Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Hey all how are you? Im ok. I have a wheel chair now for a while because the Dr thinks my hips might be in trouble from the pred. I have to get all weight off them. Im still using walker a few times a day for leg stiffness. Im starting to get new things, as usual is seems every month there is a new symptom with me. The 2 new ones have been headaches and stomach pain. The head aches seem better since stopping the Enbrel. I start cellcept tonight and Plaquenell next monday (so if one gives me a reaction I will know wich one) first cell for a week then plaq. I also get to see Disability Dr on Thursday 3 one a doctor and one a phyciatrist. Im nervus but leaving it in Gods hands. My mom has to take me its a bit of a drive. Im down on my pred and doing bad as usual. Im a bit down today having pain and really tired. I will no for sure soon I hope what all wrong with me if its Lupus or Stills the Dr said I may have Stills with overlapping Lupus and FM, what do you think of that one? Have you head of such a thing? I dont think thats possiable? If so, Im a lucky duck right? Well I will know more on the 28th. Hope you are all well. PS Thanks for all your loving emails friends, sorry if I didnt get back to each one of you Im overwhelmed and tired this week,But you love is felt. Ann Fultz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 do not worry about the SSI docs . they ask ya some things and that's about it then they write there reports for ssi and well in my case they were stronger for me then my own docs who were behind me 100%. and many more i have read about had the same thing and from reading your post your a lot worse off then I was so go for it and be honest and your right about who's hands it is in as that is were it has been all along and you as I know he would not give us more then we can handle it is just we do not know how strong we are but he dose so ya know I will say a prayer for ya hugs Marty the rednecks Marty & G. the redneck's my space http://www.myspace.com/martyg58 Stills ; An illness I know to well! To learn about Stills http://www.stillsdisease.org/stills_info If you find yourself in a hole, the first thing to do is stop diggin'. In the old days a man who saved money was a miser; nowadays he's a wonder. ~Author Unknown " Taking my gun away because I might shoot someone is like cutting my tongue out because I might yell `Fire!' in a crowded theater. " -- Venetoklis a government and its agents are under no general duty to provide public services, such as police protection, to any particular individual citizen... -- Warren v. District of Columbia, 444 A.2d 1 (D.C. App.181) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 You really have your hands and head full don't you . I sure hope they can find an answer for you soon, so they can treat you correctly. Good luck at the SSI doctors. I don't thing you'll have any problem at all. Good luck on your new meds too! in TX Update on Hey all how are you? Im ok. I have a wheel chair now for a while because the Dr thinks my hips might be in trouble from the pred. I have to get all weight off them. Im still using walker a few times a day for leg stiffness. Im starting to get new things, as usual is seems every month there is a new symptom with me. The 2 new ones have been headaches and stomach pain. The head aches seem better since stopping the Enbrel. I start cellcept tonight and Plaquenell next monday (so if one gives me a reaction I will know wich one) first cell for a week then plaq. I also get to see Disability Dr on Thursday 3 one a doctor and one a phyciatrist. Im nervus but leaving it in Gods hands. My mom has to take me its a bit of a drive. Im down on my pred and doing bad as usual. Im a bit down today having pain and really tired. I will no for sure soon I hope what all wrong with me if its Lupus or Stills the Dr said I may have Stills with overlapping Lupus and FM, what do you think of that one? Have you head of such a thing? I dont think thats possiable? If so, Im a lucky duck right? Well I will know more on the 28th. Hope you are all well. PS Thanks for all your loving emails friends, sorry if I didnt get back to each one of you Im overwhelmed and tired this week,But you love is felt. Ann Fultz Quote Link to comment Share on other sites More sharing options...
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