Guest guest Posted January 1, 2008 Report Share Posted January 1, 2008 Hang in there Kirk, You will be better soon. You need to keep up your faith for your family. Try to be strong I know its hard, Ive been there too. Try to get over this hurdle, you will have better days ahead of you. Remember your a tough S.O.B. dont let it win. I just prayed for you. Jack ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Kirk, You are in our prayers. There really isn't anything more I can say, is there? We're pulling for you! Mark and Jody Update type thing New year, same shit....I feel like I'm dying. If you don't hear from me for a while it most likely means I'm in the resort. I'm barely hanging on by not going, but my headache is kicking it up another step. Every joint is swollen to hell and hurts like it.. I'll see how it goes tonight, but it ain't looking too good. I truly hate my life! Kirk -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 My dearest Kirk: I'm so sorry you doing so badly. I wish there was something I could do for you, my brothers and sisters shouldn't hurt. If I could take your pain away and take it on myself I would. Please take care and be well. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 I am so sorry you feel horrible like this.... my headaches are starting up but not so bad that I have to go to the resort (especially since I am on leave of absence for awhile from there-last place I want to go to now) and my back is hurting that I cant do much for the last 2 days! But I  hope it eases up...I am going down to 15mg of prednisone today from 20mg. Our great Chicago weather is coming true to form..we have 3* right now  wind chill  is  -14*.. We have snow here for you since the kids just left for home from the holidays, there goes my snow shovelers...it was so nice...as soon as they woke up my son-in-law and daughter went out and shoveled my walk an both the neighbors on each side of the house..3-6 more inches expected today.... Hope you feel better soon Diane   42 New year, same shit....I feel like I'm dying. If you don't hear from me for a while it most likely means I'm in the resort. I'm barely hanging on by not going, but my headache is kicking it up another step. Every joint is swollen to hell and hurts like it. I'll see how it goes tonight, but it ain't looking too good. I truly hate my life! Kirk -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 I've been on the phone with my PCP and he had me jack up the pred, double the Oxy and see what happens. I tried to eat but it all came right back out. I am so F****** miserable right now I'm praying to die again. If I didn't hate the F****** resort so much I'd go already, but my PCP asked me to try this for today. I haven't had this kind of joint pain with a headache since I first got F***ed!! I'll keep in touch as I can. I keep trying to sleep but get maybe 15-30 minutes at a clip before the pain jars me awake. That's the real wierd part...my joints hurt 10x worse when I don't move...yet it hurts so bad to move I'm screwed no matter how you figure. Latre. > > New year, same shit....I feel like I'm dying. If you don't hear from me > for a while it most likely means I'm in the resort. I'm barely hanging on by > not going, but my headache is kicking it up another step. Every joint is > swollen to hell and hurts like it. I'll see how it goes tonight, but it > ain't looking too good. I truly hate my life! > Kirk > > -- > Everything in life sucks except things that should! > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Kirk - hang in there - my prayers and thoughts are with you. If you have to go to the Resort - go - it may be the best thing for you - get the meds you need to feel better, etc. (Just do what I do and take your own pillow ).. Feel better. -- Re: Update type thing I've been on the phone with my PCP and he had me jack up the pred, double the Oxy and see what happens. I tried to eat but it all came right back out. I am so F****** miserable right now I'm praying to die again. If I didn't hate the F****** resort so much I'd go already, but my PCP asked me to try this for today. I haven't had this kind of joint pain with a headache since I first got F***ed!! I'll keep in touch as I can. I keep trying to sleep but get maybe 15-30 minutes at a clip before the pain jars me awake. That's the real wierd part...my joints hurt 10x worse when I don't move...yet it hurts so bad to move I'm screwed no matter how you figure. Latre. > > New year, same shit....I feel like I'm dying. If you don't hear from me > for a while it most likely means I'm in the resort. I'm barely hanging on by > not going, but my headache is kicking it up another step. Every joint is > swollen to hell and hurts like it. I'll see how it goes tonight, but it > ain't looking too good. I truly hate my life! > Kirk > > -- > Everything in life sucks except things that should! > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 For your back - try using a really good heating pad that is a moist heating pad. I have bone spurs in my back that drive me nuts sometimes (most of the time) and I use the moist heat (sometimes ice) but most of the time the moist heat helps the most. Happy new year to all.... O8 is suppose to stand for new begging's - I hope that that is true for everyone with Stills and that everyone here has less flares, less pain, less battles, etc in 2008... Hugs to all, -- Re: Update type thing I am so sorry you feel horrible like this.... my headaches are starting up but not so bad that I have to go to the resort (especially since I am on leave of absence for awhile from there-last place I want to go to now) and my back is hurting that I cant do much for the last 2 days! But I hope it eases up...I am going down to 15mg of prednisone today from 20mg. Our great Chicago weather is coming true to form..we have 3* right now wind chill is -14*.. We have snow here for you since the kids just left for home from the holidays, there goes my snow shovelers...it was so nice...as soon as they woke up my son-in-law and daughter went out and shoveled my walk an both the neighbors on each side of the house..3-6 more inches expected today.... Hope you feel better soon Diane 42 New year, same shit....I feel like I'm dying. If you don't hear from me for a while it most likely means I'm in the resort. I'm barely hanging on by not going, but my headache is kicking it up another step. Every joint is swollen to hell and hurts like it. I'll see how it goes tonight, but it ain't looking too good. I truly hate my life! Kirk -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 I dont have a moist heating pad  just a regular one...will try taking a hot shower soon...I just hope it is not something else  like a chest cold  because it -pain- is coming around the sides and front a little now too Diane   42 Re: Update type thing I am so sorry you feel horrible like this.... my headaches are starting up but not so bad that I have to go to the resort (especially since I am on leave of absence for awhile from there-last place I want to go to now) and my back is hurting that I cant do much for the last 2 days! But I hope it eases up...I am going down to 15mg of prednisone today from 20mg. Our great Chicago weather is coming true to form..we have 3* right now wind chill is -14*.. We have snow here for you since the kids just left for home from the holidays, there goes my snow shovelers...it was so nice...as soon as they woke up my son-in-law and daughter went out and shoveled my walk an both the neighbors on each side of the house..3-6 more inches expected today.... Hope you feel better soon Diane 42 New year, same shit....I feel like I'm dying. If you don't hear from me for a while it most likely means I'm in the resort. I'm barely hanging on by not going, but my headache is kicking it up another step. Every joint is swollen to hell and hurts like it. I'll see how it goes tonight, but it ain't looking too good. I truly hate my life! Kirk -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 OK - hang in there - I hope it's not a chest cold too... allison -- Re: Update type thing I am so sorry you feel horrible like this.... my headaches are starting up but not so bad that I have to go to the resort (especially since I am on leave of absence for awhile from there-last place I want to go to now) and my back is hurting that I cant do much for the last 2 days! But I hope it eases up...I am going down to 15mg of prednisone today from 20mg. Our great Chicago weather is coming true to form..we have 3* right now wind chill is -14*.. We have snow here for you since the kids just left for home from the holidays, there goes my snow shovelers...it was so nice...as soon as they woke up my son-in-law and daughter went out and shoveled my walk an both the neighbors on each side of the house..3-6 more inches expected today.... Hope you feel better soon Diane 42 New year, same shit....I feel like I'm dying. If you don't hear from me for a while it most likely means I'm in the resort. I'm barely hanging on by not going, but my headache is kicking it up another step. Every joint is swollen to hell and hurts like it. I'll see how it goes tonight, but it ain't looking too good. I truly hate my life! Kirk -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Dear Kirk and others: I don't understand a lot of spiritual things sometimes, but I do have a great deal of faith that keeps me going. The Bible says that we are made in God's image, so we shouldn't hate ourselves or what our bodies are doing. We don't have to like it or take it without a fight. (Just a thought; I will pray for you Kirk.) If you don't have a moist heating pad, you can put a damp towel in the microwave for a couple minutes. Another thought is to keep a couple near where you are resting in a crock-pot damp. When finished using one, put in in the crock-pot to warm while using the other. Blessings to all, IL I dont have a moist heating pad > New year, same shit....I feel like I'm dying. If you don't hear from me for a while it most likely means I'm in the resort. I'm barely hanging on by not going, but my headache is kicking it up another step. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 , You don't have do understand a lot of spiritual things to have great deal of faith and I agree... None of us should hate our bodies - but we should fight it... Sometimes I'll take the warm towel and put in a zip-lock bag to keep it from getting me too wet. Just another idea. The crock-pot idea is a great idea too. I don't know why God has some people go through this and some people even sicker (when I'm really down I remind myself of the kids that are sick with cancer, etc. And then I stop asking myself -- why me--- because it's not God ... Just like God gives us all free will -- we just have to fight back). I also remind myself that (thank God) time on earth is relatively short in the grand scheme of things. It doesn't seem like it on many days - the last few weeks - even the last few years - it hasn't seemed short - the pain has been overbearing at times - but somehow I have gotten through it. I don't even know how looking back. But I do know that is right - I can't hate my body or God.. I can hate the illness itself. I think that is OK. I think it's OK to fight the battle and to find out what can make it better for others behind us to not have to go through this. Oh, well, sorry for rambling.. I guess I needed to get this out of my system - I don't say it out loud sometimes - I don't want to upset my husband/family. Take care all.... allison -- Re: Update type thing Dear Kirk and others: I don't understand a lot of spiritual things sometimes, but I do have a great deal of faith that keeps me going. The Bible says that we are made in God's image, so we shouldn't hate ourselves or what our bodies are doing. We don't have to like it or take it without a fight. (Just a thought; I will pray for you Kirk.) If you don't have a moist heating pad, you can put a damp towel in the microwave for a couple minutes. Another thought is to keep a couple near where you are resting in a crock-pot damp. When finished using one, put in in the crock-pot to warm while using the other. Blessings to all, IL I dont have a moist heating pad > New year, same shit....I feel like I'm dying. If you don't hear from me for a while it most likely means I'm in the resort. I'm barely hanging on by not going, but my headache is kicking it up another step. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 What would I do with a moist heating pad??? I really don't know, as I never investigated. Heat feel good on my back but there is something that prevents that at night (a few here know what that is) and my recliner has heat & massage. I tried heat on my headaches and that amplified it like 1000 times immediately, so I stick to the ice, which contrary to dr's, helps out a bit with them. It help so well that once it melts or fall off of my head I'm awake (in agiony) within 10 minutes. Thansk, Kirk PS....MY PCP & RD have me jacked up to high hell on meds to see if I can prevent a resort stay. If it is this bad tomorrow I'm probably going to wind upo there. The bad thing is that my PCP is going to want to see me and I'm in no condition to drivge. My wife is gone all morning (Dr's hours) as she drives a schoo; bus & works in the cafeteria. BONZAI!!!! I hope...if I do hit someone it is a smug prick!!! I'm in that kind oif mood. BTW, I can hardly see (blurred/double vision so forgive me from any speling mistakes. I can't even see the spellcheck button on my email program. Kirk > > Dear Kirk and others: > > I don't understand a lot of spiritual things sometimes, but I do have > a great deal of faith that keeps me going. The Bible says that we > are made in God's image, so we shouldn't hate ourselves or what our > bodies are doing. We don't have to like it or take it without a > fight. (Just a thought; I will pray for you Kirk.) > > If you don't have a moist heating pad, you can put a damp towel in the > microwave for a couple minutes. Another thought is to keep a couple > near where you are resting in a crock-pot damp. When finished using > one, put in in the crock-pot to warm while using the other. > > Blessings to all, > > > IL > > > I dont have a moist heating pad > > > New year, same shit....I feel like I'm dying. If you don't hear from > me for a while it most likely means I'm in the resort. I'm barely > hanging on by not going, but my headache is kicking it up another step. > > > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Kirk, Have you ever tried nitrous for the migraines? I can't remember if you said you had - I'm sure you have. I just thought of it because a girl on another group said that that's what she uses. Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Nitrous???? Not that I remember. Hell...I used to run Nitrous Oxide on one of my cars though....LOL But don't recall ever hearing of it as a treatmnent. Kirk. > > Kirk, > > Have you ever tried nitrous for the migraines? I can't remember if you > said you had - I'm sure you have. I just thought of it because a girl > on another group said that that's what she uses. > > > Houston > > > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Dear Kirk I don't really know what I can say when I am sure that I would not be able to cope with the pain that you are always going through it must be horrendous. All I can say is try and imagine all the stills family taking just a little of your pain - try and imagine it being spread out amongst us with a vivid imagination it may help a little to get a tiny break from the overpowering pain until you get some of your strength back to kill the dragon and not the other way round. As we often say if willing someone to be without pain worked we would all be having a great time Hang in there Kirk Best wishes Joan U.K. _____ From: Stillsdisease [mailto:Stillsdisease ] On Behalf Of Kirk Bonanny Sent: 02 January 2008 16:13 To: Stillsdisease Subject: Re: Update type thing I've been on the phone with my PCP and he had me jack up the pred, double the Oxy and see what happens. I tried to eat but it all came right back out. I am so F****** miserable right now I'm praying to die again. If I didn't hate the F****** resort so much I'd go already, but my PCP asked me to try this for today. I haven't had this kind of joint pain with a headache since I first got F***ed!! I'll keep in touch as I can. I keep trying to sleep but get maybe 15-30 minutes at a clip before the pain jars me awake. That's the real wierd part...my joints hurt 10x worse when I don't move...yet it hurts so bad to move I'm screwed no matter how you figure. Latre. On 01/01/2008, Kirk Bonanny <kbonannygmail (DOT) <mailto:kbonanny%40gmail.com> com> wrote: > > New year, same shit....I feel like I'm dying. If you don't hear from me > for a while it most likely means I'm in the resort. I'm barely hanging on by > not going, but my headache is kicking it up another step. Every joint is > swollen to hell and hurts like it. I'll see how it goes tonight, but it > ain't looking too good. I truly hate my life! > Kirk > > -- > Everything in life sucks except things that should! > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Had a headache and backache so bad today I took 2 tylenol #3's...havent done that in awhile. The headache eased up but the back still (I hate that word) stillaches... D42 OK - hang in there - I hope it's not a chest cold too... allison -- Re: Update type thing I am so sorry you feel horrible like this.... my headaches are starting up but not so bad that I have to go to the resort (especially since I am on leave of absence for awhile from there-last place I want to go to now) and my back is hurting that I cant do much for the last 2 days! But I hope it eases up...I am going down to 15mg of prednisone today from 20mg. Our great Chicago weather is coming true to form..we have 3* right now wind chill is -14*.. We have snow here for you since the kids just left for home from the holidays, there goes my snow shovelers...it was so nice...as soon as they woke up my son-in-law and daughter went out and shoveled my walk an both the neighbors on each side of the house..3-6 more inches expected today.... Hope you feel better soon Diane 42 New year, same shit....I feel like I'm dying. If you don't hear from me for a while it most likely means I'm in the resort. I'm barely hanging on by not going, but my headache is kicking it up another step. Every joint is swollen to hell and hurts like it. I'll see how it goes tonight, but it ain't looking too good. I truly hate my life! Kirk -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
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