Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 That was so lovely, and so important to remember. Thank you for sharing, Kathi. Hugs & Love... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 great story...thanks for sharing it, yesterday I had planned to take a small one day trip with friends, on the way back we planned to stop at Lake Michigan and bounce on tubes in the waves...it turned out to be a flare day for me...my friends call me " pollyanna " I tend to tough it out...and aadjust to do what I can do and accept that maybe tomorrow will be a better day. We got to the beach, there were 37 steps straight down! with the use of my cane and taking lots of breaks, I made it to the shore, but couldn't figure out how to get in the waves on my tube, so I spent the afternoon in a chair on the beach. It really hit me! I broke down and sobbed at the loss of playing in the water, got into a real self pity mode....more grieving than anything else...I asked my friends to ignore me and just let me have some quiet time on the beach. I have not had a melt down like this in quite awhile. Water has always been a special activity for me and I was so looking forward to getting in the lake! I have been doing so well the last 6 weeks, I really thought I could do it!After getting through the loss, I found out I can make really neat sand art with my feet while sitting in a chair...(well I thought they were really neat anyway) the losses in RA are many; but I have incredible friends...they gave me the space I needed and then we went to dinner and had a great evening.I am blessed with friends who let me be who I am, and take me as I am no matter how little I can participate in activities with them. but I felt soooo old, sitting in a chair feeding the sandpipers cheese curls, and looking at boats through my binoculars. This is where my life took me yesterday....perhaps today will be a better day...thanks for listening, marge [ ] RE: Nice story > There is a beautiful story of an overworked nurse who > escorted a tired, > young > man to her patient's bedside. Leaning over and > speaking loudly to the > elderly > patient, she said, " Your son is here. " With great > effort, his > unfocussed eyes > opened, then flickered shut again. The young man > squeezed the aged hand > in > his and sat beside the bed. Throughout the night he > sat there, holding > the > old man's hand and whispering words of comfort. By > morning's light, the > patient had died. In moments, hospital staff swarmed > into the room to > turn > off machines and remove needles. The nurse stepped > over to the young > man's > side and began to offer sympathy, but he interrupted > her. " Who was that > man? " > he asked. > > The startled nurse replied, " I thought he was your > father! " " No, he was > not > my father, " he answered. " I never saw him before in my > life. " " Then why > didn't you say something when I took you to him? " " I > realized he needed > his > son and his son wasn't here, " the man explained. " And > since he was too > sick > to recognize that I was not his son, I knew he needed > me. " > > > Mother used to remind us that nobody should > have to die alone. > Likewise, nobody should have to grieve alone or cry > alone either. Or > laugh > alone or celebrate alone. We are made to travel life's > journey hand in > hand. > There is someone ready to grasp your hand today. And > someone hoping > you will > take theirs. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Hi Marge, This summer has been hard for me too. I have always loved the water. Now I have such trouble being out in the sun that I have avoided the pool so far. The added weight from the prednisone hasn't helped either. I also have a problem with the ladders in the pools. Thoughtfully, my dad put a set of cathedral steps in his pool for me, but still, there's the problem with the sun. I have always been a sunbather also. I know that its not healthy, but I just love the tan. Now I cut the grass on a riding mower with a hat which has a cloth that covers my ears and neck, sunglasses, long sleeve shirt and slacks. To me, this is pitiful. It takes more time to prepare than to actually do the job. I am trying to find pleasure in other things though. I haven't found many yet. I enjoy being on the computer and have some houseplants and my son keeps me busy, but I haven't yet found the " thing " for me. I keep searching the arts and crafts stores though. It has to be out there. Somewhere. Keep looking for your new thing. Sometimes the search is actually the fun thing that you are looking for. Love and Hugs Stacey in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 hi marge. i'm sorry you were unable to utilize the beach. i understand how you feel. my family is out at lake carroll this weekend swimming, camping, they have an atv and a wave runner. i'm glad my son got the chance to go. he needs a break from me too. i know they will be questioning him about me. i hope you feel better soon. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Marge, RA has taken so much from all of us. It is a very cruel disease. You are blessed for having such good friends. I¹m sorry you couldn¹t swim, but glad you were able to be with your friends, watching them do the things that you should have been doing, and sharing dinner with them. Good company means a lot. I hope the next time you all get together, you feel well enough to participate in the fun. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Two days later, my friends picked me up and took me to a local lake that you walk straight in from the car. grass all the way to the beach and in the water! It didn't have the waves; but I got in the water...yes I am lucky to have such great friends! Of course uncl arthur kicked in, and I seem to be in a flare up again, fingers and feet are swollen, sleepless nights the last few nights...oh well, probably the water was cold, and I didn't nap through the days...it's my birthday Thursday. I was telling people I will be 55...whoops, I will be 56! a whole year I had the wrong year in mind...oh well, I do count my blessings...glad to be walking this year compared to last where I couldn't at all...still working too! still considering remicade...see my rheumy in Oct and let her know then...any further incite on remicade appreciated...thanks for your thoughts...hope you are having a ra free day...marge Re: [ ] RE: Nice story > Marge, > RA has taken so much from all of us. It is a very cruel disease. You are > blessed for having such good friends. I¹m sorry you couldn¹t swim, but glad > you were able to be with your friends, watching them do the things that you > should have been doing, and sharing dinner with them. Good company means a > lot. I hope the next time you all get together, you feel well enough to > participate in the fun. > a > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Happy Birthday Marge. Stacey in PA Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.