Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Hi Judy, An ERCP is when the put a tube down your throat to check out things. They can take x-rays, do small surgeries all kinds of stuff. I don't deal well with them and always land in the hospital for a week. I go into a pancreatic attack and it is nasty. Most people go home and are fine afterwards. I have had about nine of them so I really don't want to do it anymore. Deb has had quite a few of them too. You are sedated but I still hate it. Hope you are well. Lynn (MeMom) J-J-W@... wrote: > Hi Lynn, > > Can you tell me what ERCP's are? > > Judy - in FL > > > Hi Deb, > > Thank you for all the information. The pain is there but is > > minimal until I > > try to eat. Than it really hurts. Now I know why she doesn't want > > to run test. > > I do so badly with ERCP'S, every time I get into trouble. Well I > > don't see any > > easy answers but I will see how it goes the next couple of days. > > The endoscopy > > did not show anything when I had it done in March. But the surgeon > > had told my > > primary that it would show the scar tissue because it is much lower. > > A place the > > endoscopy can't go. I feel like everything is such a mess. On top > > of all this I > > still have the eating problems maybe being made worse by this scar > > tissue. Plus > > I have the hearing next week. My attorney is away so I can't speak > > to him for > > any reassurance. Yesterday I found out that ss is not going to give > > me the > > doctor visits for the last two years. I was told to get all that > > together and > > they would give me the money back. It was bad information they only > > pay for > > hospital bills. The two grand would have been a help. I am going > > to call the > > ortho doctor. It will upset wc that they are going to get another > > bill, but I > > really don't care. I don't think there is much he can do but I > > would value his > > impute. He is aware of what wc is trying to do, however, he doesn't > > want to be > > involved in it. > > Hope you are able to rest. You are in my prayers always. > > Lynn (MeMom) > > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/web/. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Carol, They are painful and very uncomfortable. Now when I lay on my right side, or bend towards the right, I can feel these darn things, almost feels like a mass or something. I am going to see what this ortho says tomorrow and how confident he is about the success of this surgery and if I don't get the answers that I need, I am going straight to the ER to have the associate admit me, rehydrate me, get me comfortable with the pain and get this GI surgery scheduled. Enough is enough! When are you going to get your final answer on the Remicade? I am in so much pain from the RA in my hands and wrists that I have been reluctant to get on the computer, but it seems the more I move them, some of the pain does go away. The swelling is still very prominent. I have increased my prednisone and my pain pills with no real relief and today I had an Enbrel shot left over which I took just as a desperate measure. He is going to have to bump up the dosage or decrease the time in between infusions or both. But he won't be back now for 3 1/2 weeks. Thanks for the hugs, all are needed and accepted and feel good. Here is one for you (((((((((((((((Carol)))))))))))))). As always, I hope that it I didn't squeeze too hard. Love you, my friend, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Deb, I'm glad you're considering the ER for the adhesions. You really need that taken care of so you can get the nutrition your body needs. And so the pain goes away, of course!!! I will get my lab results today, and as long as they're OK, my last hurdle is the appt with the study's rheumatologist on Friday. As long as that goes well, my first infusion will be next Tuesday. Hooray! Thanks for the hug. You didn't squeeze too hard, but just right. ((((((((Deb)))))))) Another one back to you, my dear friend. Love and hugs, Carol Re: [ ] GI problems Hi Carol, They are painful and very uncomfortable. Now when I lay on my right side, or bend towards the right, I can feel these darn things, almost feels like a mass or something. I am going to see what this ortho says tomorrow and how confident he is about the success of this surgery and if I don't get the answers that I need, I am going straight to the ER to have the associate admit me, rehydrate me, get me comfortable with the pain and get this GI surgery scheduled. Enough is enough! When are you going to get your final answer on the Remicade? I am in so much pain from the RA in my hands and wrists that I have been reluctant to get on the computer, but it seems the more I move them, some of the pain does go away. The swelling is still very prominent. I have increased my prednisone and my pain pills with no real relief and today I had an Enbrel shot left over which I took just as a desperate measure. He is going to have to bump up the dosage or decrease the time in between infusions or both. But he won't be back now for 3 1/2 weeks. Thanks for the hugs, all are needed and accepted and feel good. Here is one for you (((((((((((((((Carol)))))))))))))). As always, I hope that it I didn't squeeze too hard. Love you, my friend, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Lynn, I am still praying extra hard for a positive outcome from your hearing this week. The anxiety that they are putting you thru is all part of this " game " . These judges and attorneys probably already know the outcome of this hearing. They say that you can eventually look back at these things and laugh. I am sure that this will be the case in your situation. How is life in the tummy lane? Have you made up your mind to call Dr to? I doubt that anyone else would even be willing to take on your case given the magnitude of the surgery you had last year. Once again, unless you really obstruct, most surgeons are reluctant to do anything about this problem because of the uncertain outcome. I have purchased some egg drop soup mix so that I can attempt to make my own soup. How hard can that be? This is a very difficult time for me. If I eat anything more than egg drop soup, the pain is unbearable and all that I can do is curl up in a fetal position until things empty out in my GI tract. Well, my ortho pooped out on me yesterday. Didn't have any new information to give me so he said why other coming in. I very little else on my mind (except my in-laws situation) than this knee surgery. I trust him, he did his residency at s Hopkins and is a trauma surgeon-orthopedics at our local Trauma Center, I am afraid that he may be losing some of his perspective. He did give Ron an rx for more pain pills. Maybe I should just suck it up and try to live with this knee like it is. If I start with a new physician, it is going to be another 6 months before any actual treatment is done and I don't think that I can go through it. My nephrologist has increased my Xanax to help me get thru these next 10 days. Hang in there, sweetie. There has to be answer somewhere out there for both of us! Gentle, tender, angel hugs, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Hi Deb, I am so sorry for all the problems you are having. Maybe, you should try another ortho. I know how hard that is to do but I really don't think you should stay the way you are. You have to find someone to help you. If you tell them how bad it is, possibly they will get you in quickly. I wish I had better answers for you. Well my stomach is not any better. I had hoped the bentyl was going to help. I am not sure if that is doing anything at all. I know at first when I spoke to the GI she said maybe we should call to but than changed her mind. Now she is on vacation. But I think I should call to and just run this all by him. Things really hurt and I don't want to stay like this. I am worried about school, I don't want to get started and have to quit the semester. I would rather pull out before it starts. It is not fair to my friend, who goes to school with me, to have to pull out in the middle of the semester. She has been in this with me from the beginning. I don't think I could have gone through all this without her support. This pain hurts so much and like you I have to wait for everything to go through. But I really am not eating much at all. I'm not really hungry I think I just have too much going on. I am so worried about Thursday. You are probably right the judge and lawyers all know what is going to happen. Guess my job is to worry. I talked to the ortho yesterday and he said there is nothing he can do for me. The injury is just too old. I know he doesn't want to do any reports for wc. So I guess now I have to find a physiatrist. WC will complain if I am not in some kind of treatment. I just faxed the MRI and aquatic bills that wc refuses to pay to my attorney. He is going to give them to the judge, she did tell them they had to pay. I keep wondering how often judges change their minds and change a decision. Anyway, I do hope things get better for you. Just wish I had some answers for you. I think we all need a candle day. You are in my prayers, Lynn (MeMom) Auntblabbie2000@... wrote: > Lynn, > > I am still praying extra hard for a positive outcome from your hearing this > week. The anxiety that they are putting you thru is all part of this " game " . > These judges and attorneys probably already know the outcome of this > hearing. They say that you can eventually look back at these things and > laugh. I am sure that this will be the case in your situation. > > How is life in the tummy lane? Have you made up your mind to call Dr to? > I doubt that anyone else would even be willing to take on your case given > the magnitude of the surgery you had last year. Once again, unless you > really obstruct, most surgeons are reluctant to do anything about this > problem because of the uncertain outcome. I have purchased some egg drop > soup mix so that I can attempt to make my own soup. How hard can that be? > This is a very difficult time for me. If I eat anything more than egg drop > soup, the pain is unbearable and all that I can do is curl up in a fetal > position until things empty out in my GI tract. > > Well, my ortho pooped out on me yesterday. Didn't have any new information > to give me so he said why other coming in. I very little else on my mind > (except my in-laws situation) than this knee surgery. I trust him, he did > his residency at s Hopkins and is a trauma surgeon-orthopedics at our > local Trauma Center, I am afraid that he may be losing some of his > perspective. He did give Ron an rx for more pain pills. Maybe I should just > suck it up and try to live with this knee like it is. If I start with a new > physician, it is going to be another 6 months before any actual treatment is > done and I don't think that I can go through it. My nephrologist has > increased my Xanax to help me get thru these next 10 days. > > Hang in there, sweetie. There has to be answer somewhere out there for both > of us! > > Gentle, tender, angel hugs, > > Deb > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 , I know it is silly to tell you not to worry, but I predict your judge will rule in your favor again when you go to court. WC judges are very sympathetic to injured workers. I wish I had more time to talk, but gotta run, time to go to the gym before I head off for work. What state are you in? Suzanne Re: [ ] GI problems > Hi Deb, > I am so sorry for all the problems you are having. Maybe, you should try > another ortho. I know how hard that is to do but I really don't think you should > stay the way you are. You have to find someone to help you. If you tell them > how bad it is, possibly they will get you in quickly. I wish I had better > answers for you. > Well my stomach is not any better. I had hoped the bentyl was going to > help. I am not sure if that is doing anything at all. I know at first when I > spoke to the GI she said maybe we should call to but than changed her mind. > Now she is on vacation. But I think I should call to and just run this all > by him. Things really hurt and I don't want to stay like this. I am worried > about school, I don't want to get started and have to quit the semester. I would > rather pull out before it starts. It is not fair to my friend, who goes to > school with me, to have to pull out in the middle of the semester. She has been > in this with me from the beginning. I don't think I could have gone through all > this without her support. This pain hurts so much and like you I have to wait > for everything to go through. But I really am not eating much at all. I'm not > really hungry I think I just have too much going on. I am so worried about > Thursday. You are probably right the judge and lawyers all know what is going to > happen. Guess my job is to worry. I talked to the ortho yesterday and he said > there is nothing he can do for me. The injury is just too old. I know he > doesn't want to do any reports for wc. So I guess now I have to find a > physiatrist. WC will complain if I am not in some kind of treatment. I just > faxed the MRI and aquatic bills that wc refuses to pay to my attorney. He is > going to give them to the judge, she did tell them they had to pay. I keep > wondering how often judges change their minds and change a decision. Anyway, I > do hope things get better for you. Just wish I had some answers for you. I > think we all need a candle day. > You are in my prayers, > Lynn (MeMom) > > Auntblabbie2000@... wrote: > > > Lynn, > > > > I am still praying extra hard for a positive outcome from your hearing this > > week. The anxiety that they are putting you thru is all part of this " game " . > > These judges and attorneys probably already know the outcome of this > > hearing. They say that you can eventually look back at these things and > > laugh. I am sure that this will be the case in your situation. > > > > How is life in the tummy lane? Have you made up your mind to call Dr to? > > I doubt that anyone else would even be willing to take on your case given > > the magnitude of the surgery you had last year. Once again, unless you > > really obstruct, most surgeons are reluctant to do anything about this > > problem because of the uncertain outcome. I have purchased some egg drop > > soup mix so that I can attempt to make my own soup. How hard can that be? > > This is a very difficult time for me. If I eat anything more than egg drop > > soup, the pain is unbearable and all that I can do is curl up in a fetal > > position until things empty out in my GI tract. > > > > Well, my ortho pooped out on me yesterday. Didn't have any new information > > to give me so he said why other coming in. I very little else on my mind > > (except my in-laws situation) than this knee surgery. I trust him, he did > > his residency at s Hopkins and is a trauma surgeon-orthopedics at our > > local Trauma Center, I am afraid that he may be losing some of his > > perspective. He did give Ron an rx for more pain pills. Maybe I should just > > suck it up and try to live with this knee like it is. If I start with a new > > physician, it is going to be another 6 months before any actual treatment is > > done and I don't think that I can go through it. My nephrologist has > > increased my Xanax to help me get thru these next 10 days. > > > > Hang in there, sweetie. There has to be answer somewhere out there for both > > of us! > > > > Gentle, tender, angel hugs, > > > > Deb > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Hi Suzanne, Thank you for your encouragement. I am so worried. I think it is so unfair that I am the one who got hurt, lost my job, lost all my benefits and have to put up with this stuff. All these lawyers are making big money at my expense. It just doesn't seem fair but there is nothing to be done about it. Even the wc doctor who wrote the report that there is nothing wrong has made a lot of money. All I get is more stress. Sometimes I think I should write a book about my experiences with wc, for other people who have to go through it. When I left work I didn't even know what wc was, I really believed I was going back to work in three weeks. That was seven years ago. I you are having a good day, Lynn (MeMom) Suzanne wrote: > , > > I know it is silly to tell you not to worry, but I predict your judge will > rule in your favor again when you go to court. WC judges are very > sympathetic to injured workers. I wish I had more time to talk, but gotta > run, time to go to the gym before I head off for work. > > What state are you in? > > Suzanne > > Re: [ ] GI problems > > > Hi Deb, > > I am so sorry for all the problems you are having. Maybe, you should > try > > another ortho. I know how hard that is to do but I really don't think you > should > > stay the way you are. You have to find someone to help you. If you tell > them > > how bad it is, possibly they will get you in quickly. I wish I had better > > answers for you. > > Well my stomach is not any better. I had hoped the bentyl was going > to > > help. I am not sure if that is doing anything at all. I know at first > when I > > spoke to the GI she said maybe we should call to but than changed her > mind. > > Now she is on vacation. But I think I should call to and just run > this all > > by him. Things really hurt and I don't want to stay like this. I am > worried > > about school, I don't want to get started and have to quit the semester. > I would > > rather pull out before it starts. It is not fair to my friend, who goes > to > > school with me, to have to pull out in the middle of the semester. She > has been > > in this with me from the beginning. I don't think I could have gone > through all > > this without her support. This pain hurts so much and like you I have to > wait > > for everything to go through. But I really am not eating much at all. > I'm not > > really hungry I think I just have too much going on. I am so worried > about > > Thursday. You are probably right the judge and lawyers all know what is > going to > > happen. Guess my job is to worry. I talked to the ortho yesterday and he > said > > there is nothing he can do for me. The injury is just too old. I know he > > doesn't want to do any reports for wc. So I guess now I have to find a > > physiatrist. WC will complain if I am not in some kind of treatment. I > just > > faxed the MRI and aquatic bills that wc refuses to pay to my attorney. He > is > > going to give them to the judge, she did tell them they had to pay. I > keep > > wondering how often judges change their minds and change a decision. > Anyway, I > > do hope things get better for you. Just wish I had some answers for you. > I > > think we all need a candle day. > > You are in my prayers, > > Lynn (MeMom) > > > > Auntblabbie2000@... wrote: > > > > > Lynn, > > > > > > I am still praying extra hard for a positive outcome from your hearing > this > > > week. The anxiety that they are putting you thru is all part of this > " game " . > > > These judges and attorneys probably already know the outcome of this > > > hearing. They say that you can eventually look back at these things and > > > laugh. I am sure that this will be the case in your situation. > > > > > > How is life in the tummy lane? Have you made up your mind to call Dr > to? > > > I doubt that anyone else would even be willing to take on your case > given > > > the magnitude of the surgery you had last year. Once again, unless you > > > really obstruct, most surgeons are reluctant to do anything about this > > > problem because of the uncertain outcome. I have purchased some egg > drop > > > soup mix so that I can attempt to make my own soup. How hard can that > be? > > > This is a very difficult time for me. If I eat anything more than egg > drop > > > soup, the pain is unbearable and all that I can do is curl up in a fetal > > > position until things empty out in my GI tract. > > > > > > Well, my ortho pooped out on me yesterday. Didn't have any new > information > > > to give me so he said why other coming in. I very little else on my > mind > > > (except my in-laws situation) than this knee surgery. I trust him, he > did > > > his residency at s Hopkins and is a trauma surgeon-orthopedics at > our > > > local Trauma Center, I am afraid that he may be losing some of his > > > perspective. He did give Ron an rx for more pain pills. Maybe I should > just > > > suck it up and try to live with this knee like it is. If I start with a > new > > > physician, it is going to be another 6 months before any actual > treatment is > > > done and I don't think that I can go through it. My nephrologist has > > > increased my Xanax to help me get thru these next 10 days. > > > > > > Hang in there, sweetie. There has to be answer somewhere out there for > both > > > of us! > > > > > > Gentle, tender, angel hugs, > > > > > > Deb > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Hi Lynn, I am so sorry that you seem to be feeling worse in stead of better. You need some answers either from your doctor or to. The sad part is that neither physician may have a quick fix answer for you before school starts. to may even want to wait until an obstruction develops, because if he cuts, the risk for new additional, worse adhesions. As I have said before, adhesions are really a tricky situation unless a surgeon can confirm that they are definitely causing an obstruction. What I am dealing with is the kind of stuff that drives me crazy and the surgeon crazy. I am hoping and praying that he will address this adhesion problem, but I have no guarantees. Whenever I go to see him and I love him dearly, I always go with a knot in my stomach until I hear the words that he will give it another try. I will be lighting my candle for you this morning. Keep your faith in God that he will see you thru this. Gentle, tender, angel hugs, Deb Quote Link to comment Share on other sites More sharing options...
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