had problems with their WBC counts being low? Is anybody

> currently on Actemra( IL-6 receptor antagonist)? And when is it expected to

> be approved in the US? The FDA takes so freaking long to approve

> things,sometimes!

> I think Darya and I are going to take the dogs out in the snow and make

> some snowmen. I haven't done that in a very long time. I'm having cabin

> fever,bigtime! When I have too much time to think about things,I have a

> tendency to get depressed.

>

> Wishing you all a warm and comfortable day,and Merry Christmas.j

> Love,

> Nissa

>

> _________________________________________________________________

> It's the same Hotmail®. If by " same " you mean up to 70% faster.

>

>

http://windowslive.com/online/hotmail?ocid=TXT_TAGLM_WL_hotmail_acq_broad1_12200\

8

>

>