/Kineret

July 4, 2002

Happy 4th to you, ! Sounds like you are feeling pretty darn

good effects from your study drug. That's great news. We're having some

unexpected and much needed rain right now, so I'm back inside for a bit.

Should make for sauna-like conditions out there.

The annual cost of Kineret (anakinra) is estimated to be approximately

$11,000.

Do you have health insurance? If you don't or your insurance won't pay,

please contact Amgen (the manufacturer) to ask about their assistance

program. This page lists information about insurance claims and getting

assistance from Amgen:

I would go ahead and contact them now and get the ball rolling.

Continued good luck to you! I'm so glad that you found a better

rheumatologist.

[ ] Update

> Hello all!

> I hope everyone is having a good 4th. I haven't posted as I am/was

> going through a wicked flare. I had changed Dr's, and my new Rheumy

> seems to be taking my constant misery a lot more seriously than my

> old Dr. That brings me to why I am posting...

> He got me into a Kineret study, ( they are looking into taking

> Kineret 3x a week instead of daily injections ) I just took my 2nd

> dose of the blind study drug. It could have been a placebo or 400 mg

> of Kineret. There is no doubt in my mind I am taking Kineret! The

> difference is just incredible. I can walk without feeling like the

> tendons in my knees are too short, the stiffness is completely gone!

> That was yesterday, today the swelling in my wrists is almost

> completely gone, and I can take my rings off for the first time in 6

> mos. This stuff is just incredible. I feel like a whole new

> person. This gives a whole new meaning to independence day. :0)

> The question is, how much is this stuff gonna cost when the 6 month

> study is over and I have to pay for this out of my own, very shallow,

> pocket??? Any body out there know? Thanks again

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