Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Oh --you always give me a heads up He is gonna have a venogram --trying again--in the AM. I WANT to talk w the doctor. I am gonna look at those sites you sent. I did read somewhere that swelling in something like this can cause DVT from RA....it slows down the circulation creating a rubber band effect. Doc thinks this may be, but not sure. He is on NO meds for his RA/OA. He hasnt had his Enbrel since the middle of June cuz he got sick and they take him off so he can fight the sinus infection. He isnt on Celebrex right now either cuz they say its a blood thinner effect too. He takes Levaquin for a sinus infection, Allegra for his allergies and Univas for his high blood pressure. No 'joint' meds now and he is hurting! He swears by his Enbrel. He is still on the Metho but hasnt had that in about 2 weeks. Its so frustrating when 2 doc say one thing and 2 go against it. I hope to have answers tomorrow. He knows we are on this list, yet been quiet for awhile (we camp alot on the weekends now) and I told him I was gonna post to you all. What a great support group! I will keep ya posted...thanks a MILLION!!!!! and Joe in PA [ ] Blood Clot or what ??? long > > > > Hi friends... > > I have a question for you all. My husband Joe is gonna be 33 in > August, he > > has Rheumatoid and Osteo Arthritis. Joe is in the hospital since > > Wednesday--today is Sunday. He went to the famiy DR on Mon last week > cuz he > > was sick. While there he told the DR he has pain in his knee and its > really > > swollen. The DR said its probably a bad flare. So he comes home, > goes to > > work the next AM and later that nite (now its Tuesday) I told him he > should > > go to the ER that he is showing signs of a blood clot. I took him and > the > > ER DR said 3 tests taken--2 showed negative for a clot yet the d-dimer > test > > was positive and she wanted a doppler in the AM. OK--so we get that > done. > > I call the family DR and they tell me its negative for clot but he > wanted a > > Accutek test done..this is a radioactive dye test and then you wait an > hour > > and they take pictures again.................anyway he gets admitted > cuz the > > radiologist says its a DVT (deep vein thrombosis). I forgot to tell > you his > > symptoms: swollen and red from the knee to the ankle, hot to the touch > and > > painful on the side of his calf muscle. They call a vascular surgeon > in to > > get his opinion and make sure they dont need a screen put in--he SAYS, > there > > is no clot he dont know why he is hooked up to all the blood thinners > > (Heperin and Coumadin by mouth). Meantime our reg DR goes on vacation > ad > > has his asst cover............shes at a loss. He told him if she > sends him > > home and its a clot and it travels it will go tot his lung and can be > > fatal. He was scheduled for a venogram on Friday, they claim all 5 > veins in > > the top of his foot that they tried callapsed. I am not sure they > know what > > they are doing personally since the nurse said its a test not common. > > ANYWAY---does he have a clot or not and if he dont have a clot what > could it > > be? These are the ? we all have. They are gonna redo the venogram in > the > > morning (Mon)...if this is a failure I want hi outa there and to a > different > > hospital. Has this happened to any of you? I am beginning to think > maybe > > its a complication from the RA and these guys just arent up on it and > what > > can happen in an RA patient. I know there are other things that come > along > > w this disease, and I am wondering if this isnt one of them and the DR > arent > > catching on. I did read where anyone w a suppressed immune system can > be at > > risk for a clot. Could his swollen knee have brought this on? It was > worse > > then he ever felt or seen, yet I know some flares are so painful. So > I > > guess I juts wanted to see if any of you had experienced this and know > where > > I might search the net for problems associated with this disease so I > can be > > informed and better inform the DR if I need to. I am gonna have the > DR > > speak w his rheumatologist tomorrow...my main family DR is in Canada > on > > vacation--this would be our luck! ANy hints for us? Any experience w > this? > > Thank you all so much in advance. Im in a hurry so I hope I told you > it > > all--lol Going to the hosp now. Will check email after 8 tonite. > Thank > > you all again! > > and Joe in Pennsylvania > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Hi ...the doctor told us if it was from the knee down they could send him home on meds, but like you said the knee up has a greater chance for disaster if it moves. The doc said it would go right to his lung causes a pulmonary embolism there....scary! I am gonna consult his rheumatologist and let him know. I have been trying to find some of the things that can happen along with RA/OA..like scleroderma (sp), sjogerns (sp). I just want to be informed. Thanks for your help..I will keep ya posted. He has a pad wrapped around his leg that has warm water flowing thru it and his leg is elevated all day long. They tell us this will help w circulation. Take care, and JOe in PA [ ] Re: Blood Clot or what ??? long > , I had something like that happen to me, my knee did not swell > though it was in the calf of my leg. It was swollen, just as hard as > it could be, and hot. I went to my regular doctor and they measured > it and said it was a blood clot, because it was in the lower part of > my leg it was not as serious as if it had been it the top of the > leg. They put me on an aspirin a day and told me to stay off of it > for at least two weeks, I babied it longer, it scared me. When I > went to my rhuemotologist he asked if they did any test, I told him > what they did and he rolled his eyes and didn't address it again. I > am on Methotrexate that can thin your blood (at the time 30mg.) and > anti-inflamatory, so he didn't think it was a blood clot, I guess. > My suggestion is keep on it till they know for sure, they can be > dangerous. Hope they find something soon and that he is feeling > better. > in WA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Hi Stacey,sorry to hear the news about Joe,I will,of course be praying that they get some answers quickly. Please keep us posted. Hugs June Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.