Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Hi , Thanks for your kind words. Naperville isn't as close as Gurnee but who would think that 3 of us would be this close? So, is it safe to assume you're a big Wildcat's fan? I am fortunate that there are many people I can talk to and am very happy to have joined this group of wonderful folks, like yourself. I am only on Enbrel, but believe this will probably change soon in light of recent developments. I am using an Albuterol inhaler right now to help my breathing but this is only supposed to provide short- term relief until I talk to my Rheumy. The " problem " with me is that my liver is extremely sensitive to drugs with a high toxicity. I have been on Methotrexate, Arava, Celebrex, Vioxx, Prednisone, and Naproxyn. Either they bring me no relief or send my liver enzymes skyrocketing. I still take a dosepack of Predinsone when I have a flare. Again, thank you for writing back. I appreciate it. All my best, Al in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 well i guess he is married from one of the comments gina made. sorry ma!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 LOL, Kathy! Re: [ ] Al - Blue Periods > well i guess he is married from one of the comments gina made. sorry ma!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 << I am using an Albuterol inhaler right now to help my breathing but this is only supposed to provide short- term relief until I talk to my Rheumy.>> Hi Al, I had the same thing last month with chest pain and a feeling like it was hard to take a breath. My MD gave me Albuterol, but it really only made me jittery. When I talked to my rheumy about it, he said it was RA related. I hope it passes soon. Hugs, Carol [ ] Re: Al - Blue Periods Hi , Thanks for your kind words. Naperville isn't as close as Gurnee but who would think that 3 of us would be this close? So, is it safe to assume you're a big Wildcat's fan? I am fortunate that there are many people I can talk to and am very happy to have joined this group of wonderful folks, like yourself. I am only on Enbrel, but believe this will probably change soon in light of recent developments. I am using an Albuterol inhaler right now to help my breathing but this is only supposed to provide short- term relief until I talk to my Rheumy. The " problem " with me is that my liver is extremely sensitive to drugs with a high toxicity. I have been on Methotrexate, Arava, Celebrex, Vioxx, Prednisone, and Naproxyn. Either they bring me no relief or send my liver enzymes skyrocketing. I still take a dosepack of Predinsone when I have a flare. Again, thank you for writing back. I appreciate it. All my best, Al in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 LOL! Al in IL > LOL, Kathy! > > > > > Re: [ ] Al - Blue Periods > > > > well i guess he is married from one of the comments gina made. sorry > ma!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Hi Carol, Yes, it makes me a wee bit jittery also. Did your rheumy prescribe anything or tell you anything? Please let me know. Thanks! Al in IL > << I am using an Albuterol inhaler right > now to help my breathing but this is only supposed to provide short- > term relief until I talk to my Rheumy.>> > > Hi Al, > > I had the same thing last month with chest pain and a feeling like it was > hard to take a breath. My MD gave me Albuterol, but it really only made me > jittery. When I talked to my rheumy about it, he said it was RA related. > > I hope it passes soon. > > Hugs, > Carol > > [ ] Re: Al - Blue Periods > > Hi , > > Thanks for your kind words. Naperville isn't as close as Gurnee but > who would think that 3 of us would be this close? So, is it safe to > assume you're a big Wildcat's fan? > > I am fortunate that there are many people I can talk to and am very > happy to have joined this group of wonderful folks, like yourself. > > I am only on Enbrel, but believe this will probably change soon in > light of recent developments. I am using an Albuterol inhaler right > now to help my breathing but this is only supposed to provide short- > term relief until I talk to my Rheumy. The " problem " with me is that > my liver is extremely sensitive to drugs with a high toxicity. I have > been on Methotrexate, Arava, Celebrex, Vioxx, Prednisone, and > Naproxyn. Either they bring me no relief or send my liver enzymes > skyrocketing. I still take a dosepack of Predinsone when I have a > flare. > > Again, thank you for writing back. I appreciate it. > > All my best, > > Al in IL > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Al, The only thing my rheumy said was that doing a prednisone taper when I get the chest pain would help the symptoms subside. He gives me prednisone with instructions that when I am having a flare, I should do a 20-15-10-5 (3 days ea) taper. Your rheumy may want to take another approach. Have you been getting any results from the Albuterol? When I get the chest pain it feels like tightness and constant pain in the lung area, that gets worse when I take a deep breath. The Albuterol didn't do much to help it. I hope you're feeling better soon! Hugs, Carol [ ] Re: Al - Blue Periods > > Hi , > > Thanks for your kind words. Naperville isn't as close as Gurnee but > who would think that 3 of us would be this close? So, is it safe to > assume you're a big Wildcat's fan? > > I am fortunate that there are many people I can talk to and am very > happy to have joined this group of wonderful folks, like yourself. > > I am only on Enbrel, but believe this will probably change soon in > light of recent developments. I am using an Albuterol inhaler right > now to help my breathing but this is only supposed to provide short- > term relief until I talk to my Rheumy. The " problem " with me is that > my liver is extremely sensitive to drugs with a high toxicity. I have > been on Methotrexate, Arava, Celebrex, Vioxx, Prednisone, and > Naproxyn. Either they bring me no relief or send my liver enzymes > skyrocketing. I still take a dosepack of Predinsone when I have a > flare. > > Again, thank you for writing back. I appreciate it. > > All my best, > > Al in IL > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Carol, I started to reply and was brought back to your message so if you get a partial reply, please disregard. Unfortunately, the Albuterol isn't helping much except making me a bit jittery after I take it. Although I would never talk myself into an illness, the definition of pulmonary hypertension on one of the links was kind enough to post shows symptoms that are almost identical to mine. Shortness of breath that gets worse while one exercises, lightheadedness, fatigue. I have been having all of these and they are progressively getting worse. I'll be curious to see what the results of my chest x-rays are. Thanks for your good wishes. Hugs, Al in IL > > << I am using an Albuterol inhaler right > > now to help my breathing but this is only supposed to provide short- > > term relief until I talk to my Rheumy.>> > > > > Hi Al, > > > > I had the same thing last month with chest pain and a feeling like > it was > > hard to take a breath. My MD gave me Albuterol, but it really only > made me > > jittery. When I talked to my rheumy about it, he said it was RA > related. > > > > I hope it passes soon. > > > > Hugs, > > Carol > > > > [ ] Re: Al - Blue Periods > > > > Hi , > > > > Thanks for your kind words. Naperville isn't as close as Gurnee but > > who would think that 3 of us would be this close? So, is it safe to > > assume you're a big Wildcat's fan? > > > > I am fortunate that there are many people I can talk to and am very > > happy to have joined this group of wonderful folks, like yourself. > > > > I am only on Enbrel, but believe this will probably change soon in > > light of recent developments. I am using an Albuterol inhaler right > > now to help my breathing but this is only supposed to provide short- > > term relief until I talk to my Rheumy. The " problem " with me is that > > my liver is extremely sensitive to drugs with a high toxicity. I > have > > been on Methotrexate, Arava, Celebrex, Vioxx, Prednisone, and > > Naproxyn. Either they bring me no relief or send my liver enzymes > > skyrocketing. I still take a dosepack of Predinsone when I have a > > flare. > > > > Again, thank you for writing back. I appreciate it. > > > > All my best, > > > > Al in IL > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Al: I have chronic asthma and know what it is like to be unable to take a breath without wheezing or coughing - not being able to breathe can be very scary. I take a steroid/bronchodialator med called Advair daily and hopefully this will help control my asthma. Before that, I was taking Flovent (another steroid) and Singulair tabs - the new med is a combination of these two types of meds so that I only have to take one thing now instead of two. I also have an Albuteral inhaler for acute attacks. It does cause you to be a little light headed and dizzy when you first take it but you should begin to tolerate it better with useage. I hope that you find out what is causing your lung problems - I always worry about RA causing lung problems with my having asthma anyway, and I hear that Metho can also aggravate the lungs. Let us know how you are doing - hope you are feeling better soon. Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi kathe, Thanks for the information and your concern. Coincidentally, my PCP is putting me on Advair because I am not getting the relief he expected with Albuterol. Luckily, I am able to breath but there is definitely a shortness of breath. My chest also has a heavy feeling and I feel out of it. My brain isn't working like it normally does. It's hard for me to stay focused for too long. And, I am tired and shaky. I am still waiting for most of my blood tests to come in. Haven't heard how my ANA, ESR, and CRP are, but my calcium levels are high. I take supplements for my osteo but it shouldn't cause these symptoms. I am curious to see what my chest x-rays look like. I have to have some more blood taken today but my PCP didn't tell me for what when he left the message on my voice-mail. I hate when they do that... I finally spoke to my rheumy and she is making sure I have the right tests given on Friday. They are going to do a pulmonary function test. If that's abnormal, a CT scan is next and we go from there. She also wants me in as soon as my tests are complete and is prescribing a dosepack for me. I have to be honest. The thought of not being able to breath normally again is pretty scary. I can only begin to imagine how horrific it is for you Kathe with your asthma. Take care. Al > Hi Al: > > I have chronic asthma and know what it is like to be > unable to take a breath without wheezing or coughing - > not being able to breathe can be very scary. I take a > steroid/bronchodialator med called Advair daily and > hopefully this will help control my asthma. Before > that, I was taking Flovent (another steroid) and > Singulair tabs - the new med is a combination of these > two types of meds so that I only have to take one > thing now instead of two. I also have an Albuteral > inhaler for acute attacks. It does cause you to be a > little light headed and dizzy when you first take it > but you should begin to tolerate it better with > useage. > I hope that you find out what is causing your lung > problems - I always worry about RA causing lung > problems with my having asthma anyway, and I hear that > Metho can also aggravate the lungs. Let us know how > you are doing - hope you are feeling better soon. > > Kathe in CA > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Hi Al, I have been on Advair as soon as it came onto the American market, about 18 months ago. Please watch the strength that the doc puts you on as the higher up you go, the more prednisone is in the inhaler. It is nice in that you only use it twice a day and it is a dry powder type of thing. I had a very bad asthma attack at Christmas and was given the 250 and I blew up like a Macy's Day Parade Float. Some of the weight did come off, but the water retention almost killed me (literally)! But generally,the benefits are great. I still keep my Albuteral inhaler for fast relief as Advair is a twice a day kind of thing. Ain't this disease great!!!!! Have a good one! Debs in FL Quote Link to comment Share on other sites More sharing options...
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