Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 No, absolutely not. That seems to be what the pharmaceutical establishment is hoping for, but thankfully this is not the case. The medications my son was on while he was autistic were medications to try and fix all the illnesses he suffered as a result of a devastated immune system. Thank God that nightmare is over and he is a thriving healthy “normal” kid, and growing to be the young man God intended for him to be. Medication I am just wondering are all the children with Autism on medication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 what! c'mon. pharmaceutical establishment does not want every child on drugs. ya know, tylenol is great for some things like relieving pain from chicken pox. aspirin is great for some things - but not for relieving pain from chicken pox - you wind up with a whole other issue there. and who makes the drugs that some use for the chelation therapy? don't see any bitchin at big pharma there. some parents have no choice but to use some of the drugs available to them to help control their particular situation. and it is very misleading to make parents think that if they take their kids off of necessary drugs they will instantly be cured of autism. just as misleading is the thought that we need to switch to ceramic steak knives to avoid more metal exposure and what - worse autism? puhleeeZ. Dena LaRoux wrote: No, absolutely not. That seems to be what the pharmaceutical establishment is hoping for, but thankfully this is not the case. The medications my son was on while he was autistic were medications to try and fix all the illnesses he suffered as a result of a devastated immune system. Thank God that nightmare is over and he is a thriving healthy “normal” kid, and growing to be the young man God intended for him to be. Medication I am just wondering are all the children with Autism on medication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 > > I am just wondering are all the children with Autism on medication? > The thing I cant understand is why would a parent want to give a child medication like prozac? Surely there must be some other way to treat a child rather than medicate them with these strong addictive drugs. How do you know this medication dont make your child worse in the long run. On a show in the UK Professor Pelham admitted the Ritalin makes children worse in the long run and it is addictive yet these professionals today other drs and parents this was a fantastic drug answer to a lot of problems the only thing it has done is made thousands of children addicted to this drug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 Wow, you are talented there at putting words in MY email. I NEVER said what you’ve “TRANSLATED”, I did say IT SEEMS like big pharma wants everyone on drugs, not just kids!!! HAVE YOU TURNED ON THE TV LATELY??? I am praising God for what we enjoy now, that is what I am saying, THANK GOD NOT ALL CHILDREN ARE ON DRUGS, don’t you think that is a GOOD thing??? By the way, we chelated WITHOUT drugs and we NEVER use Tylenol, used to, but we suffered some side effects damage using those types of drugs, so we have found some natural alternatives that work beautifully. Again, I praise God for the GOOD things He is doing and I pray that more and more will experience the GOOD things. Medication I am just wondering are all the children with Autism on medication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 At one point, when my son was six (last year or so), he was on multiple pharma meds. He was taking risperdal, thorazine, concerta, congentin, carbatrol, and two others that I can't recall right now. I know now how ridiculous that all was. But I completely trusted that what his doctor (at a major hospital in Dallas) was prescribing was right. Even with all those meds we were still having issues. Now, a year later my son has no seizures, no aggression, is spending more and more time in a mainstream classroom, and doing great academically (close to grade-level). He's also on NO pharma meds (except for a very small dose of an antiepileptic that we hope to finally wean from after our appointment in January). I'm so glad my arm was twisted enough to venture down the biomed road. Oh, and by the way, we aren't on any special diet other than avoiding artificial stuff and other junk. We do work closely with a doctor. And we haven't spent an arm and a leg. > No, absolutely not. That seems to be what the pharmaceutical establishment > is hoping for, but thankfully this is not the case. The medications my son > was on while he was autistic were medications to try and fix all the > illnesses he suffered as a result of a devastated immune system. Thank God > that nightmare is over and he is a thriving healthy " normal " kid, and > growing to be the young man God intended for him to be. > > Medication > > I am just wondering are all the children with Autism on medication? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 we are also lucky enough to not need all the meds. but others aren't so lucky. amheartfield wrote: At one point, when my son was six (last year or so), he was on multiple pharma meds. He was taking risperdal, thorazine, concerta, congentin, carbatrol, and two others that I can't recall right now. I know now how ridiculous that all was. But I completely trusted that what his doctor (at a major hospital in Dallas) was prescribing was right. Even with all those meds we were still having issues. Now, a year later my son has no seizures, no aggression, is spending more and more time in a mainstream classroom, and doing great academically (close to grade-level). He's also on NO pharma meds (except for a very small dose of an antiepileptic that we hope to finally wean from after our appointment in January). I'm so glad my arm was twisted enough to venture down the biomed road. Oh, and by the way, we aren't on any special diet other than avoiding artificial stuff and other junk. We do work closely with a doctor. And we haven't spent an arm and a leg. > No, absolutely not. That seems to be what the pharmaceutical establishment > is hoping for, but thankfully this is not the case. The medications my son > was on while he was autistic were medications to try and fix all the > illnesses he suffered as a result of a devastated immune system. Thank God > that nightmare is over and he is a thriving healthy " normal " kid, and > growing to be the young man God intended for him to be. > > Medication > > I am just wondering are all the children with Autism on medication? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 I'm a bit surprised that these heated invectives are still being thrown back and forth. You know the saying, " you've seen one autistic child, you've seen . . . one autistic child. " While, of course, there are similarities (couldn't really be a " syndrome " if there weren't) but all of our autists are different. I have two boys with autism and they stand at diametrically opposed spots on the spectrum -- full brothers, same biological parents, but as different as two guys could be. I head up a support group and the topic of " to medicate or not to medicate " comes up. I ask both sides to be careful of their language choices; do we really need to dump on each other? For example, saying " I don't DRUG my child! " makes it sound as though the other side is blowing tranquilizer darts as their child runs across the yard like something out of Mutual of Omaha's Wild Kingdom! Every parent has to make decisions about his/her child, and I have never known a single parent to make those decisions thoughtlessly or easily. Over the past 17 years of parenting two autistic boys, my husband and I have tried every " cure " and treatment that came down the pike! I'd chant and swing a dead chicken over my head if there were the slightest chance that it would help my boys. I look back now and think I must have been having a small stroke at the time I decided to try some of those things. But no one ever accused me of collaberating with some large evil in the world. This is what I usually tell parents about medicating: If you believe that your child's brain chemistry is " off, " you might look into the medications that are being used now (17 years ago we wished we had bought stock in thorazine! That drug could knock out a fully grown adult with typical brain chemistry, but it merely kept my older son from ramming his head repeatedly into sheetrock walls and my younger son from scraping his ears with his fingernails until blood ran down his neck. Thorazine is no longer in their medical profiles because better, more effective meds have been created). Find an expert and ask them all the questions you can think of. If your child were diabetic, you probably wouldn't automatically say " I'm not going to give my child insulin; his pancreas just needs to get in gear! " If you decide to use pharmaceutical assistance, you could be giving your child what she cannot produce in her own body. And no parent gives their child any medication because it will make life easier for the parent; sometimes a bit of medicine quiets the noise in the child's head so he is then able to learn and grow. I do wish we could be a bit more gentle with other parents. After all, who else can understand what our lives are like? > > No, absolutely not. That seems to be what the > pharmaceutical establishment > > is hoping for, but thankfully this is not the case. The medications > my son > > was on while he was autistic were medications to try and fix all the > > illnesses he suffered as a result of a devastated immune system. > Thank God > > that nightmare is over and he is a thriving healthy " normal " kid, > and > > growing to be the young man God intended for him to be. > > > > Medication > > > > I am just wondering are all the children with Autism on medication? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 nope--not by a long shot. Medication I am just wondering are all the children with Autism on medication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 Well said. _____ From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of miriamaune Sent: Wednesday, November 28, 2007 9:19 PM To: Texas-Autism-Advocacy Subject: Re: Medication I'm a bit surprised that these heated invectives are still being thrown back and forth. You know the saying, " you've seen one autistic child, you've seen . . . one autistic child. " While, of course, there are similarities (couldn't really be a " syndrome " if there weren't) but all of our autists are different. I have two boys with autism and they stand at diametrically opposed spots on the spectrum -- full brothers, same biological parents, but as different as two guys could be. I head up a support group and the topic of " to medicate or not to medicate " comes up. I ask both sides to be careful of their language choices; do we really need to dump on each other? For example, saying " I don't DRUG my child! " makes it sound as though the other side is blowing tranquilizer darts as their child runs across the yard like something out of Mutual of Omaha's Wild Kingdom! Every parent has to make decisions about his/her child, and I have never known a single parent to make those decisions thoughtlessly or easily. Over the past 17 years of parenting two autistic boys, my husband and I have tried every " cure " and treatment that came down the pike! I'd chant and swing a dead chicken over my head if there were the slightest chance that it would help my boys. I look back now and think I must have been having a small stroke at the time I decided to try some of those things. But no one ever accused me of collaberating with some large evil in the world. This is what I usually tell parents about medicating: If you believe that your child's brain chemistry is " off, " you might look into the medications that are being used now (17 years ago we wished we had bought stock in thorazine! That drug could knock out a fully grown adult with typical brain chemistry, but it merely kept my older son from ramming his head repeatedly into sheetrock walls and my younger son from scraping his ears with his fingernails until blood ran down his neck. Thorazine is no longer in their medical profiles because better, more effective meds have been created). Find an expert and ask them all the questions you can think of. If your child were diabetic, you probably wouldn't automatically say " I'm not going to give my child insulin; his pancreas just needs to get in gear! " If you decide to use pharmaceutical assistance, you could be giving your child what she cannot produce in her own body. And no parent gives their child any medication because it will make life easier for the parent; sometimes a bit of medicine quiets the noise in the child's head so he is then able to learn and grow. I do wish we could be a bit more gentle with other parents. After all, who else can understand what our lives are like? > > No, absolutely not. That seems to be what the > pharmaceutical establishment > > is hoping for, but thankfully this is not the case. The medications > my son > > was on while he was autistic were medications to try and fix all the > > illnesses he suffered as a result of a devastated immune system. > Thank God > > that nightmare is over and he is a thriving healthy " normal " kid, > and > > growing to be the young man God intended for him to be. > > > > Medication > > > > I am just wondering are all the children with Autism on medication? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 I should have been more specific. Nope, because, to my knowledge there isn't one thing (treatment modality) that all children with autism have even tried or responded to. . . . . . . I'm wondering if some professional told you this. Beware people who claim to speak of " all children with autism " . . . . .as a couple of people have already pointed out, different kids, different needs, different choices. S. Medication I am just wondering are all the children with Autism on medication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 Our son isn’t. Have seen some children that are truly helped by medication, but I think it is prescribed too easily. Either way, it’s a personal choice that should be respected. Tonya From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of kirsty_rendall Sent: Wednesday, November 28, 2007 3:06 PM To: Texas-Autism-Advocacy Subject: Medication I am just wondering are all the children with Autism on medication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 So very, very, VERY true! I've yet to see two of our children that are alike. After all, they're people first and no two people are the same. Tonya From: Texas-Autism-Advocacy On Behalf Of Chatmom I'm wondering if some professional told you this. Beware people who claim to speak of " all children with autism " . . . . .as a couple of people have already pointed out, different kids, different needs, different choices. S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 A doctor recommended my son start taking meds at the age of 2 1/2. I resisted until he was almost 5. He was tiring himself out and sleeping was difficult - I was worn out as well. My son now takes Abilify 20mg, SeroquelXR 600mg, Clonidine .3 at night. He takes 40mg of Metadate in the mornings. My goal is to wean him off of the meds and try some other methods to help him stay as focused as possible and to help him get sleep. Currently it takes him 2-3 hrs to get to sleep after taking his nighttime regimen. One weekend we went out of town and left his meds behind. He stayed up a record 42 hrs. My friends and I slept in shifts to stay up with him as he ran around in circles and jumped off of furniture. Today I keep spare medication for him in the car, in my purse, at my mothers, and at all of my friends home that we visit. I had blood work done on him last week to see if any of his organs are being affected and in the interim I will look into alternatives because frankly I dont want him to be dependent on these drugs for eternity. > > We have resisted putting Tristan on medication, but self abusive/aggressive behavior has escalated. Dr. Karnik prescribed Abilify yesterday. Tristan is 7 and mostly non verbal. Do any of you take your child to Dr. Karnik, if so, what is your experience. Are any of your children on Abilify, and if so, have they done well without side effects? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 Thanks for your post! We have been on both sides as well. Did the biomedical route for three years, and I was one of the parents who protested drugs. But after GFCF, Feingold and multiple other supplements and biomedical interventions, we just were not seeing much progress. It was so frustrating and heartbreaking because parents in my biomedical support route were seeing lots of progress and we were not. We went to a neurologist who specialized in treatment of autism, and he said " if your son cannot focus, he cannot learn. You have to find a way to get him to calm down and sit still and pay attention or he is missing out on valuable speech therapy and education. " He was right and finding the right medication was the best route. Our son became verbal, stopped stimming all the time and could sit still and learn. Once that happened, I felt much guilt that I did not look into medication sooner as it could have possibly helped him three years prior. The best advice I give parents is that if something is not working, medication or any other therapy, then stop trying to make it work. Trust your instinct. There is no ONE treatment or therapy as evidenced by the vast and diverse postings here. The " right " choice is when you are seeing positive results. Someone said it well recently, sometimes it is two steps backward for every step forward, but eventually you find what works. We all need to support each other and band together, no matter what our choices are for treatment. Sometimes it feels we are in a political debate, because we are all so passionate about treating our kids and we all think our choice is the right one. We need to learn to help one another without criticism and support each other. Amen. ________________________________________________________________________________\ ____ Get easy, one-click access to your favorites. Make Yahoo! your homepage. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 Here here. Very well said!! S. Re: Medication Thanks for your post! We have been on both sides as well. Did the biomedical route for three years, and I was one of the parents who protested drugs. But after GFCF, Feingold and multiple other supplements and biomedical interventions, we just were not seeing much progress. It was so frustrating and heartbreaking because parents in my biomedical support route were seeing lots of progress and we were not. We went to a neurologist who specialized in treatment of autism, and he said " if your son cannot focus, he cannot learn. You have to find a way to get him to calm down and sit still and pay attention or he is missing out on valuable speech therapy and education. " He was right and finding the right medication was the best route. Our son became verbal, stopped stimming all the time and could sit still and learn. Once that happened, I felt much guilt that I did not look into medication sooner as it could have possibly helped him three years prior. The best advice I give parents is that if something is not working, medication or any other therapy, then stop trying to make it work. Trust your instinct. There is no ONE treatment or therapy as evidenced by the vast and diverse postings here. The " right " choice is when you are seeing positive results. Someone said it well recently, sometimes it is two steps backward for every step forward, but eventually you find what works. We all need to support each other and band together, no matter what our choices are for treatment. Sometimes it feels we are in a political debate, because we are all so passionate about treating our kids and we all think our choice is the right one. We need to learn to help one another without criticism and support each other. Amen. __________________________________________________________ Get easy, one-click access to your favorites. Make Yahoo! your homepage. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 , Amen is right, sister! None of us should be " guilted " into not considering medication for our kids. Nobody WANTS to medicate their child, but sometimes it's the only option left. It can help tremendously in some cases, and if it helps their quality of life, then it's worth researching. I like the insulin metaphor that someone else posted. Which medications did you find to be most helpful? Regards, Aliza http://stores.ebay.com/Darwins-Linc Re: Medication Thanks for your post! We have been on both sides as well. Did the biomedical route for three years, and I was one of the parents who protested drugs. But after GFCF, Feingold and multiple other supplements and biomedical interventions, we just were not seeing much progress. It was so frustrating and heartbreaking because parents in my biomedical support route were seeing lots of progress and we were not. We went to a neurologist who specialized in treatment of autism, and he said " if your son cannot focus, he cannot learn. You have to find a way to get him to calm down and sit still and pay attention or he is missing out on valuable speech therapy and education. " He was right and finding the right medication was the best route. Our son became verbal, stopped stimming all the time and could sit still and learn. Once that happened, I felt much guilt that I did not look into medication sooner as it could have possibly helped him three years prior. The best advice I give parents is that if something is not working, medication or any other therapy, then stop trying to make it work. Trust your instinct. There is no ONE treatment or therapy as evidenced by the vast and diverse postings here. The " right " choice is when you are seeing positive results. Someone said it well recently, sometimes it is two steps backward for every step forward, but eventually you find what works. We all need to support each other and band together, no matter what our choices are for treatment. Sometimes it feels we are in a political debate, because we are all so passionate about treating our kids and we all think our choice is the right one. We need to learn to help one another without criticism and support each other. Amen. ____________ _________ _________ _________ _________ _________ _ Get easy, one-click access to your favorites. Make Yahoo! your homepage. http://www.yahoo. com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 Aliza- I think you hit the nail on the head. No one wants to be " guilted " into anything-- but often times parents who want to pursue other options besides medication find themselves subjected to enormous guilt and pressure from the " establishment " . I really think that a lot of the perceived judgment from those perceived as being " anit-medication " is delayed frustration against those practitioners who were trying to guilt them into something that they weren't sure about. They are venting. Unfortunately the vent often ends up sounding judgmental to those who are using whatever is being vented about. Even though I have enormous respect for the amazing healing nature of the body, I personally never question an individual parent's decision to use medication because I don't know their child. The one area about medication that bothers me--from the stories that I hear from friends who do medicate-- is that it is very difficult to find a medical practitioner (1) who really has a good understanding of medications in kids with autism (2) is available and can respond to problems and questions come up about the medication and (3) who medicate responsibly. But I guess that's the same with most things. Hard to find a good teacher, mechanic, job, etc. S. Re: Re: Medication , Amen is right, sister! None of us should be " guilted " into not considering medication for our kids. Nobody WANTS to medicate their child, but sometimes it's the only option left. It can help tremendously in some cases, and if it helps their quality of life, then it's worth researching. I like the insulin metaphor that someone else posted. Which medications did you find to be most helpful? Regards, Aliza http://stores.ebay.com/Darwins-Linc Re: Medication Thanks for your post! We have been on both sides as well. Did the biomedical route for three years, and I was one of the parents who protested drugs. But after GFCF, Feingold and multiple other supplements and biomedical interventions, we just were not seeing much progress. It was so frustrating and heartbreaking because parents in my biomedical support route were seeing lots of progress and we were not. We went to a neurologist who specialized in treatment of autism, and he said " if your son cannot focus, he cannot learn. You have to find a way to get him to calm down and sit still and pay attention or he is missing out on valuable speech therapy and education. " He was right and finding the right medication was the best route. Our son became verbal, stopped stimming all the time and could sit still and learn. Once that happened, I felt much guilt that I did not look into medication sooner as it could have possibly helped him three years prior. The best advice I give parents is that if something is not working, medication or any other therapy, then stop trying to make it work. Trust your instinct. There is no ONE treatment or therapy as evidenced by the vast and diverse postings here. The " right " choice is when you are seeing positive results. Someone said it well recently, sometimes it is two steps backward for every step forward, but eventually you find what works. We all need to support each other and band together, no matter what our choices are for treatment. Sometimes it feels we are in a political debate, because we are all so passionate about treating our kids and we all think our choice is the right one. We need to learn to help one another without criticism and support each other. Amen. ____________ _________ _________ _________ _________ _________ _ Get easy, one-click access to your favorites. Make Yahoo! your homepage. http://www.yahoo. com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 seven yr old was seen 2 years ago by one doctor that started her on Rispodal and then never should up to his f/u appt, then we had two other doctors that gave her ADHD meds and made her go to sleep then at the Neuro appt I cornered him while she was having an OCD moment and told him he had to do something before I lose it with her. He put her on Ridolin and when we went to a new doctor Pysc to help with her issues he gave her the offical DX and said that ADHD meds where going to harm her and started her on Tenex wich has helped with a lot of her behaivors but she still OCD going on and tantrums so we will see what he chooses to do on monday with her. But I do not feel guilty medicating her if it will help in school and other parts of her life. --- Chatmom wrote: > Aliza- > I think you hit the nail on the head. No one wants > to be " guilted " into > anything-- > but often times parents who want to pursue other > options besides medication > find themselves subjected to enormous guilt and > pressure from the > " establishment " . I really think that a lot of the > perceived judgment from > those > perceived as being " anit-medication " is delayed > frustration against those > practitioners who were trying to guilt them into > something that they weren't > sure about. They are venting. Unfortunately the > vent often ends up > sounding > judgmental to those who are using whatever is being > vented about. > > Even though I have enormous respect for the amazing > healing nature of the > body, I personally never question an individual > parent's decision to use > medication because I don't know their child. > > The one area about medication that bothers me--from > the stories that I > hear from friends who do medicate-- is that it is > very difficult to > find a medical practitioner (1) who really has a > good understanding of > medications in kids with autism (2) is available and > can respond to > problems and questions come up about the medication > and (3) > who medicate responsibly. But I guess that's the > same with > most things. Hard to find a good teacher, mechanic, > job, etc. > > S. > Re: Re: > Medication > > > , > > Amen is right, sister! > > None of us should be " guilted " into not > considering medication for our > kids. Nobody WANTS to medicate their child, but > sometimes it's the only > option left. It can help tremendously in some cases, > and if it helps their > quality of life, then it's worth researching. I like > the insulin metaphor > that someone else posted. > > Which medications did you find to be most helpful? > > Regards, > Aliza > > http://stores.ebay.com/Darwins-Linc > > Re: Medication > > Thanks for your post! We have been on both sides > as > well. Did the biomedical route for three years, > and I > was one of the parents who protested drugs. But > after > GFCF, Feingold and multiple other supplements and > biomedical interventions, we just were not seeing > much > progress. It was so frustrating and heartbreaking > because parents in my biomedical support route > were > seeing lots of progress and we were not. > We went to a neurologist who specialized in > treatment > of autism, and he said " if your son cannot focus, > he > cannot learn. You have to find a way to get him to > calm down and sit still and pay attention or he is > missing out on valuable speech therapy and > education. " > He was right and finding the right medication was > the > best route. Our son became verbal, stopped > stimming > all the time and could sit still and learn. Once > that > happened, I felt much guilt that I did not look > into > medication sooner as it could have possibly helped > him > three years prior. The best advice I give parents > is > that if something is not working, medication or > any > other therapy, then stop trying to make it work. > Trust your instinct. There is no ONE treatment or > therapy as evidenced by the vast and diverse > postings > here. The " right " choice is when you are seeing > positive results. Someone said it well recently, > sometimes it is two steps backward for every step > forward, but eventually you find what works. We > all > need to support each other and band together, no > matter what our choices are for treatment. > Sometimes > it feels we are in a political debate, because we > are > all so passionate about treating our kids and we > all > think our choice is the right one. We need to > learn to > help one another without criticism and support > each > other. Amen. > > ____________ _________ _________ _________ > _________ _________ _ > Get easy, one-click access to your favorites. > Make Yahoo! your homepage. > http://www.yahoo. com/r/hs > > [Non-text portions of this message have been > removed] > > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 I have had many emails since my post on what medication we use with our son, and he has been on a low dose of Abilify for 3 yrs. We have always been with neurologists who understand autism and the one we use now is the pediatric neurology group at Specially for Children in Austin. Dr. Kerr is very good with our son. I did much research on all the meds prior to this decision, and Abilify seemed to have the least amount of side effects. What we have seen is increased appetite however so our son likes to snack every hour. He used to be lanky and is now stocky, but we watch his diet closely. The most drastic improvement on Abilify we noticed was that he started watching our faces and our mouths and eyes when we speak to him. He used to avoid eye contact. Also, he is not bothered by clothing tags, getting his hair or nails cut or other things that he used to be very sensitive to. He now looks at us, and requests what he wants. He was nonverbal, and can now when prompted & sometimes spontaneously speak in sentences. He also used to push other children, and now he is gentle and rarely does this unless he is trying to get them to play. Lastly, his constant flapping, twirling and other stimming has been greatly reduced. He still likes to stim with dirt, sand, kitchen spices, leaves, water, etc. but is not destructive and will pay attention when we tell him to stop. I am not touting Abilify as the only treatment that has helped our son, but it certainly allowed him to absorb the many hours of teaching and therapy he was receiving to enable him to improve and progress. He also takes Zyrtec for bad allergies, and this has also helped him to sleep and be calm in addition to helping him not sneeze and wheeze with seasonal allergies. We also follow an organic diet, and have him on other nutritional supplements. Hope this helps/L. ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 Hi Joan and All, Did a little research and found some information. Below is a related page on the American College of Rheumatology web site. How it works Mycophenolate targets an enzyme in the body called inosine monophosphate dehydrogenase that is important for the formation of deoxyribonucleic acid (DNA) in cells. By interfering with DNA, the medication impairs function of immune system cells that become overactive in autoimmune diseases such as lupus. http://www.rheumatology.org/public/factsheets/mycophenolate.asp Take care and be well Tom from PA > > Hi everyone > > > > As I have not been responding as well to steroids and mtx. My rheaumy has > introduced Mycophenolate or Cepcept (another name). I was wondering if > anyone else has taken this drug as it appears to be making my depression so > much worse and it has only been since I started on it. I would be grateful > if you could give me your opinion if you have taken it and if you suffered > any side effects. > > > > Thanks for your help > > > > Best wishes > > > > Joan U.K. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 Tom: How on earth do you find these great websites? I've used google, I've tried WebMD, I've even gone onto the PDA online. You always find these great sites. Glad to hear your back on Remacade. How are you doing (I know it's only a day but have no idea how fast it works)? Take care and be well Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 What can I say. " I have magic fingers " . How fast?.....I guess we probably would always answer..... " not fast enough " Will let you know. Tom from PA > > Tom: > > How on earth do you find these great websites? I've used google, I've > tried WebMD, I've even gone onto the PDA online. You always find > these great sites. > > Glad to hear your back on Remacade. How are you doing (I know it's > only a day but have no idea how fast it works)? > > Take care and be well > > Ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 debi yes many doctors out there who are of clueless of how to manipulate medication levels for those with autism. Even though I to be of an adult I cannot be to take adult levels of anythings. sondra Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.