New member

[Guest guest]

Welcome Suzan! </HTML>

[Guest guest]

Hi Suzan,

  I am from the northern end of the state, Chicago area, but my sister-in-law

is from Albion Illinois -kind of near you..they go 'shopping'' in ville...

  I was just diagnosed with Stills in October of this year...very strange

disease!! I was on 80 mg. of prednisone but I am getting weaned off and I am

down to 30 mg. this week and also on methotrexate (4 pills of that a week). My

hair is falling out (thinning-they say). At first my appetiet was bad and I lost

weight but now i think it is getting better...The last 2 weeks I have had a

craving for fruit soooooo bad that as I was cutting up one of those small

seedless watermelons and putting it in tupperware to et at different times, I

said 'forget it'' and sat and ate the whole thing!!! I can't believe i did that!

 I ate a whole watermelon!! lol   So I have to watch it now and thank goodness

it is fruit and not fattening...but I do get bloated fast and then I stop

eating...I do not know when I will be off of the meds   I will go to the Dr.

next week and see.   I have been off of wok since September....I get toooo weak

and dizzy and then the swelling is still here at times.  I work at a trauma

hospital in the C.T. Department (C.T. technologist) and I work midnights...I am

supposed to stay away from ''stress'   yeah right try working there (we get all

the e.r. patients-   gunshots, sickos, drunks,gang bangers, real sick people,

heart attacks, car accidents...you name it...so I don't know how to avoid stress

there).

But my boss is real understanding and said to ''get well and we will hold your

job''...so that is good...I just hate being away at this time because Christmas

is the best time to be at work...everyone is in a good mood and census is

slower...I will probably go back when it starts getting busy and bad weather.

Oh well..enough venting for today

take care

Diane  42

Hi all! Im Suzan from ville Indiana. Im in the process of being 

diagnosed with stills disease. Im on 40 mg of prednisone right now and

100 mg of azathioprine. Do these meds sound right for this disease?

Lord do i want to start weaning off the pred soon though. My face is

breaking out sooooo bad and i want to eat everything in site. Ive been

on the pred for like 3 months already but doc wants me to stay on it

for another little while. Other than that im feeling pretty good. I

sure as hell dont want the nasty arthritis pains to come back anytime

soon. Look forward to chatting soon. Bye for now.

Suzan

________________________________________________________________________

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[Guest guest]

>HI to all

>Is there an epidemic of AOSD for the month of Sept. and Oct...

it seems like there is few of us that end up with the AOSD in

September - October

ED

>

> Hi Suzan,

>   I am from the northern end of the state, Chicago area, but my

sister-in-law is from Albion Illinois -kind of near you..they

go 'shopping'' in ville...   I was just diagnosed with Stills

in October of this year...very strange disease!! I was on 80 mg. of

prednisone but I am getting weaned off and I am down to 30 mg. this

week and also on methotrexate (4 pills of that a week). My hair is

falling out (thinning-they say). At first my appetiet was bad and I

lost weight but now i think it is getting better...The last 2 weeks I

have had a craving for fruit soooooo bad that as I was cutting up one

of those small seedless watermelons and putting it in tupperware to

et at different times, I said 'forget it'' and sat and ate the whole

thing!!! I can't believe i did that!  I ate a whole watermelon!! lol

  So I have to watch it now and thank goodness it is fruit and not

fattening...but I do get bloated fast and then I stop eating...I do

not know when I will be off of the meds   I will go to the Dr. next

week and see.   I have been off of wok since September....I get

toooo weak and dizzy and then the swelling is still here at times.

 I work at a trauma hospital in the C.T. Department (C.T.

technologist) and I work midnights...I am supposed to stay away

from ''stress'   yeah right try working there (we get all the e.r.

patients-   gunshots, sickos, drunks,gang bangers, real sick people,

heart attacks, car accidents...you name it...so I don't know how to

avoid stress there).

>

> But my boss is real understanding and said to ''get well and we

will hold your job''...so that is good...I just hate being away at

this time because Christmas is the best time to be at work...everyone

is in a good mood and census is slower...I will probably go back when

it starts getting busy and bad weather.

>

> Oh well..enough venting for today

>

> take care

>

> Diane  42

>

>

> Hi all! Im Suzan from ville Indiana. Im in the process of

being 

>

>

>

>

>

>

>

> diagnosed with stills disease. Im on 40 mg of prednisone right now

and

>

> 100 mg of azathioprine. Do these meds sound right for this disease?

>

> Lord do i want to start weaning off the pred soon though. My face

is

>

> breaking out sooooo bad and i want to eat everything in site. Ive

been

>

> on the pred for like 3 months already but doc wants me to stay on

it

>

> for another little while. Other than that im feeling pretty good. I

>

> sure as hell dont want the nasty arthritis pains to come back

anytime

>

> soon. Look forward to chatting soon. Bye for now.

>

>

>

> Suzan

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

______________________________________________________________________

__

> More new features than ever. Check out the new AOL Mail ! -

http://o.aolcdn.com/cdn.webmail.aol.com/mailtour/aol/en-us/text.htm?

ncid=aolcmp00050000000003

>

>

>

[Guest guest]

,

I'm sorry you are having to go through this. However I hope you find this group

supportive and helpful. I read that you were from Indiana before I read the

ville part. My Brother lives in Syracuse which is in the Northern part of

Indiana.

Take care and I hope you find this group like an extended family.

Fayette, OH

---------------------------------

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[Guest guest]

Sorry you're here but you found a great place. Prednisone.....hopefully

they can get you off of it as fast as possible. I've been on it for almost 4

years now, and it took me until this last month to finally attempt to go

below 5mg/day. I now have osteoporosis in my spine among other

goodies....like my body that I worked so hard to build up that looks like

hell now and such.

Pred. will drive you crazy, and affects your mood among other things.

Best of luck to you, and welcome to the group. You'll find this place &

people to be outstanding, and make yourself at home with us.

Kirk, 36, married w/2 sons (9 & on 6) & (Boomer the dog 12)

North Eastern Pa, just outside of Wilkes-Barre.

>

> Hi all! Im Suzan from ville Indiana. Im in the process of being

> diagnosed with stills disease. Im on 40 mg of prednisone right now and

> 100 mg of azathioprine. Do these meds sound right for this disease?

> Lord do i want to start weaning off the pred soon though. My face is

> breaking out sooooo bad and i want to eat everything in site. Ive been

> on the pred for like 3 months already but doc wants me to stay on it

> for another little while. Other than that im feeling pretty good. I

> sure as hell dont want the nasty arthritis pains to come back anytime

> soon. Look forward to chatting soon. Bye for now.

>

> Suzan

>

>

>

--

Everything in life sucks except things that should!

[Guest guest]

Hi , I'm not sure if that is your first name or your last name,please let

us know.My name is Elly and I was diagnosed in 1992.I am not really sure about

the natural meds,I have been on many drug regiments over the years though.At the

moment I take one 17.5 Methotrexate shot and 2 enbrel shots a week.Plus Vicodin

750 mg every 4 hours and many other things.It seems when I get used to one drug

cocktail, something stops working or something new comes on the market and I am

switched.It sounds as if you are doing fairly well right,especially if you can

work a whole day.That is a wonderful place to be.Welcome to our family.hopefully

you will gain much insight into the workings of Stills.There is usually someone

here who has a similar case as someone else.If you have any questions, please

feel free to ask.I am sorry you have to be here but glad you found us.We are

like a big family with many loving caring members.

Elly

---------------------------------

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[Guest guest]

hi taylor you have been very lucky mate we are unable to work because of the

pain and flares go up the gym you got to be joking i dont know about the others

but some days i cant walk or hold anything phil england

elly cudney wrote: Hi , I'm not sure

if that is your first name or your last name,please let us know.My name is Elly

and I was diagnosed in 1992.I am not really sure about the natural meds,I have

been on many drug regiments over the years though.At the moment I take one 17.5

Methotrexate shot and 2 enbrel shots a week.Plus Vicodin 750 mg every 4 hours

and many other things.It seems when I get used to one drug cocktail, something

stops working or something new comes on the market and I am switched.It sounds

as if you are doing fairly well right,especially if you can work a whole

day.That is a wonderful place to be.Welcome to our family.hopefully you will

gain much insight into the workings of Stills.There is usually someone here who

has a similar case as someone else.If you have any questions, please feel free

to ask.I am sorry you have to be here but glad you found us.We are like a big

family with many loving caring members.

Elly

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Thanks to everyone on the group for such wonderful welcome to the group

responses.

I understand how individual results will vary, there seems to be a lot of

contributing factors, so I'm really looking forward to chatting with all of

you as I move forward with this disease. I start my MTX today and I'm

hopeful that it will " agree " with me, I'm a bit concerned after reading some

of the post that it may not, but I really want to get off the Pred ASAP

..

I have noticed that at the lower dosage of Pred that although I don't

register a fever I'm consistently having night sweats, any thoughts on that?

Thanks in advance for the comments.

s

Dallas, TX

[Guest guest]

Welcome to the group ! Very sorry that between rest and work, I cannot get

online very often. I have night sweats almost every night. I am truly thankful

the fevers are gone. Pred did stop my fevers but added weight gain. I am

currently taking MTX and Remicade (every 6 weeks). I have just learned to cope

with the night sweats and it really beats having fever.

Love and Care,

Angie V.

Los Angeles, CA

Re: new member

Thanks to everyone on the group for such wonderful welcome to the group

responses.

I understand how individual results will vary, there seems to be a lot of

contributing factors, so I'm really looking forward to chatting with all of

you as I move forward with this disease. I start my MTX today and I'm

hopeful that it will " agree " with me, I'm a bit concerned after reading some

of the post that it may not, but I really want to get off the Pred ASAP

..

I have noticed that at the lower dosage of Pred that although I don't

register a fever I'm consistently having night sweats, any thoughts on that?

Thanks in advance for the comments.

s

Dallas, TX

[Guest guest]

Hi and Angie,

I am also on methotrexare and prednisone.  I started out with 80mg. of

 prednisone but I am being weaned slowly..I am now at 20 mg. of pred.

I started out at 4 pills once a week of the methotrexate..10 mg. and last week I

was 

upped to 15 mg.    Sooooooo I take 15mg.methotrexate once a week and 20 mg

pred. every day...

Then after one more week I go down to 15 mg. pred.   we shall see   I was 

doing fine last week but now since changing the doses, my wrists are stating to

hurt more so.

We shall see..maybe it is just this great Chicago weather we are having. =)

Take care all...preayers to EVERYONE!

Diane  42 

Welcome to the group ! Very sorry that between rest and work, I cannot get

online very often. I have night sweats almost every night. I am truly thankful

the fevers are gone. Pred did stop my fevers but added weight gain. I am

currently taking MTX and Remicade (every 6 weeks). I have just learned to cope

with the night sweats and it really beats having fever.

Love and Care,

Angie V.

Los Angeles, CA

Re: new member

Thanks to everyone on the group for such wonderful welcome to the group

responses.

I understand how individual results will vary, there seems to be a lot of

contributing factors, so I'm really looking forward to chatting with all of

you as I move forward with this disease. I start my MTX today and I'm

hopeful that it will " agree " with me, I'm a bit concerned after reading some

of the post that it may not, but I really want to get off the Pred ASAP

..

I have noticed that at the lower dosage of Pred that although I don't

register a fever I'm consistently having night sweats, any thoughts on that?

Thanks in advance for the comments.

s

Dallas, TX

[Guest guest]

I am in Wis. and raw milk can be sold on the farm - cowshares, goat shares, pet

milk and

thru private memberships (LLC).

>

> Let me introduce myself and my family.  We are living in Union Grove,

Wisconsin where

we currently are milking 6 dairy goats both Alpine and Nubians.  Next spring we

should be

up to 12 milkers.  We are on DHIA and I use the milk for our family and

enjoy making

cheese and need to learn to make butter better. 

>  

> My husband is currently living in Wichita, Kansas and we hope to move all

goats and

household if our house ever sells.  Selling a house in the middle of a financial

crisis is not

easy, we have already had one sell fall through due to buyer no longer being

able to get

financing.  Anyway we (my son and daughter milk with me) are looking forward to

moving

to a state that allows raw milk to be sold on the farm.  My son Calvin designed

and owns

www.TheSemenTank.com a free website for people to list dairy goat semen they own

for

sale.

>  

> Jackie Eastwood

> www.FiddlersRidgeDairy.com

>

[Guest guest]

I am very happy to have found this group. I provide special

instruction to kids and their families through the Early Intervention

Program in NY. I do aba, vb, and incorporate elements of more

relationship oriented modalities. I started questioning the difference

in numbers of boys and girls being diagnosed with asd's because I see

differences in the little girls and boys I work with. I look forward

to reading the experiences of girls and women on the spectrum as well

as parents and other professionals, and contributing whatever I can. I

am very interested in finding out about any research that addresses

these differences.