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This is a brilliant idea for a project, Joan! Thank you for sending

this. I hope it is a huge success. Where did you hear about it?

How are you feeling?

[ ] PROJECT SYNOPSIS

>

> PROJECT SYNOPSIS

>

> Contact Us

>

> mailto:priorityseating@...

>

> Priority Seating is a series of educational and inspiring documentary

> programming devoted to raising awareness about autoimmune disease as a

> women's health crisis. While programming about specific autoimmune

diseases

> does exist, autoimmunity in general has not yet been extensively

examined in

> the media. Without this focus certain trends have not been publicly

> identified -- specifically the prevalence of autoimmunity in women.

This is

> the first project to address these larger implications.

>

> The series will follow a travel format, with each episode taking place

in a

> different city in America. This journalistic approach will chronicle

the

> process of coming to recognize the significance of autoimmune disease

as a

> global women's issue. The first episode is being shot in New York

City.

>

> Autoimmune diseases are conditions whereby the immune system attacks

the

> host. This phenomenon is the underlying factor in 80 identified

illnesses

> and is now the fifth leading cause of death among women. Some examples

of

> autoimmune diseases are: Lupus, Grave's Disease, Crohn's Disease and

> Multiple Sclerosis. According to recent studies, 80% of autoimmune

patients

> are female. The majority of these women become ill when they are young

> (teens through thirties) and it is assumed that they are in the best

of

> health.

>

> Since women suffering from an autoimmune disease often don't look

sick, it

> is very difficult to elicit public concern. In addition, national

> institutions are not yet meeting the needs of autoimmune patients.

Under the

> current managed and specialized health care system it takes 5-6 years

on

> average for a woman to be properly diagnosed. This problem is

perpetuated by

> stereotypes about women that often lead doctors to prematurely

conclude that

> the symptoms are psychosomatic. Some women do not live long enough to

get

> the proper diagnosis.

>

> Even when a pattern of autoimmunity has been identified, treatment

options

> are limited and symptoms tend to be chronic and debilitating. Many

women

> find themselves unable to work. However, elusiveness has left many

female

> sufferers without government assistance or adequate health insurance.

>

> As the personal stories unfold, Priority Seating will uncover the

social and

> political trends that are responsible for denying female sufferers of

> autoimmune disease the right to adequate visibility and care. The

narrative

> will examine medical standards, insurance and disability policies, as

well

> as broader issues pertaining to social invisibility. In so doing, the

needs

> of women with autoimmune disease will become clear and a collective

voice

> will be formed. As a woman with an autoimmune disease myself, my role

as the

> producer of the project will be to guide the narrative through my own

path

> of discovery and to demonstrate that despite immense obstacles, women

with

> autoimmune disease exhibit incredible strength and courage.

>

> Distribution plans include cable and public television networks and

film

> festivals. Selected episodes will also be submitted to national public

> health schools, foundations and hospitals.

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Guest guest

Hi, ,

I got this from a Lupus List Serve. Thought it might be

interesting for all of us. Hope that the project will be able to be

completed. Here is a website outlining some of the progress that has been

made, etc. The website does not have too much information, but you will be

able to see a bit more about this project:

http://home.earthlink.net/~priorityseating/information_e.html

I am going through a rough period right now. Thanks so much for

asking.

Joan

Re: [ ] PROJECT SYNOPSIS

This is a brilliant idea for a project, Joan! Thank you for sending

this. I hope it is a huge success. Where did you hear about it?

How are you feeling?

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--Joan..This site is really interesting...it will be worth watching

what happens....thank you for the link...Kathi in OK

- In @y..., " Joan " <cdx7159@c...> wrote:

> Hi, ,

>

> I got this from a Lupus List Serve. Thought it might be

> interesting for all of us. Hope that the project will be able to be

> completed. Here is a website outlining some of the progress that has

been

> made, etc. The website does not have too much information, but you

will be

> able to see a bit more about this project:

>

>

> http://home.earthlink.net/~priorityseating/information_e.html

>

> I am going through a rough period right now. Thanks so

much for

> asking.

>

> Joan

> Re: [ ] PROJECT SYNOPSIS

>

>

> This is a brilliant idea for a project, Joan! Thank you for

sending

> this. I hope it is a huge success. Where did you hear about it?

>

> How are you feeling?

>

>

>

>

>

>

>

>

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Guest guest

Very interesting Joan. It¹s great that someone is helping to get the word

out.

Maybe a lot of misconceptions about autoimmune diseases will be cleared up

through programs like this.

Thanks for sending it.

Hope you are having a good day.

Hugs,

a

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