Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 We have been seeing Dr Downing for about 18 mths and are two months into using TD DMPS on Buttar protocol. I am picking up bad vibes from the group, I notice that Downing is no longer on your DAN lists (probably because he hasn't been to a conference for some time), >>He hasn't ever been to a DAN conference as far as I am aware and secondly some statements on here indicate that the Buttar protocol is harmful. If someone could explain to me if a). there is a problem with Downing and . why TD DMPS is no longer considered suitable, I would appreciate it very much. >>>Some found the Buttar protocol very helpful, even some recoveries attributed to it, but many many folks had kids regress badly and for long periods of time. Its been about 4-5 years since he said he could cure everyone within 2 years I don't think there is anything wrong with TD DMPS its the protocol that can be the problem. I used it successfully using the Cutler frequency 8 hourly for minimum 3 days, we did as long as 7 days. When we did Buttar he could handle 45 drops no problem but on Cutler we could only do 6 per dose (my lad is 11 and 100 pounds). Some have seen issues switching protocols, IMHO that's because so many metals are circulating, if you decide to switch, we had no problems switching straight away, best not to take a break, those seem to be the folks that had issues. Shout if I am not making sense Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 We took to Dr Downing and yes he has been to DAN. I at that time wanted TDMPS as it was the buzzy thing at the time, Dr Downing tried to persuade me against TDMPS and go for DMSA, but I insisted. Anyway try and cut a long story short we did the challenge test and had a dreadful reaction which took months to sort out, these challenge tests are not something that Dr Downing alone reccomends though. We didn't revisit chelation but altered supps and things after test results. I had no problem with Dr Downing but wouldn't reccomend to people starting out, it really helped that I already knew so much, my husband who knew nothing and still doesn't lol wasn't so keen, felt he didn't learn anything. I would probably still be using him for testing and if he could supply the correct strenght MB12, or anything elses requiriing a prescription. In all honesty that is all I would want any Doctor for anyway, not big on the medical profession I'm afraid. Vicky PS, I don't know so much lol, what I mean is not a complete newbie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Hi Mandi thanks for the quick reply, Downing ceratinly went to a couple of DAN conferences,2003/2004 I think. That's how I found him! He was on the list at autism.com/dan until I looked a couple of months ago. Just wondering if anyone else is seeing him or has in the past? We tried to get in to Breakspear a couple of years ago but there was a long waiting list and Dr Downing's was shorter. I understand that Dr Heard is retiring but may consider going there if recommended. Not having any major issues on protocol at the moment but obviously monitoring. Just made me worry a bit to hear that some people feel Buttar was able to come in with a horrible chelation protocol that damaged many kids. (sorry tried to back track the posts but couldn't work out who said it originally)! thanks again, Phil > > In a message dated 21/04/2008 11:33:32 GMT Standard Time, > PHILIPLEEBOY@... writes: > > We have been seeing Dr Downing for about 18 mths and are two months > into using TD DMPS on Buttar protocol. > I am picking up bad vibes from the group, I notice that Downing is no > longer on your DAN lists (probably because he hasn't been to a > conference for some time), > >>He hasn't ever been to a DAN conference as far as I am aware > > and secondly some statements on here > indicate that the Buttar protocol is harmful. > If someone could explain to me if a). there is a problem with Downing > and . why TD DMPS is no longer considered suitable, I would > appreciate it very much. > >>>Some found the Buttar protocol very helpful, even some recoveries > attributed to it, but many many folks had kids regress badly and for long periods of > time. Its been about 4-5 years since he said he could cure everyone within 2 > years > > I don't think there is anything wrong with TD DMPS its the protocol that can > be the problem. I used it successfully using the Cutler frequency 8 hourly > for minimum 3 days, we did as long as 7 days. When we did Buttar he could > handle 45 drops no problem but on Cutler we could only do 6 per dose (my lad is 11 > and 100 pounds). > > Some have seen issues switching protocols, IMHO that's because so many > metals are circulating, if you decide to switch, we had no problems switching > straight away, best not to take a break, those seem to be the folks that had > issues. > > Shout if I am not making sense > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Hi Phil Welcome to the group. We used Dr Downing for a couple of appointments a few years ago. We weren’t very impressed with him at all and I know a few others on this list felt the same at the time. I believe Dr Asha is very good and is down your way! Also the Breakspear Hospital are in the process of training new DAN doctors. May be worth giving them a call and getting your name down. Sal x -----Original Message----- From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of philipleeboy Sent: 21 April 2008 12:26 To: Autism-Biomedical-Europe Subject: Re: Buttar protocol Hi Mandi thanks for the quick reply, Downing ceratinly went to a couple of DAN conferences,2003/2004 I think. That's how I found him! He was on the list at autism.com/dan until I looked a couple of months ago. Just wondering if anyone else is seeing him or has in the past? We tried to get in to Breakspear a couple of years ago but there was a long waiting list and Dr Downing's was shorter. I understand that Dr Heard is retiring but may consider going there if recommended. Not having any major issues on protocol at the moment but obviously monitoring. Just made me worry a bit to hear that some people feel Buttar was able to come in with a horrible chelation protocol that damaged many kids. (sorry tried to back track the posts but couldn't work out who said it originally)! thanks again, Phil > > In a message dated 21/04/2008 11:33:32 GMT Standard Time, > PHILIPLEEBOY@... writes: > > We have been seeing Dr Downing for about 18 mths and are two months > into using TD DMPS on Buttar protocol. > I am picking up bad vibes from the group, I notice that Downing is no > longer on your DAN lists (probably because he hasn't been to a > conference for some time), > >>He hasn't ever been to a DAN conference as far as I am aware > > and secondly some statements on here > indicate that the Buttar protocol is harmful. > If someone could explain to me if a). there is a problem with Downing > and . why TD DMPS is no longer considered suitable, I would > appreciate it very much. > >>>Some found the Buttar protocol very helpful, even some recoveries > attributed to it, but many many folks had kids regress badly and for long periods of > time. Its been about 4-5 years since he said he could cure everyone within 2 > years > > I don't think there is anything wrong with TD DMPS its the protocol that can > be the problem. I used it successfully using the Cutler frequency 8 hourly > for minimum 3 days, we did as long as 7 days. When we did Buttar he could > handle 45 drops no problem but on Cutler we could only do 6 per dose (my lad is 11 > and 100 pounds). > > Some have seen issues switching protocols, IMHO that's because so many > metals are circulating, if you decide to switch, we had no problems switching > straight away, best not to take a break, those seem to be the folks that had > issues. > > Shout if I am not making sense > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Hi Vicky, thanks for the reply, Sorry to hear about your bad experience, perhaps due to your experience, he didn't recommend a challenge test! I think you are right, I understand a bit more after a couple of years but initially we didn't really have a clue what he was taking about! many thanks, Phil s > We took to Dr Downing and yes he has been to DAN. > I at that time wanted TDMPS as it was the buzzy thing at the time, Dr > Downing tried to persuade me against TDMPS and go for DMSA, but I insisted. Anyway > try and cut a long story short we did the challenge test and had a dreadful > reaction which took months to sort out, these challenge tests are not > something that Dr Downing alone reccomends though. > We didn't revisit chelation but altered supps and things after test results. > I had no problem with Dr Downing but wouldn't reccomend to people starting > out, it really helped that I already knew so much, my husband who knew nothing > and still doesn't lol wasn't so keen, felt he didn't learn anything. > I would probably still be using him for testing and if he could supply the > correct strenght MB12, or anything elses requiriing a prescription. > In all honesty that is all I would want any Doctor for anyway, not big on > the medical profession I'm afraid. > Vicky > PS, I don't know so much lol, what I mean is not a complete newbie. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Hi Sal, Yes I spotted Dr Asha on the list as we are thinking of doing sensory therapy and possibly looking further at gut issues. I don't think these are a speciality of Dr Downing's. The Breakespeare would be ideal as it is just round the corner from where we work! So much to think about! thanks, Phil > > Hi Phil > > > > Welcome to the group. We used Dr Downing for a couple of appointments a few > > years ago. We weren't very impressed with him at all and I know a few > others on this > > list felt the same at the time. I believe Dr Asha is very good and is down > your way! > > > Also the Breakspear Hospital are in the process of training new DAN doctors. > May be > > worth giving them a call and getting your name down. > > > > > > > > Sal x > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 We saw Dr Downing when first starting out and paid £200 to be told to put my son back on milk ( in spite of him improving so much off it) and to go and have a look at the internet re various treatments. To put it mildly I was less than impressed ( trying to use subtle language!). Peta- - In Autism-Biomedical-Europe , MaddiganV@... wrote: > > We took to Dr Downing and yes he has been to DAN. > I at that time wanted TDMPS as it was the buzzy thing at the time, Dr > Downing tried to persuade me against TDMPS and go for DMSA, but I insisted. Anyway > try and cut a long story short we did the challenge test and had a dreadful > reaction which took months to sort out, these challenge tests are not > something that Dr Downing alone reccomends though. > We didn't revisit chelation but altered supps and things after test results. > I had no problem with Dr Downing but wouldn't reccomend to people starting > out, it really helped that I already knew so much, my husband who knew nothing > and still doesn't lol wasn't so keen, felt he didn't learn anything. > I would probably still be using him for testing and if he could supply the > correct strenght MB12, or anything elses requiriing a prescription. > In all honesty that is all I would want any Doctor for anyway, not big on > the medical profession I'm afraid. > Vicky > PS, I don't know so much lol, what I mean is not a complete newbie. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Hi Peta, he told us to put back on milk as well! Looking at the original results from the tests done at Sunderland, there wasn't a strong indication that milk was an issue. Our lad doesn't have a great deal of casein in his diet anyway. He was a big milk lover but didn't have any problems coming off it. My only concern recently is that when I asked about looking to see if there are any yeast issues Dr Downing felt it wasn't worth complicating the diet at this stage (and we were keen to move on to chelation quickly while he is still young). Fortunately we have seen enough improvements to stick with it but we are always looking for more of course. It's good to get some feedback from other parents doing this stuff, felt so alone at times, particularly when your mainstream GP thinks you are off your trolley! Phil > > We saw Dr Downing when first starting out and paid £200 to be told to > put my son back on milk ( in spite of him improving so much off it) > and to go and have a look at the internet re various treatments. To > put it mildly I was less than impressed ( trying to use subtle > language!). > Peta- > > Quote Link to comment Share on other sites More sharing options...
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