Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Dear Val: I don't want to rain on your parade, but early treatment isn't enough. I had treatment almost immediately upon presenting with lyme meningitis symptoms and an EM, and have been on antibiotics of one sort or another ever since. Early AGGRESSIVE treatment may be the key to success... Lovette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Hi Val, I agree with Lovette, I was on Biaxin when I got bit, got bad herxes, but maybe should have been treated more agressively, my family doctor didn't know a thing about ly me until I educated him, But he listened and we changed meds, but no IV's until we found what worked. he is skittish of Iv's since the doctor here was sanctioned. Hugs, Connie, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 My beloved Aunt June, who is now 78, was diagnosed with RA when she was 39 or 40. For the last 30 years, her hands and feet have been badly deformed. For the early years she was treated with gold shots, but not much else. I began being diagnosed and treated for a myriad of autoimmune-connective tissue disorders from age 29, finally to (also) be diagnosed with RA in 1998 at age 47. As soon as the RA was diagnosed, my rheummy treated my RA aggresively, and after a reasonable time, if something didn't work, we moved on to the next thing. Consequently I have very little RA damage showing up on xrays, and when in remission my hands look " normal. " I am a STRONG advocate of early and aggresive treatment. This is a very hard thing for some people to understand. Some of my family says my RA must be much milder than my aunt's (She NEVER says that!) because my hands do not look or function like hers. I have no idea whose RA is more severe....but I believe the newer treatments and my doctor's aggressive stance have been a HUGE blessing in my life. You all deserve the best medical care. I pray it quickly becomes available to all. Lovingly.... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Glad to see you're paying attention! [ggg] Yes; as I understand it I could have a pituitary gland problem and get the same results WRT TSH levels. Since that was the case I had everything possible checked out about my pituitary, including a MRI. Everything showed totally normal there. I was especially concerned because I also have a second problem which can be caused by a pituitary gland problem: Phantosmia. That's when you smell phantom smells [items that are not there]. None of the tests can with certainty rule our a pituitary problem; but none was found. Pituitary problems can range from probably not too serious to fatal. > . > > > Re: Early treatment > <hypothyroidism/message/35500;_ylc=X3oDMTJxNjFpdTY\ yBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzU1MDAEc2V\ jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwMDkxMTk5NQ--> > > > > Posted by: " Silver " susanjsilver@... > <mailto:susanjsilver@...?Subject=%20Re%3A%20Early%20treatment> > susanjsilver <susanjsilver> > > > Sun Jan 20, 2008 9:07 pm (PST) > > , > > This is coming from the other guilty party with no > symptoms (and who has yet to decide on a treatment > plan). This questions might be off, but is it > possible that your TSH level is high because of > pituitary problems instead of thyroid problems? > > > > --- <res075oh@... <mailto:res075oh%40verizon.net>> wrote: > > > Then I guess either I'm one lucky so-and-so, or > > maybe allopathic > > medicine did a good job in catching the condition > > very early. I > > certainly had absolutely no idea that I might have > > hypothyroidism. One > > of my worries is the possibility that eventually my > > hypothyroidism might > > progress to the state of the unfortunate ones here > > who have so much > > difficulty in getting relief. > > > > > > > > > > > > Early treatment > > > > > > <hypothyroidism/message/35455;_ylc=X3oDMTJxdDUzZDB\ 0BF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzU0NTUEc2V\ jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwMDg3NzUyOA-- > <hypothyroidism/message/35455;_ylc=X3oDMTJxdDUzZDB\ 0BF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzU0NTUEc2V\ jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwMDg3NzUyOA-->> > > > > > > > > > > > > Posted by: " Chuck B " gumboyaya@... <mailto:gumboyaya%40cox.net> > > > > > > <mailto:gumboyaya@... <mailto:gumboyaya%40cox.net>?Subject=%20Re% > 3AEarly%20treatment> > > > > > gumbo482001 > > <gumbo482001 > <gumbo482001>> > > > > > > > > > Sun Jan 20, 2008 3:17 pm (PST) > > > > > > , > > > > > > Your treatment history suggests that you caught > > the hypoT condition very > > > early. According to my doctor, that is very > > significant timing. It means > > > you might never need to experience the symptoms. > > The people that suffer > > > are the ones who are undertreated or untreated for > > much longer. > > > > > > Chuck > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 It sounds like you're saying your doctor is hypOthyroid and on a T4 drug. Sam > > > > Then I guess either I'm one lucky so-and-so, or maybe allopathic > > medicine did a good job in catching the condition very early. I > > certainly had absolutely no idea that I might have hypothyroidism. One > > of my worries is the possibility that eventually my hypothyroidism might > > progress to the state of the unfortunate ones here who have so much > > difficulty in getting relief. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Tobacco smoke is one of the things that used to be utterly grotesquely painful to me at times, when I would be having a flare up. Which was a lot of the time. The slightest whiff could set me off. However, that has vastly diminished over the past several years. I still find the smell offensive; the same as I would body odor from and unwashed person or other negative smell, but it does not trigger attacks. And often I can be around it and not notice it at all. I play bass every Wednesday night at an Amvet post where smoking is allowed and frequently do not notice the smoke unless someone is smoking very near me. But later I will notice my clothes smell of smoke. Yet sometimes it will still bother me; but not to the point of an attack. Some perfumes still bother me. The bug spray that I spray the house with triggers coughing, which is probably the same response that in previous years would have escalated to an asthma attack. I still have an inhaler, but the expiration date on it has long expired. I use a Flovent inhaler twice per day as an asthma preventative, and several months back I asked my doctor to decrease the medication level. So far so good. I take one Allegra pill per day for the hay fever; and eye drops. Luck, > > > Re: Early treatment > <hypothyroidism/message/35655;_ylc=X3oDMTJxc3JlOTF\ sBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzU2NTUEc2V\ jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwMDk4NDE5Mw--> > > > > Posted by: " Roni Molin " matchermaam@... > <mailto:matchermaam@...?Subject=%20Re%3A%20Early%20treatment> > matchermaam <matchermaam> > > > Mon Jan 21, 2008 8:13 pm (PST) > > I also have allergies and sensitivities that are pretty much > environmental. Tobacco smoke, > vehicle exhaust, some perfumes, some cleaning products, certain wool > materials that I > suspect have other things in them, the sun, and I can't remember what > else. Some of > these show up, but some don't, and I don't seem to have regular > allergy reactions. However, > the last allergist I went to was an AH, and I won't be seeing him again. > > I am currently only using an albuterol emergency inhaler when needed, > but the frequency > of that use has strongly diminished, and I've got my fingers crossed > that I continue this > way without another bout of asthma and/or coughing. > > Roni > > <res075oh@... <mailto:res075oh%40verizon.net>> wrote: > I've essentially had allergies all my life; and have had numerous tests > for same. My asthma has subsided to the point that I haven't had an > attack in 6 or 7 years. My hay fever has subsided to the point that > mostly I only have sever itching in the inner corners of my eyes. I > used to sometimes sneeze probably 50 or a hundred times in succession. > That basically has gone away; perhaps as a result of the allergy > medicine I take each day. However, for the past few months if my eyes > itch severely and I rub then then that may sometimes stimulate a > sneezing episode. > > It's difficult to tell exactly what I have sensitivities to because > sometimes I test totally negative for something that always produces an > allergic response. Milk, for example; and cats. And I can hardly sit > down in front of this pc without Smokie or Rotten Roscoe wanting to > check their email! [ggg] I don't seem to follow the usual pattern of > elevated response to the growth of plant type allergens in my area. > > Quote Link to comment Share on other sites More sharing options...
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