Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Hi...I live just NW of Portland, Penny. Debbie lives in Dallas, Rainy lives in Vancouver, and there's another lady who lives out in Hillsboro (lie????). We're all here on this crazy journey with you...please know you're not alone - though I know it feels like at times. Love & Hope.... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 Question is WHY do they come back? DO you just not get them all- or is it you're immune system? Barb > > " Your Candida is possibly pseudomonades aueriganosa " What's wrong > with > > Candida being Candida ..whats wrong with Fluconazole & Nysatin both > > prescription fungal antibiotics ..being effective against fungi > > > > Fact is, the homework has been done... back in 1999 The Mayo clinic > > published, after long research & clinical studies that chronic > sinusitis was > > infact fungal based ... > > Your symptoms are classic yeast & co-infections . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 *If* you have borrelia and certain genetics,the borrelia initiates an immune defect. > > > " Your Candida is possibly pseudomonades aueriganosa " What's wrong > > with > > > Candida being Candida ..whats wrong with Fluconazole & Nysatin > both > > > prescription fungal antibiotics ..being effective against fungi > > > > > > Fact is, the homework has been done... back in 1999 The Mayo > clinic > > > published, after long research & clinical studies that chronic > > sinusitis was > > > infact fungal based ... > > > Your symptoms are classic yeast & co-infections . > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 " Barb Peck " > Question is WHY do they come back? > DO you just not get them all- or is it you're immune system? Yeah, the $64,000 question. I honestly don't think we get them all. If you've got a focal infection in a place that's hard to reach, it just reseeds the infection no matter how many times you knock it back. I'm far better than I was a couple of years ago, but this has been my story over and over. I just need to figure out how to eradicate it once and for all. That's why I'd love to do what Tony does with the cultures and sensistivities. Unfortunately, infection in jaw bone can spread really easily because of the dentin tubules, so even if you remove a part of the bone, there's no guarantee that will stop it. In my case, after surgery, the infection spread to the next teeth. :-( These infections also create fistulas, little tunnels that go back and forth between the sinuses and the jaw, so it's really, really hard to completely eradicate something so evasive. And it seems to have spread to other parts of my body as well since I've developed a kind of body wide arthritis (that the Benicar's relieving, but otherwise, it would still be there). I mean, heck, here I've been on abx all this time, you'd think I'd have no organisms at all, but it's not the case. I seem to be functioning quite fine gut wise, etc., so obviously these abx can't kill everything. I'd just like to kill enough of the right ones, so that my immune system can mop up the rest. I do sometimes think I'll be on abx for the rest of my life. penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Penny As you can observe someone like our friend taking antibiotics long term and possably underdone has profuse growths in her last lab reports.People think abx equals less bacteria, I observe underdoing abx using the wrong ones equals more bacteria. tony > " Barb Peck " > > Question is WHY do they come back? > > DO you just not get them all- or is it you're immune system? > > Yeah, the $64,000 question. > > I honestly don't think we get them all. If you've got a focal > infection in a place that's hard to reach, it just reseeds the > infection no matter how many times you knock it back. > > I'm far better than I was a couple of years ago, but this has been > my story over and over. I just need to figure out how to eradicate > it once and for all. That's why I'd love to do what Tony does with > the cultures and sensistivities. > > Unfortunately, infection in jaw bone can spread really easily > because of the dentin tubules, so even if you remove a part of the > bone, there's no guarantee that will stop it. In my case, after > surgery, the infection spread to the next teeth. :-( These > infections also create fistulas, little tunnels that go back and > forth between the sinuses and the jaw, so it's really, really hard > to completely eradicate something so evasive. And it seems to have > spread to other parts of my body as well since I've developed a kind > of body wide arthritis (that the Benicar's relieving, but otherwise, > it would still be there). > > I mean, heck, here I've been on abx all this time, you'd think I'd > have no organisms at all, but it's not the case. I seem to be > functioning quite fine gut wise, etc., so obviously these abx can't > kill everything. I'd just like to kill enough of the right ones, so > that my immune system can mop up the rest. > > I do sometimes think I'll be on abx for the rest of my life. > > penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Okay...can I send you some swabs in the mail? Or does that allow too much contamination, time for harmless commensals to grow or whatever? > > " Barb Peck " > > > Question is WHY do they come back? > > > DO you just not get them all- or is it you're immune system? > > > > Yeah, the $64,000 question. > > > > I honestly don't think we get them all. If you've got a focal > > infection in a place that's hard to reach, it just reseeds the > > infection no matter how many times you knock it back. > > > > I'm far better than I was a couple of years ago, but this has been > > my story over and over. I just need to figure out how to eradicate > > it once and for all. That's why I'd love to do what Tony does with > > the cultures and sensistivities. > > > > Unfortunately, infection in jaw bone can spread really easily > > because of the dentin tubules, so even if you remove a part of the > > bone, there's no guarantee that will stop it. In my case, after > > surgery, the infection spread to the next teeth. :-( These > > infections also create fistulas, little tunnels that go back and > > forth between the sinuses and the jaw, so it's really, really hard > > to completely eradicate something so evasive. And it seems to have > > spread to other parts of my body as well since I've developed a > kind > > of body wide arthritis (that the Benicar's relieving, but > otherwise, > > it would still be there). > > > > I mean, heck, here I've been on abx all this time, you'd think I'd > > have no organisms at all, but it's not the case. I seem to be > > functioning quite fine gut wise, etc., so obviously these abx > can't > > kill everything. I'd just like to kill enough of the right ones, > so > > that my immune system can mop up the rest. > > > > I do sometimes think I'll be on abx for the rest of my life. > > > > penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Jill Yeah you could it would just mean I need to go and get supplies which is like frankston way.I live in northcote.the dandenongs are near frankston.I suppose I need to have a reason to go stock up. tony > > > " Barb Peck " > > > > Question is WHY do they come back? > > > > DO you just not get them all- or is it you're immune system? > > > > > > Yeah, the $64,000 question. > > > > > > I honestly don't think we get them all. If you've got a focal > > > infection in a place that's hard to reach, it just reseeds the > > > infection no matter how many times you knock it back. > > > > > > I'm far better than I was a couple of years ago, but this has > been > > > my story over and over. I just need to figure out how to > eradicate > > > it once and for all. That's why I'd love to do what Tony does > with > > > the cultures and sensistivities. > > > > > > Unfortunately, infection in jaw bone can spread really easily > > > because of the dentin tubules, so even if you remove a part of > the > > > bone, there's no guarantee that will stop it. In my case, after > > > surgery, the infection spread to the next teeth. :-( These > > > infections also create fistulas, little tunnels that go back and > > > forth between the sinuses and the jaw, so it's really, really > hard > > > to completely eradicate something so evasive. And it seems to > have > > > spread to other parts of my body as well since I've developed a > > kind > > > of body wide arthritis (that the Benicar's relieving, but > > otherwise, > > > it would still be there). > > > > > > I mean, heck, here I've been on abx all this time, you'd think > I'd > > > have no organisms at all, but it's not the case. I seem to be > > > functioning quite fine gut wise, etc., so obviously these abx > > can't > > > kill everything. I'd just like to kill enough of the right ones, > > so > > > that my immune system can mop up the rest. > > > > > > I do sometimes think I'll be on abx for the rest of my life. > > > > > > penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Jill Basically you use a swab kit called amii's or stuarts media. It's a cotton bud that gets place in a gel tube because you don't want to loose anything the gel keeps it alive for months. > > > " Barb Peck " > > > > Question is WHY do they come back? > > > > DO you just not get them all- or is it you're immune system? > > > > > > Yeah, the $64,000 question. > > > > > > I honestly don't think we get them all. If you've got a focal > > > infection in a place that's hard to reach, it just reseeds the > > > infection no matter how many times you knock it back. > > > > > > I'm far better than I was a couple of years ago, but this has > been > > > my story over and over. I just need to figure out how to > eradicate > > > it once and for all. That's why I'd love to do what Tony does > with > > > the cultures and sensistivities. > > > > > > Unfortunately, infection in jaw bone can spread really easily > > > because of the dentin tubules, so even if you remove a part of > the > > > bone, there's no guarantee that will stop it. In my case, after > > > surgery, the infection spread to the next teeth. :-( These > > > infections also create fistulas, little tunnels that go back and > > > forth between the sinuses and the jaw, so it's really, really > hard > > > to completely eradicate something so evasive. And it seems to > have > > > spread to other parts of my body as well since I've developed a > > kind > > > of body wide arthritis (that the Benicar's relieving, but > > otherwise, > > > it would still be there). > > > > > > I mean, heck, here I've been on abx all this time, you'd think > I'd > > > have no organisms at all, but it's not the case. I seem to be > > > functioning quite fine gut wise, etc., so obviously these abx > > can't > > > kill everything. I'd just like to kill enough of the right ones, > > so > > > that my immune system can mop up the rest. > > > > > > I do sometimes think I'll be on abx for the rest of my life. > > > > > > penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 I think my post got lost. I think I will do this if you're up for it Tony, at your own timing. I'll find it interesting. What do people swab--oral mucosa? Nose? Tonsils? And/or do you prick your finger and also put your blood on a swab? I wish I had time to learn more. I was talking today with the doctor who'd given me hyperbaric in her clinic...family has since been knocked pretty flat by lyme and coinfections (all but the youngest son). They lived in a wooded area and got repeated tickbites. Anyway, she studied enough microscopy (got her own, whatever she got, I forget, high powered tho) to be able to analyze her own and others blood in real time (not fixed slides) and confirm with 2 experts. She has twice seen babesia killed--going from inside the erythrocyte to dead in the extracellular space by a hyperbaric oxygen session but then she said it would come back within days. I do know that as the month has passed without my chamber...I've gotten worse and more reclusive. But its repaired now and will arrive back here on Monday. However she says its rare to see spirochetes in the blood, since they prefer tissue, and tissue that is poorly perfused of course. I would be curious to look at my blood before and after hyperbaric. I do notice that the next day it is much more red (if I go get a vitamin/mineral drip). > > > > " Barb Peck " > > > > > Question is WHY do they come back? > > > > > DO you just not get them all- or is it you're immune system? > > > > > > > > Yeah, the $64,000 question. > > > > > > > > I honestly don't think we get them all. If you've got a focal > > > > infection in a place that's hard to reach, it just reseeds the > > > > infection no matter how many times you knock it back. > > > > > > > > I'm far better than I was a couple of years ago, but this has > > been > > > > my story over and over. I just need to figure out how to > > eradicate > > > > it once and for all. That's why I'd love to do what Tony does > > with > > > > the cultures and sensistivities. > > > > > > > > Unfortunately, infection in jaw bone can spread really easily > > > > because of the dentin tubules, so even if you remove a part of > > the > > > > bone, there's no guarantee that will stop it. In my case, > after > > > > surgery, the infection spread to the next teeth. :-( These > > > > infections also create fistulas, little tunnels that go back > and > > > > forth between the sinuses and the jaw, so it's really, really > > hard > > > > to completely eradicate something so evasive. And it seems to > > have > > > > spread to other parts of my body as well since I've developed > a > > > kind > > > > of body wide arthritis (that the Benicar's relieving, but > > > otherwise, > > > > it would still be there). > > > > > > > > I mean, heck, here I've been on abx all this time, you'd think > > I'd > > > > have no organisms at all, but it's not the case. I seem to be > > > > functioning quite fine gut wise, etc., so obviously these abx > > > can't > > > > kill everything. I'd just like to kill enough of the right > ones, > > > so > > > > that my immune system can mop up the rest. > > > > > > > > I do sometimes think I'll be on abx for the rest of my life. > > > > > > > > penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Jill, Tony probably doesn't want to say it, but he's been advised not to do that for the public any more. One, there's the problem with customs (swabs can be delayed for months, or not make it at all), and two, there are people on these forums who flip out over small things and have accused him of practicing medicine without a license (or funnier, trying to make money) even when he's just trying to help out of the goodness of his heart. Plus there's the cost of the materials he needs to buy. Those abx discs aren't cheap, plus there's the agar medium, etc. AND, last but not least, you need to test frequently, which isn't practical with him being in Australia. A lot of people have had him test their organisms and haven't helped cover those expenses at all. It's really better to find a way to get tested here. Bummber about Esoterix being closed. Next best thing is to use a hospital/university lab, one that will follow your doc's instructions not to throw away any of the growths and/or will give them more time to grow. Sometimes, with some organisms, you have to get them to the lab within 15 minutes; that's another advantage of using a local hospital lab. penny > Okay...can I send you some swabs in the mail? Or does that allow too > much contamination, time for harmless commensals to grow or whatever? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 He seems so outspoken I think he would just say it if he felt it. Tony, just say what you think. If you don't want to, just feel free to say it. I am just curious. He would not be practicing medicine without a license. Why would customs look at them? My ex is Australian so frequently stuff went back and forth btw here and there. Usually if I sent it global priority it took about a week. I will say I interviewed a top scientist who has a 7000 sq foot lab at a university here. I plan to profile him soon. Maybe I can befriend him. I'd like to see what a hyperbaric session does to my blood, and what salt/C does. Seems like I could see if organism growth was reduced. I don't mind buying a microscope, I just don't have the $ for all those plates he mentioned. > > Okay...can I send you some swabs in the mail? Or does that allow > too > > much contamination, time for harmless commensals to grow or > whatever? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 " deb obrien " <DebOB@p...> wrote: > a year and a half ago i tested completely neg for lyme (on all tests) but pos for two separate babs tests...retested a month or so ago, babs almost gone and lyme starting to turn pos... Which is perfectly common, because the dead bugs give the IS a fighting chance at identifying the target, which it has to do before it can form antibodies. That is also the rational for the Igenex test (NOT their Western Blot) that the CDC has singled out for suspicion - a test that involves administering abx and then measuring borrelial DNA in urine. Bb is hardly alone in this respect. The bugs that Nelly posted about recently, the species of mycoplasma implicated in a hefty chunk of recurrent pediatric respiratory tract infections, also require sophisticated PCR and serology tests. You just don't see papers like the NYT going out of their way to discredit those tests - no need, since they aren't performed in this country enough to tax the greed of managed are conglomerates. > a year and a half ago i tested completely neg for lyme (on all tests) but pos for two separate babs tests...retested a month or so ago, babs almost gone and lyme starting to turn pos... > deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2005 Report Share Posted August 27, 2005 Guys What seems to be overlooked with all your testing is all your minor symptoms from previous years. Many have allergies, asthma, ENDOMETREOSIS- before the lyme diagnosis.It's silly to hang your hats on bad science.I think a lyme diagnosis is bonza for getting some form of treatment, but if you had your internals removed I would get them cultured for staph areus, coagulase negative staph, pseudonomads, and vancomycin resistant enterococcus for a real time, real bug, chance for a cure.I would put the mycoplasma and lyme diagnosis on the back burner while trying to get myself better understood.Actually a better chance of understanding why you have so much scar tissue and diseased skeleton would be to use the pcr test looking for toxins instaed of remnants of who knows what. When you do clamydia and gonococcal pcr urine they look for toxins or bacterial remnants to give you a diagnosis. I find the amount of extreme damage- like someone has gone to town on your internals with acid needs more understanding than what is being dished up. I know this is not a popular point of view, just something to consider. The encephalitis part of the picture is also being totally overlooked. if you suffer neck stiffness and headaches and you have or haven't diagnosed your sinus disease, your not doing yourself any real favours. > > a year and a half ago i tested completely neg for lyme (on all > tests) but pos for two separate babs tests...retested a month or so > ago, babs almost gone and lyme starting to turn pos... > > deb Quote Link to comment Share on other sites More sharing options...
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