Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 I'm not a doctor by any means, but Noelle's docs have pretty much all agreed that any kind of PT does not help the scoliosis itself in infants... It can help with other muscular issues, like torticollis, etc. Has his RVAD been measured and is there any rotation in the spine? 13 degrees is pretty low and I know that Dr. said we would begin bracing Noelle once she was under 10 degrees, which he considers to medically insignificant. Has any doc suggested a brace yet? Does he have any trouble with his motor skills or any discomfort? You can also send a copy of his most recent x-ray to one of the Mehta-trained docs for an evaluation.... They would call you with their suggestions. A lot of us have sent docs our x-rays first because most of us don't live near these very special doctors and they know that we travel quite a distance to see them. Good luck! valpoind wrote: My son was diagnosed at 3 yo. We've been through the MRI and found out it was idiopathic. It started at 11 degrees at stayed there for a year and now the curve is at 13 degrees. I'm searching for any noninvasive methods that could help him. He is now 5 years old. There is not a scoliosis center in our area. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 My dauhter has pysical therapy once a week & we have been told by two othopedists that there is no proven excercises that will help improve the curve. We continue the physical therapy for stretcing/strengthening. My daughters Mid section was very week due to the positining in utero (bent backwards w/ stomach protruding). We focus on strengthning the core mid section. I also think it helps with my daughters rotation & balance, by duing physical therapy. Any little bit helps i think. Kauffunger wrote: I'm not a doctor by any means, but Noelle's docs have pretty much all agreed that any kind of PT does not help the scoliosis itself in infants... It can help with other muscular issues, like torticollis, etc. Has his RVAD been measured and is there any rotation in the spine? 13 degrees is pretty low and I know that Dr. said we would begin bracing Noelle once she was under 10 degrees, which he considers to medically insignificant. Has any doc suggested a brace yet? Does he have any trouble with his motor skills or any discomfort? You can also send a copy of his most recent x-ray to one of the Mehta-trained docs for an evaluation.... They would call you with their suggestions. A lot of us have sent docs our x-rays first because most of us don't live near these very special doctors and they know that we travel quite a distance to see them. Good luck! valpoind wrote: My son was diagnosed at 3 yo. We've been through the MRI and found out it was idiopathic. It started at 11 degrees at stayed there for a year and now the curve is at 13 degrees. I'm searching for any noninvasive methods that could help him. He is now 5 years old. There is not a scoliosis center in our area. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 Val, I can totally relate to learning the new language and you will! The RVAD is the measurement of the largest angle between the most displaced rib and vertebra usually around the apex of the curve. If the Rvad is under 20, there is an 80% chance the curve will resolve on its own. If it's above 20, usually the curve will continue to worsen. How old is he now? Which docs do you see? If he is older than 3, it is possible still to cast if he is on the younger side in some cases. I'm not sure about the rules in regards to bracing and surgery in older children, but surgery at 25 degrees seems a bit drastic to me.... My best advice to every mother going through this is to send the most recent x-ray and doc report you have to the nearest Mehta-trained doc to you. These docs are well trained in casting, bracing, and surgical options to help you make the best, most informed decision for your child. Where do you live? You'll get through this! Steph Val Koeppen wrote: , I was told that bracing would be considered at 15-20 degrees and surgery at 25 degrees. Initially, the dr thought that it was going to resolve as he maintained at 11 for a while and then it changed. Can you tell me what RVAD is? I do not think there is any rotation of the spine. He had a MRI and I was told that was normal in terms of it being idipoathic vs some other cause. He does not have any pain or discomfort. He did go through a time where he preferred to sleep on the floor but this was more when he was 3. Thanks so much for your help. I feel like I am learning a new language. Re: Are there any exercises, stretches that help with infantile scoliosis? I'm not a doctor by any means, but Noelle's docs have pretty much all agreed that any kind of PT does not help the scoliosis itself in infants... It can help with other muscular issues, like torticollis, etc. Has his RVAD been measured and is there any rotation in the spine? 13 degrees is pretty low and I know that Dr. said we would begin bracing Noelle once she was under 10 degrees, which he considers to medically insignificant. Has any doc suggested a brace yet? Does he have any trouble with his motor skills or any discomfort? You can also send a copy of his most recent x-ray to one of the Mehta-trained docs for an evaluation.. .. They would call you with their suggestions. A lot of us have sent docs our x-rays first because most of us don't live near these very special doctors and they know that we travel quite a distance to see them. Good luck! valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been through the MRI and found out it was idiopathic. It started at 11 degrees at stayed there for a year and now the curve is at 13 degrees. I'm searching for any noninvasive methods that could help him. He is now 5 years old. There is not a scoliosis center in our area. ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 Val, Mail your x-rays from the post office in a padded envelope that you can buy in Staples or Office Depot. Overnighting the x-rays cost me about $17 and 2 day delivery cost me about $5..... I've mailed out twice now! There is no fee for the docs to look at your x-ray and call you with their recommendations. I would suggest calling the doc's office first to let them know that your x-rays are on the way..... The doc that I would suggest that you mail to would be the one that is closest to where you live and then one of us moms could tell you exactly who to call and give you a mailing address. I have learned a lot about the Mehta casting from Jane at Shriners in Erie, this group, her DVD and some of the articles posted on ISOP..... In time, it will be like a second language to you too!!!! Where are you from? I am from NJ and use Dr. in Rochester NY. Let me know, Steph Val Koeppen wrote: , How does the process of sending your x-rays to a Mehta-trained doctor work? Do you mail them normal post office? Is there a fee for consultation to let you know if they could help you? Where did you become so informed on the Mehta method? Thanks for all of your help. Re: Are there any exercises, stretches that help with infantile scoliosis? I'm not a doctor by any means, but Noelle's docs have pretty much all agreed that any kind of PT does not help the scoliosis itself in infants... It can help with other muscular issues, like torticollis, etc. Has his RVAD been measured and is there any rotation in the spine? 13 degrees is pretty low and I know that Dr. said we would begin bracing Noelle once she was under 10 degrees, which he considers to medically insignificant. Has any doc suggested a brace yet? Does he have any trouble with his motor skills or any discomfort? You can also send a copy of his most recent x-ray to one of the Mehta-trained docs for an evaluation.. .. They would call you with their suggestions. A lot of us have sent docs our x-rays first because most of us don't live near these very special doctors and they know that we travel quite a distance to see them. Good luck! valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been through the MRI and found out it was idiopathic. It started at 11 degrees at stayed there for a year and now the curve is at 13 degrees. I'm searching for any noninvasive methods that could help him. He is now 5 years old. There is not a scoliosis center in our area. ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Steph, I got all the medical records and mailed the latest x-ray today to Shriners in Greenville,SC. I will find out Friday if they will accept him as a patient. I hope so. Wow do I see the need to get the medical records now and keep them. We found out the MRI said he had a S curve and no one ever told us that. You are right the care coordinator is wonderful. I watched the video last night and was so impressed. I wish I could go meet Dr. Metha herself. She has such wonderful ideas of exercise and I'd like to know what she'd suggest for him. I'm taking my pediatricain the info Mon so he can learn about it. Thanks so much for your support. Hope things are going well! Val Re: [infantile_scoliosi s] Are there any exercises, stretches that help with infantile scoliosis?I'm not a doctor by any means, but Noelle's docs have pretty much all agreed that any kind of PT does not help the scoliosis itself in infants... It can help with other muscular issues, like torticollis, etc. Has his RVAD been measured and is there any rotation in the spine? 13 degrees is pretty low and I know that Dr. said we would begin bracing Noelle once she was under 10 degrees, which he considers to medically insignificant. Has any doc suggested a brace yet? Does he have any trouble with his motor skills or any discomfort? You can also send a copy of his most recent x-ray to one of the Mehta-trained docs for an evaluation.. .. They would call you with their suggestions. A lot of us have sent docs our x-rays first because most of us don't live near these very special doctors and they know that we travel quite a distance to see them. Good luck! valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been through the MRI and found out it was idiopathic. It started at 11 degrees at stayed there for a year and now the curve is at 13 degrees. I'm searching for any noninvasive methods that could help him. He is now 5 years old. There is not a scoliosis center in our area.____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 Val, I would be so surprised if your application wasn't accepted... Prayers that it will be. That was truly the best thing I ever did was to keep all of her medical records with me at every doc visit and immediately request a copy after every new visit, including the pediatrician, in chronological order. I bring every CD and evry x-ray every single time! I look like a pack camel between that stuff, her food bag, diaper bag, toys, coats, etc.!!!! But, it has always saved me so much time! Noelle has an S-curve that also came up on the MRI and was never mentioned to us before.... Part of that could be that the s-portion that you didn't know about is just a mild compensatory curve due to the larger one and also that it isn't medically significant. I asked Dr. S about that at our last visit and he said her lumbar curvature was compensating her right thoracic curve. The lumbar curve showed no rotation, while the thoracic one did. And, he was right.... When he put her first cast on, the lumbar curve basically was gone, while you could still see some curvature in her thoracic area. Let me know how it goes with the application..... Fingers crossed! Noelle is doing great.... no limitations in any movement anymore.... Thanks for asking! Steph Val Koeppen wrote: Steph, I got all the medical records and mailed the latest x-ray today to Shriners in Greenville,SC. I will find out Friday if they will accept him as a patient. I hope so. Wow do I see the need to get the medical records now and keep them. We found out the MRI said he had a S curve and no one ever told us that. You are right the care coordinator is wonderful. I watched the video last night and was so impressed. I wish I could go meet Dr. Metha herself. She has such wonderful ideas of exercise and I'd like to know what she'd suggest for him. I'm taking my pediatricain the info Mon so he can learn about it. Thanks so much for your support. Hope things are going well! Val Re: [infantile_scoliosi s] Are there any exercises, stretches that help with infantile scoliosis?I'm not a doctor by any means, but Noelle's docs have pretty much all agreed that any kind of PT does not help the scoliosis itself in infants... It can help with other muscular issues, like torticollis, etc. Has his RVAD been measured and is there any rotation in the spine? 13 degrees is pretty low and I know that Dr. said we would begin bracing Noelle once she was under 10 degrees, which he considers to medically insignificant. Has any doc suggested a brace yet? Does he have any trouble with his motor skills or any discomfort? You can also send a copy of his most recent x-ray to one of the Mehta-trained docs for an evaluation.. .. They would call you with their suggestions. A lot of us have sent docs our x-rays first because most of us don't live near these very special doctors and they know that we travel quite a distance to see them. Good luck! valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been through the MRI and found out it was idiopathic. It started at 11 degrees at stayed there for a year and now the curve is at 13 degrees. I'm searching for any noninvasive methods that could help him. He is now 5 years old. There is not a scoliosis center in our area.____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.