Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 GOOD MORNING My face in the mirror Isn't wrinkled or drawn. My house isn't dirty. The cobwebs are gone. My garden looks lovely And so does my lawn. I think I might never Put my glasses back on! Lovedthis...Kathi in OK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 [ ] RE:Good Mornin > > > > GOOD MORNING > > > > My face in the mirror Isn't wrinkled or drawn. > > My house isn't dirty. The cobwebs are gone. > > My garden looks lovely And so does my lawn. > > I think I might never Put my glasses back on! > > > > Lovedthis...Kathi in OK > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 It's a delayed response, but hi Marge and Welcome! You'll find a lot of caring people in this group, as well as a lot of good information on RA. Like you, I try to focus on the remission times, and am getting my life back slowly but surely with the meds. Some, like Vicodin, I don't like having to take. But it does enable me to live a fuller life when I really need it. Wishing you a pain free day! Hugs, Carol (in FL) Fw: [ ] RE:Good Mornin [ ] RE:Good Mornin > > > > GOOD MORNING > > > > My face in the mirror Isn't wrinkled or drawn. > > My house isn't dirty. The cobwebs are gone. > > My garden looks lovely And so does my lawn. > > I think I might never Put my glasses back on! > > > > Lovedthis...Kathi in OK > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 I would like to hear other's experience with Remicade. Sheree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Hi Carol, look forward to talking with you too...I keep vicodin on hand and use it when I need it...don't like the radomness of sleep and stomach problems with vicodin...seem to need it a lot less frequently since adding thte duragesic patch...got messed up on my methotrex treatment scheducle due to a vacation day...and dr office being closed unexpectedly....tough evening tonight but humidity is down so i'm looking forward to good days with good weather..I hope! Rhumy doc has me considering remicade...told her I need to get more info...anything to share would be appreciated...pros and cons vs methotrex??? hands swollen tonight so can't type today much...hope to get to know you...sounds like a neat group of people...hope uncle arthur keeps quiet and you have a great day...marge [ ] RE:Good Mornin > > > > > > > GOOD MORNING > > > > > > My face in the mirror Isn't wrinkled or drawn. > > > My house isn't dirty. The cobwebs are gone. > > > My garden looks lovely And so does my lawn. > > > I think I might never Put my glasses back on! > > > > > > Lovedthis...Kathi in OK > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Hi Sheree...I started Remicade last winter after Enbrel proved not to work well for me. I felt the Remicade helping within hours of my first infusion...my chubby swollen fingers began to thin down and by the 2nd day I could make a fist with all my fingers except the two index fingers...first time in several years. The morning stiffness, most days, is not a big problem right now. My index fingers are better, but not as better as everything else...why, I don't know. I've never had a negative reaction from Remicade. However, my my 4th infusion seemed to stop working at about 6 1/2 weeks, so I'm now on a 7 week cycle, rather than 8. I have stubborn, rolling veins, but haven't had a problem with the infusion except this last time. They did finally get it, but I felt like a pin cushion. But I had had surgery just two weeks before and my body was greatly fatigued...maybe that played into it, I don't know. All in all, it has been a very positive experience for me. Hugs of Hope... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Hi Tess, my rheumy is suggesting I switch from meth to remicade...she says it will enhance my quality of life...I am so much better then I was pre-meth that I wonder if I should save the remicade for later in life when flare ups are worse...is there anything to switch to from remicade? I still have pain and stiffness; but I am moving compared to a year ago. Will the remicade prevent the further debillitation if I can tolerate where Iam now? I know what you mean about feeling like a pin cushion...even the frequent blood work proves a challenge to the best lab tech...the fatigue is certainly an issue, perhaps remicade would be a better option? Side effects, per the rheumy is hair loss but most negatively is staying out of the sun...do you find that to be true, thanks for any input as I make the decision to switch meth to remicade....marge Re: [ ] RE:Good Mornin > Hi Sheree...I started Remicade last winter after Enbrel proved not to > work well for me. I felt the Remicade helping within hours of my first > infusion...my chubby swollen fingers began to thin down and by the 2nd > day I could make a fist with all my fingers except the two index > fingers...first time in several years. The morning stiffness, most days, > is not a big problem right now. My index fingers are better, but not as > better as everything else...why, I don't know. > > I've never had a negative reaction from Remicade. However, my my 4th > infusion seemed to stop working at about 6 1/2 weeks, so I'm now on a 7 > week cycle, rather than 8. > > I have stubborn, rolling veins, but haven't had a problem with the > infusion except this last time. They did finally get it, but I felt > like a pin cushion. But I had had surgery just two weeks before and my > body was greatly fatigued...maybe that played into it, I don't know. > All in all, it has been a very positive experience for me. > > Hugs of Hope... > > Tess > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Hi Marge...I don't know that there's anything beyond Remicade at this moment, but I know they are working on other remedies. For me, I have had no side effects from Remicade...I honestly saw it work positively in the first twenty-four hours. My Rheummy has me on both methotrexate & Remicade. I have very little deteriation showing up in my hand xrays...but the doctors I've had since 98 have been aggresive in their treatment. I hope & pray you make the BEST decision for you and have wonderful results. I, myself, would not wait & keep the possibility of Remicade in reserve for later down the road. With Remicade, you may not need something stronger down the road, and you may avoid deteriation. Just my thoughts! Love & Hugs... Tess Quote Link to comment Share on other sites More sharing options...
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