Kathi in OK

[Guest guest]

Kathi,

I am very sorry to hear that you are feeling so ill. You know that I am in favor

of seeing

Dr. Mayes ASAP! I hope your doctor has excellent powers of persuasion. Should I

pack my

bag?

Since your physician wants you to try Enbrel but none is to be had, where are we

with the

Remicade idea?

Geez, that's a lot of MRIs. Could the headaches be from the methotrexate? I'm

not sure I

like the idea of the MTX for you anyway. Did you ever have such headaches

before? Despite

the pain, your brain seems to be working far above average. Try not to worry.

Your sense

of humor is still marvelous. The " Guns vs. Doctors " joke is a keeper. Thanks for

the

laugh.

I really hope that the worsening of the contractures has not been too upsetting

and

painful for you.

By the way, I did read your spine question from many days ago and I have not

found a

satisfactory answer yet; however, I will keep searching. I will be very anxious

to hear

what Dr. Mayes' take on that point is.

Would you mind telling me all of your current meds and dosages? What about

failed meds? If

that's too big a task right now, don't worry about it.

You are often on my mind, Kathi. I think of you sitting in the sun with Quackers

when I am

out in my yard digging.

[ ] RE: Hi all

> Hi all:Welcome to the newbies

> Debs:glad to see back

> Carol: sorry you are having a bad time

> Kathy in IL: Maybe this doctor crying is a turn around for you

> Sorry I have been so bad about posting..not so good here...hands have

> fully contracted and about all I can do is send a joke....had terrible

> headaches and thought maybe the MTX....sent me for my 7th MRI this

> year and have brand new white matter spots in the brain...so now

> doctors are arguing.....scleroderma vs. lupus...which is it...I still

> feel relieved everytime they do it that they find a brain.... ...

> my rheumy is contacting Dr. Mayes to see if she would be willing to

> see me sooner...I think he is sick of band-aiding the

> symptoms...although he and my PCP keep reminding me ....(there is no

> cure and most treatments dont work)...still waiting to see something

> from the MTX..in the meantime they have added more chemicals to the

> regime...neurontin at 1000 mg..amd klonopin to go with the ambien to

> make me sleep....after reading the posts lately it must be something

> in the air...when i started protesting about being on so many meds I

> got that disgusted look....at this rate I may open a

> pharmacy....anyway hope you all get to feeling a little

> better.....Kathi in OK......gotta add this little ditty guess it shows

> how disgusted I am....

>

> GUNS VS DOCTORS

>

> - Number of gun owners in the USA: 80,000,000

>

> - Number of accidental gun deaths per year (all age groups):

> 1,500

>

> - Accidental deaths per gun owner: 0.0000188

>

>

> - Number of physicians in the USA: 700,000

>

> - Accidental deaths caused by physicians per year: 120,000

>

> - Accidental deaths per physician: 0.171

>

>

> Statistically, doctors are approximately 9,000 times more

> dangerous than gun owners.

>

> Fact: Not everyone has a gun, but sooner or later everyone

> has a doctor.

>

> Remind your friends: Guns don't kill people, doctors do.