Re: Well, It is Official

[Guest guest]

Ah Debs. This is so depressing. Why didn¹t your otho just order the bone

scan? With your kneecap cracking TWICE, it is justifiable to have a dexa

scan done. These pass the buck doctors really piss me off.

They just don¹t want to deal with the insurance company bull.

The bone marrow biopsy and GI test aren¹t any fun, but will help tell the

story of what is going on. You must really be feeling bad with such severe

anemia. I wish these tests weren¹t so unpleasant.

I¹d be very discouraged if I were in your shoes too. But they can¹t do

anything to fix these problems unless you get the tests done and the longer

you wait, the longer it will take to get a remedy.

Easy for me to say, I know. I just want you to be ok.

I hope the injection takes away your pain.

((((((gentle hugs)))))))

a

On 6/10/02 11:49 PM, " Auntblabbie2000@... " <Auntblabbie2000@...>

wrote:

> Hi All,

>

> It has taken me a while to get up enough steam to write this post. I went to

> my knee ortho today and he confirmed that, yes, indeed, I have refractured my

> knee. He was less than pleased. My first suggestion was to go in there and

> just take out the whole knee cap. Once again, he was less than pleased with

> this suggestion. If just sitting on a toilet, is going to crumble my

> patella, then anytime I sit or get up, I am going to have a fear of something

> breaking. Of course, the doctor took no responsibility for this new fracture

> which is in a different spot and is wider and deeper than the first one. His

> first plan was to remove the fluid from my knee to see if he got blood back

> showing the prescience of a fracture: BINGO, as red as could be. Then he

> proceeded to go further with another injection and put " numbing medicine "

> (lidocaine and cortisone) into the joint in case the fracture had caused some

> irritation to the surrounding tissues and bones. His third plan is to

> totally immobilize the knee for 3-6 weeks to see if the fracture will heal by

> itself. No driving, no swimming, no cooking, no cleaning, COMPLETE bed rest

> and my family should get a bell for me that when I need something all I have

> to do is ring it. And our fourth and final plan is to increase the pain

> medication....big surprise there.

>

> We had words and voices did escalate, but hell it is my knee & this has been

> going on since Feb/2002 and his treatments are all temporary solutions. My

> knee has been in the immobilizer since a week ago Thursday and I have been

> pretty much in bed because of my knee and because of my blood condition (no

> energy to get my head off the pillow). More pain pills don't solve any

> problem. I am so discouraged and disgusted right now. The ortho says that

> maybe I should get another bone density test which the rheumy says doesn't

> need to be done until next year. Patient in the middle again!

>

> I am supposed to go for Remicade and IV Iron tomorrow, but am unable to drive

> as this is my right knee and I just don't even feel like going. My rheumy

> wants the oncologist to perform a bone marrow biopsy asap, but right now I am

> as interested in that as I am in having a colonoscopy/endoscopy to find out

> where the source of bleeding is, if any.

>

> When the medical community pulls things like this, it kinda throws me off the

> track for a while and I end up trusting no one and I usually stop all

> medications cold turkey.

>

> I am in so much pain today and I hate staying home so much while everyone is

> gone during the day. Not a happy camper, I would like to go to Chicago to

> see my sister but my husband refuses to let me go and my sister and I aren't

> exactly speaking a lot right now.

>

> I have shed a river of tears today over the state of my so called life. Came

> to the conclusion that my whole like I was given lemons and I am tired of

> making lemonade. Didn't even eat dinner tonight.

>

> Don't feel quite right at this time, kinda flush and , severe miserable,

> stomach pains and nausea. It has been a very very long day, so I will be

> closing early.

>

> Gentle, tender, angel hugs to one and all,

>

> Debs in FL

>

>

[Guest guest]

Dearest Debs....How I wish I could help you somehow. Know you are in my

heart & in my prayers. I love you, kiddo. My shoulder is available

anytime!

Hugs & Love & Prayers & Hope....

Tess

God bless you in every way you need

[Guest guest]

Ahhh, thanks a,

I would kick some butt here if I thought I wouldn't break another bone, but

with my luck right now, better not do that!

Although, it would be some good PT. I would start first with my husband who

I took with and was the WRONG thing as he took the doctors side and then I

would give a whack to the doctor. Well, a girl can dream! With the

prosthesis and the brace, my kicks could really get their attention!

Yes, as I sat there crying yesterday, I kept looking out my front window to

see if the pity party bus had pulled up with the cabana boys, but no such

luck. I sent all the guys out to Tess who was in need of some loving

support, so they are being put to good use! This too shall pass and I am

already in the p***ed off mode. Unfortunately, my situation is not unusual

and is becoming more the norm for many people in this group. This is not the

right treatment for ANY of us!

Things will work themselves out and I will turn everything over to God to

give me the strength to deal with this.

Thanks for being there, in the meantime, I will go back to making my signs

for your arrival in Florida!

Gentle, tender, angel hugs to you my friend,

Debs

[Guest guest]

Tess,

Thanks honey. Just use all your strength to kick butt with those tonsils and

hurry back to us. You are special and I may have to ask for those cabana

boys back when you are done with them!

It is 8:00 am here on the East coast and I am already getting my candle ready

for you. God will bless you.....

Love,

Des

[Guest guest]

,

You are so sweet. This group is a Godsend! It is the only positive thing

about this disease!

My daughters will be out of school in 3 days and that is the medicine for me

in the world. We have also been blessed by a very strong church family (we

have no one down here from either side)so all we need to do is put out the

word and the help will come pouring in. Everything will work itself out

somehow, it just seems very overwhelming right now. Brought the old hubby

with who was NO help, so that was a little disheartening. Unfortunately,

what I am going thru is being experienced by more and more members on a

regular basis. That is not right for ANY of us. Having my laptop, which

means having all you guys close will get me thru this.

I will be taking some of my own medicine and have sent an e-mail to Tess,

that when she is done with the cabana boys, she should send them back home to

Florida! I have already lit my candle for Tess, even though it is early here

on the east coast.

We have a tropical wave sitting off our coast right now, so they say bad

weather is on tap for today. Oh well, liquid sunshine!

Once again, thank you for being there, it helps more than you know!

Gentle, tender, angel hugs,

Debs in FL

[Guest guest]

Tess,

You go Girl! Keep the guys as long as needed. Maybe it is time to recruit

some new ones!

Hugs and love to you,

Deb

[Guest guest]

debs i am so sorry to hear about your knee. i'm glad you gave the riot act to

your dr. hope they can fix your problem soon. i am so sorry to hear of your

pain. kathy in il

[Guest guest]

Hi Deb -

I'm so sorry to hear about your kneecap and the doctor problems you're

having. I hate getting caught in the middle when doctors disagree. I agree

with you that you need a more permanent solution to your knee problems, but

(as much as it pains me to say this) you probably also need to have those

tests done. You've had a really difficult time of it these past few months

and hopefully the tests will help them figure out how to help you.

In the meantime, you are stuck on bed rest and that really stinks. Is there

anything we can do to help the time go better? You can e-mail me directly

at karenanne_71@... if there is anything I can do to help. I could

send you some books or dinner to the house or something. Well, at the very

least, I'll keep you in my prayers, and send you e-hugs.

Hope you're feeling better soon - in Virginia

>From: Auntblabbie2000@...

>Reply-

>

>Subject: [ ] Well, It is Official

>Date: Mon, 10 Jun 2002 23:49:54 EDT

>

>Hi All,

>

>It has taken me a while to get up enough steam to write this post. I went

>to

>my knee ortho today and he confirmed that, yes, indeed, I have refractured

>my

>knee. He was less than pleased. My first suggestion was to go in there

>and

>just take out the whole knee cap. Once again, he was less than pleased

>with

>this suggestion. If just sitting on a toilet, is going to crumble my

>patella, then anytime I sit or get up, I am going to have a fear of

>something

>breaking. Of course, the doctor took no responsibility for this new

>fracture

>which is in a different spot and is wider and deeper than the first one.

>His

>first plan was to remove the fluid from my knee to see if he got blood back

>showing the prescience of a fracture: BINGO, as red as could be. Then he

>proceeded to go further with another injection and put " numbing medicine "

>(lidocaine and cortisone) into the joint in case the fracture had caused

>some

>irritation to the surrounding tissues and bones. His third plan is to

>totally immobilize the knee for 3-6 weeks to see if the fracture will heal

>by

>itself. No driving, no swimming, no cooking, no cleaning, COMPLETE bed

>rest

>and my family should get a bell for me that when I need something all I

>have

>to do is ring it. And our fourth and final plan is to increase the pain

>medication....big surprise there.

>

>We had words and voices did escalate, but hell it is my knee & this has

>been

>going on since Feb/2002 and his treatments are all temporary solutions. My

>knee has been in the immobilizer since a week ago Thursday and I have been

>pretty much in bed because of my knee and because of my blood condition (no

>energy to get my head off the pillow). More pain pills don't solve any

>problem. I am so discouraged and disgusted right now. The ortho says that

>maybe I should get another bone density test which the rheumy says doesn't

>need to be done until next year. Patient in the middle again!

>

>I am supposed to go for Remicade and IV Iron tomorrow, but am unable to

>drive

>as this is my right knee and I just don't even feel like going. My rheumy

>wants the oncologist to perform a bone marrow biopsy asap, but right now I

>am

>as interested in that as I am in having a colonoscopy/endoscopy to find out

>where the source of bleeding is, if any.

>

>When the medical community pulls things like this, it kinda throws me off

>the

>track for a while and I end up trusting no one and I usually stop all

>medications cold turkey.

>

>I am in so much pain today and I hate staying home so much while everyone

>is

>gone during the day. Not a happy camper, I would like to go to Chicago to

>see my sister but my husband refuses to let me go and my sister and I

>aren't

>exactly speaking a lot right now.

>

>I have shed a river of tears today over the state of my so called life.

>Came

>to the conclusion that my whole like I was given lemons and I am tired of

>making lemonade. Didn't even eat dinner tonight.

>

>Don't feel quite right at this time, kinda flush and , severe miserable,

>stomach pains and nausea. It has been a very very long day, so I will be

>closing early.

>

>Gentle, tender, angel hugs to one and all,

>

>Debs in FL

_________________________________________________________________

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[Guest guest]

Hi Debs...I'm up, showered, ready to go!

OK, I'll return the CB's soon as I'm better. I must admit they're a

nicer diversion than TV. And you know, they were all perfect....no

bumps or bruises from that FedEx journey! : )

Thanks for your prayers, and lighting a candle. You know, I used to be

a singer...maybe this will bring back some ooomph to my voice once

again!

Saying Ahhhhhhhhhh : O

Tess

[Guest guest]

Dearest Debs,

I'm so sorry you're having all these problems with your knee. I understand

and share your feelings about life giving you lemons and being tired of

making lemonade. It's a hard thing to deal with, chronic illness, and the

problems seem never ending. And your upbeat attitude has been an

inspiration to me, as well as many members of the group I'm sure. I know

things seem hard, and I don't have any words to offer to make the pain go

away, but I do offer my love and prayers and hope this passes soon.

Hugs,

Carol

[ ] Well, It is Official

Hi All,

It has taken me a while to get up enough steam to write this post. I went

to

my knee ortho today and he confirmed that, yes, indeed, I have refractured

my

knee. He was less than pleased. My first suggestion was to go in there and

just take out the whole knee cap. Once again, he was less than pleased with

this suggestion. If just sitting on a toilet, is going to crumble my

patella, then anytime I sit or get up, I am going to have a fear of

something

breaking. Of course, the doctor took no responsibility for this new

fracture

which is in a different spot and is wider and deeper than the first one.

His

first plan was to remove the fluid from my knee to see if he got blood back

showing the prescience of a fracture: BINGO, as red as could be. Then he

proceeded to go further with another injection and put " numbing medicine "

(lidocaine and cortisone) into the joint in case the fracture had caused

some

irritation to the surrounding tissues and bones. His third plan is to

totally immobilize the knee for 3-6 weeks to see if the fracture will heal

by

itself. No driving, no swimming, no cooking, no cleaning, COMPLETE bed rest

and my family should get a bell for me that when I need something all I have

to do is ring it. And our fourth and final plan is to increase the pain

medication....big surprise there.

We had words and voices did escalate, but hell it is my knee & this has been

going on since Feb/2002 and his treatments are all temporary solutions. My

knee has been in the immobilizer since a week ago Thursday and I have been

pretty much in bed because of my knee and because of my blood condition (no

energy to get my head off the pillow). More pain pills don't solve any

problem. I am so discouraged and disgusted right now. The ortho says that

maybe I should get another bone density test which the rheumy says doesn't

need to be done until next year. Patient in the middle again!

I am supposed to go for Remicade and IV Iron tomorrow, but am unable to

drive

as this is my right knee and I just don't even feel like going. My rheumy

wants the oncologist to perform a bone marrow biopsy asap, but right now I

am

as interested in that as I am in having a colonoscopy/endoscopy to find out

where the source of bleeding is, if any.

When the medical community pulls things like this, it kinda throws me off

the

track for a while and I end up trusting no one and I usually stop all

medications cold turkey.

I am in so much pain today and I hate staying home so much while everyone is

gone during the day. Not a happy camper, I would like to go to Chicago to

see my sister but my husband refuses to let me go and my sister and I aren't

exactly speaking a lot right now.

I have shed a river of tears today over the state of my so called life.

Came

to the conclusion that my whole like I was given lemons and I am tired of

making lemonade. Didn't even eat dinner tonight.

Don't feel quite right at this time, kinda flush and , severe miserable,

stomach pains and nausea. It has been a very very long day, so I will be

closing early.

Gentle, tender, angel hugs to one and all,

Debs in FL

[Guest guest]

Dear Debs:

Please hang in there Debs. I know you are going through a lot but try to

tolerate this mess that has been created for you and try not to punish

yourself. Not eating is not going to help but make you have less energy. I

know staying in bed is a hard thing to do but if you do it is a fact that the

fracture will heal. Bones knit quite well when they are at rest. I know it

is no fun stayin bed cause I had to do it once. I had to stay in bed for 6

months when I first got my kidney disease. They felt the rest would prevent

further destruction of my kidneys. It didn't work but I did what they said

to do anyway. It was hard, but if I can do it you can, I know you can. It

might not be too long too, till you feel better. I am praying for you. You

have a tough job ahead of you but I know you can handle it. Don't give up,

please.

Sincerely with hugs, Colletti