Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 happy birthday mary!!! hope you have some fun. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 I have seronegative RA and it is just as aggessive as my mom's ra. she has a positive factor. i never have.none of my medicines work but today i took a vicodin because its my 40th birthday and i dont want to feel bad today. I also have fibromyalgia and chronic myofascial pain.have a good day. in Orlando --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 Dear ....A happy & blessed birthday to you! I hope your day is pain-free and peace-filled. Hugs of Hope... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 well i hope the vicodin kicks in and gives you some kick.. i truly do hugs sam [ ] seronegative ra > > I have seronegative RA and it is just as aggessive as my mom's ra. she has a positive factor. i never have.none of my medicines work but today i took a vicodin because its my 40th birthday and i dont want to feel bad today. I also have fibromyalgia and chronic myofascial pain.have a good day. > > in Orlando > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 , Happy Birthday!!!! I hope your 40th birthday was a painfree one. I hope your birthday gift is finding meds that help. Hugs, a > > I have seronegative RA and it is just as aggessive as my mom's ra. she has a > positive factor. i never have.none of my medicines work but today i took a > vicodin because its my 40th birthday and i dont want to feel bad today. I also > have fibromyalgia and chronic myofascial pain.have a good day. > > in Orlando > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Molly, A good rheumatologist will listen to your symptoms and examine you in order to try to arrive at a diagnosis. Lab results are not the only way to tell. Sometimes they might order x-rays to see if any joint damage has already occurred. Many people have to wait a while before they do get a definite diagnosis, so be persistent. If you don't think your first rheumy is trying hard enough, you can always try to find a better one. I'm sure a or , our moderators, will soon pipe up with some appropriate articles for you to read. Sue On Monday, October 3, 2005, at 07:26 PM, nostorystory wrote: > In the meantime, does anyone know > how it can be diagnosed when you're seronegative besides seeing if > you respond to the meds? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 I would strongly encourage you to be informaed about all the meds. and ask a lot of questions. I was put on high doses of Pred. when I first got the RA verdict. That was followed up with Plaquenil. I researched the Pres. issues as well as the Plaquneil side effects. I decided with my RA doctor to wean off of the Pred. I currently am doing well with the one med. although I daily take Darvocet for pain maint. I research alot online and then write down all my questions and concerns and take them to my Dr. appt. I do not take a passive stand in my fight of this RA. I figure that this is my body, I listen to the pain and aches and inform my doctor. He makes his decisions and then we discuss them to find what I am confortable with. I think too many people take a Dr. as the know all of things. I have learned that there are more options out there, some doctors do not take the time to listen. If you are not happy with one Dr. I encourage you to keep searching until you find one that you can work together as a team with. In a nut shell, the better informed you are the better. Good luck! Patti (Chicago) " Taking it one day at a time! " ladybuglady68 <valerie3968@...> wrote: Does anyone have seronegative RA? My pcp has recently diagnosed me with this. He said the xray and clinicial presentation definitely look like RA to him but my lab work is all normal. (he also took it 4 days following 2 rounds of steroids) He is referring me to a rheumatologist. Don't have that appointment yet. I will be honest, I am kind of scared of the side effects of the rheumatoid meds but also understand their benefits far out weigh the side effects. I guess I am just going thru a lot of emotional changes with this. Any good suggestions from anyone? in OK --------------------------------- Sucker-punch spam with award-winning protection. Try the free Beta. --------------------------------- Need a quick answer? Get one in minutes from people who know. Ask your question on Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 Sue, There are three criteria: -have RA -low white blood count -enlarged spleen Another thing with Felty's is increased nodules. Meredith in Canada Sue wrote: > > Meredith, what are your symptoms for Felty's Syndrome? > > Sue > > On Sunday, January 21, 2007, at 03:01 PM, Meredith Pinkerton wrote: > > > > I have seronegative RA. Even though my blood work is all normal, > > x-rays > > and MRI's showed bone destruction, plus rheumatoid nodules and a side > > effect of RA called Felty's Syndrome. Make the appointment!! It is > > important to treat RA as soon as possible for better outcomes and > > hopefully remission. I know reading about the side effects of meds can > > be scary, but living life with RA better is the goal. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2007 Report Share Posted January 21, 2007 I agree with everyone. I was diagnosed with seronegaitve RA in April 2006. And early treatment is important. I had three positive ANA's six yrs ago; and the Rheumy I saw then just thought I was a " crazy new mommy with postpartum " . My new Rheumy cant figure out why my ANA's are negs now?? But puts if off on my prednisone. So now we are in a holding pattern and testing for Lupus....which is impossible. So keep all in check. Make sure you have an eye exam also. People forget to have their eyes done; inflammation causes problems everywhere. Good Luck with everything. --- In , " " <Matsumura_Clan@...> wrote: > > , > > Many people in our group have seronegative RA. > > Please make that appointment with a rheumatologist. You're right that, > generally speaking, the benefits of DMARDs outweigh the risks. Also, early > treatment is very important, especially if you already have x-ray changes > typical of RA. > > It's normal to feel apprehensive, uncertain, or that this is a time of > upheaval. Share these feelings with your physicians. They should be able to > reassure you. > > Good luck! > > > > > Not an MD > > > [ ] Seronegative RA > > > > Does anyone have seronegative RA? > > My pcp has recently diagnosed me with this. He said the xray and > > clinicial presentation definitely look like RA to him but my lab work > > is all normal. (he also took it 4 days following 2 rounds of steroids) > > He is referring me to a rheumatologist. Don't have that appointment > > yet. I will be honest, I am kind of scared of the side effects of the > > rheumatoid meds but also understand their benefits far out weigh the > > side effects. I guess I am just going thru a lot of emotional changes > > with this. Any good suggestions from anyone? > > > > in OK > Quote Link to comment Share on other sites More sharing options...
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