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Re: Sleepless in south Florida

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OK Kathi in OK

I am up too and don't think any sleep is in my future any time soon.

The pain and abdominal pain is unrelenting. I have been lurking since

yesterday, when I started feeling poorly. I have some severe lupus symptoms,

that have not been relieved either. My nephrologist can't clear me for

surgery as I have massive amounts of blood in my urine. So now this has to

be investigated.

So one else on the list wrote that there were too many postings and that we

had lost some members, so I am trying to keep my postings to the board at a

minimum. People have true needs out there and I don't want them to leave

over nonsense that I might be posting/

Thanks for being there to listen to me vent. My abdomen is so painful, the

pain is relentless. Even water is aggravating my symptoms. I think I am

going to have Ron take me to the ER tomorrow if for no other reason that to

get 4 hours of pain relief and have it documented that I was there and don't

have any other abdominal problems.

It is times like this, that you just get so overwhelmed that I can see what

leads people to do things that are irreversible. Hoping for a better day

tomorrow!

Hope this puts you to sleep if you are not there already. I will talk with

you soon!

Gentle, tender, Mr Sandman angel hugs,

Debs in FL

PS: We never did hear from Ron's parents again. It breaks Ron's heart and

it gets me pissed, but we now live our life as though they are gone already.

What a sad, sad situation. Ron's brother doesn't even call him anymore.

Even his brother hasn't called. Well, my family is no better....I called my

sister and told her that I was having surgery on Thursday. She told me that

she took off all this time with her husband and his condition when he

couldn't fart and therefore, he doesn't want her to take any more trips away

from him. so somehow I will manage again. Good night, sleep well and I will

talk with you tomorrow.

Debs in FL

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Debs, this is very distressing. What did you nephrologist suggest you do?

Please call the GI man! There is no sense in waiting any longer.

I am so sorry that you feeling worse and worse.

Re: [ ] Sleepless in south Florida

> OK Kathi in OK

>

> I am up too and don't think any sleep is in my future any time soon.

>

> The pain and abdominal pain is unrelenting. I have been lurking since

> yesterday, when I started feeling poorly. I have some severe lupus symptoms,

> that have not been relieved either. My nephrologist can't clear me for

> surgery as I have massive amounts of blood in my urine. So now this has to

> be investigated.

>

> So one else on the list wrote that there were too many postings and that we

> had lost some members, so I am trying to keep my postings to the board at a

> minimum. People have true needs out there and I don't want them to leave

> over nonsense that I might be posting/

>

> Thanks for being there to listen to me vent. My abdomen is so painful, the

> pain is relentless. Even water is aggravating my symptoms. I think I am

> going to have Ron take me to the ER tomorrow if for no other reason that to

> get 4 hours of pain relief and have it documented that I was there and don't

> have any other abdominal problems.

>

> It is times like this, that you just get so overwhelmed that I can see what

> leads people to do things that are irreversible. Hoping for a better day

> tomorrow!

>

> Hope this puts you to sleep if you are not there already. I will talk with

> you soon!

>

> Gentle, tender, Mr Sandman angel hugs,

>

> Debs in FL

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Hi Debs,

If you go to the ER, Don't go accepting whatever they offer, Demand

action They are working for you and you are not there for their

amusement. Kidney problems are not to be taken lightly. Mine shut

down totally twice when my Lupus was active. My weight went from 145

to over 300 (fluid retention) They used all types of meds to try and

get things going again. Finally I was placed on a gurney for

dialysis. The doctor checked me once more before proceeding and found

a slight weight loss. I was immediately put back in bed and the meds

increased. It was injectable Lasix that turned the tide. I remember

quite well the side effects of it. While it was being injected I got

the dry heaves and felt as if the whole exterior of my body was on

fire. Not a nice feeling but it was that or nothing. Please don't let

anyone jack you around, This is serious business. Best of luck.

Huggs

Lena

> Debs, this is very distressing. What did you nephrologist suggest

you do?

>

> Please call the GI man! There is no sense in waiting any longer.

>

> I am so sorry that you feeling worse and worse.

>

>

>

>

> Re: [ ] Sleepless in south Florida

>

>

> > OK Kathi in OK

> >

> > I am up too and don't think any sleep is in my future any time

soon.

> >

> > The pain and abdominal pain is unrelenting. I have been lurking

since

> > yesterday, when I started feeling poorly. I have some severe

lupus symptoms,

> > that have not been relieved either. My nephrologist can't clear

me for

> > surgery as I have massive amounts of blood in my urine. So now

this has to

> > be investigated.

> >

> > So one else on the list wrote that there were too many postings

and that we

> > had lost some members, so I am trying to keep my postings to the

board at a

> > minimum. People have true needs out there and I don't want them

to leave

> > over nonsense that I might be posting/

> >

> > Thanks for being there to listen to me vent. My abdomen is so

painful, the

> > pain is relentless. Even water is aggravating my symptoms. I

think I am

> > going to have Ron take me to the ER tomorrow if for no other

reason that to

> > get 4 hours of pain relief and have it documented that I was

there and don't

> > have any other abdominal problems.

> >

> > It is times like this, that you just get so overwhelmed that I

can see what

> > leads people to do things that are irreversible. Hoping for a

better day

> > tomorrow!

> >

> > Hope this puts you to sleep if you are not there already. I will

talk with

> > you soon!

> >

> > Gentle, tender, Mr Sandman angel hugs,

> >

> > Debs in FL

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Debs///aka Lucy...I wasnt already asleep but went to

watch the estrogen channel as my husband calls

it(Lifetime) in hopes it would lull me to sleep....I

am sorry you are still poorly.....everyone else is

giving advice on the to do so I wont repeat.....but at

some point you have got to do something...as far as

losing people and not posting I dont see what you post

as nonsense only good fun and chuckles which we all

need....as has been posted before they can recieve the

digest and not fill up their mail box or even opt to

go the the groups home and read the messages....hope

you get all this resolved soon....hugs from Kathi in

OK

--- Auntblabbie2000@... wrote:

> OK Kathi in OK

>

> I am up too and don't think any sleep is in my

> future any time soon.

>

> The pain and abdominal pain is unrelenting. I have

> been lurking since

> yesterday, when I started feeling poorly. I have

> some severe lupus symptoms,

> that have not been relieved either. My nephrologist

> can't clear me for

> surgery as I have massive amounts of blood in my

> urine. So now this has to

> be investigated.

>

> So one else on the list wrote that there were too

> many postings and that we

> had lost some members, so I am trying to keep my

> postings to the board at a

> minimum. People have true needs out there and I

> don't want them to leave

> over nonsense that I might be posting/

>

> Thanks for being there to listen to me vent. My

> abdomen is so painful, the

> pain is relentless. Even water is aggravating my

> symptoms. I think I am

> going to have Ron take me to the ER tomorrow if for

> no other reason that to

> get 4 hours of pain relief and have it documented

> that I was there and don't

> have any other abdominal problems.

>

> It is times like this, that you just get so

> overwhelmed that I can see what

> leads people to do things that are irreversible.

> Hoping for a better day

> tomorrow!

>

> Hope this puts you to sleep if you are not there

> already. I will talk with

> you soon!

>

> Gentle, tender, Mr Sandman angel hugs,

>

> Debs in FL

>

> PS: We never did hear from Ron's parents again. It

> breaks Ron's heart and

> it gets me pissed, but we now live our life as

> though they are gone already.

> What a sad, sad situation. Ron's brother doesn't

> even call him anymore.

> Even his brother hasn't called. Well, my family is

> no better....I called my

> sister and told her that I was having surgery on

> Thursday. She told me that

> she took off all this time with her husband and his

> condition when he

> couldn't fart and therefore, he doesn't want her to

> take any more trips away

> from him. so somehow I will manage again. Good

> night, sleep well and I will

> talk with you tomorrow.

>

>

>

> Debs in FL

>

__________________________________________________

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You're so right about this, Kathi. I wrote the exact same thing privately.

Deb's optimism and humor encourage and sustain me in the bad times, and just

plain give me joy in the good times. I go on digest version when I'm out of

town as to not overwhelm my mailbox, and for many people digest version is

probably a good option. I've been in a couple of other groups through the

years, and have always chosen digest version. I just happen to love y'all

so much that I want each and every email. ;-)

Love and hugs,

Carol

Re: [ ] Sleepless in south Florida

Debs///aka Lucy...I wasnt already asleep but went to

watch the estrogen channel as my husband calls

it(Lifetime) in hopes it would lull me to sleep....I

am sorry you are still poorly.....everyone else is

giving advice on the to do so I wont repeat.....but at

some point you have got to do something...as far as

losing people and not posting I dont see what you post

as nonsense only good fun and chuckles which we all

need....as has been posted before they can recieve the

digest and not fill up their mail box or even opt to

go the the groups home and read the messages....hope

you get all this resolved soon....hugs from Kathi in

OK

--- Auntblabbie2000@... wrote:

> OK Kathi in OK

>

> I am up too and don't think any sleep is in my

> future any time soon.

>

> The pain and abdominal pain is unrelenting. I have

> been lurking since

> yesterday, when I started feeling poorly. I have

> some severe lupus symptoms,

> that have not been relieved either. My nephrologist

> can't clear me for

> surgery as I have massive amounts of blood in my

> urine. So now this has to

> be investigated.

>

> So one else on the list wrote that there were too

> many postings and that we

> had lost some members, so I am trying to keep my

> postings to the board at a

> minimum. People have true needs out there and I

> don't want them to leave

> over nonsense that I might be posting/

>

> Thanks for being there to listen to me vent. My

> abdomen is so painful, the

> pain is relentless. Even water is aggravating my

> symptoms. I think I am

> going to have Ron take me to the ER tomorrow if for

> no other reason that to

> get 4 hours of pain relief and have it documented

> that I was there and don't

> have any other abdominal problems.

>

> It is times like this, that you just get so

> overwhelmed that I can see what

> leads people to do things that are irreversible.

> Hoping for a better day

> tomorrow!

>

> Hope this puts you to sleep if you are not there

> already. I will talk with

> you soon!

>

> Gentle, tender, Mr Sandman angel hugs,

>

> Debs in FL

>

> PS: We never did hear from Ron's parents again. It

> breaks Ron's heart and

> it gets me pissed, but we now live our life as

> though they are gone already.

> What a sad, sad situation. Ron's brother doesn't

> even call him anymore.

> Even his brother hasn't called. Well, my family is

> no better....I called my

> sister and told her that I was having surgery on

> Thursday. She told me that

> she took off all this time with her husband and his

> condition when he

> couldn't fart and therefore, he doesn't want her to

> take any more trips away

> from him. so somehow I will manage again. Good

> night, sleep well and I will

> talk with you tomorrow.

>

>

>

> Debs in FL

>

__________________________________________________

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Carol: You said it much better than I .....thanks...it

is exactly my feelings...Kathi in OK

--- Carol <carol@...> wrote:

> You're so right about this, Kathi. I wrote the

> exact same thing privately.

> Deb's optimism and humor encourage and sustain me in

> the bad times, and just

> plain give me joy in the good times. I go on digest

> version when I'm out of

> town as to not overwhelm my mailbox, and for many

> people digest version is

> probably a good option. I've been in a couple of

> other groups through the

> years, and have always chosen digest version. I

> just happen to love y'all

> so much that I want each and every email. ;-)

>

> Love and hugs,

> Carol

>

> Re: [ ] Sleepless in south Florida

>

> Debs///aka Lucy...I wasnt already asleep but went to

> watch the estrogen channel as my husband calls

> it(Lifetime) in hopes it would lull me to sleep....I

> am sorry you are still poorly.....everyone else is

> giving advice on the to do so I wont repeat.....but

> at

> some point you have got to do something...as far as

> losing people and not posting I dont see what you

> post

> as nonsense only good fun and chuckles which we all

> need....as has been posted before they can recieve

> the

> digest and not fill up their mail box or even opt to

> go the the groups home and read the messages....hope

> you get all this resolved soon....hugs from Kathi in

> OK

> --- Auntblabbie2000@... wrote:

> > OK Kathi in OK

> >

> > I am up too and don't think any sleep is in my

> > future any time soon.

> >

> > The pain and abdominal pain is unrelenting. I

> have

> > been lurking since

> > yesterday, when I started feeling poorly. I have

> > some severe lupus symptoms,

> > that have not been relieved either. My

> nephrologist

> > can't clear me for

> > surgery as I have massive amounts of blood in my

> > urine. So now this has to

> > be investigated.

> >

> > So one else on the list wrote that there were too

> > many postings and that we

> > had lost some members, so I am trying to keep my

> > postings to the board at a

> > minimum. People have true needs out there and I

> > don't want them to leave

> > over nonsense that I might be posting/

> >

> > Thanks for being there to listen to me vent. My

> > abdomen is so painful, the

> > pain is relentless. Even water is aggravating my

> > symptoms. I think I am

> > going to have Ron take me to the ER tomorrow if

> for

> > no other reason that to

> > get 4 hours of pain relief and have it documented

> > that I was there and don't

> > have any other abdominal problems.

> >

> > It is times like this, that you just get so

> > overwhelmed that I can see what

> > leads people to do things that are irreversible.

> > Hoping for a better day

> > tomorrow!

> >

> > Hope this puts you to sleep if you are not there

> > already. I will talk with

> > you soon!

> >

> > Gentle, tender, Mr Sandman angel hugs,

> >

> > Debs in FL

> >

> > PS: We never did hear from Ron's parents again.

> It

> > breaks Ron's heart and

> > it gets me pissed, but we now live our life as

> > though they are gone already.

> > What a sad, sad situation. Ron's brother doesn't

> > even call him anymore.

> > Even his brother hasn't called. Well, my family

> is

> > no better....I called my

> > sister and told her that I was having surgery on

> > Thursday. She told me that

> > she took off all this time with her husband and

> his

> > condition when he

> > couldn't fart and therefore, he doesn't want her

> to

> > take any more trips away

> > from him. so somehow I will manage again. Good

> > night, sleep well and I will

> > talk with you tomorrow.

> >

> >

> >

> > Debs in FL

> >

>

>

> __________________________________________________

>

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Hi Deb,

How are you doing today? I am so worried about you. Also, what Rons family

is doing is so wrong. Families can really make you feel bad but there is not

much you can do about. Let me know how the day is going.

Lynn (MeMom)

Auntblabbie2000@... wrote:

> OK Kathi in OK

>

> I am up too and don't think any sleep is in my future any time soon.

>

> The pain and abdominal pain is unrelenting. I have been lurking since

> yesterday, when I started feeling poorly. I have some severe lupus symptoms,

> that have not been relieved either. My nephrologist can't clear me for

> surgery as I have massive amounts of blood in my urine. So now this has to

> be investigated.

>

> So one else on the list wrote that there were too many postings and that we

> had lost some members, so I am trying to keep my postings to the board at a

> minimum. People have true needs out there and I don't want them to leave

> over nonsense that I might be posting/

>

> Thanks for being there to listen to me vent. My abdomen is so painful, the

> pain is relentless. Even water is aggravating my symptoms. I think I am

> going to have Ron take me to the ER tomorrow if for no other reason that to

> get 4 hours of pain relief and have it documented that I was there and don't

> have any other abdominal problems.

>

> It is times like this, that you just get so overwhelmed that I can see what

> leads people to do things that are irreversible. Hoping for a better day

> tomorrow!

>

> Hope this puts you to sleep if you are not there already. I will talk with

> you soon!

>

> Gentle, tender, Mr Sandman angel hugs,

>

> Debs in FL

>

> PS: We never did hear from Ron's parents again. It breaks Ron's heart and

> it gets me pissed, but we now live our life as though they are gone already.

> What a sad, sad situation. Ron's brother doesn't even call him anymore.

> Even his brother hasn't called. Well, my family is no better....I called my

> sister and told her that I was having surgery on Thursday. She told me that

> she took off all this time with her husband and his condition when he

> couldn't fart and therefore, he doesn't want her to take any more trips away

> from him. so somehow I will manage again. Good night, sleep well and I will

> talk with you tomorrow.

>

> Debs in FL

>

>

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Debs:

I agree with the others - you must go to the E.R. if

not for yourself, for your family and friends who need

you. I am so sorry that you are in such pain and it

must be so frustrating to be told to wait, and wait

for treatment. Go to the E.R. and demand that you be

given treatment, that you need to find out what is

going on, and that you cannot deal with this any

longer by yourself. These things you describe can be

very serious, even life-threatening, and we don't want

to loose you.

Your posts are wonderful - don't even think about

cutting them down - we need to talk about our problems

yes, but we also need to be friends and hear, as

friends do, whatever else is going on in our lives

that make us who we are. You have a great sense of

humor, a way with words, and we need this.

Again, please go to the E.R. as soon as possible -

take care of yourself, you come first right now, don't

feel as if you are complaining too much or bothering

anyone - just get it taken care of, okay??!! Let us

know how it goes.

Kathe in CA

__________________________________________________

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Debs,

I hope you went to the ER. You just can¹t go on like this. I¹m so worried

about you.

I have never seen you post any nonsense. I value everything you have to

say. You make us laugh even when we just want to cry. I feel I am the one

that posts more nonsense when I post a lot of info on food and nutrition

that maybe most aren¹t interested in reading. If I sent out a survey and

asked the group what they¹d like to read more of and less of, I can

guarantee that they want to read more about your cabana boys and the wheels

of denial! Please don¹t limit your posting in any way. We need the

laughter and you sure have a way of giving it to us!

I just wish you felt better and had good medical care. I pray that your

silence means that you are getting it. I don¹t see how they can do surgery

on Thursday with so much blood in your urine.

Hoping to hear from you soon.

Hugs,

a

> OK Kathi in OK

>

> I am up too and don't think any sleep is in my future any time soon.

>

> The pain and abdominal pain is unrelenting. I have been lurking since

> yesterday, when I started feeling poorly. I have some severe lupus symptoms,

> that have not been relieved either. My nephrologist can't clear me for

> surgery as I have massive amounts of blood in my urine. So now this has to

> be investigated.

>

> So one else on the list wrote that there were too many postings and that we

> had lost some members, so I am trying to keep my postings to the board at a

> minimum. People have true needs out there and I don't want them to leave

> over nonsense that I might be posting/

>

> Thanks for being there to listen to me vent. My abdomen is so painful, the

> pain is relentless. Even water is aggravating my symptoms. I think I am

> going to have Ron take me to the ER tomorrow if for no other reason that to

> get 4 hours of pain relief and have it documented that I was there and don't

> have any other abdominal problems.

>

> It is times like this, that you just get so overwhelmed that I can see what

> leads people to do things that are irreversible. Hoping for a better day

> tomorrow!

>

> Hope this puts you to sleep if you are not there already. I will talk with

> you soon!

>

> Gentle, tender, Mr Sandman angel hugs,

>

> Debs in FL

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Re: [ ] Sleepless in south Florida

Debs,

I hope you went to the ER. You just can¹t go on like this. I¹m so worried

about you.

I have never seen you post any nonsense. I value everything you have to

say. You make us laugh even when we just want to cry. I feel I am the one

that posts more nonsense when I post a lot of info on food and nutrition

that maybe most aren¹t interested in reading. If I sent out a survey and

asked the group what they¹d like to read more of and less of, I can

guarantee that they want to read more about your cabana boys and the wheels

of denial! Please don¹t limit your posting in any way. We need the

laughter and you sure have a way of giving it to us!

I just wish you felt better and had good medical care. I pray that your

silence means that you are getting it. I don¹t see how they can do surgery

on Thursday with so much blood in your urine.

Hoping to hear from you soon.

Hugs,

a

> OK Kathi in OK

>

> I am up too and don't think any sleep is in my future any time soon.

>

> The pain and abdominal pain is unrelenting. I have been lurking since

> yesterday, when I started feeling poorly. I have some severe lupus

symptoms,

> that have not been relieved either. My nephrologist can't clear me for

> surgery as I have massive amounts of blood in my urine. So now this has

to

> be investigated.

>

> So one else on the list wrote that there were too many postings and that

we

> had lost some members, so I am trying to keep my postings to the board at

a

> minimum. People have true needs out there and I don't want them to leave

> over nonsense that I might be posting/

>

> Thanks for being there to listen to me vent. My abdomen is so painful,

the

> pain is relentless. Even water is aggravating my symptoms. I think I am

> going to have Ron take me to the ER tomorrow if for no other reason that

to

> get 4 hours of pain relief and have it documented that I was there and

don't

> have any other abdominal problems.

>

> It is times like this, that you just get so overwhelmed that I can see

what

> leads people to do things that are irreversible. Hoping for a better day

> tomorrow!

>

> Hope this puts you to sleep if you are not there already. I will talk

with

> you soon!

>

> Gentle, tender, Mr Sandman angel hugs,

>

> Debs in FL

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<< If I sent out a survey and

asked the group what they¹d like to read more of and less of, I can

guarantee that they want to read more about your cabana boys and the wheels

of denial! >>

So true! But I love the nutritional and dietary stuff, too!

Love and hugs my friend,

Carol

Re: [ ] Sleepless in south Florida

Debs,

I hope you went to the ER. You just can¹t go on like this. I¹m so worried

about you.

I have never seen you post any nonsense. I value everything you have to

say. You make us laugh even when we just want to cry. I feel I am the one

that posts more nonsense when I post a lot of info on food and nutrition

that maybe most aren¹t interested in reading. If I sent out a survey and

asked the group what they¹d like to read more of and less of, I can

guarantee that they want to read more about your cabana boys and the wheels

of denial! Please don¹t limit your posting in any way. We need the

laughter and you sure have a way of giving it to us!

I just wish you felt better and had good medical care. I pray that your

silence means that you are getting it. I don¹t see how they can do surgery

on Thursday with so much blood in your urine.

Hoping to hear from you soon.

Hugs,

a

> OK Kathi in OK

>

> I am up too and don't think any sleep is in my future any time soon.

>

> The pain and abdominal pain is unrelenting. I have been lurking since

> yesterday, when I started feeling poorly. I have some severe lupus

symptoms,

> that have not been relieved either. My nephrologist can't clear me for

> surgery as I have massive amounts of blood in my urine. So now this has

to

> be investigated.

>

> So one else on the list wrote that there were too many postings and that

we

> had lost some members, so I am trying to keep my postings to the board at

a

> minimum. People have true needs out there and I don't want them to leave

> over nonsense that I might be posting/

>

> Thanks for being there to listen to me vent. My abdomen is so painful,

the

> pain is relentless. Even water is aggravating my symptoms. I think I am

> going to have Ron take me to the ER tomorrow if for no other reason that

to

> get 4 hours of pain relief and have it documented that I was there and

don't

> have any other abdominal problems.

>

> It is times like this, that you just get so overwhelmed that I can see

what

> leads people to do things that are irreversible. Hoping for a better day

> tomorrow!

>

> Hope this puts you to sleep if you are not there already. I will talk

with

> you soon!

>

> Gentle, tender, Mr Sandman angel hugs,

>

> Debs in FL

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I¹m glad to hear that Carol. Right now I am completely entranced with

additives, preservatives, nutrition and how it correlates to our diseases.

One thing I found that makes me wonder how strong the connection is, is the

fact that most people I know do not get the RDA (recommended daily

allowances) of most of the vitamins and minerals. Coupled with the

bombardment of additives and preservatives, it¹s no wonder our bodies have

lost the ability to heal itself. Although research points strongly to

genetics causing these diseases, it also points to nutrition and toxins

playing a big role. Since so many of us, me included, have no known genetic

link, how do we compare to those that have a genetic link? Is one¹s disease

more aggressive than the other¹s? These are the things that keep going

through my head as I look for anything to tie it all together. I just

don¹t want to fill the list with things no one wants to read, especially now

that our webpage is done and I can just fill that with all my musings and

articles.

Hugs,

a

> << If I sent out a survey and

> asked the group what they¹d like to read more of and less of, I can

> guarantee that they want to read more about your cabana boys and the wheels

> of denial! >>

>

> So true! But I love the nutritional and dietary stuff, too!

>

> Love and hugs my friend,

> Carol

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Oh Debs,

I am feeling so bad for you. We all know how it feels when the pain won't

stop and it is horribly frustrating. I also know how people can justify

jumping into an irreversible decision. A couple of weeks ago, a young man

jumped off the bridge just down the road. This bridge is notorious for

suicides and this man was successful. Many people wondered what could make

such a young man do something like this. It just goes to show that although

someone looks ok on the outside doesn't mean that they are ok on the inside

where you can't see it. Unfortunately most people just don't take the time

to get to know someone or to help them. I sincerely hope that you can find

some relief soon.

Many gentle hugs back to you

Stacey in PA

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I also agree with Carol and Kathy. I love your humor Debs. It keeps me

smiling in times of despair. And I don't know what I would do without the

cabana boy service that you provide. LOL

Love ya

Stacey in PA

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