Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 Hi : This is exciting! Be sure and send us all the information about this that you can think of. I for one will be very interested in your progress. Thanks for telling us about it. Love, Bunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 Hi ! There must be several ongoing Enbrel studies going on, each with different methodology. Keep us all informed on how this goes for you. We'll be pulling for you! Love, Bunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Georgina, Ashton goes back to the rheumatologist the 11th of April.... she goes to Duke University they are doing an Enbrel study right now on kids with JRA ..I will let you know what I find out on this end.. We are also curious as Enbrel has been offered to Ashton ,,on a study basis Btu we are a little leary given the fact that fatal infections have been reported & these days Ashton has seemed to have her share of illness. Glad to hear all is going well with Josh right now & his meds.. Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Kris, My son Robbie takes Enbrel. I was also very concerned about the infection problem. His rheumatologist has been very careful in not allowing him to be injected at any sign of infection, fever, etc. When Robbie started with a new primary care doctor (a specialist for kids with multiple doctors) he thought we were being too careful. I challenged both doctors to come with guidelines to inject or not to inject. They really did their homework. They read all information available to them and checked with ped. rheumatologists in Seattle and Salt Lake City. The end result was we were being to careful. The original studies were conducted on adults that had multiple health problems, they were not even sure the infection problems were Enbrel related. There has not been any significant problems with Enbrel and infections in children. They think adults are far more likely to have this problem. We are still not going to inject if Robbie has an infection or a fever to be safe, but we will inject if he has a nonproductive cough for example. I can't wait for more studies on children to be available, with a drug this new there are always risks. Jana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Though Skyler has been prone to many illnesses we have never had a problem over injection site infection or increased illnesses like flu or pneumonia. ~ [ & Skyler] Re: enbrel Study Kris, My son Robbie takes Enbrel. I was also very concerned about the infection problem. His rheumatologist has been very careful in not allowing him to be injected at any sign of infection, fever, etc. When Robbie started with a new primary care doctor (a specialist for kids with multiple doctors) he thought we were being too careful. I challenged both doctors to come with guidelines to inject or not to inject. They really did their homework. They read all information available to them and checked with ped. rheumatologists in Seattle and Salt Lake City. The end result was we were being to careful. The original studies were conducted on adults that had multiple health problems, they were not even sure the infection problems were Enbrel related. There has not been any significant problems with Enbrel and infections in children. They think adults are far more likely to have this problem. We are still not going to inject if Robbie has an infection or a fever to be safe, but we will inject if he has a nonproductive cough for example. I can't wait for more studies on children to be available, with a drug this new there are always risks. Jana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 hi kris, i go to unc and yours goes to duke!!hmm, small world, brandy _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Thanks for the input Jana..gives me more to think about it's always scary to switch or add meds! I am leaning towards the Enbrel ... as my daughter has Poly JRA & I am hoping to get her into at least a medicated remission! kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Kris, Alana is doing wonderfully with embrel. We seem to need to combine both enbrel and mtx for the best response. When trying to eliminate the mtx, which we almost did, she started to flair slightly, we increased the mtx and she was fine. her dosage is the enbrel 2 injections a week and we've gotten down to about .3cc a week of mtx. Bonnie Regional Director, PHD Products http://phdproducts.com mailto:bonnie@... 800-863-3403 Re: enbrel Study > Georgina, > Ashton goes back to the rheumatologist the 11th of April.... she goes to > Duke University they are doing an Enbrel study right now on kids with JRA ...I > will let you know what I find out on this end.. We are also curious as Enbrel > has been offered to Ashton ,,on a study basis Btu we are a little leary given > the fact that fatal infections have been reported & these days Ashton has > seemed to have her share of illness. Glad to hear all is going well with Josh > right now & his meds.. Kris > > > To manage your subscription settings, please visit: > > > For links to websites about JRA: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 thanks again Tess. I cant wait to answer the questions for the 75 dollars. God Bless You!!!! Let me know of any more.Thanks P Orlando Fl --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi ...did you reach them and get an interview time? I hope so...I'd be so glad for you! $75. for a few minutes is a real blessing. Much Love.... Tess Quote Link to comment Share on other sites More sharing options...
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