Re: Latest on Santi, providence brace, theratogs

[Guest guest]

I have heard of positional scoliosis. Would that be the same thing? I am so

glad to hear how well he is doing! Yay for Santi!!

Noelle (12-2-01)

Ian (8-15-04)

between 0000-00-00 and 9999-99-99

[Guest guest]

Hi ,

When saw a geneticist, she felt it was due to his positioning in utero.

is a twin. For 3 months he literally stayed in 1 spot in my belly. He

moved his arms and legs, but was head down in the birth canal ready for the

world. He gave his brother lots of room to move around. Anyway I have heard of

several scoli kids that their docs/geneticist thought the same

thing......positioning in utero.

I'll be anxious to hear what they say about Noelle.

Tasha

Mommy of twin boys- and 3 years old

Fort Worth, Texas

is currently in a brace-8 degrees out of brace!!

Kauffunger wrote:

Hi Kelli,

Congratulations on your great news with Santiago!!!! You actually raised a

very interesting point for me with the mention of " symptomatic " scoliosis. My

daughter has infantile scoli from birth and some of her docs from NYU are still

referring to it as congenital and not ideopathic. We are actually seeing a

geneticist tomorrow as well as her neurologist for further evaluation. When I

spoke to the nurse practitioner several days ago, she sort of mentioned that the

scoli has to be caused by something.... if not a spinal abnormality, then

perhaps her position in utero could be the " cause " . Even in cast, Noelle does

tend to lean to one side and I have often wondered if she would benefit from

some type of PT and will mention these exercises to the docs tomorrow. Thanks

for the great info and good luck with the brace!!!! Steph

kelli peasley wrote:

Hi everyone, just thought I would give you the latest on Santiago.

Just got back from Barcelona with Dr. Ventura and three other specialists . The

great news is that the Providence brace is doing just what we hoped it would,

its working... His official curve is at 38 degrees without the brace and 18 in

the brace which is great!!!!. So the brace is holding him, straightening him and

on top of it all, it is comfortable for him to wear, not one problem with it. We

casted Santi a couple of times and went from 50 degrees to 28, which was

incredible.. the casting literally saved us from a very early intervention. Dr.

Ventura mentioned something interesting, have any of you heard of having a

scoliosis that is not idiopathic or congenital but " symptomatic " . He is

referring to Santis lack of muscles in his back at birth, but slowly we are

recooperating them, thus it is holding his scoliosis.. He says the MRI will

confirm a lot, but he doesn´t feel that

Santi falls into either catagory, just curious what you all thought of that

interesting point of view..The PT did say that abdominales and lunges are

essential for kids like him, also she wants us to velcro his feet to the floor

(now that didn´t come out the way it should have, although sometimes I would

like to literally velcro him to the floor to slow him down!!!) She said that

stability and equilibrium are also essential with the curves, because they tend

to lean to one side more then the other. Thus this motion platform is literally

a piece of wood with velcro straps nailed into it and you place his feet in them

so they cannot move, make him do reaches with his hands, waist etc, but not

letting him move his feet, sounds easier then it really is...I hadn´t realized

how much compensation he has to his left side. The Pt also specializes in

training of the Theratogs in Spain..She put them all over him. But we realized

that he now is too strong for

them to be much use, and I expected to see more improvement of his lordosis,

but it didn´t do much. He did get more stability in them, but not much else..

Even she was a little disappointed in how little they seemed to help him. I

thought they would work well for him, but right now, only in stability, not sure

I want to spend 600 euros on something that doesn´t do too much.. That is all

the news for now on Santiago. Hoping and praying that all the other kids out

their continue getting better and that the future holds a lot of new and better

things for them.

Sincerely,

Kelli and Santiago

[infantile_scoliosi s] 5 year old girl needs our help

Watching the local news last night I heard a headline I could not

ignore. A 5 year old girl now paralyzed from the chest down after

surgery to correct a scoliosis related condition. Hearing this, I

looked down at my son sleeping in my arms. He is in his first cast.

If I hadn't researched treatment myself and had followed the first

recommendation of surgery we recieved, that could have been Jaydon. It

brought into perspective, even more, how critical educating our

pysicians on EPT is for our children and the children of those who are

not aware that they have options.

Here is a link to the website for Abrigail Gadson. I hope some of you

will be able to help. I intend to do all I can for a family that

wasn't as lucky as my family has been.

http://www.abrigail

<http://www.abrigail gadsonhopefund. org/Abrigail_ Gadson_Hope_ Fund/Welcome.>

gadsonhopefund. org/Abrigail_ Gadson_Hope_ Fund/Welcome.

html

[Guest guest]

Hi Tasha,

We saw Noelle's neuro and geneticist yesterday.... What a LONG day!!!!!!!

Her neuro eval was great.... I asked her to prescribe some PT for Noelle and

she thought it was a good idea due to her torticollis, which has improved,but

she said it couldn't hurt so why not? And I agreed. We go back in 6 months.

The geneticist's visit confused/relieved /scared me more all at the same

time!!!! He and 2 of his staff memebers were present and they all agree that

Noelle is physically very strong, developmentally at or above age level, and

advanced asfar as verbal/communication skills, etc. They were a bit puzzled

about how to proceed with her because other than the scoli, torticollis and mild

hydroplagiocephaly, she has no other issues. They are running some blood tests

to rule out certain things that I don't completely understand. One is on marker

22 for cpk to rule out the leakage of a certain muscular protein, which they

don't think she has and a few other tests that they

are pretty sure will come back negative. They want her to have an eye exam to

look at her optical nerves for some possible clues as to the cause of her scoli,

so we will schedule that . He says we may check with her neuro to do a special

test where tiny needles are placed at certain points on the body and check the

various muscles and nerves on the right and left sides of the body. This test

could tell us if the muscles on one side of her body are devoloping faster than

the other side or if it's an issue where the nerves on one side of the body are

stronger than the other, which could cause the scoli. I asked him if it could

just be a positional issue in utero and he said that it could, but the fact that

the scoli was getting worse leads him to think it was more likely to be

something else that was still affecting the spine. He did ask me about my

uterus! And if Noelle was a twin, if I had fibroids, etc.... Anything that

would inhibit her movement inside of me. I

have no uterine issues, but I never felt her rolling around in there.... just

kicking and punching mostly! I'm worried that if the cause is muscular, that

once the cast and brace come off, the scoli could return again. I'm going to

have to ask Dr. S about that, too, in June. What do you think? He seems to

think if the scoli was caused by uterine positioning that it shouldn't have

progressed, but I'm not so sure..... And, at what point do I stop with the

testing? So, on the one hand, I feel great that Noelle is doing so well right

now, but scared that there still may be some underlying cause that could worsen

as she ages. I'm actually terrified that if one side continues to develop

faster, that she will become mishapen as she grows! Do you think I'm nuts!?

The truth is that her plagiocephaly is so mild that only expert-type docs even

pick it up.... Her pediatrician and some orthos have actually said they don't

see assymetry in her face..... Just seems like

there is always something more to test!!!!! Steph

Tasha Fontenot wrote:

Hi ,

When saw a geneticist, she felt it was due to his positioning in utero.

is a twin. For 3 months he literally stayed in 1 spot in my belly. He moved

his arms and legs, but was head down in the birth canal ready for the world. He

gave his brother lots of room to move around. Anyway I have heard of several

scoli kids that their docs/geneticist thought the same thing......positioning in

utero.

I'll be anxious to hear what they say about Noelle.

Tasha

Mommy of twin boys- and 3 years old

Fort Worth, Texas

is currently in a brace-8 degrees out of brace!!

Kauffunger wrote: Hi Kelli,

Congratulations on your great news with Santiago!!!! You actually raised a very

interesting point for me with the mention of " symptomatic " scoliosis. My

daughter has infantile scoli from birth and some of her docs from NYU are still

referring to it as congenital and not ideopathic. We are actually seeing a

geneticist tomorrow as well as her neurologist for further evaluation. When I

spoke to the nurse practitioner several days ago, she sort of mentioned that the

scoli has to be caused by something.... if not a spinal abnormality, then

perhaps her position in utero could be the " cause " . Even in cast, Noelle does

tend to lean to one side and I have often wondered if she would benefit from

some type of PT and will mention these exercises to the docs tomorrow. Thanks

for the great info and good luck with the brace!!!! Steph

kelli peasley wrote:

Hi everyone, just thought I would give you the latest on Santiago. Just got back

from Barcelona with Dr. Ventura and three other specialists . The great news is

that the Providence brace is doing just what we hoped it would, its working...

His official curve is at 38 degrees without the brace and 18 in the brace which

is great!!!!. So the brace is holding him, straightening him and on top of it

all, it is comfortable for him to wear, not one problem with it. We casted Santi

a couple of times and went from 50 degrees to 28, which was incredible.. the

casting literally saved us from a very early intervention. Dr. Ventura mentioned

something interesting, have any of you heard of having a scoliosis that is not

idiopathic or congenital but " symptomatic " . He is referring to Santis lack of

muscles in his back at birth, but slowly we are recooperating them, thus it is

holding his scoliosis.. He says the MRI will confirm a lot, but he doesn´t feel

that

Santi falls into either catagory, just curious what you all thought of that

interesting point of view..The PT did say that abdominales and lunges are

essential for kids like him, also she wants us to velcro his feet to the floor

(now that didn´t come out the way it should have, although sometimes I would

like to literally velcro him to the floor to slow him down!!!) She said that

stability and equilibrium are also essential with the curves, because they tend

to lean to one side more then the other. Thus this motion platform is literally

a piece of wood with velcro straps nailed into it and you place his feet in them

so they cannot move, make him do reaches with his hands, waist etc, but not

letting him move his feet, sounds easier then it really is...I hadn´t realized

how much compensation he has to his left side. The Pt also specializes in

training of the Theratogs in Spain..She put them all over him. But we realized

that he now is too strong for

them to be much use, and I expected to see more improvement of his lordosis, but

it didn´t do much. He did get more stability in them, but not much else.. Even

she was a little disappointed in how little they seemed to help him. I thought

they would work well for him, but right now, only in stability, not sure I want

to spend 600 euros on something that doesn´t do too much.. That is all the news

for now on Santiago. Hoping and praying that all the other kids out their

continue getting better and that the future holds a lot of new and better things

for them.

Sincerely,

Kelli and Santiago

[infantile_scoliosi s] 5 year old girl needs our help

Watching the local news last night I heard a headline I could not

ignore. A 5 year old girl now paralyzed from the chest down after

surgery to correct a scoliosis related condition. Hearing this, I

looked down at my son sleeping in my arms. He is in his first cast.

If I hadn't researched treatment myself and had followed the first

recommendation of surgery we recieved, that could have been Jaydon. It

brought into perspective, even more, how critical educating our

pysicians on EPT is for our children and the children of those who are

not aware that they have options.

Here is a link to the website for Abrigail Gadson. I hope some of you

will be able to help. I intend to do all I can for a family that

wasn't as lucky as my family has been.

http://www.abrigail

<http://www.abrigail gadsonhopefund. org/Abrigail_ Gadson_Hope_ Fund/Welcome.>

gadsonhopefund. org/Abrigail_ Gadson_Hope_ Fund/Welcome.

html

[Guest guest]

,

Thanks for sharing that with me.... My amniotic fluid was on the lower side

of normal during my second trimester, as well. My OB wasn't too concerned and

just told me to drink more fluids and rest a little more. Within the next 2-3

weeks, my levels improved. I also did not feel Noelle do a lot of rolling in

utero.... Kicking and punching, yes, but not those big rolling movements that a

lot of moms talk about. I also had a c-section.... My birth canal was way too

narrow for her to descend. Dr. and I haven't really discussed any

additional possible causes for her scoli because all of her tests to date are

normal and muscularly she appears just fine to every specialist we've seen. It

was the geneticist who felt that it probably wasn't from the way she laid in

utero, but from something else underlying..... Which, I have to say, is still

on my mind...... He believes that there is " something " that caused her scoli to

continue to worsen, but I'm still

unsure...... If all these tests come back negative, then I have to believe

that she got comfy somewhere inside of me and didn't feel like moving!!!!! lol

Anyway, that's what I hope and he said that he is hoping for that as well....

He suggested that there is a slim chance it could have been her positioning. I

will continue to post as I get results back and I will discuss this with Dr. S

when I see him in June, as well, and let you know what he says. Please let me

know how your daughter progresses and if there are any other tests that I should

know about and I'll do the same. In my heart, I think her future will be normal

and healthy, but the worry is always there. Thinking of you, Steph

Murray wrote:

Steph,

My daughter was born with scoliosis, dismorfic features to her face & extra skin

under her arm when she was born. She was a mystery to the Doctors at Westchester

Medical Center (NY). This all happened in utero, she did not move around too

much during those nine months. She spent 30 days in the NICU & was tested by

nuerologist, geneticist, cardiologist, pulmonologists, orthopedists,

neurosurgeon. Then we continued after she was released, all because no one would

truly take into consideration that all this happened in utero. Ended up that all

tests came back ok. Most of the Doctors were sure that the scoliosis had to be

resulting from somthing. It is very interesting the Doctor below (Dr. Ventura

indicated that there could be another term other than ideopathic or congenital.

I so truly believe that this occurred totally in utero.

The geneticist we went to did indicate that the last sonogram (taken the day i

had my C-section) amniotic fluid was low. So he did indicate oligohydramnios

syndrome/effect (just means low fluid). This would mean that the baby would have

had little room to move around, they also took pictures of my daughter dimpples

(on her legs, arms) this indicates very little movement in utero. They did

multiple blood tests & all came back normal. Dont recall the marker 22 or eye

exam, wish i could give you more info on those.

The neurological exam; my daughter did not have that test, but i do see that

since she curves to her left there is definite compensation going on & she does

appear to be stonger w/ her right side. I have had that test myself & it does

not hurt, it just feels weird because they manipulate your nerves to make you

twich.

As mothers i think that we notice the asymetry in our childs face more than

anyone, my daughters dismorfic features have totally resolved (this was within a

few weeks) but she still has asymerty. Is it Doctor that feels that this

could not have happened in utero? I was just in the midst of mailing them all my

daughters x-rays & paper work.

My daughter has progressed (slowly) but i truly feel it was all due to position

in utero.

I have the same question/concerns as you with all this testing & the future.

Kauffunger wrote:

Hi Tasha,

We saw Noelle's neuro and geneticist yesterday.... What a LONG day!!!!!!! Her

neuro eval was great.... I asked her to prescribe some PT for Noelle and she

thought it was a good idea due to her torticollis, which has improved,but she

said it couldn't hurt so why not? And I agreed. We go back in 6 months. The

geneticist's visit confused/relieved /scared me more all at the same time!!!! He

and 2 of his staff memebers were present and they all agree that Noelle is

physically very strong, developmentally at or above age level, and advanced

asfar as verbal/communication skills, etc. They were a bit puzzled about how to

proceed with her because other than the scoli, torticollis and mild

hydroplagiocephaly, she has no other issues. They are running some blood tests

to rule out certain things that I don't completely understand. One is on marker

22 for cpk to rule out the leakage of a certain muscular protein, which they

don't think she has and a few other tests that they

are pretty sure will come back negative. They want her to have an eye exam to

look at her optical nerves for some possible clues as to the cause of her scoli,

so we will schedule that . He says we may check with her neuro to do a special

test where tiny needles are placed at certain points on the body and check the

various muscles and nerves on the right and left sides of the body. This test

could tell us if the muscles on one side of her body are devoloping faster than

the other side or if it's an issue where the nerves on one side of the body are

stronger than the other, which could cause the scoli. I asked him if it could

just be a positional issue in utero and he said that it could, but the fact that

the scoli was getting worse leads him to think it was more likely to be

something else that was still affecting the spine. He did ask me about my

uterus! And if Noelle was a twin, if I had fibroids, etc.... Anything that would

inhibit her movement inside of me. I

have no uterine issues, but I never felt her rolling around in there.... just

kicking and punching mostly! I'm worried that if the cause is muscular, that

once the cast and brace come off, the scoli could return again. I'm going to

have to ask Dr. S about that, too, in June. What do you think? He seems to think

if the scoli was caused by uterine positioning that it shouldn't have

progressed, but I'm not so sure..... And, at what point do I stop with the

testing? So, on the one hand, I feel great that Noelle is doing so well right

now, but scared that there still may be some underlying cause that could worsen

as she ages. I'm actually terrified that if one side continues to develop

faster, that she will become mishapen as she grows! Do you think I'm nuts!? The

truth is that her plagiocephaly is so mild that only expert-type docs even pick

it up.... Her pediatrician and some orthos have actually said they don't see

assymetry in her face..... Just seems like

there is always something more to test!!!!! Steph

Tasha Fontenot wrote:

Hi ,

When saw a geneticist, she felt it was due to his positioning in utero.

is a twin. For 3 months he literally stayed in 1 spot in my belly. He moved

his arms and legs, but was head down in the birth canal ready for the world. He

gave his brother lots of room to move around. Anyway I have heard of several

scoli kids that their docs/geneticist thought the same thing......positioning in

utero.

I'll be anxious to hear what they say about Noelle.

Tasha

Mommy of twin boys- and 3 years old

Fort Worth, Texas

is currently in a brace-8 degrees out of brace!!

Kauffunger wrote: Hi Kelli,

Congratulations on your great news with Santiago!!!! You actually raised a very

interesting point for me with the mention of " symptomatic " scoliosis. My

daughter has infantile scoli from birth and some of her docs from NYU are still

referring to it as congenital and not ideopathic. We are actually seeing a

geneticist tomorrow as well as her neurologist for further evaluation. When I

spoke to the nurse practitioner several days ago, she sort of mentioned that the

scoli has to be caused by something.... if not a spinal abnormality, then

perhaps her position in utero could be the " cause " . Even in cast, Noelle does

tend to lean to one side and I have often wondered if she would benefit from

some type of PT and will mention these exercises to the docs tomorrow. Thanks

for the great info and good luck with the brace!!!! Steph

kelli peasley wrote:

Hi everyone, just thought I would give you the latest on Santiago. Just got back

from Barcelona with Dr. Ventura and three other specialists . The great news is

that the Providence brace is doing just what we hoped it would, its working...

His official curve is at 38 degrees without the brace and 18 in the brace which

is great!!!!. So the brace is holding him, straightening him and on top of it

all, it is comfortable for him to wear, not one problem with it. We casted Santi

a couple of times and went from 50 degrees to 28, which was incredible.. the

casting literally saved us from a very early intervention. Dr. Ventura mentioned

something interesting, have any of you heard of having a scoliosis that is not

idiopathic or congenital but " symptomatic " . He is referring to Santis lack of

muscles in his back at birth, but slowly we are recooperating them, thus it is

holding his scoliosis.. He says the MRI will confirm a lot, but he doesn´t feel

that

Santi falls into either catagory, just curious what you all thought of that

interesting point of view..The PT did say that abdominales and lunges are

essential for kids like him, also she wants us to velcro his feet to the floor

(now that didn´t come out the way it should have, although sometimes I would

like to literally velcro him to the floor to slow him down!!!) She said that

stability and equilibrium are also essential with the curves, because they tend

to lean to one side more then the other. Thus this motion platform is literally

a piece of wood with velcro straps nailed into it and you place his feet in them

so they cannot move, make him do reaches with his hands, waist etc, but not

letting him move his feet, sounds easier then it really is...I hadn´t realized

how much compensation he has to his left side. The Pt also specializes in

training of the Theratogs in Spain..She put them all over him. But we realized

that he now is too strong for

them to be much use, and I expected to see more improvement of his lordosis, but

it didn´t do much. He did get more stability in them, but not much else.. Even

she was a little disappointed in how little they seemed to help him. I thought

they would work well for him, but right now, only in stability, not sure I want

to spend 600 euros on something that doesn´t do too much.. That is all the news

for now on Santiago. Hoping and praying that all the other kids out their

continue getting better and that the future holds a lot of new and better things

for them.

Sincerely,

Kelli and Santiago

[infantile_scoliosi s] 5 year old girl needs our help

Watching the local news last night I heard a headline I could not

ignore. A 5 year old girl now paralyzed from the chest down after

surgery to correct a scoliosis related condition. Hearing this, I

looked down at my son sleeping in my arms. He is in his first cast.

If I hadn't researched treatment myself and had followed the first

recommendation of surgery we recieved, that could have been Jaydon. It

brought into perspective, even more, how critical educating our

pysicians on EPT is for our children and the children of those who are

not aware that they have options.

Here is a link to the website for Abrigail Gadson. I hope some of you

will be able to help. I intend to do all I can for a family that

wasn't as lucky as my family has been.

http://www.abrigail

<http://www.abrigail gadsonhopefund. org/Abrigail_ Gadson_Hope_ Fund/Welcome.>

gadsonhopefund. org/Abrigail_ Gadson_Hope_ Fund/Welcome.

html

[Guest guest]

,

I have also been wondering just how far to go with the testing. Noelle's

geneticist does feel that her plagio, torticollis and scoli are all related

because they are all on the right side. Please let me know how Dylan's blood

test goes. Steph

Dolley wrote:

We have also seen a geneticist and a neuro for Dylan. The geneticist didn't see

anything obvious on a clinical evaluation that led her to think any obvious

genetic disorders, she ran one blood test to test for some proteins that might

indicate a neuromuscular disorder and those came back normal. She thought that

the scoliosis might be related to the torticollis and recommended we just wait

and see and maybe do a chromosonal microarray analysis. To be honest, the

geneticist we saw didn't really impress me. We didn't do any further testing at

that time, but then in January we saw a neurologist. She recommended a bunch of

blood tests to test all sorts of organic acids, the chromosonal microarray

analysis, a urine test to check for proteins, and a bunch of other tests that I

have no idea what they were. She said her hunch was that they would all come

back normal. She looked at a brain MRI that he had done for another condition he

has (benign extra

axial fluid of infancy). She said that everything on the MRI looked normal. We

have just now gotten around to getting all of the blood tests she ordered

completed (as in I just went this morning). But if they come back normal, I

don't know what's left other than an EMG and a muscle biopsy. Dylan is slightly

delayed in gross motor, but he only has what the doctors describe as mild low

tone. His physical therapist feels that his tone has definitely improved over

time as well and it was always on the mild end. He was born three months

premature, so it's not unusual for a preemie to have low tone. But that also

eliminates any possibility for intrauterine molding (he was only 2 lbs. 12

ounces when he was born). So, I don't know if there is some underlying condition

going on or if it is just a fluke from having some mild tone, torticollis, and a

pretty large head as well as possibly a genetic predisposition to scoliosis

since I have a mild case

myself. I would like to have answers, but I also am questioning just how far to

go with the testing. I think for me it might depend on how his development goes

once he gets out of the cast (in 2 months) and whether or not he remains

straight once he gets in the brace. Now that I have finally gotten the blood

work done, I am a little anxious to find out what the results will be.

[infantile_scoliosi s] 5 year old girl needs our help

Watching the local news last night I heard a headline I could not

ignore. A 5 year old girl now paralyzed from the chest down after

surgery to correct a scoliosis related condition. Hearing this, I

looked down at my son sleeping in my arms. He is in his first cast.

If I hadn't researched treatment myself and had followed the first

recommendation of surgery we recieved, that could have been Jaydon. It

brought into perspective, even more, how critical educating our

pysicians on EPT is for our children and the children of those who are

not aware that they have options.

Here is a link to the website for Abrigail Gadson. I hope some of you

will be able to help. I intend to do all I can for a family that

wasn't as lucky as my family has been.

http://www.abrigail

<http://www.abrigail gadsonhopefund. org/Abrigail_ Gadson_Hope_ Fund/Welcome. >

gadsonhopefund. org/Abrigail_ Gadson_Hope_ Fund/Welcome.

html

[Guest guest]

That is such great news about Santi! Thank you so much for sharing. I am so

happy for you.

Nadia is wearing her Providence brace without too much complaint. We are

trying to keep her in it between 11-12 hours (she sleeps about 10-11 hours at

night). Is that the right amount of time- I haven't been able to get a clear

answer. How long do you all keep the brace on per day?

Anyway, our doc has not taken an in-brace x-ray. He doesn't seem to care

where it is holding her. Can't quite figure that one out. But the orthotists

seem to think she looks right in it. And I don't think there is any way we

could get it much tighter anyway.

The one thing the ortho doc really wanted for Nadia is aggressive PT. He was

super concerned about how stiff she was and atrophied- from being in a cast for

22 months. For the last month we have been going 2x per week and then

practicing on the days off. I think we are getting promoted to must 1x per week

as she is getting much more flexible and strong. Sounds as ifthe PT has the

same goal as what you are describing, , a lot of reaches and stretches.

I was wondering, what are theratogs?

Is there PT particularly designed for scoliosis? I saw something about

Schroth- but are the american PTs trained in it? Is there anything we could

have access to?

Also as a potentially interesting aside. My 8-month old was diagnosed by our

ortho doc with some lumbar kyphosis, which we are addressing with PT and a

neoprene belt he is supposed to wear around his torso 2 hours per day. The

ortho did not see scoliosis luckily. He thinks the kyphosis may be due to my

son being such a huge, lumbering kid and his tone being on the lower end of the

spectrum- he kind of slouches when he sits after a while. Over the last month

the ortho says though that he has already seen some improvement.

That's the latest. Take care, Abigail

---------------------------------

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