Hytronephrosis (enlarged kidneys) need info.....

[Guest guest]

Hi

My daughter has enlarged kidneys and her spleen is enlarged also.She

has scoliosis and I wanted to know if that had something to do with her

kidneys being like that? We have some appointments with several

Doctors.I want to know what the treatment would be.Thanks

Tammy

[Guest guest]

Have any labs been run? CBC? Kidney function? The kidneys and spleen

both have a part in the production of red blood cells, as does the

bone marrow. I think I would (and I'm not a health care provider so I

could be way off) be most interested in ensuring all aspects of that

are normal. The scoliosis could be another symptom of something

causing that and the organ enlargement.

Debi

[Guest guest]

Hi Tammy,

With both kidneys enlarged and bone involvement it sounds like

Erdheim-Chester disease. Has this been ruled out?

> Hi

> My daughter has enlarged kidneys and her spleen is enlarged also.She

> has scoliosis and I wanted to know if that had something to do with

> her

> kidneys being like that? We have some appointments with several

> Doctors.I want to know what the treatment would be.Thanks

> Tammy

>

>

[Guest guest]

Its never been brought up.We go see 3 Doctor around the 31 to see

what to do.do you know what I can do to get here tested for candida

are does anyone.Thanks Tammy

>

> > Hi

> > My daughter has enlarged kidneys and her spleen is enlarged

also.She

> > has scoliosis and I wanted to know if that had something to do

with

> > her

> > kidneys being like that? We have some appointments with several

> > Doctors.I want to know what the treatment would be.Thanks

> > Tammy

> >

> >

>

[Guest guest]

I too have very unique medical problems. A problem when I am in the sun is I

produce too much vitamin d which in turn eats away at my bones and causes them

to lose clacium which builds up in my blood then collects in my kidneys causing

stones.

 

I have heard that this is a very rare thing, has anyone else had issues with

kidney stones and is on the autism spectrum?

 

It took over 2 years for this diagnosis to be diagnosised. I suffered over 17

surgeries for blocked kidneys, large stones, and issues related to both. Very

painfull.

 

http://speakup.today.com

Subject: Hytronephrosis (enlarged kidneys) need info.....

To: Autism_in_Girls

Date: Thursday, October 9, 2008, 3:13 PM

Hi

My daughter has enlarged kidneys and her spleen is enlarged also.She

has scoliosis and I wanted to know if that had something to do with her

kidneys being like that? We have some appointments with several

Doctors.I want to know what the treatment would be.Thanks

Tammy

[Guest guest]

Ouch.

I have mild scoliosis but my kidneys are fine, apart from getting stones because

I'm on Topamax and a high fat/high protein/low carb diet.

>

>

> Subject: Hytronephrosis (enlarged

> kidneys) need info.....

> To: Autism_in_Girls

> Date: Thursday, October 9, 2008, 3:13 PM

>

>

>

>

>

>

> Hi

> My daughter has enlarged kidneys and her spleen is enlarged

> also.She

> has scoliosis and I wanted to know if that had something to

> do with her

> kidneys being like that? We have some appointments with

> several

> Doctors.I want to know what the treatment would be.Thanks

> Tammy

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>