Re: seattle area

[Guest guest]

Thank you for the reply s. Izabell is going to be seen at children's

hospital in Seattle next Tuesday. she already has a orthopedic doctor

there due to her hip dysplaisia. and so I want to to stay at our

hospital if possible There is a Shiners in Portland and we also have

a referral to another orthopedic Dr in Seattle from Izabell's

neurologists so I have access to more opinons but am am not sure what

questions I should be asking at this apt. I like to be prepared for

the apts. Izabell has a very complex medical history, she has PHACES

Association which is raer and the dr are still learning about this

condition and it seems like I have been fighting for her since

birth, not complaining she is soooo worth the fight! As I am sure you

all have experience with having a child with medical needs that lining

up apts can be difficult to do. The ortho dept seems to be the

hardest to schedules with and so I am really hoping that you guys can

give me some advice on questions to ask and articles to read before

her apt on the 5th. I need to be prepared for this apt and wonder if

she will need casting if this will affect her heart or pacemaker?

> Hi Wyndi,

> We're not in the Seattle area (we live in Minneapolis) but I thought

> I'd chime in to help get you started. I would first read the

> article " Growth as a Corrective Force " in the files section on the

> group. Also, please check out the list of docs in the database

> section. My son began his casting treatment at the age of 2 as well.

> Please try to get Izabell in ASAP as age is an important factor in

> this treatment being a success.

>

> Did your doctor mention your daughter's RVAD #?

>

> I'm not sure whether or not physical therapy will help her with her

> hip Dysplasia or not. I do know that my son went to physical therapy

> for 10 months for his Torticollis and it worked wonders.

>

> Let me know if I can be of any more help.

> ~

>

> Noah 3 years old

> In 2nd brace after 9 months of casts

>

>

> >

> > hello we are in the seattle area my daughter will be going to Kit

> Song

> > in August for scoliosis. She has seen him for her hip Dysplasia but

> > she has not been seen for her back as of yet. The xrays show a 45

> > degree curve. I am not sure what we might be facing and was hoping to

> > get some information. are there other families in this area and what

> > Dr do you see prefer? Also for all families we have access to

> > physical therapy for Izabell who is 2 should I get her started with

> > this even before her apt?

> >

>