Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 My favorite picture of with Santa is of him SCREAMING in Santa's lap. The boys were a year and half. Both are sitting in Santa's lap..... is going crazy and is sitting there like an angel. The best part of the picture is the look on Santa's face. I had to buy the picture. TashaMommy of twin boys- and 3 1/2 years oldFort Worth, Texas is currently in a brace at night.Casting 14 months.Subject: Re: StephTo: infantile_scoliosis Date: Tuesday, December 9, 2008, 9:21 AM Hi Steph Good luck to you and Noelle next week and have a great Christmas. I hope she doesnt get sick. Last year Dylan just screamed on Santas lap. It doesnt make for a very good picture. This year no problem so maybe being 3 is the magic number. Darrell > > > From: Hyatt <heather@infantiles c oliosis.org> > Subject: RE: [infantile_scoliosi s] back from Rochester- no change again > To: infantile_scoliosis @yahoogroups. com > Date: Wednesday, December 3, 2008, 11:49 AM > > > > > I think the #'s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn't been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for 's situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that's whats needed for the final jacket application? I am no doc, but it wouldn't hurt to ask. > HRH > > > > > From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienke > Sent: Wednesday, December 03, 2008 7:05 AM > To: infantile_scoliosis @yahoogroups. com > Subject: [infantile_scoliosi s] back from Rochester- no change again > > > > > > Hi everyone. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... . " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we should > see a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. > His back to the naked eye is beautiful. When asked to bend over it looks so straight! > We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . > What do you all think of all of this? Thank you for all the support. > Jill and > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 I will!!!! Your miracle is coming! Noelle is sick now.... Has a fever...... Pray it goes away and we can still go!!!! Steph From: Hyatt <heather@infantilesc oliosis.org>Subject: RE: [infantile_scoliosi s] back from Rochester- no change againTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 3, 2008, 11:49 AM I think the #’s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn’t been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for ’s situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that’s whats needed for the final jacket application? I am no doc, but it wouldn’t hurt to ask. HRH From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienkeSent: Wednesday, December 03, 2008 7:05 AMTo: infantile_scoliosis @yahoogroups. comSubject: [infantile_scoliosi s] back from Rochester- no change again Hi everyone. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we shouldsee a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. His back to the naked eye is beautiful. When asked to bend over it looks so straight!We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . What do you all think of all of this? Thank you for all the support. Jill and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 I will!!!! Your miracle is coming! Noelle is sick now.... Has a fever...... Pray it goes away and we can still go!!!! Steph From: Hyatt <heather@infantilesc oliosis.org>Subject: RE: [infantile_scoliosi s] back from Rochester- no change againTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 3, 2008, 11:49 AM I think the #’s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn’t been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for ’s situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that’s whats needed for the final jacket application? I am no doc, but it wouldn’t hurt to ask. HRH From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienkeSent: Wednesday, December 03, 2008 7:05 AMTo: infantile_scoliosis @yahoogroups. comSubject: [infantile_scoliosi s] back from Rochester- no change again Hi everyone. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we shouldsee a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. His back to the naked eye is beautiful. When asked to bend over it looks so straight!We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . What do you all think of all of this? Thank you for all the support. Jill and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Hi Darrell, Great to hear from you! Thanks a lot! Actually, Noelle has a fever now and i am sweating bullets!!!!! How is Dylan doing? And Pooh? Steph Subject: Re: StephTo: infantile_scoliosis Date: Tuesday, December 9, 2008, 3:21 PM Hi StephGood luck to you and Noelle next week and have a great Christmas.I hope she doesnt get sick.Last year Dylan just screamed on Santas lap. It doesnt make for a very good picture. This year no problem so maybe being 3 is the magic number.Darrell> > > From: Hyatt <heather@infantiles c oliosis.org>> Subject: RE: [infantile_scoliosi s] back from Rochester- no change again> To: infantile_scoliosis @yahoogroups. com> Date: Wednesday, December 3, 2008, 11:49 AM > > > > > I think the #'s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn't been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for 's situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that's whats needed for the final jacket application? I am no doc, but it wouldn't hurt to ask.> HRH > > > > > From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienke> Sent: Wednesday, December 03, 2008 7:05 AM> To: infantile_scoliosis @yahoogroups. com> Subject: [infantile_scoliosi s] back from Rochester- no change again> > > > > > Hi everyone.. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... . " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we should> see a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. > His back to the naked eye is beautiful. When asked to bend over it looks so straight!> We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . > What do you all think of all of this? Thank you for all the support. > Jill and > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Yes... Lol our Santa said something similar as she was bawling... We just left! Steph From: Hyatt <heather@infantilesc oliosis.org>Subject: RE: [infantile_scoliosi s] back from Rochester- no change againTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 3, 2008, 11:49 AM I think the #’s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn’t been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for ’s situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that’s whats needed for the final jacket application? I am no doc, but it wouldn’t hurt to ask. HRH From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienkeSent: Wednesday, December 03, 2008 7:05 AMTo: infantile_scoliosis @yahoogroups. comSubject: [infantile_scoliosi s] back from Rochester- no change again Hi everyone. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we shouldsee a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. His back to the naked eye is beautiful. When asked to bend over it looks so straight!We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . What do you all think of all of this? Thank you for all the support. Jill and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 I think you've got it right Tasha!!!! We'll try one more time and if she's screaming like a banshee..... Well, it will make for a great pic to show her future boyfriends!!!! LOL Steph From: Darrell McMow <dmcmowshaw (DOT) ca>Subject: [infantile_scoliosi s] Re: StephTo: infantile_scoliosis @yahoogroups. comDate: Tuesday, December 9, 2008, 9:21 AM Hi StephGood luck to you and Noelle next week and have a great Christmas.I hope she doesnt get sick.Last year Dylan just screamed on Santas lap. It doesnt make for a very good picture. This year no problem so maybe being 3 is the magic number.Darrell> > > From: Hyatt <heather@infantiles c oliosis.org>> Subject: RE: [infantile_scoliosi s] back from Rochester- no change again> To: infantile_scoliosis @yahoogroups. com> Date: Wednesday, December 3, 2008, 11:49 AM > > > > > I think the #'s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn't been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for 's situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that's whats needed for the final jacket application? I am no doc, but it wouldn't hurt to ask.> HRH > > > > > From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienke> Sent: Wednesday, December 03, 2008 7:05 AM> To: infantile_scoliosis @yahoogroups. com> Subject: [infantile_scoliosi s] back from Rochester- no change again> > > > > > Hi everyone.. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... . " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we should> see a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. > His back to the naked eye is beautiful. When asked to bend over it looks so straight!> We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . > What do you all think of all of this? Thank you for all the support. > Jill and > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Steph Being sick before a cast change is tough we have had that a couple times. We go into panic mode ya gotta get better, ya gotta get better. I hope its a short term thing and everythings ok for next week. Dylans doing great we leave in a few hours. Dylan will have this cast removed tomorrow and his next cast on thursday. We come home on saturday and adjust to the new one. Pooh had his cast removed tonight with Dylans help and he really looks good!!! Doctor Dylans pretty happy! lol and Pooh will have his next cast tomorrow. The one thing about Pooh is that when we are in the airport and going through customs I just show them the cast on Pooh and its no problem they wisk us through we dont even wait in line. I play that sympathy card and it deffinatly works. Good luck next week!!! Darrell [infantile_scoliosi s] back from Rochester- no change again> > > > > > Hi everyone.. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... . " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we should> see a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. > His back to the naked eye is beautiful. When asked to bend over it looks so straight!> We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . > What do you all think of all of this? Thank you for all the support. > Jill and > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Here's the good news... fevers do not usually last more than 4-5 days (with my kids they are usually gone in one or two days) so she won't have it when you are there! I know how stressful this can be. Hang in there! Hugs to poor little Noelle! (and you too) Jill From: Hyatt <heather@infantilesc oliosis.org>Subject: RE: [infantile_scoliosi s] back from Rochester- no change againTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 3, 2008, 11:49 AM I think the #’s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn’t been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for ’s situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that’s whats needed for the final jacket application? I am no doc, but it wouldn’t hurt to ask. HRH From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienkeSent: Wednesday, December 03, 2008 7:05 AMTo: infantile_scoliosis @yahoogroups. comSubject: [infantile_scoliosi s] back from Rochester- no change again Hi everyone. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we shouldsee a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. His back to the naked eye is beautiful. When asked to bend over it looks so straight!We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . What do you all think of all of this? Thank you for all the support. Jill and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Here's the good news... fevers do not usually last more than 4-5 days (with my kids they are usually gone in one or two days) so she won't have it when you are there! I know how stressful this can be. Hang in there! Hugs to poor little Noelle! (and you too) Jill From: Hyatt <heather@infantilesc oliosis.org>Subject: RE: [infantile_scoliosi s] back from Rochester- no change againTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 3, 2008, 11:49 AM I think the #’s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn’t been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for ’s situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that’s whats needed for the final jacket application? I am no doc, but it wouldn’t hurt to ask. HRH From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienkeSent: Wednesday, December 03, 2008 7:05 AMTo: infantile_scoliosis @yahoogroups. comSubject: [infantile_scoliosi s] back from Rochester- no change again Hi everyone. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we shouldsee a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. His back to the naked eye is beautiful. When asked to bend over it looks so straight!We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . What do you all think of all of this? Thank you for all the support. Jill and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Darrell, I really love Pooh! I'm glad that Dylan is doing so well and I can't wait to hear how he does... Let me know how everything goes when you get back. Noelle still has a low-grade fever, but it's coming down.... Fingers crossed that she'll be okay! Steph From: Darrell McMow <dmcmowshaw (DOT) ca>Subject: [infantile_scoliosi s] Re: StephTo: infantile_scoliosis @yahoogroups. comDate: Tuesday, December 9, 2008, 3:21 PM Hi StephGood luck to you and Noelle next week and have a great Christmas.I hope she doesnt get sick.Last year Dylan just screamed on Santas lap. It doesnt make for a very good picture. This year no problem so maybe being 3 is the magic number.Darrell> > > From: Hyatt <heather@infantiles c oliosis.org>> Subject: RE: [infantile_scoliosi s] back from Rochester- no change again> To: infantile_scoliosis @yahoogroups. com> Date: Wednesday, December 3, 2008, 11:49 AM > > > > > I think the #'s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn't been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for 's situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that's whats needed for the final jacket application? I am no doc, but it wouldn't hurt to ask.> HRH > > > > > From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienke> Sent: Wednesday, December 03, 2008 7:05 AM> To: infantile_scoliosis @yahoogroups. com> Subject: [infantile_scoliosi s] back from Rochester- no change again> > > > > > Hi everyone... Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... . " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we should> see a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. > His back to the naked eye is beautiful. When asked to bend over it looks so straight!> We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . > What do you all think of all of this? Thank you for all the support. > Jill and > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Thanks! She still has a fever, but it's low-grade right now.... Keep praying! Steph From: Hyatt <heather@infantilesc oliosis.org>Subject: RE: [infantile_scoliosi s] back from Rochester- no change againTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 3, 2008, 11:49 AM I think the #’s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn’t been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for ’s situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that’s whats needed for the final jacket application? I am no doc, but it wouldn’t hurt to ask. HRH From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienkeSent: Wednesday, December 03, 2008 7:05 AMTo: infantile_scoliosis @yahoogroups. comSubject: [infantile_scoliosi s] back from Rochester- no change again Hi everyone. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we shouldsee a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. His back to the naked eye is beautiful. When asked to bend over it looks so straight!We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . What do you all think of all of this? Thank you for all the support. Jill and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 Thanks! Can you believe I'm sick now!!! LOL As long as she's okay, I'll be there! I REALLY need to start wrapping gifts, etc..... Are you as swamped as I am?! LOL Steph From: Hyatt <heather@infantilesc oliosis.org>Subject: RE: [infantile_scoliosi s] back from Rochester- no change againTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 3, 2008, 11:49 AM I think the #’s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn’t been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for ’s situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that’s whats needed for the final jacket application? I am no doc, but it wouldn’t hurt to ask. HRH From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienkeSent: Wednesday, December 03, 2008 7:05 AMTo: infantile_scoliosis @yahoogroups. comSubject: [infantile_scoliosi s] back from Rochester- no change again Hi everyone. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we shouldsee a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. His back to the naked eye is beautiful. When asked to bend over it looks so straight!We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . What do you all think of all of this? Thank you for all the support. Jill and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 Oh my gosh. You poor thing! Is Noelle feeling better? I hope you feel better soon. Those visit are hard enough when you are feeling 100% Get this, my sweet daughter is turning 9 tomorrow and begged me for a sleepover party. It will be the first we are hosting. Well, had his mom's day out today so I had a list of places to run to get ready for the party. (daughter) woke up this morning and said, "Mom, I don't feel well." She promptly puked! What timing. I was complaining to a friend, "I can't believe this is happening to ME. I have worked so hard to plan this thing, and clean the house etc." She was like, "UMMM How about how disappointed your 9 year old is?!" OOPS She is a good friend so I laughed and said, "Who?!" Hang in there! Jill From: Hyatt <heather@infantilesc oliosis.org>Subject: RE: [infantile_scoliosi s] back from Rochester- no change againTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 3, 2008, 11:49 AM I think the #’s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn’t been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for ’s situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that’s whats needed for the final jacket application? I am no doc, but it wouldn’t hurt to ask. HRH From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienkeSent: Wednesday, December 03, 2008 7:05 AMTo: infantile_scoliosis @yahoogroups. comSubject: [infantile_scoliosi s] back from Rochester- no change again Hi everyone. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we shouldsee a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. His back to the naked eye is beautiful. When asked to bend over it looks so straight!We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . What do you all think of all of this? Thank you for all the support. Jill and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 Oh no!!! You poor things! The stomach bug is also so rampant now!!! It really stinks when you plan this great thing and you are ready for it and it goes to pot! I'm sure is as disappointed as you are... (And now I'm sure you will have to do it all over again when she gets well... That stinks too!) LOL It never ends!!! Steph From: Hyatt <heather@infantilesc oliosis.org>Subject: RE: [infantile_scoliosi s] back from Rochester- no change againTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 3, 2008, 11:49 AM I think the #’s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn’t been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for ’s situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that’s whats needed for the final jacket application? I am no doc, but it wouldn’t hurt to ask. HRH From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienkeSent: Wednesday, December 03, 2008 7:05 AMTo: infantile_scoliosis @yahoogroups. comSubject: [infantile_scoliosi s] back from Rochester- no change again Hi everyone. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we shouldsee a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. His back to the naked eye is beautiful. When asked to bend over it looks so straight!We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . What do you all think of all of this? Thank you for all the support. Jill and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 Oh no!!! You poor things! The stomach bug is also so rampant now!!! It really stinks when you plan this great thing and you are ready for it and it goes to pot! I'm sure is as disappointed as you are... (And now I'm sure you will have to do it all over again when she gets well... That stinks too!) LOL It never ends!!! Steph From: Hyatt <heather@infantilesc oliosis.org>Subject: RE: [infantile_scoliosi s] back from Rochester- no change againTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, December 3, 2008, 11:49 AM I think the #’s are great. Especially, when you compare them to when started. Many children who transfer from cast to removable brace (under 20 degrees with no rotation) experience even more correction. Muscles are being used that hadn’t been used before, and brace time can help to strengthen up the core and hold/correct the young spine even more. Ask about plaster –vs- fiberglass (waterproof) for ’s situation and if the doc thinks perhaps a final plaster jacket would benefit in getting him even lower. Plaster is a more mouldable material and maybe that’s whats needed for the final jacket application? I am no doc, but it wouldn’t hurt to ask. HRH From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of jill wienkeSent: Wednesday, December 03, 2008 7:05 AMTo: infantile_scoliosis @yahoogroups. comSubject: [infantile_scoliosi s] back from Rochester- no change again Hi everyone. Well I am not sure where to start. We are back from our latest cast change. had his last cast on for just over 3 months. We had been stuck at 16 degrees for the past 3 cast, now make it four. The xrays (supine) looked so good to me. I was sure we were close to 10 degrees. I could barely contain myself, then the doctor pulled up the xray on his computer and started measuring it with a new program (as opposed to with protractor, ruler and pencil as he usually does.) Guess the number that came up...16. He said by tweaking and moving the lines a bit he got anywhere from 11 or 12 to 18 or 19. Our doctor knows our frustration and can't explain why we are not getting more of a change. In the past he has said, "I think we can fix this, especially because it is clear has no other underlying syndromes... " Well this time it was almost as if he was trying to help explain the lack of progress he threw out there maybe we shouldsee a geneticist. I may be in denial, but I feel that is unnecessary. I do not want my baby to be poked or prodded any more than needed. His back to the naked eye is beautiful. When asked to bend over it looks so straight!We are going to try another cast until March (when turns 3). We may even do one more after that and then go for a brace for the summer. What do you all think of this? I have cried until I am out of tears due to frustration and exhaustion. I know is healthy and happy and that the casts have made a difference in his life. The doctor almost sounded as if he is giving up on curing . What do you all think of all of this? Thank you for all the support. Jill and Quote Link to comment Share on other sites More sharing options...
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