Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 That is cool Tess, I have always thought that was a good day to be born, now I know it is. Yes we will have to celebrate and hope for a good day. Talk to you soon. Tell Em hello. in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hi , Remember, feeling sorry for ourselves is part of this disease and we all need a hand to help us off the pity potty. So just ask away. We never know when it is our turn. No two ways about it, this disease sucks at times but it has also brought us into the lives of some of the nicest, most caring people we would ever have the pleasure to meet. We may never meet face to face, but our hearts are intertwined forever. You will see that some members fade away and leave the group and you always wonder whatever happened to them. Our founding moderator, Pat is a wonderful inspirational woman who is so busy and has some major health problems that prevent her from posting, but all of us " old-timers " remember her and thanks to a, she keeps us informed. Most of us have said things on this board that we never feel comfortable in telling our spouses, significant others, even our doctors, yet the words flow freely here. Why? Because we all care.....truly care and most of us have been where you are or where you have been. This disease does not behave identical in all patients, but the paths we take to get it diagnosed, treated and try to live a " normal " life with are often similar if not identical. We all feel somewhat isolated from our family, friends and coworkers by this disease and none of us WANT to be a bother to our doctors, but the truth of the matter is that our doctors all took an oath to be bothered for the duration of their working careers. As far as family and friends are concerned, well they will never understand how our shoes feel on our feet and we never really want them to ever have to try them on. But together on this list, we all know the feelings of no validation of our symptoms, the endless tests, the negative blood tests, the lets try another change in your medication and see how that goes, etc. I am at a point now with most of my family and friends that when they ask how I am, I just answer OK. OK means to me that I am dealing with what I have on my plate and that is all I can hope for right now. They will usually proceed with the normal " But you look so good....you must be feeling better " . Once I am securely restrained from putting my hands around their throats, I just smile, say thank you and walk away! LOL. See, we have ALL been there! Summer is here with a vengeance. Hot in the 90's and then it rains and it feels like a sauna outside. YUK. Hope you have a good evening with as little pain as possible. Remember we are all just an e-mail away from you and are willing to lend a cyber ear in a heartbeat. Just know that you are no longer alone with this disease. Gentle, tender, angel hugs, Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 you letter in response was so beautiful. it touched on every emotion i have had since dealing with the disease. especially about people looking at you and seeing nothing when you know inside you are feeling the worst. i think that is my toughest obstacle especially with my husband. i so bad just want to yell..HEY...I'M SICK AND HURT EVERY DAY DONT YOU GET IT!!!!!!!!!!!!!!!!!!! but i also know that will solve nothing. thank you for those beautifully written words...love teresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 hi what a beautiful sentiment and expression of truths... so so true... hugs sam Re: [ ] in WA > Hi , > > Remember, feeling sorry for ourselves is part of this disease and we all need > a hand to help us off the pity potty. So just ask away. We never know when > it is our turn. No two ways about it, this disease sucks at times but it has > also brought us into the lives of some of the nicest, most caring people we > would ever have the pleasure to meet. We may never meet face to face, but > our hearts are intertwined forever. You will see that some members fade away > and leave the group and you always wonder whatever happened to them. Our > founding moderator, Pat is a wonderful inspirational woman who is so busy and > has some major health problems that prevent her from posting, but all of us > " old-timers " remember her and thanks to a, she keeps us informed. Most > of us have said things on this board that we never feel comfortable in > telling our spouses, significant others, even our doctors, yet the words flow > freely here. Why? Because we all care.....truly care and most of us have > been where you are or where you have been. This disease does not behave > identical in all patients, but the paths we take to get it diagnosed, treated > and try to live a " normal " life with are often similar if not identical. We > all feel somewhat isolated from our family, friends and coworkers by this > disease and none of us WANT to be a bother to our doctors, but the truth of > the matter is that our doctors all took an oath to be bothered for the > duration of their working careers. As far as family and friends are > concerned, well they will never understand how our shoes feel on our feet and > we never really want them to ever have to try them on. But together on this > list, we all know the feelings of no validation of our symptoms, the endless > tests, the negative blood tests, the lets try another change in your > medication and see how that goes, etc. I am at a point now with most of my > family and friends that when they ask how I am, I just answer OK. OK means > to me that I am dealing with what I have on my plate and that is all I can > hope for right now. They will usually proceed with the normal " But you look > so good....you must be feeling better " . Once I am securely restrained from > putting my hands around their throats, I just smile, say thank you and walk > away! LOL. See, we have ALL been there! > > Summer is here with a vengeance. Hot in the 90's and then it rains and it > feels like a sauna outside. YUK. > > Hope you have a good evening with as little pain as possible. Remember we > are all just an e-mail away from you and are willing to lend a cyber ear in a > heartbeat. Just know that you are no longer alone with this disease. > > Gentle, tender, angel hugs, > > Debs in FL > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 I miss you girl!!!!!!!!!!!! Good to hear your unpacking is going well. I know what you mean about making friends. So damn hard to start over! I wish you tons of luck girl! Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Sorry, . I must have missed an E-mail. Where in Washington did you move? Marla Denver Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Marla, I moved to Vancouver, WA, which is on the south side, just over the river from Portland, OR. I think it is beautiful here. I really like the not-so-hot weather. I just need to get out and meet people. I am getting a bit lonely and bored. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Marta, Marta, Marta..... They have been working you hard, haven't they? Elvis has left the building. I blew that popscicle stand. I got outta Dodge. I MOVED. I am now in Vancouver, Washington. I left at the end of July. The house that I was going to buy fell through a few days before the move (on the day escrow was supposed to close) so I had to replan my stuff so that some could go to storage and some to a 1 bedroom apartment. YUCK. Other than that, I am generally happy, if not a bit lonesome for friends. I like it up here. It is beautiful, the weather is nice, Tom is great, the dogs think it is doggie-disneyland, and I get a whole new fresh start. No more family members living with me, using me for a free/cheap babysitter, picking through my stuff for momentos, and all that stuff. You didn't happen to notice that I wasn't at the second pool party...hmmmmm? Poor dear. You need more sleep. love ya! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 I was born and raised in Portland, Oregon and spent from 1967 until 1996 in Washington State. I lived for 20 years half way between Portland and Seattle in a little town named Centralia. I have a " sister-in-law who teaches in Vancouver if you need a contact name. I also have numerous relatives if you need some extra. If you can adjust to the rain you will really like it. Marla Denver Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 > I miss you girl!!!!!!!!!!!! > > Good to hear your unpacking is going well. What is the " unpacking " that I hear people mentioning? Marta Don't look in my garage or I will have to kill you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Marla, Sure, pass along your sister's name, if she doesn't mind. Although a fair amount of teaching jobs were available, because of the cutbacks in Oregon, many teachers came over the border for jobs. At Evergreen School District the personnel director told me that they have had upwards of 400 applicants PER position. A real tough market. in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Pathtetic? I thought it was pretty good (sigh). I guess I will have to go back to the Robin school of goofiness for a refresher course. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 , I will call her tonight and pass on your e-mail address. I will e-mail her phone number when I get in touch with her. Have you tried the private schools? Marla Denver Quote Link to comment Share on other sites More sharing options...
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