Kathi in OK

[Guest guest]

Hello, Kathi! Sorry I've been away so long. Lots of strange events and regular

stuff, too, going on in my life right now, including a computer hardware and

software upgrade that I undertook that did not go very smoothly at all. I think

things should be settling down now.

Sorry to hear the latest on you, especially about your lungs.

Regarding the nodules, why are they saying that they are NOT calcinosis?

[ ] RE: Hi all

Hi all,and hello to all the newbies:

Debs sorry you are having such a hard time right now....we will all

understand if you keep your cabana boys to your self for awhile

Lynn: Hurrah I am so glad you stress is partially over...I am still

waiting on my letter I guess things go slower in southern Oklahoma

Sorry I have been so bad about posting but it has been a not so good

week. Rheumy on Wednesday pulmonologist on Thursday.

Apparently the scleroderma is attacking lungs and at 44 only have

about 80% lung capacity which sounds OK to me but not the doctor

people.

So after 3 years of plaquenil they have decided I can not wait any

longer for Enbrel and I get to have methotrexate and prednisone added

to the other wonderful chemicals I consume daily.

Before I could start had to have a TB tine and had an allergic

reaction to the test...fun ...fun...it never stops

I have a question for all you knowledgable people...has anyone had the

rheumatoid nodules show up on the joints of their toes?

I have them above all my knucles but now they are showing up on the

big joint below my toes? At first they thought the ones on my hands

were calcium deposits from the scleroderma but they are not they are

rheumatoid nodules ... I have looked all over the net and all I find

is that gout would cause feet nodules, but I have never had gout

suggested...anyway if anyone has any input it would be greatly

appreciated....

a : As always thanks for the great links, they are very

informative and greatly appreciated the more you know the easier it is

to understand

Carol: I hope things are going beter

Kathy in IL: How is your rash...I hope you are feeling better

: Where are you? We miss you

Judy In AZ: I hope you are OK havent seen you post

And : Has anyone heard anything from Tess?

Sorry this is so long...Okie hugs to ya all...Kathi in OK

[Guest guest]

--- Regina <Matsumura_Clan@...> wrote:

> Hello, Kathi! Sorry I've been away so long. Lots of

> strange events and regular stuff, too, going on in

> my life right now, including a computer hardware and

> software upgrade that I undertook that did not go

> very smoothly at all. I think things should be

> settling down now.

>

> Sorry to hear the latest on you, especially about

> your lungs.

>

> Regarding the nodules, why are they saying that they

> are NOT calcinos

Hi : So glad to see you back...you were missed...

I am sorry I have not been posting, but since starting

the MTX I have been spending alot of time in my new

office ..the one with the white throne....I am hoping

this will pass...to answer your question the reason

they dont think it is calcium deposits is they did an

Xray and they dont show up as calcium deposits they

show up as soft tissue nodules...rheumy says the joint

involvement in scleroderma acts just like RA in about

20% of SD patients and it is not uncommon in those

patients to see the rheumatoid nodules....oh well one

of one half a dozen of the other ...some places I have

the calcium deposits other the nodules just grin and

bear it is my motto....

Tess:I am sorry you arent feeling so good but glad to

see you back...

Debs..maybe some sandman hugs would help?

As always you are all in my thoughts....Kathi in OK

>

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[Guest guest]

Kathi,

That's bad news that you are having such a rough time with the MTX. Are you

taking the oral form? Please call your doctor. I'm not sure what end is keeping

you near the throne, but, if you are vomiting, I would worry about further

damage to your esophagus.

In my reading about nodules (that aren't calcinosis), it seems that, yes, they

can occur in scleroderma, lupus, MCTD, and diseases other than rheumatoid

arthritis. They can be found pretty much anywhere (even internally) although

they often appear subcutaneously in locations subject to pressure, trauma, or

friction. Gout nodules, or tophi, may resemble " rheumatoid " nodules but

histologically are quite different.

http://www.uws.edu.au/exhs/Podiatry/rheumato.htm

I hope you can feel much better soon!

Re: [ ] Kathi in OK

--- Regina <Matsumura_Clan@...> wrote:

> Hello, Kathi! Sorry I've been away so long. Lots of

> strange events and regular stuff, too, going on in

> my life right now, including a computer hardware and

> software upgrade that I undertook that did not go

> very smoothly at all. I think things should be

> settling down now.

>

> Sorry to hear the latest on you, especially about

> your lungs.

>

> Regarding the nodules, why are they saying that they

> are NOT calcinos

Hi : So glad to see you back...you were missed...

I am sorry I have not been posting, but since starting

the MTX I have been spending alot of time in my new

office ..the one with the white throne....I am hoping

this will pass...to answer your question the reason

they dont think it is calcium deposits is they did an

Xray and they dont show up as calcium deposits they

show up as soft tissue nodules...rheumy says the joint

involvement in scleroderma acts just like RA in about

20% of SD patients and it is not uncommon in those

patients to see the rheumatoid nodules....oh well one

of one half a dozen of the other ...some places I have

the calcium deposits other the nodules just grin and

bear it is my motto....

Tess:I am sorry you arent feeling so good but glad to

see you back...

Debs..maybe some sandman hugs would help?

As always you are all in my thoughts....Kathi in OK

[Guest guest]

> Kathy,

> Oral mtx did the same thing to me. I wanted it to work so badly that I put

> up with diarrhea and stomach pains for 3 months before stopping it. This was

> many years ago. I¹m now on injections of mtx and am not having any GI

> problems.

> If you don¹t adjust to the oral, maybe you would want to consider injections.

> a

>

>

>

> .

> I am sorry I have not been posting, but since starting

> the MTX I have been spending alot of time in my new

> office ..the one with the white throne....I am hoping

> this will pass...

[Guest guest]

:Thanks for the kind words...and you did help me

by your words....((((hugs)))))Kathi in OK

--- grannyfellx6 <grannyfellx6@...> wrote:

> Kathi, I love your jokes and poems, please keep

> sending them. Hope

> you get to feeling better, wish I could send a poem

> that would help

> you. Thanks again. You always make me smile.

> in WA

>

>

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[Guest guest]

Debs...I have been a god patient and tok the pills to sleep and here

I sit...I have got to send you something I found.....LOL Kathi in OK-

-- In @y..., Auntblabbie2000@a... wrote:

> OK Kathi in OK,

>

> You should be in bed counting cabana boys! You know that sleep is

going to

> make you feel better.....Hmmmmmmmmm.

>

> Oh me, well do as I say, not as I do! LOL! Actually I am just

pooping

> around ebay looking for a whole lot of nothing and trying to decide

if the

> pain in my tummy is worse than the pain in my knee. Right now it is

a tough

> choice! Maybe I could get a reduced rate if I went there as a

two-for!

> Somehow, I don't think the hospital works like that. Maybe I am

looking

> under the wrong categories on ebay. I should be looking in the

overhaul

> area: knees and tummy's. I can actually feel the adhesions just

tightening

> up around my small bowel. Golly, this hurts. Been trying to stay

on a

> liquid diet to help resolve this issue, but it looks as though it is

going to

> need some major intervention from my local hospital.....IV, NG tube,

NPO and

> emergency surgery.

>

> I will keep everyone informed.

>

> NOW GO TO BED AND GET SOME SLEEP, YOUNG LADY!!!!!

>

> Here comes the gentle, tender, Mr Sandman angel hugs and angel dust,

my

> friend,

>

> Love,

>

> Deb

[Guest guest]

OK Kathi in OK,

I love that site, but now the secret is let out! I am going to have to find

other things now! LOL. Thanks again.

Gentle, tender, cabana boy angel hugs,

Debs

[Guest guest]

SS sent my rheumy a form to fill out .....it according

to the lawyer helped.....but he said with my medical

records he never condidered I wouldnt win......in this

state they always deny first time and usually the

appeal....they never looked for deformities

and the only ones I have are the constiction in my

hands which at the time werent that noticable....I

think there was some good advice given by others in

the group about keeping copies of all your medical

records....and seek out a good disability

lawyer....they wont take you on unless they think they

will win ...also you dont pay them if you win SS pays

them...if not they dont get paid....which is why if

they dont think they can win they will usually tell

you up front....hope this helps....Kathi in OK

--- grannyfellx6 <grannyfellx6@...> wrote:

> Kathi, did your doctor have to say he thought you

> needed SSI? I

> haven't asked my new doctor but my family talked me

> into asking my

> Oregon Doctor and he said they look for deformaties

> they don't care

> how much you hurt. I don't have any deformaties but

> I am really week

> in my hands and sometimes when I try to stand my

> legs don't want to

> work. I guess you know how that is, as does most of

> the people in

> the group. Actually it is scary when you have used

> all the new meds

> and they don't work. Good old methotrexate is still

> working some

> what, hope it hangs in there till they have

> something new.

> Thanks. in WA

>

>

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