Re: Nannette and all my family here( yes that long winded redneck struck back again ) Re: intro

[Guest guest]

Marty,

this is very interesting.. I was also very sick as a kid. On average, I

missed at least 23 days of school a year, and that was pushing to go to

school and not missing a day. I'd get sick in the afternoon, have high

fevers and then be better the next day or the following day. So nobody, not

even the doctor thought much of it. I would get sick like that in the

summer too. I had Urinary Tract Infections starting when I was two, Ear

infections from when I was four months old and tonsils infected all the

time. They took my tonsils out the first time when I was 5 and put in

tubes, but they grew back, had them out again when I was 14, then they grew

back again. Had them out one more time at 18, then it seemed I got sick in

other ways. Like Endometriosis. I had my first surgery for that when I was

19, then 14 more to follow from the time I was 22 until 30 when I had a

hysterectomy with both ovaries removed.. in that time frame they had to

remove my gallbalder because of my endo being so bad. Then about two months

after the last surgery my appendix, because of more endometriosis that was

there.. When I was 9 I had a bone spur on my big two - very odd. And both

shoulders had bursitis by the time I was 13 - but not one doctor could put

the picture together that I had stills (or JRA). odd - they probably could

now).

especially because of all the ear infections, uti's, bursitis in shoulders,

some in knees, bone spurs, fevers, etc. but they didn't have the same

knowledge level. then.

Anyway, I find it very interesting that you also had issues as a child - are

there others that were also like this as a child. Basiclly just though of

as being scene as more vunerable to catch things then your siblings, etc. I

am curious because I think this is a clue to stills.

Hugs to all

Alli

> Nannette and all my family here;

> Hi again and as before welcome back again. Now this is only some thing I

> heard or read some were along the way so being I have no back up facts it is

> only here say but it fits in my life. 1st I was dx with stills in 2000. But

> after 8 years of this and looking backwards talking with my mother and also

> remembering what life was like as a kid. I was sick on and off a lot. My

> parents used to think I was playing sick a lot. I would be sick in the am

> and or in the afternoon. I would have the school call mom to come and get

> me. most of the time it was on a Friday or Thursday come Saturday or Sunday

> I was fine and even some times by Friday night. Now this did not stop after

> I got out of school this has been a life long deal. In my working life same

> thing but now it was I would stay sick some times tell Monday or Tuesday

> morning. I was always in trouble at work for missing days and yes again they

> felt I was playing because it was always around weekends. Now

> when at work I worked extra hours and pushed my self hard to make up for

> missed time both in money and in the trouble I made for the company. well in

> 2000 I could not do it any more but this time I had a boss who had gone

> threw cancer two time he knew some thing was up and gave me a chouse I could

> go on medical leave and get to a doctor and find out what¢s going on or he

> would fire me so I started to see a doctor and found out I had stills.

> Now the only time I really had seen a doctor for my problem besides

> the right then problem was when I was little. 6 months old almost died from

> lung problems then 4 years old (my 4th birthday in fact) I was hospitalized

> for high fevers pain in my legs weakness so bad I could not walk and joint

> pain sweating and more. They said I had romatic fever but no test agreed

> with it. For the next 6 months I was one sick kid and could not walk play

> any thing. I would go threw time like that about every 5 to 6 years after

> that but never hospitalized because of the belittling from my parents

> growing up poor and medical bills were very very expensive and my family

> most of the time had no medical coverage at all. So I learned to fight it

> and rest a lot and not say any thing to any one I suffered in silence!

> Well after my DX I was one sick puppy for about 3 and a 1/2 years and I do

> mean sick. Then I started to get a bit better and for the next 5 years lived

> almost a normal life with only little problems now and then. small flairs is

> what I now called them and yes I still fought the pain alone and again poor

> as heck and no medical cowage so my early training came into play see at the

> end of my last real bad run my wife divorced me also just when all my money

> ran out and 9 months before I received SSDI. This is after 26 years with

> her. All I will say is it was over me having stills and not able to work any

> more. Yes stills finally ended my working.

> any hoot back to the start I had read or heard as I started with that it

> is a possibility it could run in cycles and for me it has very much done so

> with a year or two plus or minus or each side between good times and bad and

> right now it is headed back for bad .now as far as I can remember there are

> only two times I got super sick bad and that was when I turned 4 years old

> and then again back in 2000. With every roughly 5 years a very bad run of

> 3 to 4 years in between a good run. now good is not every thing free it can

> be some pain or joint problems /pain but it is not all at one time this is

> also why I have only been seen for what was going on then but now at 50

> years old looking back and being blessed with a very good mind and memory

> and my mom and her calendars were she writes every thing down and keeps them

> for years and years the parts are falling into place for my life and it is a

> cycle thing for me. that dose not mean it is for every one and

> it is also some thing I can not prove it just looks that way to me with my

> history . So if it is a possibility maybe you two are lucky in that the

> cycles are long we can hope that be the case. but then again this is my

> opinion and nothing more and I am nothing but a simple minded redneck with

> no medical training and with way to much time on my hands and because of

> that my mind tends to wonder and some thing that little should never be out

> alone like that and for that long so when I find it again I will try to put

> it on a leash to control it some what. so every thing I said here take it

> with a grain of salt and then throw some of that away because none of it may

> fit you or any one other here

> Hugs all and the best to ya all

>

> the rednecks

> Marty & G.

> the redneck's my space http://www.myspace.com/martyg58

> To learn about Stills Disease http://www.stillsdisease.org/stills_info

> For conservitive minded people http://www.americac2c.org " If we ever

> forget that we're one nation under God, then we will be a nation gone

> under. " ~ Reagan

>

> In the old days a man who saved money was a miser; nowadays he's a

> wonder. ~Author Unknown

>

>

> A nation can survive its fools and even the ambitious. But it cannot

> survive treason from within.~Cicero

>

>

>

> " The most terrifying words in the English language are: I'm from the

> government and I'm here to help. " ~ Reagan

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