RE: Re: tte

[Guest guest]

Thanks,

tte! I appreciate the support on this one and am so relieved to

hear that Meredith Anne seems to be doing well! Please give me or the

group an update if you can.

Glad to hear from you.

Sincerely,

HRH

Re: Re: docs names on group

To: infantile_scoliosis

Date: Friday, July 18, 2008, 1:40 PM

>

How in the world can this simple rule be turned into ISOP/CAST not

> having the patients/families best interest at hand????

> **Yes, I am rendered speechless by this insulting comment...

How IS it in our best interest to police what can be said by threat of

removal from the group? Alienating the parents who are going through

it doesn't benefit anyone. If parents cannot trust that they are

getting the most objective information, going into this treatment, is

that serving the interest of the public? It's not a simple rule.

It's freedom of speech. It's in the Constitution.

> And, yet, it appears that it has parlayed into a doctor-pandering place

> of policing and censorship.. .

> ***doctor pandering, policing & censorship. This group has been

around

> for approx. 5 years and never once have I censored a post. CAST is now

> up to almost 23,000 uncensored posts.

But, you are not putting posts through until you have manually approved them.

Censorship is defined as the suppression or deletion of material. So,

I can reply and say Dr. Sturm did not put in rotation windows in my

cast and you'll leave it? No. Not based on the new rule.

> ISOP should have its own group, separate from the CAST support group

> if that is the problem at hand.

> **Yeah, lets make things really complicated. As it stands, ISOP &

CAST

> are as separate as they can be, at this point.

Seriously? That's complicated? It takes five minutes to set up a

yahoo group, tops.

> If surgeons are so threatened by the voice of the patients, that's

> absurd.

> ***I never said threatened, I said concerned. Big difference.

Fine, then concerned. If surgeons are concerned with what is being

said on the group, maybe they need to figure out WHY people have been

saying negative things (ie. doing the procedure incorrectly or

" putting their own spin on it " - your own words).

> ***Yes, you can google CAST, but our posts are only available to

> members, not the general public.

What I mean is - people can talk about surgeons anywhere online. Why

should CAST - the parent support group for CASTING protect THEM when

it's for US?

> **Good doctors do reflect everday on how they can improve quality of

> care for their patients.

>

Great - then they can reflect on why they're so " concerned " about

what

it being said and no other child will not receive the crucial

treatment they need.

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