Musings about posts

[Guest guest]

Hi all,

I want to respond to several posts since I've been gone this past week.

First let me tell Sharon that to upload photos and view others you would

follow this link: http://health.groups.yahoo.com/group/Stillsdisease/ log

into your account and look for the photos line on the left. Go there and see

others and if you want just follow directions to create an album of your

own.

Dear , I am struck with the years you have had the damages of Still's

and saddened that your joints have progressed to such pain before being

replaced. I too, remember when my hips were approved for replacement so long

ago and I screamed with joy out the car window on the freeway going home

from UCLA Medical Center. I am thinking of you and your courage and hope

your replacements for all the major areas that need it comes soon.

Diane, I too am brought back to early very chronic days as you are right now

and feel your frustration and fear. My first experiences with falling were

at my mothers house and so I wasn't alone the first times but I did

eventually move out while still so ill and had a 3 year old daughter by that

time and was a single parent. I remember the sad days and fearful sick days

but it did turn out better than ok in the long run. I was alone as far as

anyone really knowing what it was like except for my mother and best friend

but we are here and do hear you and have the experiences and solutions to

share.

it is possible to have overlapping diseases from what I've been told

by a couple of other members that have been diagnosed here in the past. They

have since moved on so I cannot say how they have fared but if someone else

is out there I'm sure they will pop up or maybe you will end up an example

for others as Danni is to us.

and I went camping and had such a good time for 7 days. We yard saled,

picnicked at the park on the lake with my friends family and granddaughter

and watched fireworks with her. She is just 3 so is the first year so got so

into it yelling " Happy Birthday USA " It was another week of birthday

celebrations with my friends, ' tomorrow and more in this month to

come.

My flip side was the swelling of my feet and legs again though. Just as I

left they were normal again after the past 3 weeks from going to Laughlin,

my birthday and the heat and then again they are as big as my knees almost

from my feet all the way up to my knees. I hurt all over today and feel

feverish and the Lasix at 80mg kept me from any rest until now. Even my face

hurt I was so filled with fluid that my sinuses and all have been so

painful. So I have just made pretty miserable all day and tried to

mellow as the evening has worn on and even turned the television off for a

half hour just to have the calm of the evening and the fan. The good side is

I'm losing a lot of fluid fast and should be down to normal again soon I'm

thinking.

Oh and one last thing is Larry thank you for the appreciation. I wanted to

tell you that members before me such as Cat and Jay created the

rules and guidelines for the group and they used to post at the first of

each month and for some reason a while ago Yahoo quit posting it. So, while

I was in working last week I reassigned it to do so and it seemed to stick

so maybe it will regenerate as it should on a monthly basis.

So, with all that, thank you for reading and talk soon,

____________________________________________________________

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