RE: gifts from Alicante

[Guest guest]

Wow! 

It will be so nice to finally meet you and Santi!  We will mark these dates in

the calendar, so please call us when you arrive.  My cell is

About the gifts…Would you mind

bringing us a couple of abanicos?  Olivia is so hot-blooded, so she would love

her own fan!  And, definitely some aceitunas!! 

Kelli, this is so exciting! 

Cant wait…

HRH

Re: Kelli & Santi

Kelli,

Its so nice to hear from you. I always read when you post an am so glad

that Santiago is doing well. Are you living in Alicante? (I still have

the navy blue shirt,but finished las aceitunas in only a week. Gosh, I

miss Spain so much. If we ever make it back, we would love to go visit you

and my friend " Ana " in Alicante. My Spanish is horrible at this

point. I

had to ask a mom on the group to edit ISOP's spanish brochure, because I

have forgotten so much of the language. My grandmother would not be

impressed. Actually, maybe you could make sure the spanish brochure is

correct, as well? Two sets of eyes are better than one. The mom thats

helping me with the brochure is also going to think about how we can

effectively get the word out to the spanish speaking community here in the

states (and world). We need to set up an ETP at the new Shriners in

Mexico City, and perhaps somewhere in Spain.....So much work to do!

I sure hope you make it out to Denver this Summer! If you do, we will

have a wonderful time. Just let me know when, so I can plan accordingly.

Gracias por los pensamientos y oraciones... (I think I'm butchering the

language again...)

Please keep in touch.

HRH

> , The first messages I read are always yours, I want to keep up

> with your daily work with little Liv, you never stop.. I know that when

> Olivia gets older and understands everything you did, she will realize, as

> all of us do on this group, what a wonderful and dedicated person you are.

> Not only are you thinking about your daughter, but you are here on this

> group keeping all of us motivated and inspired. You are an example for

> all of us. Olivia could never have received a better mom...Thanks for

> keeping us up to date and I want you to know how much you and Olivia are

> in my prayers. I don´t write too often, I know you are busy and I see all

> the letters and thoughts from all these great parents on this group. I

> really want to meet you two this summer. We had two sets of friends come

> with us last year, so we were none stop traveling trying to see as many

> states as possible in 7 weeks (we made it through part of the upper east

> coast and a little of the west).. This

> summer, the same friends are coming over, but I put down the rules,

> Wyoming, Colorado... that is it.....Thus, it should be a little more

> mellow...time enough for me to invite you and Olivia out for a good lunch

> in Denver, you name the place.. Please take care and give Olivia a big

> kiss and hug from all of us in Spain... Estamos esperando tu viaje para

> ver nos...Cuando tu quieres sabes que puedes quedar con nosotros...Con

> muchos abrazos y un beso fuerte para Olivia...

> Hasta la proxima,

> Kelli Y Santiago

>

>

> heather@infantilesc

oliosis.org wrote: Forgot

> to mention that Olivias current VEPTR (dual hybrid attached to

> iliac crests) will be completely removed. She will recieve the VEPTR II,

> attached to the lumbar spine. If spontaneous fusion occurs, it will be

> in

> the lumbar area in only 2 small segments, so its not as big of a concern

> as it always has been (to me). Hopefully, this new hardware will help

> prevent future rib erosion and her gait will improve. While she didnt

> have a significant " stooping " issue with her current type of

VEPTR, it

> was

> always a challenge for her to hold herself upright, especially when

> tired.

> She is 10 years old, so we have made it a long way and she will continue

> to do well. As always, thanks for the prayers, thoughts, and well

> wishes.

> HRH

>

> > Okay, heres the plan;

> > Primary cant get Liv on the surgery schedule until March 10th. I dont

> > feel comfortable being all the way out here in Denver, so we will

head

> out

> > to SLC sometime next week. If something should happen to Olivia(rib

> > erosion on the other side, infection, skin breakthrough, etc...)while

> we

> > are in Denver, we would be 8 hrs away from the hospitals in SLC, and

1

> hr

> > by plane, weather pending. I doubt anything will happen, but I would

> feel

> > better if we were only 20 mins from the hospital. Not to mention, if

> > there is a cancellation, we might be able to get this done, sooner.

We

> > will stay at my brothers house mostly, but will probably hang out

with

> > & Kylie quite a bit, too.

> > I will be available by phone and internet, should anyone need

anything

> > from ISOP.

> > Wish us luck and I'll post when we get there!

> > HRH

> >

> >

>

>

>

>

>

>

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