Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Congratulations, dear Carol! This is groooooooovy, baby! My name is Foxy Cleopatra and I'm a WHOLE lotta woman! Oops...got carried away....(yes, I like Austin Powers, too!) I pray this will be the key to feeling SO much better!!!! And I'm glad you're putting safety first with the hotel in case you are really tired. This is definately a yippppppppeeeeeeeeee! Much Love & Many Hugs.... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 That's shagadelic baby! I love those movies also! Carol, that's great news! I am so happy for you and pray all goes well. Take care. Al > Congratulations, dear Carol! This is groooooooovy, baby! My name is > Foxy Cleopatra and I'm a WHOLE lotta woman! Oops...got carried > away....(yes, I like Austin Powers, too!) > > I pray this will be the key to feeling SO much better!!!! And I'm glad > you're putting safety first with the hotel in case you are really tired. > > This is definately a yippppppppeeeeeeeeee! > > Much Love & Many Hugs.... > > Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Congratulations, Carol! What wonderful news for you. I'm sure you will keep us up on how it goes. Good luck with your final. Iris --- Carol <carol@...> wrote: > Sorry, I couldn't a little Austin Powers-ism.(she > says as she blushes > profusely for liking Austin Powers). > > Well, I'm in the study!!! I have my first infusion > this Tuesday. The DEXA > bone scan showed my bone density is normal for my > age, which was added good > news. The study doctor said he thinks I have > moderate to severe RA, so it > was nice (and bad!) to have corroboration of my > rheumy's diagnosis. We > didn't discuss the back problem very much, because > it's not really hurting > right now. He did say that I have obvious > peripheral involvement (hands and > feet). He also said he could feel inflammation in > my chest wall that he > would consider RA related. I know I've been > avoiding wearing a bra at home > because it hurts so much, but compared to other > times my chest has hurt, > this is pretty minimal. Anyway, the study > rheumatologist was a very nice > man. He spent a lot of time examining me, and then > about a half hour > answering my questions about the biologics. He said > he's had such good > results, he's to the point he gives his newly > diagnosed patients the option > of starting on a biologic immediately. I know > there's the chance that this > won't do much for me, but I certainly feel great > having hope for feeling > better. The past few months have been really rough, > as I'm sure all of you > can relate to. > > He asked me how long I've had symptoms and I told > him over 3 years before I > talked to the Dr. about it, which it was probably > more like four, but oh > well. When I told him I tried dietary modifications > first, he really perked > up. He asked me what worked, and I told him I've > most recently been doing > wheat and dairy, but after adding them both back, > I'm convinced dairy is > more a culprit than wheat. He said " you have really > good instincts. " He's > been working on a study at the University of Florida > that was sponsored by > some people out of CA trying to prove that RA is > could be completely cured > by diet. That failed miserably, he said, but they > did show using capsules > of different foods (with no additives to corrupt the > results) that avoiding > dairy and meat can reduce symptoms in some. Not > eliminate, by far, but > reduce. I don't know if the study has been > published yet, but something to > look for. I've tried avoiding all meat, but I > really felt crummy. But I do > feel the dairy is significant for me. Especially > milk. > > Oh, one more cool thing. Stan wanted me to make a > reservation for a hotel > for Tuesday so I don't drive 2 plus hours after the > infusion. I went to > hotwire.com and got a room for $44 --- at the > Doubletree! That's the nicest > place in Gainesville. Very cool. > > Well, back to reality. I have a final in my > Database Admin. class to take > on Monday night, so I need to start focusing on > that. > > I hope everyone is having a good day, and is ready > for a nice weekend. > > Love and hugs, > Carol > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 cool carol!! go and study!!! kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 Hey Carol, congratulations!! I am very excited for you to be given this opportunity and hope that Remicade works wonders for you! Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 Hooray!!! I¹m so happy for you Carol!!!! All this good news is just so uplifting!!! May you have the same immediate good results that our other members have reported. I¹ll have to look for that study. I¹m sorry that it failed. I¹ve read a lot of convincing data that supports the idea. I¹m a testimonial that giving up meat and dairy are beneficial. It¹s made a world of difference to me. I¹ll occasionally eat mozzarella cheese. I have become accustomed to rice milk. 3 members of my family have given up meat and feel much better because of it. Keep the faith Carol. Yes, it hasn¹t worked for some, but it¹s helped the majority of people that have tried it. I like your doctor! Giving newly diagnosed patients biologicals instead of making them go through the gamut of meds!! Good for him. Hope you have a good weekend. Good luck on your final. Hugs, a > Sorry, I couldn't a little Austin Powers-ism.(she says as she blushes > profusely for liking Austin Powers). > > Well, I'm in the study!!! I have my first infusion this Tuesday. The DEXA > bone scan showed my bone density is normal for my age, which was added good > news. The study doctor said he thinks I have moderate to severe RA, so it > was nice (and bad!) to have corroboration of my rheumy's diagnosis. We > didn't discuss the back problem very much, because it's not really hurting > right now. He did say that I have obvious peripheral involvement (hands and > feet). He also said he could feel inflammation in my chest wall that he > would consider RA related. I know I've been avoiding wearing a bra at home > because it hurts so much, but compared to other times my chest has hurt, > this is pretty minimal. Anyway, the study rheumatologist was a very nice > man. He spent a lot of time examining me, and then about a half hour > answering my questions about the biologics. He said he's had such good > results, he's to the point he gives his newly diagnosed patients the option > of starting on a biologic immediately. I know there's the chance that this > won't do much for me, but I certainly feel great having hope for feeling > better. The past few months have been really rough, as I'm sure all of you > can relate to. > > He asked me how long I've had symptoms and I told him over 3 years before I > talked to the Dr. about it, which it was probably more like four, but oh > well. When I told him I tried dietary modifications first, he really perked > up. He asked me what worked, and I told him I've most recently been doing > wheat and dairy, but after adding them both back, I'm convinced dairy is > more a culprit than wheat. He said " you have really good instincts. " He's > been working on a study at the University of Florida that was sponsored by > some people out of CA trying to prove that RA is could be completely cured > by diet. That failed miserably, he said, but they did show using capsules > of different foods (with no additives to corrupt the results) that avoiding > dairy and meat can reduce symptoms in some. Not eliminate, by far, but > reduce. I don't know if the study has been published yet, but something to > look for. I've tried avoiding all meat, but I really felt crummy. But I do > feel the dairy is significant for me. Especially milk. > > Oh, one more cool thing. Stan wanted me to make a reservation for a hotel > for Tuesday so I don't drive 2 plus hours after the infusion. I went to > hotwire.com and got a room for $44 --- at the Doubletree! That's the nicest > place in Gainesville. Very cool. > > Well, back to reality. I have a final in my Database Admin. class to take > on Monday night, so I need to start focusing on that. > > I hope everyone is having a good day, and is ready for a nice weekend. > > Love and hugs, > Carol > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 Carol: Congratulations I am so happy for you and hope it brings the results you deserve...Kathi in OK --- Carol <carol@...> wrote: > Sorry, I couldn't a little Austin Powers-ism.(she > says as she blushes > profusely for liking Austin Powers). > > Well, I'm in the study!!! I have my first infusion > this Tuesday. The DEXA > bone scan showed my bone density is normal for my > age, which was added good > news. The study doctor said he thinks I have > moderate to severe RA, so it > was nice (and bad!) to have corroboration of my > rheumy's diagnosis. We > didn't discuss the back problem very much, because > it's not really hurting > right now. He did say that I have obvious > peripheral involvement (hands and > feet). He also said he could feel inflammation in > my chest wall that he > would consider RA related. I know I've been > avoiding wearing a bra at home > because it hurts so much, but compared to other > times my chest has hurt, > this is pretty minimal. Anyway, the study > rheumatologist was a very nice > man. He spent a lot of time examining me, and then > about a half hour > answering my questions about the biologics. He said > he's had such good > results, he's to the point he gives his newly > diagnosed patients the option > of starting on a biologic immediately. I know > there's the chance that this > won't do much for me, but I certainly feel great > having hope for feeling > better. The past few months have been really rough, > as I'm sure all of you > can relate to. > > He asked me how long I've had symptoms and I told > him over 3 years before I > talked to the Dr. about it, which it was probably > more like four, but oh > well. When I told him I tried dietary modifications > first, he really perked > up. He asked me what worked, and I told him I've > most recently been doing > wheat and dairy, but after adding them both back, > I'm convinced dairy is > more a culprit than wheat. He said " you have really > good instincts. " He's > been working on a study at the University of Florida > that was sponsored by > some people out of CA trying to prove that RA is > could be completely cured > by diet. That failed miserably, he said, but they > did show using capsules > of different foods (with no additives to corrupt the > results) that avoiding > dairy and meat can reduce symptoms in some. Not > eliminate, by far, but > reduce. I don't know if the study has been > published yet, but something to > look for. I've tried avoiding all meat, but I > really felt crummy. But I do > feel the dairy is significant for me. Especially > milk. > > Oh, one more cool thing. Stan wanted me to make a > reservation for a hotel > for Tuesday so I don't drive 2 plus hours after the > infusion. I went to > hotwire.com and got a room for $44 --- at the > Doubletree! That's the nicest > place in Gainesville. Very cool. > > Well, back to reality. I have a final in my > Database Admin. class to take > on Monday night, so I need to start focusing on > that. > > I hope everyone is having a good day, and is ready > for a nice weekend. > > Love and hugs, > Carol > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 Way to go Ethel! Approved for the study and a doctor who is willing to LISTEN to you!!!!! It had to be a really long day for you yesterday, but I bet you flew on cloud 9 driving those 2 hours! It was probably the best medicine that they could have ever given you! With all of your hard work and perseverance, I am sure that God will grant you some relief while using this medication. The dietary changes that are effective is also God's way of healing you as the Bible says that every disease known to man has a cure written somewhere in the Bible. Ah, He does work in mysterious ways! Enjoy your weekend, you deserve it so richly. Your mental attitude is going to help the Remicade work even better! I will talk to you soon, sweetie! Love, Lucy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Groovy, baby! Oh, behave! Carol, that is the most wonderful news. I will be following you in your Remicade study most interestedly and enthusiastically. The rheumatologist sounds very nice, thorough, too. Great! As an aside, I never ate much meat throughout my life, but dairy was a daily item - and lots of it. I have it occasionally and in very small amounts now, but I feel much better without it in my diet. I also must admit that I liked the first Austin Powers movie VERY, VERY much, and I find Mike Myers irresistible. The best of luck to you! International Woman of Mystery [ ] Yeah, Baby! > Sorry, I couldn't a little Austin Powers-ism.(she says as she blushes > profusely for liking Austin Powers). > > Well, I'm in the study!!! I have my first infusion this Tuesday. The DEXA > bone scan showed my bone density is normal for my age, which was added good > news. The study doctor said he thinks I have moderate to severe RA, so it > was nice (and bad!) to have corroboration of my rheumy's diagnosis. We > didn't discuss the back problem very much, because it's not really hurting > right now. He did say that I have obvious peripheral involvement (hands and > feet). He also said he could feel inflammation in my chest wall that he > would consider RA related. I know I've been avoiding wearing a bra at home > because it hurts so much, but compared to other times my chest has hurt, > this is pretty minimal. Anyway, the study rheumatologist was a very nice > man. He spent a lot of time examining me, and then about a half hour > answering my questions about the biologics. He said he's had such good > results, he's to the point he gives his newly diagnosed patients the option > of starting on a biologic immediately. I know there's the chance that this > won't do much for me, but I certainly feel great having hope for feeling > better. The past few months have been really rough, as I'm sure all of you > can relate to. > > He asked me how long I've had symptoms and I told him over 3 years before I > talked to the Dr. about it, which it was probably more like four, but oh > well. When I told him I tried dietary modifications first, he really perked > up. He asked me what worked, and I told him I've most recently been doing > wheat and dairy, but after adding them both back, I'm convinced dairy is > more a culprit than wheat. He said " you have really good instincts. " He's > been working on a study at the University of Florida that was sponsored by > some people out of CA trying to prove that RA is could be completely cured > by diet. That failed miserably, he said, but they did show using capsules > of different foods (with no additives to corrupt the results) that avoiding > dairy and meat can reduce symptoms in some. Not eliminate, by far, but > reduce. I don't know if the study has been published yet, but something to > look for. I've tried avoiding all meat, but I really felt crummy. But I do > feel the dairy is significant for me. Especially milk. > > Oh, one more cool thing. Stan wanted me to make a reservation for a hotel > for Tuesday so I don't drive 2 plus hours after the infusion. I went to > hotwire.com and got a room for $44 --- at the Doubletree! That's the nicest > place in Gainesville. Very cool. > > Well, back to reality. I have a final in my Database Admin. class to take > on Monday night, so I need to start focusing on that. > > I hope everyone is having a good day, and is ready for a nice weekend. > > Love and hugs, > Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 Good for you Carol!!!! I really hope this works for you. We need another success story. Keep us posted. Stacey in PA Quote Link to comment Share on other sites More sharing options...
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