Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 Keri darling, I'm so sorry you had to go through all that but I think you were very wise about not going to the ER unless your doctor was there or could have called in. By the way, I don't understand that one; why couldn't he call them and tell them what to do? Like you I've had the chest pain, trouble breathing, etc. Like you I've had to increase my prednisone and absolutely hate doing it but it is part of our lives sometimes. At those times you just have to say, " I'll deal with the side effects for now " and do what you have to do. Personally, I can't seem to get below 15 mgs though G-d knows I've been trying. Don't beat yourself up about it honey, take a deep breath, blow it out and move on. I'd tell you what my mother says but I can't post that here - it's a little...OK, it's foul language and not really allowed here. Come on, laugh a little, you'll feel better. Think about it for a moment, the woman is 77 years old and extremely proper. Take care and be well. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 Keri This is my opinion only so like most things I say some or all of it may be full of nothing but the hot air used to say it Any hoot I have been high dosed with predasion and then a taper down all done in less then a week. This was form 80 mg to nothing (maybe it was two weeks can not remember now) I had been off all predasion for years at the time. I also know that when coming off it some times it take time and some weird mixes to get our bodies to work right in that. Some go days then have an attack some never do and some go a week or so then have one. It is a very strange thing. Best bet is stop being stubborn and do as a doctor tell you like it or not because if you were in bad enough trouble to want to go to the ER you were in trouble period! Now that said talk to your doctor about how will spiking it and then tapering it down effect you based on your personal history. Last thing here is I bet your other half would rather have you around with a moon face then not have you with a normal face try asking him! I know it is not easy I have been there done that gain all the fun stuff of it from bad bones to moon face and extra large sized new wardrobe of clothing. Been also so afraid of it ( not for just look but a drug mix reaction hurt me big time bad once and it was part of the mix) that refusing to ever take it again also gave me sunken cheeks and another new wardrobe this time so skinny that even my 18 year old son at the time could not wear my jeans ( went from normal 32 waist to a 48 waist back down to a 28 waist as a male of 5'10 " not a good thing) so here is what we all go threw we fight how we want to look at times over how we know we want to feel when look win over health it is not really a win for any one but our self¢s and that is only short lived . So talk to your doctor about how to deal with it incase it happens again. Carry a pamphlet about stills with you and as I do a few items printed off the web about it also. ALWAYS CARRY A LIST OF ALL YOUR MEDS! I also make sure there is a health alert card plainly seen in my wallet so incase some one is not with me they see it when trying to find out who I am because it is in there face and one it is were my med info and medication list is. My wife carries the same info on me in her wallet also. I also have some drug allergies that can kill me if given so that info is also there along with my bee sting allergy (again deadly to me) because every year around Feb. when the trees bloom here they bring in over 4,000 bee hives to pollinate the trees and I live in the middle of the dang orchard so far 4 years no sting but I know it is going to happen so a plan is already done as in what any one here with me needs to do! just some maybe helpful info for you because a single usage spike of predation dose not mean years of usage again all the time nor month on months of tapering down either but it all is based on you and your doctors never on you alone or what we think we know based on what we believe or have delta with in the past or heard some one other has dealt with because each person is deferent and each time is also deferent or has been for me fact is not any of my flairs have even been the same as any other one . Best to you and hugs Now take care of your self for your family and if I sounded harsh sorry but I am a blunt in your face redneck some times but ya gots to love me cause I still smile threw my tooth that is unless I put in the choppers then it is a pearly white grin LOL the rednecks Marty & G. the redneck's my space http://www.myspace.com/martyg58 To learn about Stills Disease http://www.stillsdisease.org/stills_info For conservitive minded people http://www.americac2c.org " If we ever forget that we're one nation under God, then we will be a nation gone under. " ~ Reagan In the old days a man who saved money was a miser; nowadays he's a wonder. ~Author Unknown A nation can survive its fools and even the ambitious. But it cannot survive treason from within.~Cicero " The most terrifying words in the English language are: I'm from the government and I'm here to help. " ~ Reagan Quote Link to comment Share on other sites More sharing options...
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