Re: Any contacts from Canada

[Guest guest]

Hello Mike and welcome to the group.Im and live in Edmonton,Canada,im

happy your doing fairly well with Stills so far 60hr week nice.I consider myself

one of the very fortunate,my Disease was active on and off for just over 2 yrs

it hit like a Ton of Bricks at the start like yours.I have been in Remmision now

for over 3yrs,luckily with no real jiont damage although my neck still gives me

trouble its nothing majour.I spent 6 weeks in the resort also,acully being

misdiagnosed with Mono after the first visit.We also have Marilynn from

Toronto,hope she is enjoying the Spring like weather there having there ,she

acully has Rhumitoid arthritis but is a valuable member of our tight group.Cat

the president is also Canadian,she lives in beutiful British Columbia. who

was at the conference this year is also from Canada and works in the same town

as Patti Abbotsford who I havent heard from forever and hope she is still doing

well.We can all relate to the amount of testing and pain you have been

through,are you still on medications? I have been off all the meds for long time

and only hope my luck continues for a long time.Welcome Mike the Survivor.

d.Canada Dragon Slayer

Any contacts from Canada

My name is Mike Wellman and i call myself a Stills survivor.

I feel the daily joint pain. This disease blindsided me in June of

2007, I had never heard of it and fell ill one day and five days later

i was in hospital for 5 weeks. Many CT scan, ultrasounds, bone marrow

testing, spinal taps later it was called this wonderful disease of

exclusion, Stills disease. I had a team of about 1o doctors here in

Winnipeg, MB, Canada, but now I am realizing just how rare this reall

is. Is there anybody from this group who would be anywhere near me in

winnipeg, canada?

I love hearing everybody's comments. I don't think I am in bad shape

considering all I went through, I am back working 2 jobs about 60 hours

a week, but wonder if I am just hurting myself in the long run. But i

have to support my wife and I have 4 wonderful children.

Please give me your thoughts and feedback and any and all contacts

would be great, up to this point I have been in denial and felt very

alone.

[Guest guest]

Hello Mike

Welcome. I'm . I'm a nursing student and mother of one from western NC. I

was diagnosed with Stills in Sept 1996. I have had several very ggod years

and several really crummy ones since then. Welcome!

</HTML>

[Guest guest]

Nice to hear from you , I have friends and family in Edmonton. It is

encouraging to hear you have been in remission so long. I am not really on any

meds. I have Naproxen if i need it but very rarely do I take it. When you first

got sick was your iron levels through the roof? I found that the weirdest, they

say the normal is 300 and mine was at 13000. Yeah I was surprised at how hard

and fast it hit me and I hope I never have to go through that again. I found the

evening fevers the worst, the cold and then the sweat.

Wonderful to hear form you and I will keep in touch. If you don't mind me

asking how old are you?

Docken wrote:

Hello Mike and welcome to the group.Im and live in

Edmonton,Canada,im happy your doing fairly well with Stills so far 60hr week

nice.I consider myself one of the very fortunate,my Disease was active on and

off for just over 2 yrs it hit like a Ton of Bricks at the start like yours.I

have been in Remmision now for over 3yrs,luckily with no real jiont damage

although my neck still gives me trouble its nothing majour.I spent 6 weeks in

the resort also,acully being misdiagnosed with Mono after the first visit.We

also have Marilynn from Toronto,hope she is enjoying the Spring like weather

there having there ,she acully has Rhumitoid arthritis but is a valuable

member of our tight group.Cat the president is also Canadian,she lives in

beutiful British Columbia. who was at the conference this year is also from

Canada and works in the same town as Patti Abbotsford who I havent heard from

forever and hope she is still doing well.We can all relate to the amount

of testing and pain you have been through,are you still on medications? I have

been off all the meds for long time and only hope my luck continues for a long

time.Welcome Mike the Survivor. d.Canada Dragon Slayer

Any contacts from Canada

My name is Mike Wellman and i call myself a Stills survivor.

I feel the daily joint pain. This disease blindsided me in June of

2007, I had never heard of it and fell ill one day and five days later

i was in hospital for 5 weeks. Many CT scan, ultrasounds, bone marrow

testing, spinal taps later it was called this wonderful disease of

exclusion, Stills disease. I had a team of about 1o doctors here in

Winnipeg, MB, Canada, but now I am realizing just how rare this reall

is. Is there anybody from this group who would be anywhere near me in

winnipeg, canada?

I love hearing everybody's comments. I don't think I am in bad shape

considering all I went through, I am back working 2 jobs about 60 hours

a week, but wonder if I am just hurting myself in the long run. But i

have to support my wife and I have 4 wonderful children.

Please give me your thoughts and feedback and any and all contacts

would be great, up to this point I have been in denial and felt very

alone.

[Guest guest]

Thank you ,

I appreciate being able to communicate with people who have fought the good

fight for years, it encourages me that I will have hope for the future. Please

drop me a line anytime and tkae it one day at a time and hope your health treats

you well.

Mike form Winnipeg

Elissadwho@... wrote:

Hello Mike

Welcome. I'm . I'm a nursing student and mother of one from western NC. I

was diagnosed with Stills in Sept 1996. I have had several very ggod years

and several really crummy ones since then. Welcome!

</HTML>

[Guest guest]

Hey ,

How was the weekend man? Mine wasn't so bad, busy as hell. Kids had hockey,

soccer, theatre group. I worked on Friday and saturday nights doing the chinese

delivery thing, went swimming with the family on Sunday, fought with the wife

for the better part of Sunday, monday. Felt like crap yesterday, i think just

the stress of scrapping with the wife sets my body off. But it is Tuesday and I

am off and running again, gotta pull a double again today, 16 hours can't go too

fast for me. Are you a hockey fan? At least you still have an NHL team to watch.

We have the Moose an AHL team, couldn't bore me more and you also have a WHL

team, I would brather watch that, at least the kids are hungry. A buddy of mine

in Calgay boards Calgary hitmen, was there a few years ago for his wedding and

got to hang out with Getzlaf of the Anaaheim Mighty Ducks and Pogge

form the Leaf s, was pretty cool, good guys, but they sure can drink!

Later man!

Mike

Docken wrote:

Hello Mike and welcome to the group.Im and live in

Edmonton,Canada,im happy your doing fairly well with Stills so far 60hr week

nice.I consider myself one of the very fortunate,my Disease was active on and

off for just over 2 yrs it hit like a Ton of Bricks at the start like yours.I

have been in Remmision now for over 3yrs,luckily with no real jiont damage

although my neck still gives me trouble its nothing majour.I spent 6 weeks in

the resort also,acully being misdiagnosed with Mono after the first visit.We

also have Marilynn from Toronto,hope she is enjoying the Spring like weather

there having there ,she acully has Rhumitoid arthritis but is a valuable

member of our tight group.Cat the president is also Canadian,she lives in

beutiful British Columbia. who was at the conference this year is also from

Canada and works in the same town as Patti Abbotsford who I havent heard from

forever and hope she is still doing well.We can all relate to the amount

of testing and pain you have been through,are you still on medications? I have

been off all the meds for long time and only hope my luck continues for a long

time.Welcome Mike the Survivor. d.Canada Dragon Slayer

Any contacts from Canada

My name is Mike Wellman and i call myself a Stills survivor.

I feel the daily joint pain. This disease blindsided me in June of

2007, I had never heard of it and fell ill one day and five days later

i was in hospital for 5 weeks. Many CT scan, ultrasounds, bone marrow

testing, spinal taps later it was called this wonderful disease of

exclusion, Stills disease. I had a team of about 1o doctors here in

Winnipeg, MB, Canada, but now I am realizing just how rare this reall

is. Is there anybody from this group who would be anywhere near me in

winnipeg, canada?

I love hearing everybody's comments. I don't think I am in bad shape

considering all I went through, I am back working 2 jobs about 60 hours

a week, but wonder if I am just hurting myself in the long run. But i

have to support my wife and I have 4 wonderful children.

Please give me your thoughts and feedback and any and all contacts

would be great, up to this point I have been in denial and felt very

alone.

[Guest guest]

You Canucks continue to torture my ass! We don't get to see much hockey

hear, let alone meet Hockey Stars! The best I have is the NHL network where

I can get my highlights each night, but they rarely have a game on,

especially one with MY team in it....GO AVS!!!

For years I truly believed that the USA was by far the best place in the

world to live, but Canada is looking better & better all of the time with

the exception of the weather!!!!

If I could somehow combine the climate of Texas with Canada I'd move

there in a heartbeat...instead I'm stuck here in good ol' shitty

Pennsylvania.... the state that has so much corruption & waste that they are

going to turn the FEDERAL highways in the state into toll roads!!! I figure

that way they can hire more of their relatives to lucrative " do nothing "

jobs with lifetime benefits & such..........meanwhile they'll continue to

tax the shit out of us " middle class " folks until we no longer exist.

Just a rant, and a salute to you Canucks!

Kirk

>

> Hey ,

>

> How was the weekend man? Mine wasn't so bad, busy as hell. Kids had

> hockey, soccer, theatre group. I worked on Friday and saturday nights doing

> the chinese delivery thing, went swimming with the family on Sunday, fought

> with the wife for the better part of Sunday, monday. Felt like crap

> yesterday, i think just the stress of scrapping with the wife sets my body

> off. But it is Tuesday and I am off and running again, gotta pull a double

> again today, 16 hours can't go too fast for me. Are you a hockey fan? At

> least you still have an NHL team to watch. We have the Moose an AHL team,

> couldn't bore me more and you also have a WHL team, I would brather watch

> that, at least the kids are hungry. A buddy of mine in Calgay boards Calgary

> hitmen, was there a few years ago for his wedding and got to hang out with

> Getzlaf of the Anaaheim Mighty Ducks and Pogge form the Leaf s,

> was pretty cool, good guys, but they sure can drink!

>

> Later man!

>

> Mike

>

> Docken <nickelme@... <nickelme%40shaw.ca>> wrote:

> Hello Mike and welcome to the group.Im and live in

> Edmonton,Canada,im happy your doing fairly well with Stills so far 60hr week

> nice.I consider myself one of the very fortunate,my Disease was active on

> and off for just over 2 yrs it hit like a Ton of Bricks at the start like

> yours.I have been in Remmision now for over 3yrs,luckily with no real

> jiont damage although my neck still gives me trouble its nothing majour.Ispent

6 weeks in the resort also,acully being misdiagnosed with Mono after

> the first visit.We also have Marilynn from Toronto,hope she is enjoying

> the Spring like weather there having there ,she acully has Rhumitoid

> arthritis but is a valuable member of our tight group.Cat the president is

> also Canadian,she lives in beutiful British Columbia. who was at the

> conference this year is also from Canada and works in the same town as Patti

> Abbotsford who I havent heard from forever and hope she is still doing

> well.We can all relate to the amount

> of testing and pain you have been through,are you still on medications? I

> have been off all the meds for long time and only hope my luck continues for

> a long time.Welcome Mike the Survivor. d.Canada Dragon Slayer

> Any contacts from Canada

>

> My name is Mike Wellman and i call myself a Stills survivor.

>

> I feel the daily joint pain. This disease blindsided me in June of

> 2007, I had never heard of it and fell ill one day and five days later

> i was in hospital for 5 weeks. Many CT scan, ultrasounds, bone marrow

> testing, spinal taps later it was called this wonderful disease of

> exclusion, Stills disease. I had a team of about 1o doctors here in

> Winnipeg, MB, Canada, but now I am realizing just how rare this reall

> is. Is there anybody from this group who would be anywhere near me in

> winnipeg, canada?

>

> I love hearing everybody's comments. I don't think I am in bad shape

> considering all I went through, I am back working 2 jobs about 60 hours

> a week, but wonder if I am just hurting myself in the long run. But i

> have to support my wife and I have 4 wonderful children.

>

> Please give me your thoughts and feedback and any and all contacts

> would be great, up to this point I have been in denial and felt very

> alone.

>

>