Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 Hi All, I haven't written in awhile, but I have been reading the posts. Lately, I feel like my body is falling apart. My back surgery went well and I am recovering from that. Two weeks ago I noticed that my feet and ankles were swelling more than usual. It got progressively worse until I saw my pcp. She put me on a water pill (HCTZ) and ordered and echocardiogram and labs. No results on the labs yet, but I have noticed that since starting the HCTZ the swelling has gone down, but I have almost completely stopped urinating. The last couple of days, I have gone about 4-5 times a day and only a trickle. I am worried that there is a problem with my kidneys seeing that I have had kidney stones in the past. Not to mention that mentally, I am just disgusted. I feel like as soon as I get one problem taken care of, then something else malfunctions. I have not been able to start the prosorba column treatments, due to a shortage of staff at the blood bank in our area. They asked me to travel to Pittsburgh for the treatments, but I turned them down. It would be at least one and a half to two hour drive (one way) and then 3-4 hours for the treatment and then the ride home. I would have to have someone drive for me and someone to watch over Wyatt. I explained that this would be just too much for me to handle. So I am not on any DMARD at this time and boy am I feeling it on some days. Today is one of those days. Wyatt is at his aunt's house. He went for a birthday party yesterday and spent the night. I just feel so worn down sometimes. Like my body is just giving up on me. It's very disappointing. I'm afraid to plan ahead to do things this summer because I don't know how I will feel when the time comes and I am tired of being the center of attention due to my disease. I feel like I am always sick and tired and just wish I could find some energy somewhere. My family probably thinks that I am a hypochondriac who always has to have something wrong. But I have always been a healthy person up until about 2 years ago and I am not accustomed to being ill. I guess that I had just better get used to it. When do you finally give in and accept that you just can't do things? Love and Hugs Stacey in PA Quote Link to comment Share on other sites More sharing options...
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