Jo-Remicade

[Guest guest]

Hi Jo-

Remicade for me, gave me a life. It took away the fatigue and the aches and

pains.  I haven't had a fever for probably about 2 years.  Everyone is

different. So, I am not really sure if the Remicade helped with the fevers or

not. Because I hadn't been on it for very long when I got a fever. I was on

Enbrel for about 2 years and it didn't do anything for me. But like I said and

you probably already know but everyone is different. Before the Enbrel I was

just on Prednisone, the lowest I could get without getting a flare was 15-18mg.

But even though I didn't flare I wasn't functioning very well, I was also on

Celebrex, MTX, I was taking a couple muscle relaxers, anxiety meds, sleeping

meds, 3 pain meds. Now I am only on Remicade, 1 pain med, and a muscle relaxer.

I do think that I will have to go back on Celebrex for the Winter. When

the weather gets cooler my body aches no matter what I am taking. 

I hope that Remicade works for you. Give it time. It didn't work right away for

me. It took about 8 months to a year for it to really kick in. And then one day

I woke up and I actually had the energy to get up and go about my day. I wish I

would of tried Remicade first. My Doctor and I talked about it but I didn't want

to be inconvenienced with going into the doctors office and sitting for 3-4

hours to get the IV.  SILLY ME. If I would of just known what I was missing.

I really hope that it works for you.  Make sure you keep me updated when you

start your IV's. I will keep you in my thoughts.

Take care and I hope that you had a Great Thanksgiving!

 Love and Support,

Keri in CA

________________________________

To: Stillsdisease

Sent: Tuesday, November 25, 2008 12:33:22 PM

Subject: Re: Prednisone

Hi Keri,

So great you are off the prednisone. I am actually on a pack, 5 days I

guess... then we shall see... hope it doesn't cause me weight gain, can't

afford it in that area....

Can you tell me what symptoms the Remicade helps? My worst symptoms are the

fever and fatigue, followed by pain of joints

thanks,

Jo

In a message dated 11/24/2008 11:06:56 P.M. Eastern Standard Time,

kcbread3yahoo (DOT) com writes:

still get my Remicade IV's every 8 weeks and I know that this is the reason

I was able to decrease and stay down. I just wanted everyone to know.

Everyone here

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