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I love that... " nothing tastes as good as thin feels " !!! Wow, that's a great

saying.

, some people give themselves 1 free day a week to eat whatever they

want and don't eat junk the other days of the week. Personally, that

doesn't work for me because of my personality, I tend to binge, feel bad,

eat bad cuz I feel bad, eat bad again cuz I'm still feeling bad <G>...a

vicious cycle. What I try to do is just eat things in moderation. I follow

a zone diet which is 40% carbs, 30% protein and 30% fat, although I very

rarely measure or calculate anymore. If I really want Oreo cookies with my

lunch, then I'll make the rest of my meal protein like a chicken breast or

cottage cheese. If I eat pizza, I eat two small slices, one without cheese

and both with a protein source on top (meat, etc...I love chicken on my

pizza). Or I make a homemade pizza with pita bread, tomato sauce, a little

olive oil and garlic, fat free mozzarella cheese and lunchmeat. I'll also

don't beat myself up if I do splurge and have ice cream or a big dessert, I

just eat a little better the next day.

Colleen

-----Original Message-----

From: janickcm

" Nothing tastes as good as thin feels " . That phrase has been my anchor at

times of distress (food wise that is).

Janick

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Hey...I just did that today at lunch. I had an off site class and can't eat

a lot of protein because of my jaw/tooth. I did ok for breakfast and

remembered to bring a protein bar. But our class ran late and I was

famished. I " talked myself " into buying a bag of chips to have a few to tide

me over on the ride back to the office...oops there must have been a chip

thief because they were all gone when I got back to work...and I'm still

hungry. I know its the overload of carbs doing me in! But I'm going to

have a nice soft omelet with Canadian bacon and artichoke hearts for dinner

with some salsa on top and make up for it!!

Oh yea and I even went to the vending machine and bought a bag of M & Ms on my

break..I opened them, ate 2 and then marched to the garbage and poured them

out. Carbs just kill me if I don't eat balanced!

Colleen

-----Original Message-----

From: janickcm

If I eat something that's high in " bad " carbs, I tend to binge and

stay on that mode all day. Like yesterday, I was at a meeting in the

morning, and I knew there would be danish. So I planned for it

during the day as it being my breakfast. Well... I was unsatiable

all day after that!

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--- janickcm wrote:

I feel

> fuller, longer,

> especially when I pair up a lean protein with

> something that is high

> in fiber (for example a typical breakfast for me is

> a chopped apple

> nuked for 60 seconds (peel still on) then mixed with

> vanilla FF

> yogourt and Kashi Go Lean cereal).

Hey Jannick,

I think I'll try this mixture, thanks for the idea

:o)!!!!!

Sandie, Tae and Bo who is *bad* at coming up with new

ideas for meals :o)!!!!!

=====

" The task ahead of us is never as great as the power behind us. "

" Faith is the daring of the soul to go farther than it can see. "

" Act as if it were impossible to fail. "

" There are no shortcuts to anyplace worth going. "

__________________________________________________

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I got a great recipe from one of the zone books. 1 small apple cut up, 1

tsp raisins, nuked for about 4-5 minutes, 3/4 cup cottage cheese, 1/2 cup

nonfat plain yogurt, cinnamon and a few slivers of almonds on top...yummy!!!

Lately I've been on an oatmeal, cottage cheese, yogurt and blueberry kick

for breakfast.

Colleen

Re: Re: Diet questions

--- janickcm wrote:

I feel

> fuller, longer,

> especially when I pair up a lean protein with

> something that is high

> in fiber (for example a typical breakfast for me is

> a chopped apple

> nuked for 60 seconds (peel still on) then mixed with

> vanilla FF

> yogourt and Kashi Go Lean cereal).

Hey Jannick,

I think I'll try this mixture, thanks for the idea

:o)!!!!!

Sandie, Tae and Bo who is *bad* at coming up with new

ideas for meals :o)!!!!!

=====

" The task ahead of us is never as great as the power behind us. "

" Faith is the daring of the soul to go farther than it can see. "

" Act as if it were impossible to fail. "

" There are no shortcuts to anyplace worth going. "

__________________________________________________

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Hey, Colleen. That's similar to my oatmeal breakfast except for the apple

and cottage cheese. I assume the Zone Diet is designed to help people eat

foods in the proper combinations and proportions. Is this true?

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--- janickcm wrote:

> Don't forget to add a few drops of lemon juice and

> cinnamon when

> nuking the apple... I had forgotten that part!

Janick :o)!!!!

Okey dokey, will do. I *finally* cleaned up the mess

I'd made with many recipes that I collected over the

years and I found one for Cod that you posted on the

boards back in 1999--when that Recipe thread was going

pretty strong. Still have yet to try it...one day

I'll get around to it :o)!!!!!

Sandie, Tae and Bo :o)!!!!!

=====

" The task ahead of us is never as great as the power behind us. "

" Faith is the daring of the soul to go farther than it can see. "

" Act as if it were impossible to fail. "

" There are no shortcuts to anyplace worth going. "

__________________________________________________

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--- Colleen Meacham wrote:

> I got a great recipe from one of the zone books. 1

> small apple cut up, 1

> tsp raisins, nuked for about 4-5 minutes, 3/4 cup

> cottage cheese, 1/2 cup

> nonfat plain yogurt, cinnamon and a few slivers of

> almonds on top...yummy!!!

> Lately I've been on an oatmeal, cottage cheese,

> yogurt and blueberry kick

> for breakfast.

>

> Colleen

Colleen,

That sounds good too :o)!!!!! I'll try that one as

well :o)!!!!!

Sandie, Tae and Bo who likes quick and simple ideas :o)!!!!!

=====

" The task ahead of us is never as great as the power behind us. "

" Faith is the daring of the soul to go farther than it can see. "

" Act as if it were impossible to fail. "

" There are no shortcuts to anyplace worth going. "

__________________________________________________

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That's exactly what it is about. It recommends a 40% carbohydrate, 30%

protein and 30% fat diet. What I like about it is that " nothing " is

forbidden per se. If I absolutely have to have something, I can make it work

into the diet. Of course, certain foods are better than others <G>.

Colleen

Re: Re: Diet questions

Hey, Colleen. That's similar to my oatmeal breakfast except for the apple

and cottage cheese. I assume the Zone Diet is designed to help people eat

foods in the proper combinations and proportions. Is this true?

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I've seen many books about the Zone Diet. Is this where you found your

information? Is the plan easy to follow? My major concern is grocery

shopping and cooking. I'm a great cook (brag), but I don't have time to

prepare lavish meals everyday. I usually eat Lean Cuisine, Healthy Choice,

etc. frozen dinners. I add a salad and fruit for a well balanced meal.

Lately my idea of cooking is making a tuna salad. Help!

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,

I am behind on messages, so I don't know if you've

gotten a response to your request. I hope to get

through my 800 e-mails today. If you don't have a

response yet, please e-mail me directly at

kerriellen@... and I'll be happy to tell you

about the Zone Diet.

Kerri

who doesn't think following the zone diet is too time

consuming

--- zklp25@... wrote:

> I've seen many books about the Zone Diet. Is this

> where you found your

> information? Is the plan easy to follow? My major

> concern is grocery

> shopping and cooking. I'm a great cook (brag), but

> I don't have time to

> prepare lavish meals everyday. I usually eat Lean

> Cuisine, Healthy Choice,

> etc. frozen dinners. I add a salad and fruit for a

> well balanced meal.

> Lately my idea of cooking is making a tuna salad.

> Help!

>

>

>

__________________________________________________

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,

The zone can be lavish or simple, it all depends on the individual. The

basis of the zone is that for every meal you eat 40% carbs, 30% protein and

30% fat. For me the average meal is 27 grams carbs, 21 grams protein and

4-9 grams of fat. Once you get the " calculating down " , the meals are easy.

Healthy Choice and Lean Cuisine actually have some meals that are pretty

close to zone ratios and I eat them often too. When I'm being " lazy " and

don't want to calculate my own meals, I look for frozen or soups for a

product that has the ratios above. Lots of Progresso Soups, Chili and the

frozen dinners come right in these ratios...I am not what one would call a

great cook <G>. I keep things simple. For example, for a snack I had 1

slice of toast (7 grams carbs, 3 grams protein) plus 1 slice of lowfat

cheddar cheese (2 grams carbs, 3 grams protein, 3 grams fat). So my total

was 9 grams carbs, 7 grams protein, 3 grams fat. Breakfast is usually

cottage cheese with yogurt on top of oatmeal with a few blueberries.

I think at first people think the zone is confusing because of all the

" numbers " and calculating. But once you get the idea of it, it snaps right

into place. You can be as creative as you want, in fact the more creative

you are the better <G>. In the beginning, I mostly followed recipes from

the Zone books or internet until I got comfortable with the diet. For me, it

works because it controls my sugar and carb cravings and nothing is

absolutely forbidden. If I felt I had to have something, I wouldn't

necessarily be sabotaging my eating. I'd just make it into a zone meal

(i.e., half a snickers bar plus some cottage cheese and voila you are

" zoned " ). And I feel I can maintain this as a long-term lifestyle. I've

tried other plans and for me they didn't work. They key is finding what

works best for your body. There are some great plans out there other than

the Zone also. See what works for you and what you can see as a lifetime

change and you're set!

Colleen

Re: Re: Diet questions

I've seen many books about the Zone Diet. Is this where you found your

information? Is the plan easy to follow? My major concern is grocery

shopping and cooking. I'm a great cook (brag), but I don't have time to

prepare lavish meals everyday. I usually eat Lean Cuisine, Healthy

Choice,

etc. frozen dinners. I add a salad and fruit for a well balanced meal.

Lately my idea of cooking is making a tuna salad. Help!

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  • 7 years later...

Have you thought about a thermos like container? I have a very similar schedule to yours, and I heat lunch up in a microwave container, cover it tightly with foil, and put the lid on. It generally stays pretty warm. I also use the insulated bags from costco. I recently bit the bullet and looked and what therapies were giving me the biggest bang for my buck and either streamlined or cut the rest down. I also realized that if he was tired or overwhelmed that he did not respons to the therapies either. You have to also take care of yourself. Put everything in perspective. Grief is a natural process, and you need to let yourself go through it. Journal and decide what is a non-negotiable for you (nursing) and what things are a possibility (diet), (therapies).There is no magic pill, and it has just been within the last year that we gave finally seen improvement in my son. You also need to realize that the

milestones you are grieving for are neuro-typical. I was thrilled last summer when my son finally said mommy instead of momma. It is just such an adjustment of expectations. Feel free to e-mail or call if you want to vent.Good luck,Adina Sent from my iPhone

I'm in Rowlett, Sandy, which is about 20 miles north east of Dallas. We have Kroger a few miles away, so I'll be happy to check there as well. is in Irving 5 days a week for therapy now and will be in Dallas (UTD Callier Center) 4 days a week starting mid month, so I will be in the Dallas area, and it's possible that I can try and hit one of the bigger stores like Whole Foods. Not sure where the closest HEB is, or if there is one in the area. I've never been there.

I was discouraged after talking to my pediatrician briefly this morning, because she said that if we were going to go gluten free, we'd need to go all in and be strict about it. She actually recommended that the entire family go cf/gf and that we'd all feel better for it. I was hoping that while we were in a schedule that's going to seriously limit the possibility of any kind of good diet (we literally will not be at home from 8am to 7pm Monday, Tuesday and Wednesday of each week), that just eliminating a little gluten at a time would be helpful. She highly recommends going gf/cf, but says that we need to go all in. I'm just not sure that I can swing it for at least a few months while I try to get a handle on this new schedule.

He'll be at the Callier center (an hour away) 9-11:30am Monday through Thursday, and he'll be at the Woodall Center (an hour away) for ABA Monday-Wednesday 3-6pm, Friday 9-noon, and Saturday 9-noon. Add in O/T and P/T and ECI on Thursday and Friday afternoons, and you have yourself a real party! We're just starting at the Callier center on the 19th of this month, so it's a new schedule. Since each of the two centers are so far from home, I won't be able to come home between therapy on Monday through Wednesday. Unless there's a prepackaged lunch for him that I don't have to cool or heat, it's just not going to be doable. I won't be at home, won't have access to a fridge or microwave, and his "normal" lunches include chicken nuggets, grilled cheese, or pasta, along with freeze dried apples, goldfish and the occasional veggie (he refuses everything but corn and peas, and only eats those occasionally).

If (1) I was at home during the days, (2) I was not nursing, and (3) we weren't already on such a tight budget, I would have switched to cf/gf a while ago. I will do the diet, especially if we get any information from the urine test he just did that says he's got specific issues with dairy or wheat. I have no feelings about him being a "poor" baby because he can't have "normal" foods. I seriously could not care less what he eats, and don't have any issue with restricting his diet, etc. I do have to be realistic about what he WILL eat though, when it comes to his sensory issues. His diet is limited now because he will not eat pureed foods or cold or slimy foods. He breaks his mushy rule for eggs and breaks the slimy rule for spaghetti sauce, and the occasional mac n cheese. He won't eat bananas or any other fruit for that matter in its natural state. He will eat the freeze dried bananas (occasionally), apples (daily), and strawberries. He's had a

rash here the past few days, and I'm going to eliminate the strawberries because I think they may be to blame. He won't eat lunch meat (slimy), or hot dogs (not sure why), but I've put them on his tray for months with no luck.

I've been trying to get him to eat chicken breast strips versus the nuggets (since they're much healthier), but he hasn't relented with those either. If I could get him to eat those, I suppose I could put them in some sort of refrigerated bag along with some apples and some rice chex and maybe a granola bar off of the list that Nagla posted on here. The only issue would be (1) convincing him to eat the chicken at all, and (2) convincing him to eat it cold. He's had the issue with cold things since at least a few months old, so I just don't know how we're going to battle that.

What I'd planned on doing during those hectic M-W days is driving over to s and getting him a chicken nuggets meal. I KNOW it's not healthy, but he has to eat between therapies, and as I mentioned, I cannot go home and/or heat anything up.

I welcome ANY other suggestions for common g/f snacks found at the grocery store that I can use to replace his goldfish. I'm going to look for the alternative spaghettis and sauces at Kroger. If he actually has an egg issue, I think I may break down and cry, because he's eaten eggs daily since he was a year old, loves them, and it makes breakfast easy for us. Getting out of the house early in the morning every day for therapy is hard enough without having to try and convince him to eat. As a teacher, I know it's crucial that he eat something before trying to make it through 3 hours of therapy, so I'm going to remain hopeful that he has no egg issues. I add dry cereal to his tray each morning, but I'm sure that I can find enough g/f cereals to just substitute those in. Of course, if he's got an issue with eggs, we'll remove them. At this point, we have no information that he's got an issue with any particular food item. He's had mushy poop since July

though, so obviously, he's got some sort of a problem.

Ok, ending the novel now. I appreciate the tips and welcome any others!

Serena

>

> Serena,

>

> You didn't say where in Texas you are, but I know it is not Houston since we don't have any Albertson's anymore, unfortunately. Each town has some specialty health food stores but the major grocery stores are starting to carry GF products more and more.

>

> I second what everyone else has said: start slow, one thing at a time, keep breastfeeding but make your diet as clean as possible, and what your son craves is usually a bad thing for him. Also, it is good that you already recognize some issues before you start anything. It is helpful to keep a log as you try each new thing - food, supplement, etc. Believe it or not, you will not remember the reactions a few years from now unless they are huge. Removing milk from our son's diet was the biggest "wow" but they other changes we much more subtle.

>

> The hardest thing I found was getting the right mindset. Instead of "oh, poor baby, he can't eat all these yummy foods he likes", change that to "oh, poor baby, all these foods are seriously hurting my baby and I need to help him." To this day, my son will ask if a new food is going to "hurt his belly" or give him a headache so the old foods were really hurting him. Approach this as you are helping him, not depriving him of something. It helps to think of it as an addiction: you wouldn't offer alcohol to an alcoholic, right? And a warning, you are going to get a lot of this "poor baby" response from friends and family so try not to let them get to you.

>

> Since you don't want to do the milk yet, I'd suggest starting with the gluten free first, although it sounds like your son might have an issue with eggs. Note that you have to do it religiously for several months to see if there is an improvement. There are a lot of new products that are gluten free. I make a big batch of spaghetti each week. There are several alternative pastas made from rice or corn (corn and soy can be an issue for our kids, too, though). And then we use organic ground beef and organic spaghetti sauce. You can get all of these ingredients at the bigger HEB stores, and I have even noticed the pasta and sauce are at Wal-Mart now. HEB, Kroger and Wal-Mart all have a small section of cereals, pastas, baking ingredients, etc. that are gluten-free.Â

>

> Another "easy" meal is organic Applegate hot dogs (Whole Foods). I slice these up, warm them up a little, and serve them on a plate (no bun but they do make gf buns if you want). Some other easy favorites of my son are french fries, gfcf pancakes with organic syrup, and organic fruits. Yes, organic is more expensive but if you think about how much a tiny bag of Goldfish costs versus a bunch of bananas, it's about the same and the nutritional value is so much higher. There are also some good GFCF chicken nuggets available at big HEBs and Whole Foods and specialty health food stores.

>

> You are already taking advantage of a great free resource - online groups. The parents are the best resources, in my opinion. Here are two other groups that have been helpful to me:

> beyondgfcf

> abmd  (stands for Autism BioMedical Discussion)

>

> Good luck, and stay focused on helping your son!

>

> -Sandy H.

>

>

>

> Â

>

>

>

> ________________________________

>

> To: Texas-Autism-Advocacy

> Sent: Fri, January 1, 2010 6:19:05 PM

> Subject: Diet questions

>

> Â

> Hey there. I've just gotten 's first batch of blood/urine test results back, and it looks like we may have to try a diet for him. I'm looking for some "Diets for dummies" kind of information for those who've been there, done that, and now know how to do it better.

>

> I should preface by saying that my son turned 2 on Halloween, and has had runny poop since about July (about a month after he suffered the majority of his language and social losses). He has had sensory issues since infancy, so he will not eat anything pureed (applesauce, icecream) or slimy (sliced peaches, etc....we do freeze dried fruit). Otherwise, we do a fairly common toddler diet (eggs, chicken nuggets, spaghetti, grilled cheese, gold fish, etc.).

>

> Two other things. 1) I can't cook (like setting the smoke alarm off on a regular basis) and 2) I will not give up milk at this point, because he is still nursing to sleep. is absolutely bonded to me in an almost typical way, and I will not take the chance right now that forcing him to wean might harm our relationship.

>

> So.....with all of that said (oh, and did I mention that we're broke? LOL), can anyone offer some good links for places to get gluten free stuff? Also, can anyone offer suggestions of typical things found in the store that are already gluten free? I noticed a "GLUTEN FREE" label on the front of 's Rice Chex box the other day. Since I'm going to need to replace his snacks (I'm guessing that the goldfish are out), I'd love to hear that there are already plenty of readily available things at my neighborhood Albertsons. Because my cooking abilities are even more pitiful than my checking account, I'm going to have to start with prepared foods, but the easier and cheaper the better. 's three favorite things to eat are 1)scrambled eggs, 2)chicken nuggets, and 3)spaghetti with red meat sauce.

>

> I'd love to hear anything you guys have to offer that is easy and cheap! Thanks!!

> Serena

>

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(9)

MARKETPLACE

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Serena,In Rowlett, there is a family practitioner named Bessie Owens.  She is wonderful!  She helped my son so much when we left his pediatrician after his vaccine regression.  she ran the first opiate peptide test for us and some allergy testing.  She was very supportive of putting my son on the diet, and she was the one who suggested a year later to remove soy.

I wanted to add that we buy most of our son's things at Whole Foods.  I have found if I just buy there for him, it is not so bad.  I started doing this when I saw teh little signs at our neighborhood grocer that state all there produce is genetically engineered.  Also, I bought some pork chops there once and grilled them, and our son had a few bad days, so I looked at the ingredients, and the pork was pumped full of phosphates and a lot of other trash.

We have hectic schedules, too, and we have a thermal bag for hot and one for cold.  In the mornings I make his breakfast from choices below:Wellshire Farms sausage patties (they come in chicken, turkey or pork)

Ian's allergen free french toast (or can be made from scratch using tapioca bread)Applegate Farms turkey bacon or pork Sunday baconparsnip pancakesScrambled eggsFresh fruit: apples, banana, tangerine, pears, berries etc...

Lunch from the choices below:Applegate farms chicken nuggets "                  "         hot dogs "                  "         Turkey corn dog bitesDiestel organic turkey burgerOrganic hamburger

ground chicken burger (grilled)baked chicken breast or strippinto beans (with vegetable juice and thickened with Shiloh farms organic potato flakes)navy beans (with sam as above)A vegetable (steamed or saute')  WE've gotten our son to eat cabbage, cauliflower, brocclli (but he was allergic), spinach, mixed vegetables, corn, peas, beets.....

spaghetti (Tink'yada brand) comes in penne, shells, elbow etc...)  we make a suace with organic vegetable juice and thicken with arrowroot four or a little potato flakes)  We will eliminate the potato flakes as we go more oxalate free.

We also use CHREEESE " cheese " flavoing powder.  They make alfredo and cheddar styles.  It is GF/CF/SF.We use the same choices for dinner.  Once a month, we might serve baked Alaskan cod, though we try to stay away from fish due to mercury content.

Annies Ketchup or MustardSnacks: Wellshire Farms Tom-Tom Turkey SticksRice Chex Mix (my husband has a recipe for a gf/cf/sf coating)Enjoy Life snack barsEnjoy Life cookiesAnnies Bunny fruit snacks

Hope this helps.Before loading up on dried fruits, have your son checked for sulfa allergy.For us, the above menu will have to change to go low oxalate as well, but you are just getting started.  Also, Our son self-limited in the beginning.  I had to desenzitize him to many foods by smearing it on his lips until he licked his lips.  I credit this with getting him to try new foods.  Do this while he is young!  I had to do this because he couldn't swallow a capsule and we mixed all his supplements into apple sauce.  Per his doctor's recommendations, supplementation may be vital to your child's development. (read " Children with Starving Brains " by Dr. Jaqueline McCandless).

Haven

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Hello

all. I am pretty new to this situation. My 2 yr old was diagnosed

in October and then my 12 yr old was diagnosed with Asperger's last

month. I keep seeing the posts about special diets. Is this something I

should check into for my kids? Also, would we have to do any kind of

allergy testing? I don't really know what questions I need to ask or what

we should do really. We had Noah at Behavioral Innovations for 5 days

then found out that the insurance we had then does not cover autism so we

pulled him out. We just switched to BCBS and supposedly they cover it up

to age 6 but not sure if my husband's employer has added a rider since we

talked to them or not. We are planning on calling tomorrow. Anyway,

off the subject. I would appreciate any info on diets or whatever we

should be thinking about doing for Noah or both kids for that matter.

Christi

From:

Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Haven DeLay

Sent: Sunday, January 03, 2010 10:47 AM

To: Texas-Autism-Advocacy

Subject: Re: Re: Diet questions

Serena,

In Rowlett, there is a family practitioner named Bessie Owens. She is

wonderful! She helped my son so much when we left his pediatrician after

his vaccine regression. she ran the first opiate peptide test for us and

some allergy testing. She was very supportive of putting my son on the

diet, and she was the one who suggested a year later to remove soy.

I wanted to add that we buy most of our son's things at Whole Foods. I

have found if I just buy there for him, it is not so bad. I started doing

this when I saw teh little signs at our neighborhood grocer that state all

there produce is genetically engineered. Also, I bought some pork chops

there once and grilled them, and our son had a few bad days, so I looked at the

ingredients, and the pork was pumped full of phosphates and a lot of other

trash.

We have hectic schedules, too, and we have a thermal bag for hot and one for

cold. In the mornings I make his breakfast from choices below:

Wellshire Farms sausage patties (they come in chicken, turkey or pork)

Ian's allergen free french toast (or can be made from scratch using tapioca

bread)

Applegate Farms turkey bacon or pork Sunday bacon

parsnip pancakes

Scrambled eggs

Fresh fruit: apples, banana, tangerine, pears, berries etc...

Lunch from the choices below:

Applegate farms chicken nuggets

"

" hot dogs

"

" Turkey corn dog bites

Diestel organic turkey burger

Organic hamburger

ground chicken burger (grilled)

baked chicken breast or strip

pinto beans (with vegetable juice and thickened with Shiloh farms organic

potato flakes)

navy beans (with sam as above)

A vegetable (steamed or saute') WE've gotten our son to eat cabbage,

cauliflower, brocclli (but he was allergic), spinach, mixed vegetables, corn,

peas, beets.....

spaghetti (Tink'yada brand) comes in penne, shells, elbow etc...) we make

a suace with organic vegetable juice and thicken with arrowroot four or a

little potato flakes) We will eliminate the potato flakes as we go more

oxalate free.

We also use CHREEESE " cheese " flavoing powder. They make

alfredo and cheddar styles. It is GF/CF/SF.

We use the same choices for dinner. Once a month, we might serve baked

Alaskan cod, though we try to stay away from fish due to mercury content.

Annies Ketchup or Mustard

Snacks:

Wellshire Farms Tom-Tom Turkey Sticks

Rice Chex Mix (my husband has a recipe for a gf/cf/sf coating)

Enjoy Life snack bars

Enjoy Life cookies

Annies Bunny fruit snacks

Hope this helps.

Before loading up on dried fruits, have your son checked for sulfa allergy.

For us, the above menu will have to change to go low oxalate as well, but you

are just getting started. Also, Our son self-limited in the

beginning. I had to desenzitize him to many foods by smearing it on his

lips until he licked his lips. I credit this with getting him to try new

foods. Do this while he is young! I had to do this because he

couldn't swallow a capsule and we mixed all his supplements into apple

sauce. Per his doctor's recommendations, supplementation may be vital to

your child's development. (read " Children with Starving Brains " by

Dr. Jaqueline McCandless).

Haven

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I buy lots of gluten free foods at HEB and you can make special requests. I really like the Allergy free brand chicken nuggets for instance. Once you get the hang of cooking GF it's really not so hard. HEB carries GF spaghetti and they also carry organic spag sauce so I just add organic hamburger. Make lots and freeze it in little bags. I send my 14 year old to school each day with an apple or banana some nitrate free ham (HEB) and usually peas or green beans. He'll eat nitrate free bacon too by himself.

The idea of smearing the food on his lips is a good one. I had to do a force feeding diet a year ago. My son always had a limited diet much like yours. But as he got older he had more and more rigid rules until he was eating next to nothing and drinking lots of Rice and Almond milk. My son is much healthier now and gained 20 pounds in a few months. He loves the gluten free waffles from Vans also at HEB. It's Texas SURELY you have an HEB somewhere! Best of luck you can do this!

Trina

Re: Diet questions

Thanks so much for the advice and the specifics, Haven. I'm going to have to figure out where the closest Whole Foods is and then see what I can get integrated into his diet. Even if we won't see improvements until it's all cut out, moving toward getting it all out of his system while I try and figure out this new schedule will be a good, positive move. Plus, if I cut this out and substitute that, it won't be so overwhelming. Cutting it out over the next month or so versus just starting the diet in a month and taking the chance that we might get overwhelmed and have to start and stop and start again.....well, as I said, it can't hurt to start cutting it out now if we're not ready to jump all in right this second.I have a big thermal bag somewhere. It's just going to be a matter of finding it. The new schedule starts in about 2 weeks, so I'll have a little more flexibility in my schedule now to try and find and navigate my way through Whole Foods. My guess is that does have an issue with soy, so I won't be looking to use it as an alternative. He was briefly (about 2 weeks) put on a soy formula part time as an infant and quickly became a screaming, unhappy, unpleasant little guy. I am going to have to figure out whether my pediatrician can order any of the food allergy tests, because the labs that Dr. Rao has been sending us to aren't in network for our insurance, and it seems to me that if anything, allergy testing is something our lame, shameful insurance ought to pay for. If my ped can't, I'll look up Bessie Owens.Now, answer a stupid question for me. Why wouldn't an average jar of spaghetti sauce be gluten free? Like I said, I am NO cook, but can't imagine why gluten would be in something that ought to be basically glorified tomato sauce. If we can start with a g/f noodle, and just keep our current Prego (or whatever it is Mike uses), would be much more likely to eat it. Then we could move toward the more healthy sauce. It's going to take some convincing to get Mike to go to a from scratch sauce, because as I said, I am not the cook here, and never will be. In the evenings, I only walk into the kitchen to fill up my plate. LOL I couldn't tell you where all of the cooking utensils and pots/pans etc are. The only thing I ever cook are 's scrambled eggs in the mornings, and I literally add nothing too them....just mixed up eggs and a sprinkle of salt if I'm feeling frisky. LOL And usually, Mike makes the eggs because he doesn't like the mess I make with the pan. Is there a separate test for an egg allergy? Man, I hope he doesn't have an egg allergy. can be counted on to eat three things....eggs, chicken nuggets and spaghetti. If I only have to replace 2 of the 3 of those, I'll be a happy camper. I know that the other two will have to be substitutes of the original.Ok, I've written another novel while rambling on about my ineptitude in the kitchen. I'm off to google Whole Foods stores and see which is the closest.Thanks again, Haven.Serena>> Serena,> > In Rowlett, there is a family practitioner named Bessie Owens. She is> wonderful! She helped my son so much when we left his pediatrician after> his vaccine regression. she ran the first opiate peptide test for us and> some allergy testing. She was very supportive of putting my son on the> diet, and she was the one who suggested a year later to remove soy.> > I wanted to add that we buy most of our son's things at Whole Foods. I have> found if I just buy there for him, it is not so bad. I started doing this> when I saw teh little signs at our neighborhood grocer that state all there> produce is genetically engineered. Also, I bought some pork chops there> once and grilled them, and our son had a few bad days, so I looked at the> ingredients, and the pork was pumped full of phosphates and a lot of other> trash.> > We have hectic schedules, too, and we have a thermal bag for hot and one for> cold. In the mornings I make his breakfast from choices below:> > Wellshire Farms sausage patties (they come in chicken, turkey or pork)> Ian's allergen free french toast (or can be made from scratch using tapioca> bread)> Applegate Farms turkey bacon or pork Sunday bacon> parsnip pancakes> Scrambled eggs> Fresh fruit: apples, banana, tangerine, pears, berries etc...> > Lunch from the choices below:> > Applegate farms chicken nuggets> " " hot dogs> " " Turkey corn dog bites> Diestel organic turkey burger> Organic hamburger> ground chicken burger (grilled)> baked chicken breast or strip> pinto beans (with vegetable juice and thickened with Shiloh farms organic> potato flakes)> navy beans (with sam as above)> A vegetable (steamed or saute') WE've gotten our son to eat cabbage,> cauliflower, brocclli (but he was allergic), spinach, mixed vegetables,> corn, peas, beets.....> spaghetti (Tink'yada brand) comes in penne, shells, elbow etc...) we make a> suace with organic vegetable juice and thicken with arrowroot four or a> little potato flakes) We will eliminate the potato flakes as we go more> oxalate free.> > We also use CHREEESE "cheese" flavoing powder. They make alfredo and> cheddar styles. It is GF/CF/SF.> > We use the same choices for dinner. Once a month, we might serve baked> Alaskan cod, though we try to stay away from fish due to mercury content.> Annies Ketchup or Mustard> > Snacks:> > Wellshire Farms Tom-Tom Turkey Sticks> Rice Chex Mix (my husband has a recipe for a gf/cf/sf coating)> Enjoy Life snack bars> Enjoy Life cookies> Annies Bunny fruit snacks> > Hope this helps.> > Before loading up on dried fruits, have your son checked for sulfa allergy.> For us, the above menu will have to change to go low oxalate as well, but> you are just getting started. Also, Our son self-limited in the beginning.> I had to desenzitize him to many foods by smearing it on his lips until he> licked his lips. I credit this with getting him to try new foods. Do this> while he is young! I had to do this because he couldn't swallow a capsule> and we mixed all his supplements into apple sauce. Per his doctor's> recommendations, supplementation may be vital to your child's development.> (read "Children with Starving Brains" by Dr. Jaqueline McCandless).> > Haven>

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Sent: Sunday, January 03, 2010 4:24 PMTo: Texas-Autism-Advocacy Subject: Re: Re: Diet questions I buy lots of gluten free foods at HEB and you can make special requests. I really like the Allergy free brand chicken nuggets for instance. Once you get the hang of cooking GF it's really not so hard. HEB carries GF spaghetti and they also carry organic spag sauce so I just add organic hamburger. Make lots and freeze it in little bags. I send my 14 year old to school each day with an apple or banana some nitrate free ham (HEB) and usually peas or green beans. He'll eat nitrate free bacon too by himself. The idea of smearing the food on his lips is a good one. I had to do a force feeding diet a year ago. My son always had a limited diet much like yours. But as he got older he had more and more rigid rules until he was eating next to nothing and drinking lots of Rice and Almond milk. My son is much healthier now and gained 20 pounds in a few months. He loves the gluten free waffles from Vans also at HEB. It's Texas SURELY you have an HEB somewhere! Best of luck you can do this! Trina ----- Original Message -----From: omalleyfamily1[The entire original message is not included]

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Dear Christi:In my opinion, yes, you should consider special diets.  My son was severely affected after vaccine reaction in 2001.  We were told that it was hopeless, that our son would probably never talk again, that he would never make a friend, give eye contact, tell me he loved me, or be potty trained.

A developmental pediatrician assured me that if I could just hang on until he was a little older, she had " drugs " she could give my son to " make your life easier. "   No thank you.  I have never given my son psychotropic drugs, though had he continued to be abusive, (hitting, kicking, and biting me) and had he continued to be self-injurious, (he would throw himself up against the wall so hard he would fall down), I confess I might have had to.

BUT, then we drove twelve hours to see Dr. AMY Holmes in Baton Rouge Louisiana, and she gave us HOPE.  We could not chelate our son due to immune issues, so we started with diet and vitamin, mineral, and amino acid supplementation.  First we removed casein.  Our son literally went through withdrawal for three weeks.  He screamed, he cried, he tantrumed.  I cried every day and was exhausted every day by the time his father got home.

ECI was coming and the therapists encouraged me tohang in there.  After three weeks, things started getting better.  There was more eye contact, there were fewer tantrums, and there were fewer severe stomach episodes.  My son also started to use one-syllable utterances again.

Then we took away gluten.  He was making slow, steady progress.  He had fewer belly aches.A year later we had his opiate peptides in his urine rechecked.  They had come down but were still high.  His docotr said to try a trail of removing soy protein as it is very similar to casein.

We removed soy protein from his diet.  On the fifth day after this, our son said his first sentence!  After a few months we retested again, and the opiate peptides had come way down.  We have been GF/CF/SF ever since, and do not regret it at all!

There have been infractions along the way.  For our son, it severely affects his behavior.  My son is very well behaved, but last summer --it's my fault-- we were out and I let him have some french fries at a restaurant.  Within thirty minutes, he became a totally different boy: angry, demanding, defiant, and then in his anger, he put his hands around my throat and started choking me!!!  Needless to say, I will NEVER think " just this once " again.  If I don't know what is in it and howit is cooked etc... he does not get to eat it!

Since going on this diet, our son has steadily made progress and is very high-functioning today.  I also removed all carbonated beverages and avoid processed sugars like the plague.  I confess, for special occassions, he still gets a little, but I knowit is in his best interest to find more healthy ways of sweetening things. 

I also by all natural or organic meats for him.  he does not get things with nitrites, nitrates, sulphites, preservatives, or sulphates.  This includes the supplements he gets.We didn't get here all at once.  We have changed his diet in increments.  Now we are embarking on makeinghis diet low oxalate.

All of this simply moves these children towards a healthier diet and way of life.  My son's immune system was damaged by vaccines, so we have never re-vaccinated since fifteen months.  My son does have chronic lung issues, but he has never gotten " sick " with other illnesses like the flu or childhood diseases.

We also buy what a neurologist told me to buy with regards to drinking water.  We use Mountain Vallay Spring Water.  It gets delivered right to our house.  It contains minerals and has a good PH.We were able to chelate our son finally for seven months in 2006 and got a lot of mercury and lead out, but diet and supplementation along with behavioral intervention brought our son back to us!

If one commits to elimination, then it has to be " all in. "   I wouls give it six months.  You can have your children tested for opiate peptides in the urine.  If the peptides are high, then GF/CF/SF would be appropriate.

You can also have food alergy testing done and eliminate foods that have a 3 or 2 rating.  Food allergy is different from gf/cf/sf due to peptides.It can be overwhelming at first, so take one thing away at a time.  You can start with casein or gluten and then go from there.  There is a lot more of these foods available now than when we started.

The cleaner their diets are, the better.  Think " lower the toxic load " in regards to foods and anything you put on their bodies.  We use all natural lotions, soaps, and powders etc...Just move forward never taking on more than you can handle at one time in the plan.  If I can make it past the withdrawal phase, anyone can.

Hope this helps.Haven

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Kroger also carries some gluten free products in their health section.

To: Texas-Autism-Advocacy Sent: Sun, January 3, 2010 5:01:32 PMSubject: Re: Diet questions

Hmmmm, looks like the closest HEB is 40 miles away. Closest Whole Foods is a half hour away, so I'm going to have to try and gather up a list, and then drag Mike out there with me next weekend to take a look.>> > > Re: [Texas-Autism- Advocacy] Re: Diet questions> > > I buy lots of gluten free foods at HEB and you can make special

requests. I really like the Allergy free brand chicken nuggets for instance. Once you get the hang of cooking GF it's really not so hard. HEB carries GF spaghetti and they also carry organic spag sauce so I just add organic hamburger. Make lots and freeze it in little bags. I send my 14 year old to school each day with an apple or banana some nitrate free ham (HEB) and usually peas or green beans. He'll eat nitrate free bacon too by himself. > The idea of smearing the food on his lips is a good one. I had to do a force feeding diet a year ago. My son always had a limited diet much like yours But as he got older he had more and more rigid rules until he was eating next to nothing and drinking lots of Rice and Almond milk. My son is much healthier now and gained 20 pounds in a few months. He loves the gluten free waffles from Vans also at HEB. It's Texas SURELY you have an HEB somewhere! Best of luck you can do this! > Trina > -----

Original Message -----> From: omalleyfamily1> > > [The entire original message is not included]>

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Serena:Decide whether you will remove things containing gluten or things containing casein first.  Keep in mind that you may not begin to see improvement until you have roved all things containing the category you choose, and since your child is self-limiting to only certain foods, chances are he has issues with those foods.  Strangely enough, sticking with the same foods over and over can mean either food allergy to them or that due to some metabolic mishap in your child's body, the foods are being broken down into peptide that are actually addictive in nature.

Opiate peptides are addicting.  If they leak into the bloodstream, they get picked up by the opiate receptors in the brain and affect it just as opiate drugs might.  Opiates then cause the body to release endorphins.  Endorphins make us feel good, so then the body wants more and more...This is the same principle that makes people continue to smoke, drink, or do drugs.  Another note is that, when I started I thought, " What on earth can diet have to do with anything? "

The answer is that diet has EVERYTHING to do with EVERYTHING about how we feel, how healthy we stay, and how we can heal.  In answer to your question, gluten is in spaghetti sauce (Prego-- I like this one, too) because almost ALL processed foods contain tons of additives.  In addition, foods are often processed on the same manufacturing line as foods containing soy, casein, or grain(gluten) products.    The best thing you can do is to try to stay away from typical processed foods.  Muir Glen makes all natural and organic tomato sauces that are good.  I think they may be gluten free.  Your best bet is always to call the company.  The numbers are usually on the bottle.  Companies with usually send you a list of their products that are free of gluten, casein, and soy.

My son didn't care for regular tomato sauce.  he likes the vegetable juice thickened with either Shiloh Farms potato flakes or with Arrowroot flour.  You might try this.Also, may I suggest NO or few foods out of a can.  The aluminum cans are lined with plastic these days, but plastic compounds leach into the food along with some of the aluminum.  The more acidic a food is, the more leaching occurs.  Aluminum is neuro-toxic, and suspect in many cancers-- most notably breast cancer.  My son still gets organic beans from a can (Eden), but as we begin to go low oxalate, beans will be off his list.

We use no aluminum foil for cooking.  We use not " antiperspirant "   Every body needs to sweat --it's the way we detox.  We use natural deodorant spray or roller from Whole Foods.  It lasts a long time and works, though on hot days you would need to reapply.

I know you can't do things all at once, but you can save these notes for future reference and slowly change.Another thing I want to tell you about how processed food is manufactured is that years ago, the FDA used to have foods fortified with iodine, but some years ago, they allowed bread manufacturers to take the iodine out and use bromide(very bad for people).  Hence, the only place to get iodine is iodized table salt, but a person would have to use seventeen teaspoons of salt a day to get enough iodine.  You can get enough by eating kelp, but how many of us eat kelp?

I have bought kelp and put it in soup and it is good.  They also make kelp granules (whole foods) to use in place of salt.  It is a great alternative to salt.  Iodine is used by every system in the body, helps the body detox, and protects the body from cancer.  It is also vital to thyroid function.  Due to the standard American diet, I would bet that most women (if not everybody) is low in iodine. 

I would have yourself and your children tested for iodine deficiency.  I don't think it is covered by insurance (though it ought to be) so the test can cost $150, but I have never regretted taking the test.  There is a good supplement out there if you or your children are low.

Back to the other subject: Even regular salt and spices have additives and can be a no-no for your children.  Many of them have anti caking agents included, so again, we buy all natural and organic ones from Whole Foods.  We use Celtic Sea salt for salt.  The flavored powders and salts may cake up, but so what?  We use a fork to un-cake them.  We use aluminum free baking powder.  One of the additives in many processed foods is MSG.  Avoid MSG like the plague!

I'm giving you a lot of info here, so take your time in digesting it all.  It took me eight years and nine months to learn all of this, so don't exhaust yourself tyring to absorb it all at once.A good place to go for information is the TACA website (Talk About Curing Autism).  There you can find a huge list of safe brands and products, but don't get complacent.  I read all labels before I buy.  I look to see, " Good manufacturing practices used " on labels that appear to be safe.  I call the company if I'm not sure.

If you need some simple recipes to get started, let me know.Haven

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