Re: Thin-Skinned Patient Gets Relief at Last

[Guest guest]

Well, that made me cry.

Thanks, .

Suzanne

[ ] Thin-Skinned Patient Gets Relief at Last

> " Thin-Skinned Patient Gets Relief at Last "

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http://www.washingtonpost.com/wp-srv/WPlate/1999-10/19/018l-101999-idx.html

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[Guest guest]

It's really a wonderful essay! I was moved, too, Suzanne.

By the way, the many horrifying pictures I find are brought to you for the

most part by Google.com. If you really want to be scared, go look at the

dermatology images at the University of Erlangen:

http://www.dermis.net/index_e.htm

[ ] Thin-Skinned Patient Gets Relief at Last

>

>

> > " Thin-Skinned Patient Gets Relief at Last "

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http://www.washingtonpost.com/wp-srv/WPlate/1999-10/19/018l-101999-idx.html

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[Guest guest]

....not trying to butt in...but I gotta say

something....when I was first diagnosed I looked

everywhere for pics of scleroderma....and found the

Erlangen site....It really scared me...then I was told

by several different docs these pictures portray the

severest cases ....and not everyone will fall into

that catagory...even the medical texts show worse

case cases....so they are good for reference but

everyone will have different variations...also thanks

for the link but I cant get it to work the one on MTX

and bruising..they also have me taking prednisone with

the MTX to kick start it, but I have taken the

prednisone before and never had the bruising...which

brings me to something Debbie Mc said it was explained

to me it takes the MTX about 3 months to really start

working so they combine it with the prednisone to get

you feeling better until the MTX kicks in....then they

taper you off the prednisone or at least that is the

deal he gave me...and if the MTX doesnt work then we

try cytoxan...

I constantly wonder are the drugs or the disease going

to get you in the end...I have been reading an

interesting book ...Lupus...Alternative therapies that

work...it goes into detail on several autoimmune

diseases amd is quite interesting.... I thought of

you when I was reading it as there is a whole chapter

on nontoxic dentisrty and the problems with teeth and

autoimmune diseases...anyway I am rambling on...

welcome in OK...where in OK?

Debs I hope you are getting some sleep///and to all

hoping you have a restful night...Kathi in OK

--- <Matsumura_Clan@...> wrote:

> It's really a wonderful essay! I was moved, too,

> Suzanne.

>

> By the way, the many horrifying pictures I find are

> brought to you for the

> most part by Google.com. If you really want to be

> scared, go look at the

> dermatology images at the University of Erlangen:

>

> http://www.dermis.net/index_e.htm

>

>

>

>

> [ ] Thin-Skinned Patient Gets

> Relief at Last

> >

> >

> > > " Thin-Skinned Patient Gets Relief at Last "

> > >

> > >

> >

>

http://www.washingtonpost.com/wp-srv/WPlate/1999-10/19/018l-101999-idx.html

> > >

> > >

> > >

>

>

__________________________________________________

[Guest guest]

Kathi,

Yes, they do pick the very dramatic pictures - view with extreme caution and

don't jump to

conclusions.

I'm not sure where or how you are trying to view the MTX link, but I checked at

the

site for our group. It works there; toggle between unwrap and wrap lines if

necessary (it's

a long string).

It's sad. I think of me when I read all of that stuff on non-toxic dentistry,

too. I'm not

sure about all of those theories, but my dentist does not use mercury amalgam in

my mouth,

and any that was there has been removed. I'm not sure any of the other materials

they use

are much better, but I'm trying to be as safe as possible and so are my dentist

and

endodontists. I've asked every dental dude and doctors what about my teeth and

body, but

nobody is really sure. Another chicken or egg problem.

Re: [ ] Thin-Skinned Patient Gets Relief at Last

> ....not trying to butt in...but I gotta say

> something....when I was first diagnosed I looked

> everywhere for pics of scleroderma....and found the

> Erlangen site....It really scared me...then I was told

> by several different docs these pictures portray the

> severest cases ....and not everyone will fall into

> that catagory...even the medical texts show worse

> case cases....so they are good for reference but

> everyone will have different variations...also thanks

> for the link but I cant get it to work the one on MTX

> and bruising..they also have me taking prednisone with

> the MTX to kick start it, but I have taken the

> prednisone before and never had the bruising...which

> brings me to something Debbie Mc said it was explained

> to me it takes the MTX about 3 months to really start

> working so they combine it with the prednisone to get

> you feeling better until the MTX kicks in....then they

> taper you off the prednisone or at least that is the

> deal he gave me...and if the MTX doesnt work then we

> try cytoxan...

> I constantly wonder are the drugs or the disease going

> to get you in the end...I have been reading an

> interesting book ...Lupus...Alternative therapies that

> work...it goes into detail on several autoimmune

> diseases amd is quite interesting.... I thought of

> you when I was reading it as there is a whole chapter

> on nontoxic dentisrty and the problems with teeth and

> autoimmune diseases...anyway I am rambling on...

> welcome in OK...where in OK?

> Debs I hope you are getting some sleep///and to all

> hoping you have a restful night...Kathi in OK

[Guest guest]

Kathy/,

What is cytoxan?

> deal he gave me...and if the MTX doesnt work then we

> try cytoxan...

Suzanne