Re: Re: Steph & Noelle

[Guest guest]

Thank you for your honestly and openness. Our son is

turning 2 next week. I too feel most comfortable

having him treated by Dr. . We just sent our

most recent x-rays (where 's curve appears to have

increased) to Dr. . It will be a much further

trip for us and he (and the hospital) are out of

network so we have some things to consider.

Thank you again.

jill and alex

--- Kauffunger

wrote:

> You're not prying.... I'm happy to share. Dr.

> ovich has been trained in casting recently,

> while Dr. has done serial casts for more

> than 40 children in his practice (according to

> Jane).... So, he is very experienced and

> Noelle's curve is sizable. Rochester is a little

> closer to where I live. Also, I have sent Dr. S

> copies of Noelle's x-rays since the beginning and he

> is familiar with her case. I understand that Dr.

> ovich is a very seasoned and capable doctor and

> I'm sure he's fantastic. We are just very

> comfortable with Dr. S. I hope that helps! Steph

>

> jill wienke wrote:

> HI,

> Can I ask you why you are following Dr.

> instead of staying in Erie? I do not mean to pry,

> but

> we are trying to decide what to do so I thought I

> would ask. If you would rather not say, that is

> perfectly fine. Thanks

> Jill

> --- Kauffunger

> wrote:

>

> > Hi Heath!

> > Thanks for understanding! This is now Noelle's

> > 4th set of x-rays. When her 3rd set in Erie came

> > back with so much spontaneous improvement, I cried

> > for the sheer miracle of it! When we went for her

> > last set of x-rays, I wasn't prepared to hear that

> > she worsened because she looked straighter to me

> and

> > to her pediatrician. What happened was that

> > initially her right thoracic curve was so much

> > greater than her lumabar curve that she looked so

> > crooked, but now her thoracic is 45 degrees and

> her

> > lumbar is 32 degrees.... her lumbar curve is

> > balancing out the upper portion of her body and

> > giving a false illusion that she is straighter. We

> > are meeting with Dr. s in a month to cast.... We

> > are just playing around with two sets of dates

> > depending on my husband's work schedule.

> >

> > And I definately missed your previous posts about

> > having a Mehta trained Et doc in every state, but

> I

> > just caught the latest two and it would be so

> > helpful!!!!! I live in NJ and I could not find a

> > properly trained doc in my state. NYC is minutes

> > from me and the only doc that I could find who

> does

> > do casting is not trained in the Mehta technique

> and

> > does not have the proper table for casting. We

> have

> > traveled 8 hours by car to Erie and now will

> travel

> > about 6 1/2 hours to rochester in a couple of

> weeks

> > to cast Noelle. Aside from the expense of travel

> > costs, I don't think my husband will have enough

> > vacation time to cover the repeated trips out of

> > state. He has FMLA, but it's non-paid if he takes

> > it for another person other than himself and we

> > can't afford that. I will probably have to take my

> > Mom with me on some of our trips in the future. I

> > would love a doc in NJ!!!!!!

> >

> > I'm working on the anger, too......... Much

> > love!!!!!

> >

> > hrhandco wrote:

> > Steph,

> > This exact situation has happened so many times. I

> > dont mean to

> > minimize Noelle's situation, but this happens to

> > infants throughout

> > the world on daily basis. Thanks goodness, you

> have

> > done your

> > research on Dr. Mehtas Early Treatment Method and

> > you will make sure

> > that your darling girl has the best care,

> possible.

> > I am sorry that

> > you and your precious girl must go through this.

> Its

> > not easy, but

> > very well worth it. Have you decided where she

> will

> > have her POP

> > jackets applied? Sorry, if I missed that post.

> Just

> > let us know what

> > we can do to help.

> > About being pissed off......Dont let it get the

> best

> > of you. I say

> > this out of personal experience. While I know

> being

> > " pissed off " has

> > helped my daughter get proper care, helped ISOP

> > grow, etc.......I

> > knew that channeling the anger into being

> > proactive/productive would

> > be the only way to save my daughter. I just wanted

> > to share that

> > because I have been angry about my daughters

> > situation for 9.5 yrs,

> > and just only recently figured out that the anger

> is

> > affecting my

> > health and will kill me, if I dont figure out a

> > better way to deal

> > with it. Anger is toxic to me. I cant be angry

> > anymore.

> > Noelle will get Early Treatment for her scoliosis

> > because of you, and

> > the fear you have now, will be a distant memory.

> > Sorry, about rambling. No one is awake here at my

> > brothers house in

> > SLC, and I feel like talking.

> > Let us know what happens.

> > HRH

> >

> >

> > >

> > > Hi everyone.... We just got some bad news for

> > Noelle.... Her scoli

> > has worsened and it looks like we're going to have

> > to go through with

> > casting.... My heart is just breaking! It's been a

> > while since I've

> > signed on... It's been super crazy here....

> Everyone

> > has been sick

> > or in the hospital for something or other.... But,

> > just to refresh,

> > Noelle went to Erie Shriners last Nov. and her

> scoli

> > had reduced, so

> > Dr. advised us to wait 3 months and

> re-take

> > the x-rays again

> > to see how she did before casting her.... I feel

> > teased and I'm

> > pissed off!!!! Steph

> > >

> > > ---------------------------------

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> > >

> >

> >

> >

> >

> >

> >

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