Re: Are there any exercises, stretches that help with infantile scoliosis?

[Guest guest]

,

I was told that bracing would be considered at 15-20 degrees and surgery at 25

degrees. Initially, the dr thought that it was going to resolve as he

maintained at 11 for a while and then it changed. Can you tell me what RVAD is?

I do not think there is any rotation of the spine. He had a MRI and I was told

that was normal in terms of it being idipoathic vs some other cause. He does

not have any pain or discomfort. He did go through a time where he preferred to

sleep on the floor but this was more when he was 3. Thanks so much for your

help. I feel like I am learning a new language.

Re: Are there any exercises, stretches that help

with infantile scoliosis?

I'm not a doctor by any means, but Noelle's docs have pretty much all agreed

that any kind of PT does not help the scoliosis itself in infants... It can help

with other muscular issues, like torticollis, etc. Has his RVAD been measured

and is there any rotation in the spine? 13 degrees is pretty low and I know that

Dr. said we would begin bracing Noelle once she was under 10 degrees,

which he considers to medically insignificant. Has any doc suggested a brace

yet? Does he have any trouble with his motor skills or any discomfort? You can

also send a copy of his most recent x-ray to one of the Mehta-trained docs for

an evaluation.. .. They would call you with their suggestions. A lot of us have

sent docs our x-rays first because most of us don't live near these very special

doctors and they know that we travel quite a distance to see them. Good luck!

valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been

through the MRI and found out

it was idiopathic. It started at 11 degrees at stayed there for a year

and now the curve is at 13 degrees. I'm searching for any noninvasive

methods that could help him. He is now 5 years old. There is not a

scoliosis center in our area.

____________ _________ _________ _________ _________ __

[Guest guest]

,

I was told that bracing would be considered at 15-20 degrees and surgery at 25

degrees. Initially, the dr thought that it was going to resolve as he

maintained at 11 for a while and then it changed. Can you tell me what RVAD is?

I do not think there is any rotation of the spine. He had a MRI and I was told

that was normal in terms of it being idipoathic vs some other cause. He does

not have any pain or discomfort. He did go through a time where he preferred to

sleep on the floor but this was more when he was 3. Thanks so much for your

help. I feel like I am learning a new language.

Re: Are there any exercises, stretches that help

with infantile scoliosis?

I'm not a doctor by any means, but Noelle's docs have pretty much all agreed

that any kind of PT does not help the scoliosis itself in infants... It can help

with other muscular issues, like torticollis, etc. Has his RVAD been measured

and is there any rotation in the spine? 13 degrees is pretty low and I know that

Dr. said we would begin bracing Noelle once she was under 10 degrees,

which he considers to medically insignificant. Has any doc suggested a brace

yet? Does he have any trouble with his motor skills or any discomfort? You can

also send a copy of his most recent x-ray to one of the Mehta-trained docs for

an evaluation.. .. They would call you with their suggestions. A lot of us have

sent docs our x-rays first because most of us don't live near these very special

doctors and they know that we travel quite a distance to see them. Good luck!

valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been

through the MRI and found out

it was idiopathic. It started at 11 degrees at stayed there for a year

and now the curve is at 13 degrees. I'm searching for any noninvasive

methods that could help him. He is now 5 years old. There is not a

scoliosis center in our area.

____________ _________ _________ _________ _________ __

[Guest guest]

Thanks . When I first found out we did stretches and used some pilates

type moves and then I faded off doing that after the next xray was normal and

now there has been movement. The dr told me there's nothing I can do to impact

it, but I want to do something.Thanks

Re: Are there any exercises, stretches that help

with infantile scoliosis?

My dauhter has pysical therapy once a week & we have been told by two

othopedists that there is no proven excercises that will help improve the curve.

We continue the physical therapy for stretcing/strengthe ning. My daughters Mid

section was very week due to the positining in utero (bent backwards w/ stomach

protruding). We focus on strengthning the core mid section. I also think it

helps with my daughters rotation & balance, by duing physical therapy.

Any little bit helps i think.

Kauffunger <slguerra710@ yahoo.com> wrote:

I'm not a doctor by any means, but Noelle's docs have pretty much all agreed

that any kind of PT does not help the scoliosis itself in infants... It can help

with other muscular issues, like torticollis, etc. Has his RVAD been measured

and is there any rotation in the spine? 13 degrees is pretty low and I know that

Dr. said we would begin bracing Noelle once she was under 10 degrees,

which he considers to medically insignificant. Has any doc suggested a brace

yet? Does he have any trouble with his motor skills or any discomfort? You can

also send a copy of his most recent x-ray to one of the Mehta-trained docs for

an evaluation.. .. They would call you with their suggestions. A lot of us have

sent docs our x-rays first because most of us don't live near these very special

doctors and they know that we travel quite a distance to see them. Good luck!

valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been

through the MRI and found out

it was idiopathic. It started at 11 degrees at stayed there for a year

and now the curve is at 13 degrees. I'm searching for any noninvasive

methods that could help him. He is now 5 years old. There is not a

scoliosis center in our area.

____________ _________ _________ _________ _________ __

[Guest guest]

Thanks . When I first found out we did stretches and used some pilates

type moves and then I faded off doing that after the next xray was normal and

now there has been movement. The dr told me there's nothing I can do to impact

it, but I want to do something.Thanks

Re: Are there any exercises, stretches that help

with infantile scoliosis?

My dauhter has pysical therapy once a week & we have been told by two

othopedists that there is no proven excercises that will help improve the curve.

We continue the physical therapy for stretcing/strengthe ning. My daughters Mid

section was very week due to the positining in utero (bent backwards w/ stomach

protruding). We focus on strengthning the core mid section. I also think it

helps with my daughters rotation & balance, by duing physical therapy.

Any little bit helps i think.

Kauffunger <slguerra710@ yahoo.com> wrote:

I'm not a doctor by any means, but Noelle's docs have pretty much all agreed

that any kind of PT does not help the scoliosis itself in infants... It can help

with other muscular issues, like torticollis, etc. Has his RVAD been measured

and is there any rotation in the spine? 13 degrees is pretty low and I know that

Dr. said we would begin bracing Noelle once she was under 10 degrees,

which he considers to medically insignificant. Has any doc suggested a brace

yet? Does he have any trouble with his motor skills or any discomfort? You can

also send a copy of his most recent x-ray to one of the Mehta-trained docs for

an evaluation.. .. They would call you with their suggestions. A lot of us have

sent docs our x-rays first because most of us don't live near these very special

doctors and they know that we travel quite a distance to see them. Good luck!

valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been

through the MRI and found out

it was idiopathic. It started at 11 degrees at stayed there for a year

and now the curve is at 13 degrees. I'm searching for any noninvasive

methods that could help him. He is now 5 years old. There is not a

scoliosis center in our area.

____________ _________ _________ _________ _________ __

[Guest guest]

,

How does the process of sending your x-rays to a Mehta-trained doctor work? Do

you mail them normal post office? Is there a fee for consultation to let you

know if they could help you? Where did you become so informed on the Mehta

method? Thanks for all of your help.

Re: Are there any exercises, stretches that help

with infantile scoliosis?

I'm not a doctor by any means, but Noelle's docs have pretty much all agreed

that any kind of PT does not help the scoliosis itself in infants... It can help

with other muscular issues, like torticollis, etc. Has his RVAD been measured

and is there any rotation in the spine? 13 degrees is pretty low and I know that

Dr. said we would begin bracing Noelle once she was under 10 degrees,

which he considers to medically insignificant. Has any doc suggested a brace

yet? Does he have any trouble with his motor skills or any discomfort? You can

also send a copy of his most recent x-ray to one of the Mehta-trained docs for

an evaluation.. .. They would call you with their suggestions. A lot of us have

sent docs our x-rays first because most of us don't live near these very special

doctors and they know that we travel quite a distance to see them. Good luck!

valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been

through the MRI and found out

it was idiopathic. It started at 11 degrees at stayed there for a year

and now the curve is at 13 degrees. I'm searching for any noninvasive

methods that could help him. He is now 5 years old. There is not a

scoliosis center in our area.

____________ _________ _________ _________ _________ __

[Guest guest]

,

I found website scoliosisrehab.com/program. It would be too old as they serve

10yo and up females and 12yo and up males. It is like an intensive 2 week camp

where they teach the children how to hold themselves and develop their core.

However, there is an entire physical therapy method called Schroth that was

developed for Infantile and idiopathic scoliosis which I had never heard of

before. Thought you might be interested.

Re: Are there any exercises, stretches that help

with infantile scoliosis?

My dauhter has pysical therapy once a week & we have been told by two

othopedists that there is no proven excercises that will help improve the curve.

We continue the physical therapy for stretcing/strengthe ning. My daughters Mid

section was very week due to the positining in utero (bent backwards w/ stomach

protruding). We focus on strengthning the core mid section. I also think it

helps with my daughters rotation & balance, by duing physical therapy.

Any little bit helps i think.

Kauffunger <slguerra710@ yahoo.com> wrote:

I'm not a doctor by any means, but Noelle's docs have pretty much all agreed

that any kind of PT does not help the scoliosis itself in infants... It can help

with other muscular issues, like torticollis, etc. Has his RVAD been measured

and is there any rotation in the spine? 13 degrees is pretty low and I know that

Dr. said we would begin bracing Noelle once she was under 10 degrees,

which he considers to medically insignificant. Has any doc suggested a brace

yet? Does he have any trouble with his motor skills or any discomfort? You can

also send a copy of his most recent x-ray to one of the Mehta-trained docs for

an evaluation.. .. They would call you with their suggestions. A lot of us have

sent docs our x-rays first because most of us don't live near these very special

doctors and they know that we travel quite a distance to see them. Good luck!

valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been

through the MRI and found out

it was idiopathic. It started at 11 degrees at stayed there for a year

and now the curve is at 13 degrees. I'm searching for any noninvasive

methods that could help him. He is now 5 years old. There is not a

scoliosis center in our area.

____________ _________ _________ _________ _________ __

[Guest guest]

Thanks Steph,

I live near Columbia, SC and I have seen that there is a Dr at Shriners Hospital

in Greeenville, NC who is metha trained Dr P. Staskielis, (which is about 2

hours from me). I don't know anything about him and haven't ready anything

about him yet on the emails. I'm not sure how 's age figures in as he is

51/2 years old. I think I'll look into the video.

Thanks

Re: [infantile_scoliosi s] Are there any exercises, stretches that help

with infantile scoliosis?

I'm not a doctor by any means, but Noelle's docs have pretty much all agreed

that any kind of PT does not help the scoliosis itself in infants... It can help

with other muscular issues, like torticollis, etc. Has his RVAD been measured

and is there any rotation in the spine? 13 degrees is pretty low and I know that

Dr. said we would begin bracing Noelle once she was under 10 degrees,

which he considers to medically insignificant. Has any doc suggested a brace

yet? Does he have any trouble with his motor skills or any discomfort? You can

also send a copy of his most recent x-ray to one of the Mehta-trained docs for

an evaluation.. .. They would call you with their suggestions. A lot of us have

sent docs our x-rays first because most of us don't live near these very special

doctors and they know that we travel quite a distance to see them. Good luck!

valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been

through the MRI and found out

it was idiopathic. It started at 11 degrees at stayed there for a year

and now the curve is at 13 degrees. I'm searching for any noninvasive

methods that could help him. He is now 5 years old. There is not a

scoliosis center in our area.

____________ _________ _________ _________ _________ __

[Guest guest]

Val,

I have also heard about Greenville Shriners, but I don't personally know

anything about them... Hopefully other moms will chime in for me here!!!! I

would strongly suggest that in addition to looking at the video that you also

send the x-rays there.... there is no charge for them to look at your films and

call you with their recommendations. You've got nothing to lose and it could

provide you with valuable information and the right resources. When Noelle was

first diagnosed, it was Jane at Erie Shriners who relayed all of my info to

Dr. and really walked me through the beginning of my journey with

Noelle's scoli. I'm hoping for the same for you!!!!!! Good luck and keep us

posted.... Steph

Val Koeppen wrote:

Thanks Steph,

I live near Columbia, SC and I have seen that there is a Dr at Shriners Hospital

in Greeenville, NC who is metha trained Dr P. Staskielis, (which is about 2

hours from me). I don't know anything about him and haven't ready anything about

him yet on the emails. I'm not sure how 's age figures in as he is 51/2

years old. I think I'll look into the video.

Thanks

Re: [infantile_scoliosi s] Are there any exercises, stretches that help

with infantile scoliosis?

I'm not a doctor by any means, but Noelle's docs have pretty much all agreed

that any kind of PT does not help the scoliosis itself in infants... It can help

with other muscular issues, like torticollis, etc. Has his RVAD been measured

and is there any rotation in the spine? 13 degrees is pretty low and I know that

Dr. said we would begin bracing Noelle once she was under 10 degrees,

which he considers to medically insignificant. Has any doc suggested a brace

yet? Does he have any trouble with his motor skills or any discomfort? You can

also send a copy of his most recent x-ray to one of the Mehta-trained docs for

an evaluation.. .. They would call you with their suggestions. A lot of us have

sent docs our x-rays first because most of us don't live near these very special

doctors and they know that we travel quite a distance to see them. Good luck!

valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been

through the MRI and found out

it was idiopathic. It started at 11 degrees at stayed there for a year

and now the curve is at 13 degrees. I'm searching for any noninvasive

methods that could help him. He is now 5 years old. There is not a

scoliosis center in our area.

____________ _________ _________ _________ _________ __

[Guest guest]

Steph,

I read the Metha article this weekend and was really impressed. Here's what I'm

thinking call Greenville and see what they want of the records and send them?

Did you send the latest x-ray or all of them. We also had leg x-rays and MRI.

Just still figuring this all out. Thanks.I'll be praying for you guys as you

await the results!

Val

Re: [infantile_scoliosi s] Are there any exercises, stretches that help

with infantile scoliosis?

I'm not a doctor by any means, but Noelle's docs have pretty much all agreed

that any kind of PT does not help the scoliosis itself in infants... It can help

with other muscular issues, like torticollis, etc. Has his RVAD been measured

and is there any rotation in the spine? 13 degrees is pretty low and I know that

Dr. said we would begin bracing Noelle once she was under 10 degrees,

which he considers to medically insignificant. Has any doc suggested a brace

yet? Does he have any trouble with his motor skills or any discomfort? You can

also send a copy of his most recent x-ray to one of the Mehta-trained docs for

an evaluation.. .. They would call you with their suggestions. A lot of us have

sent docs our x-rays first because most of us don't live near these very special

doctors and they know that we travel quite a distance to see them. Good luck!

valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been

through the MRI and found out

it was idiopathic. It started at 11 degrees at stayed there for a year

and now the curve is at 13 degrees. I'm searching for any noninvasive

methods that could help him. He is now 5 years old. There is not a

scoliosis center in our area.

____________ _________ _________ _________ _________ __

[Guest guest]

Thanks Val! I would send whatever you have to give them the best overall

picture.... I always included a short letter with my most important questions

as well. Be sure to include your name and number with the x-rays so they can

contact you and your child's age.... I would also call them first to let them

know that you are sending them and to start working with a care coordinator....

You usually stay in contact with the same one and they are a godsend!!!! You

are definately doing the right thing by calling to see exactly what they want

sent and by reading the literature. Thanks for the prayers... I swear they

help because she is doing amazingly well! Let me know when you send Greenville

the x-rays.... I'm anxious to hear what they tell you! Good luck! Thinking of

ya! Steph

Val Koeppen wrote: Steph,

I read the Metha article this weekend and was really impressed. Here's what I'm

thinking call Greenville and see what they want of the records and send them?

Did you send the latest x-ray or all of them. We also had leg x-rays and MRI.

Just still figuring this all out. Thanks.I'll be praying for you guys as you

await the results!

Val

Re: [infantile_scoliosi s] Are there any exercises, stretches that help

with infantile scoliosis?

I'm not a doctor by any means, but Noelle's docs have pretty much all agreed

that any kind of PT does not help the scoliosis itself in infants... It can help

with other muscular issues, like torticollis, etc. Has his RVAD been measured

and is there any rotation in the spine? 13 degrees is pretty low and I know that

Dr. said we would begin bracing Noelle once she was under 10 degrees,

which he considers to medically insignificant. Has any doc suggested a brace

yet? Does he have any trouble with his motor skills or any discomfort? You can

also send a copy of his most recent x-ray to one of the Mehta-trained docs for

an evaluation.. .. They would call you with their suggestions. A lot of us have

sent docs our x-rays first because most of us don't live near these very special

doctors and they know that we travel quite a distance to see them. Good luck!

valpoind <valpoindyahoo (DOT) com> wrote: My son was diagnosed at 3 yo. We've been

through the MRI and found out

it was idiopathic. It started at 11 degrees at stayed there for a year

and now the curve is at 13 degrees. I'm searching for any noninvasive

methods that could help him. He is now 5 years old. There is not a

scoliosis center in our area.

____________ _________ _________ _________ _________ __