Update on Holly Jean

[Guest guest]

As per Dr.Khoury's advice we took Holly for a follow-up xray this

past week. Her last suprine xray taken about 8 weeks ago at

Children's in Alabama showed a 16 degree curve to the right (RVAD

unknown). At that time, Dr. Khoury cancelled the casting and advised

us to get another xray in 6 weeks. This was in part based on first

xray taken 4 weeks prior to that showing a 38 degree curve. However,

this first xray was taken in the standing position and since she was

only about 7 months old, i always questionned the validity of this

xray. Her most recent xray showed a curve of 27 degrees and an RVAD

of 18 (this is the first RVAD score we have received).

In sum-first xray standing- 38 degrees, RVAD unknown 1/11/07

second xray-supine-16 degrees, RVAD unknown 2/7/07

third xray-suprine-27 degrees, RVAD 18 4/3/07

Her back is looking better and she no longer has a visible hump on the

upper right side, but we can still see a curve.

At this point, Dr. Khoury is suggesting casting and we are inclined to

agree. Although he did say we could wait another 2 months for another

xray if we wanted to. They can get us in for casting on May 1 and she

will be almost 11 months old.

So point is, like has happened to others on this board, she looked

like she was getting better but may actually be getting worse. She did

wiggle during this last xray so that has given me a little bit of

doubt. Does anyone know if moving during the xray could affect the

RVAD score? Also, what are the side views used for, do they have

important diagnostic info? She definately did not move during the side

xray but moved during her supine xray. I am going to post the xrays

in the photos section.

Anyone else in Birmingham 4/30-5/2?

(mom to Holly 10 months, IS)