Re: RA + FM?( Lynn ( MeMom )

[Guest guest]

Hi Lynn

I'm sorry Lynn for not making my post clearly...I had pasted Iris's question in

her post at the top... and answered it under the ~~~~~~lines. I now can see that

was mis-leading. Sorry :-)

I did receive SSD within a 6 month waiting period and so did my twin sister.We

both worked at the same job where our hands were used repeatedly doing the same

thing eight hours a day. I'm confident that this repetition day after day and

stress on our fingers, hands and wrists brought on our RA and then progressed to

the other joints.

I know some people do have to wait longer and it shouldn't be that way...I'm

sorry it took you that long....Pain and suffering is a hard thing to prove to

the SSD authorities.

Once again...Sorry that was mis-leading...Glad you finally got yours. :-)

Gail

Re: [ ] RA + FM?

>

> Dear Tess and Sam and everyone,

> I want to thank you for your help and well wishes. I

> am new to sharing with others what is going on in my

> life and I feel as though I am just beginning on this

> learning journey. I have already learned quite a bit

> from reading your e-mails.

>

> Recently, I lost my job and am having had a hard time

> with the past several due to the physical limitations

> and the brain fog. I used to be a person who could do

> whatever I set my sights on but now I feel as though I

> am only that person when these terrible diseases allow

> me to be. I am trying to cope by taking a more active

> part in recovering from this flareup. I have had a

> heater installed on my pool so I can swim 3-4 times a

> week. I am thinking that I need to reinvent my career

> by becoming an art teacher instead of sitting at the

> computer as a graphic designer all day. Several

> people have told me that it is a very long process to

> go through being declared disabled and not an easy

> one. Do you guys have any thoughts or advice? Right

> now I am working temporary jobs to support my family

> because I need to have some type of income. It is

> hard to go into all of these different situations and

> not have the stress aggravate a flare-up. Also taking

> pain meds doesn't help the brainfog. I hear all of

> you speaking of remicade and biologics; what are they?

> If anyone knows of a good dr in Dallas, please let me

> know. It is so hard to work and feel as though you

> can't tell anyone about your diseases because they

> think you are a whiny hypochondriac. If you let them

> know that you need special care such as good chairs,

> the ability to wear comfortable shoes and clothes, and

> time off to go to the DR they begin the process of

> getting rid of you. This has happened to me several

> times. I know that they are thinking of the bottom

> line but that doesn't make it fair for me or help with

> self-esteem because you can't provide the way you

> always have.

> I know that all of our lives have been changed in ways

> that only someone else in the same situation

> understands. Thank you all so very much for

> listening. Iris

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