Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 >, I can remember in the first year that I was dx with Ra, all I seemed to do is sleep. My kids were still in high school and we always traveled to all there games (from 1/2 hr to 3 1/2 hrs.), I would sleep all the way there and all the way back. I was so tired I didn't get much of anything done at home and to tired to care. I have had RA for 15 years and still have to watch the fatique, having trouble with that now because I don't know when to quit or I guess I feel guilty if I do quit. (I was raised not to be a quitter and that is not always a benefit) I have tried DMARD they have out there and Methotrexate has worked the best for me (27 mg.a wk.), I also take Lodine XL 500 mg twice a day and folic acid. They do have a lot of meds out there and some are getting great results. Like they said the first year seems to be the worse, and all the meds take a little time to work. Hope you are feeling better soon. They say to listen to your body it will tell you if you need rest. in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Hi, I'm fairly new too. I'm on Methotrexate too. I've tried Celebrex and Vioxx, but neither helps too much. Have you tried those? Last week, I took my first Remicade treatment. Hope it works. It's awful to be too tired to shop, travel, etc. When your feet and ankles hurt a lot, it makes you depressed....all I think about is ending up in a wheelchair. Sheree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Sheree, I get relief from Vioxx. Celebrex didn¹t help very much. I hope the Remicade works for you. I know how it is to be to tired to do the simple things in life. You will learn to enjoy your good day, and rest when your body tells you. The mind is a very powerful thing, and if you think you will be in a wheelchair, your chances may be higher that you will be. When I was in my 20¹s my first rheumy told me I¹d be in a wheelchair before I was 30. I got so mad at him, I found a new doc, but also in my mind I fought the idea that I¹d ever be in a wheelchair! I¹m 47 and still walking on my own two painful feet and intend to stay that way for as long as the good Lord allows me to be. I know if I get in that chair, my muscles will get weaker and I won¹t get out. To survive rheumatic diseases, you have to be a fighter. You can¹t let this disease get the best of you. You WILL find the right meds and you WILL live life to the best of your ability. You¹ll also have days when the road seems to tough. I hope these tough days are fewer and far between with Remicade. Hugs, a > Hi, > I'm fairly new too. I'm on Methotrexate too. I've tried Celebrex and Vioxx, > but neither helps too much. Have you tried those? Last week, I took my first > Remicade treatment. Hope it works. > It's awful to be too tired to shop, travel, etc. When your feet and ankles > hurt a lot, it makes you depressed....all I think about is ending up in a > wheelchair. > Sheree > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Your Getting Sleepy, So Sleepy... I know that it's not something that you should be ashamed of, but I can't help myself. I feel so guilty when I find that if I don't lay down and sleep, I'm going to fall down. I've tried the Celebrex to, no response to this what so ever. I'm not sure that anything that I'm taking is working at all. The Mobic doesn't seem to do anything at all and my other med's are just annoying. I have an appoitment with my doctor this coming Thursday and I'm going to ask if there is anything else that he can do. My pain is sometimes unbareable in my feet, ankles, wrists and fingers. Keep the sprits up there....and God Bless all of You! Susie in MN > Sheree, > I get relief from Vioxx. Celebrex didn¹t help very much. I hope the > Remicade works for you. > I know how it is to be to tired to do the simple things in life. You will > learn to enjoy your good day, and rest when your body tells you. The mind > is a very powerful thing, and if you think you will be in a wheelchair, your > chances may be higher that you will be. When I was in my 20¹s my first > rheumy told me I¹d be in a wheelchair before I was 30. I got so mad at him, > I found a new doc, but also in my mind I fought the idea that I¹d ever be in > a wheelchair! I¹m 47 and still walking on my own two painful feet and > intend to stay that way for as long as the good Lord allows me to be. I > know if I get in that chair, my muscles will get weaker and I won¹t get out. > To survive rheumatic diseases, you have to be a fighter. You can¹t let this > disease get the best of you. You WILL find the right meds and you WILL live > life to the best of your ability. You¹ll also have days when the road seems > to tough. I hope these tough days are fewer and far between with Remicade. > Hugs, > a > > > > Hi, > > I'm fairly new too. I'm on Methotrexate too. I've tried Celebrex and Vioxx, > > but neither helps too much. Have you tried those? Last week, I took my first > > Remicade treatment. Hope it works. > > It's awful to be too tired to shop, travel, etc. When your feet and ankles > > hurt a lot, it makes you depressed....all I think about is ending up in a > > wheelchair. > > Sheree > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 , Thank you so much. I know that the sleepyness is all part of RA and I'm learning to accept it. Just wish that the sleepyness would go away until winter. I'm not able to work in my garden at all this year. I miss not being outside and taking walks with my dogs. I guess I feel like I'm really letting them down. They're Alaskan Malamutes and need the walks. Wish my feet didn't hurt as much as they do. I'm glad that I found all of you. I do feel so alone and can't get the friends that I have to understand what is happening to me and what it does to me. I'm glad that I can come here, and people know what I'm going through. Thanks So Much, Susie in MN > >, I can remember in the first year that I was dx with Ra, all I > seemed to do is sleep. My kids were still in high school and we > always traveled to all there games (from 1/2 hr to 3 1/2 hrs.), I > would sleep all the way there and all the way back. I was so tired I > didn't get much of anything done at home and to tired to care. > > I have had RA for 15 years and still have to watch the fatique, > having trouble with that now because I don't know when to quit or I > guess I feel guilty if I do quit. (I was raised not to be a quitter > and that is not always a benefit) > > I have tried DMARD they have out there and Methotrexate has worked > the best for me (27 mg.a wk.), I also take Lodine XL 500 mg twice a > day and folic acid. > > They do have a lot of meds out there and some are getting great > results. > > Like they said the first year seems to be the worse, and all the meds > take a little time to work. > > Hope you are feeling better soon. They say to listen to your body it > will tell you if you need rest. > > in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 Hi Sheree, I've taken Celebrix but not Vioxx. I have a doctors appointment this coming Thursday and would like to ask him about Remicade. What can you tell me about it? I'd like to seem a little informed about it before I ask him. Susie in MN > Hi, > I'm fairly new too. I'm on Methotrexate too. I've tried Celebrex and Vioxx, > but neither helps too much. Have you tried those? Last week, I took my first > Remicade treatment. Hope it works. > It's awful to be too tired to shop, travel, etc. When your feet and ankles > hurt a lot, it makes you depressed....all I think about is ending up in a > wheelchair. > Sheree > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 Hi Kathy, may I ask what compression socks are? Hugs June Quote Link to comment Share on other sites More sharing options...
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